Re: Question about Lesions??

[Guest guest]

In regards to whether or not an MRI is accurate, I just have

to share…

About a year ago, my husband and I went to a MS

conference. A great local doctor spoke basically about how we really know

close to nothing about MS and how it works and how to truly fight

it. It was so refreshing to finally see a doctor admit that!

Anyway, he was heavily involved in various research projects and

shared some great insight with us. The one thing that stood out STRONGLY

was a series of MRI pictures….He had MRIs taken each month for about a

year with a couple of different patients. In one patient, there was

relatively no change during the time, but you could see a couple of lesions…they

stayed basically the same. In the other patient, it showed masses

of lesions, then a month later, those ones cleared away and nothing, then the

next month lesions in different places, etc…it was constant change.

Then he explained that the first on was someone who was fine and as the study

progressed had additional problems and exacerbations. The one who had so

much change going on he explained was someone who was having NO ACTIVE symptoms

or any problems with their MS in any way. Their situation stayed the same

over the course of the study! It was SHOCKING to us….I’m

sure it would be to most doctors I know, to tell you the truth! He

pointed out that basically, the brain is in constant change, MRIs can help with

some things, but they are entirely unreliable and we need a better

method. So now I don’t really care what my MRI

says. It was helpful to lead to my MS diagnosis which was then

confirmed by a spinal tap, but now I just can’t believe them.

I know I feel better since I began LDN last year and I know that all other

potential drugs for MS scare the * & %)*( out of me, so I plan to stay with

LDN ‘till there is a cure. In the meantime, I get a kick out of hearing

about the latest study or some new wonder drug….I believe that each needs

to find what works for them and we al need to have hope for a cure

someday. Other than that, I’m happy with my basically

no-side-effect LDN and encourage anyone considering it to give it a chance.

in Las Vegas

[Guest guest]

>

> In regards to whether or not an MRI is accurate, I just have to

share.

>

>

>

> About a year ago, my husband and I went to a MS conference. A

great local

> doctor spoke basically about how we really know close to nothing

about MS

> and how it works and how to truly fight it. It was so refreshing

to

> finally see a doctor admit that! Anyway, he was heavily

involved in

> various research projects and shared some great insight with us.

The one

> thing that stood out STRONGLY was a series of MRI pictures..He had

MRIs

> taken each month for about a year with a couple of different

patients. In

> one patient, there was relatively no change during the time, but

you could

> see a couple of lesions.they stayed basically the same. In the

other

> patient, it showed masses of lesions, then a month later, those

ones cleared

> away and nothing, then the next month lesions in different places,

etc.it

> was constant change. Then he explained that the first on was

someone who

> was fine and as the study progressed had additional problems and

> exacerbations. The one who had so much change going on he

explained was

> someone who was having NO ACTIVE symptoms or any problems with

their MS in

> any way. Their situation stayed the same over the course of the

study! It

> was SHOCKING to us..I'm sure it would be to most doctors I know, to

tell you

> the truth! He pointed out that basically, the brain is in

constant change,

> MRIs can help with some things, but they are entirely unreliable

and we need

> a better method. So now I don't really care what my MRI says.

It was

> helpful to lead to my MS diagnosis which was then confirmed by a

spinal tap,

> but now I just can't believe them. I know I feel better since I

began LDN

> last year and I know that all other potential drugs for MS scare

the * & %)*(

> out of me, so I plan to stay with LDN 'till there is a cure. In the

> meantime, I get a kick out of hearing about the latest study or

some new

> wonder drug..I believe that each needs to find what works for them

and we al

> need to have hope for a cure someday. Other than that, I'm happy

with my

> basically no-side-effect LDN and encourage anyone considering it to

give it

> a chance.

>

>

>

> in Las Vegas

>What a great read .Since my MRI last week I have been in a

funk to learn of my new lesion, and feeling discouraged, also scared %

@#less about learning that tons of lesions can sometimes cause

nothing and a few can cause disability.I was under the impression

disability declines as each lesion reflares, so not the case! So I am

kind of trying to digest that since I feel I have been believing the

wrong thing for a year and scared to wake up each morning! I feel I

have done wonderful for the last year on LDN and am trying to reset

my mind to hope for the best! I mean what can we possibly do anyway?

Absolutely nothing but try what we have and hope for the best!