how do you know if the MS is haulted?

[Guest guest]

I do not know if my MS is haulted. I do know that I started LDN in

Jan 2004 and I have not had any symtoms since ( Knock on wood) but

when I have gone for the last 2 MRI's they say that the lesions that

I had have not chnaged but that I have 2 more that were not there

before so I have no idea if it has helped or not but I am afraid to

stop LDN and find out!

> >

> > ,

> > I've been on LDN for only four months, but I still am having

increased

> > weaknesses and progressive symptoms. It has helped though with

a lot of

> > symptoms so I continue to take it.

> > Annette

> >

> =======

>

> I was diagnosed Progressive Relapsing MS in 1989 and 4.5mg LDN has

halted my progression 3 years July 11, 2006. I have done other

things to hopefully keep that good result, like doing a very strict

low carb diet(all my foods were organically grown) and eliminating

from that diet all dairy except for occasional organic butter and

organic cottage cheese. You need to be Sugar free(use stevia

sweetener from a healthfood store), wheat free, soy free, gluten

free, and dairy free as much as possible for 6 months. I did the

Atkins diet and adjusted it even stricter by eliminating almost all

dairy and wheat. I did this strict diet for 6 months making sure the

candida had was way down. I took and still do take many candida

ridding supplements and an anti-viral...L-Lysine 500mg twice per day,

(dairy free)-Acidophilus, Oil of Oregano, Olive Leaf Extract, Garlic

(lots of it), Caprylic Acid, Grapefruit Seed Extract.

>

> Milk Thistle for my liver.

>

> Adrenucleo(for adrenal exhaustion) and Enzimmune(to further boost

immune system) both by Enzyme Process(do a google search for Enzyme

Process).

>

> I take 4 Tart Cherry capsules per day by Solaray for inflammation.

>

> I take 4 CranActin cranberry capsules per day to keep bladder

infections away. I have not ha a bladder infection in 18 years since

I started taking cranberry capsules daily.

>

> I drink no coffee, no tea, no soft drinks. I stay clear of

aspartame and splenda.

>

> I drink water and lemonade made with stevia sweetener and fresh

squeezed organic lemons. Organic Herbal teas would be fine to drink.

>

> I exercised in a pool regularly, but any exercise/physical therapy

is good and I also get lymphatic drainage massage for my lymphatic

system.

>

> Note, if you do the strict low carb diet and you get extreme

fatigue, headaches, hives and such, welcome these symptoms as they

are an indication of healing.

>

> I try to get adequate sleep and keep my stress level as low as

possible. I've even had to go as far as dis-owning some relatives

and ditching some so-called friends who were making my life

stressful. I want to continue to do as well as I am now and nobody's

going to come along and cause me lots of stress and screw this up for

me, I will get rid of them if they do.

>

>

>

[Guest guest]

,

Did you see 's post on Sunday? she wrote:

" In regards to whether or not an MRI is accurate, I just have to

share…

About a year ago, my husband and I went to a MS conference. A great

local doctor spoke basically about how we really know close to

nothing about MS and how it works and how to truly fight it. It was

so refreshing to finally see a doctor admit that! Anyway, he

was heavily involved in various research projects and shared some

great insight with us. The one thing that stood out STRONGLY was a

series of MRI pictures….He had MRIs taken each month for about a year

with a couple of different patients. In one patient, there was

relatively no change during the time, but you could see a couple of

lesions…they stayed basically the same. In the other patient, it

showed masses of lesions, then a month later, those ones cleared away

and nothing, then the next month lesions in different places, etc…it

was constant change. Then he explained that the first on was someone

who was fine and as the study progressed had additional problems and

exacerbations. The one who had so much change going on he explained

was someone who was having NO ACTIVE symptoms or any problems with

their MS in any way. Their situation stayed the same over the course

of the study! It was SHOCKING to us….I'm sure it would be to most

doctors I know, to tell you the truth! He pointed out that

basically, the brain is in constant change, MRIs can help with some

things, but they are entirely unreliable and we need a better

method. So now I don't really care what my MRI says. It was

helpful to lead to my MS diagnosis which was then confirmed by a

spinal tap, but now I just can't believe them. I know I feel better

since I began LDN last year and I know that all other potential drugs

for MS scare the * & %)*( out of me, so I plan to stay with LDN `till

there is a cure. In the meantime, I get a kick out of hearing about

the latest study or some new wonder drug….I believe that each needs

to find what works for them and we al need to have hope for a cure

someday. Other than that, I'm happy with my basically no-side-effect

LDN and encourage anyone considering it to give it a chance.

in Las Vegas "

>

> I do not know if my MS is haulted. I do know that I started LDN in

> Jan 2004 and I have not had any symtoms since ( Knock on wood) but

> when I have gone for the last 2 MRI's they say that the lesions

that

> I had have not chnaged but that I have 2 more that were not there

> before so I have no idea if it has helped or not but I am afraid to

> stop LDN and find out!

>

>

[Guest guest]

Excellent point Christy. We have come to that conclusion also.

Aletha

[low dose naltrexone] Re: how do you know if the MS is haulted?

,

Did you see 's post on Sunday? she wrote:

" In regards to whether or not an MRI is accurate, I just have to

share.

About a year ago, my husband and I went to a MS conference. A great

local doctor spoke basically about how we really know close to

nothing about MS and how it works and how to truly fight it. It was

so refreshing to finally see a doctor admit that! Anyway, he

was heavily involved in various research projects and shared some

great insight with us. The one thing that stood out STRONGLY was a

series of MRI pictures..He had MRIs taken each month for about a year

with a couple of different patients. In one patient, there was

relatively no change during the time, but you could see a couple of

lesions.they stayed basically the same. In the other patient, it

showed masses of lesions, then a month later, those ones cleared away

and nothing, then the next month lesions in different places, etc.it

was constant change. Then he explained that the first on was someone

who was fine and as the study progressed had additional problems and

exacerbations. The one who had so much change going on he explained

was someone who was having NO ACTIVE symptoms or any problems with

their MS in any way. Their situation stayed the same over the course

of the study! It was SHOCKING to us..I'm sure it would be to most

doctors I know, to tell you the truth! He pointed out that

basically, the brain is in constant change, MRIs can help with some

things, but they are entirely unreliable and we need a better

method. So now I don't really care what my MRI says. It was

helpful to lead to my MS diagnosis which was then confirmed by a

spinal tap, but now I just can't believe them. I know I feel better

since I began LDN last year and I know that all other potential drugs

for MS scare the * & %)*( out of me, so I plan to stay with LDN `till

there is a cure. In the meantime, I get a kick out of hearing about

the latest study or some new wonder drug..I believe that each needs

to find what works for them and we al need to have hope for a cure

someday. Other than that, I'm happy with my basically no-side-effect

LDN and encourage anyone considering it to give it a chance.

in Las Vegas "

[Guest guest]

I find this one of the most encouraging signs in medicine that some doctors are now prepared to admit the truth that with some conditions they have not got a clue, that is the real catalyst for change, if they sit in an ivory tower pretending to be god then things will not change.