Dosage question

[Guest guest]

I am on 7 days a week 100mg 2xday

I also have used probiotics,including LGG and diet, supplements, and have had no problems with yeast, etc.(Im knocking on wood as I type)

June

In a message dated 12/2/2000 2:00:42 PM Eastern Standard Time, thunderchicken57@... writes:

What dose of Minocin have you all found to be the most effective? 100

mg 2 x a day, 5 days a week? Every day? M-W-F?

Or does it work better to start at 100 mg MWF and slowly increase?

Thanks! Going to talk to the doc this week and get this added to the

regime. Ann

[Guest guest]

Hi Ann

The dose Dr. Brown used was 100 mg. 2x MWF, however, because of dosing

used on recent studies, some doctors are prescribing 100 mg. 2x every

day. My feeling is that is a bit much and does increase your chances of

herxing or suffering a complicating reaction. I think it's better to

start slow and build up than to take more than your system can handle,

feel crappy and drop out of the treatment. Some people are able to

start at the higher dose without problems but many others find it very

difficult to do that. For myself, I take 100 mg. each week day because

I can tolerate a total of 500 mg. in a week without a problem. When I

try to add in that last 100 mg. to get to Dr. Brown's protocol dosage, I

end up with stomach trouble so I feel I'm better to stick to this

dosage. Had I not eased my way up and discovered this, I might have

felt I couldn't tolerate mino at all and given up so I definitely think

starting slow is wise, particularly if your doctor is not proficient at

AP and able to help if you do have a severe herx or reaction. Good

luck.

Hugs

a Peden

MA wrote:

>

> What dose of Minocin have you all found to be the most effective? 100

> mg 2 x a day, 5 days a week? Every day? M-W-F?

>

> Or does it work better to start at 100 mg MWF and slowly increase?...

>

>

[Guest guest]

Dear Ann, Like your other emails, I would definitely suggest you start

at a lower dose and then up as you can tolerate. My doctor is Dr. Sinnott

and I started at 100 mg. twice daily MWF and have never moved from there.

He says patience is the key as that this works! The only thing he ever

changed for me is that he started me out the with clindy iv's five day

regime every six months and one every month and then upped that to every

three months and one every other week. In other words, he became more

aggressive after I was used to it. Love, .....and we will be

thinking of you. Let us know how you are doing.

MA wrote:

> What dose of Minocin have you all found to be the most effective? 100

> mg 2 x a day, 5 days a week? Every day? M-W-F?

>

> Or does it work better to start at 100 mg MWF and slowly increase?

>

> Thanks! Going to talk to the doc this week and get this added to the

> regime. Ann

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Dr Chiu put me on 100mg twice a day MWF for two weeks. Then I was to decide

if I was tolerating it well and if so up the dosage to 7 days a week. It

was up to me to take it up there as I could handle it. As it happened I

handled it fine. He said that it would be good to knock it hard quickly

since I had not long been diagnosed, (or sentiments like that in doctor

talk.)

Gail

> From: MA <thunderchicken57@...>

> Date: Sat, 02 Dec 2000 11:10:30 -0800

> " rheumaticegroups " <rheumaticegroups>

> Subject: rheumatic Dosage question

>

> What dose of Minocin have you all found to be the most effective? 100

> mg 2 x a day, 5 days a week? Every day? M-W-F?

>

> Or does it work better to start at 100 mg MWF and slowly increase?

>

> Thanks! Going to talk to the doc this week and get this added to the

> regime. Ann

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

[Guest guest]

Roni,

I have been on 200mg a day for well over a year now and have had no side

effects...actually, to be honest I haven't been taking ANYTHING for about a

month now...I am taking a short drug vacation....I am starting the Minocin

back up this week....you will find a a few different dosages being taken by

folks in this group....Some people can't handle the 200mgs a day and have to

cut to a lower dosage....personally, I believe it is a bit better to take

the 200mg a day....at least for me....seems to make sense that it would be a

little more effective BUT that is just a personal opinion....many in this

group have had great results with the M/W/F treatment, or other

treatments....Glad to hear that you have a doc that is willing to let you

try the AP...many are not...some, like mine, do it just to placate us...

Blessings and Health

Tony

rheumatic dosage question

> Hello everyone:

>

> I need some experienced advice. I've been doing some

> reading on the AP and the suggested dosage. I explained

> earlier that my doctor is new to AP so he is learning as

> I am. My rheumatologist (whom I saw this week) is

> suggesting that I take minonin 200 mg a day. For long

> term is this safe? Anyone have any experience with this

> dosage and effects? Thanks again!

> Roni

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

[Guest guest]

Dear Roni, Perhaps you need to do something which I did for my own local

doctor who is just learning the AP. I have Dr. Sinnott as my primary care

physician but in between the visits, I have one here in Montana who is

willing but not knowledgeable - but now getting there! I copied off ALL of

the doctors' info for him, a few of the case stories, the diet etc. - took

an entire ream of paper. I purchased him his own copy of THE NEW

ARTHRITIS BREAKTHROUGH. I knew if his interest was so little that he did

not read this that he was not the doctor for me. If I am putting a lot of

energy into this, I expected him to have some, also. My guess into his

interest and concern proved correct. Not only did he READ everything, but

he then ordered several copies of THE NEW ARTHRITIS BREAKTHROUGH which he

keeps in his big treatment room for his patients to peruse while they are

there having chelation therapy. And as of last week, he is on the AP

himself for his arthritis. The only problem with this is his treatment

room is usually packed with patients doing chelation therapy and I am his

guinea pig " star " . As a result, he puts my drip really slow and leaves me

out there to answer all questions of those having any interest, and then

will FINALLY pop out just before I turn another birthday and ask me if I

have finished answering all questions before unhooking me! I guess that is

a small price to pay in return for watching a physician GROW in knowledge

right before my eyes. I have a lot more trust in a physician who will

acknowledge that he does not know it all and is willing to learn.

Now that I have related that story, which was for a reason, I would

suggest you go back and reread your own copy of the book. Writing this to

you has tweaked me that it has been a while since I reread my own copy so

will also pull mine out. I personally believe in this treatment. I believe

in its safety. Those of us with scleraderma will be on this definitely for

the rest of our lives. That is such a tiny price to pay for a life back. -

and I don't mean a life of illness but of wellness. My dosage with Minocin

began with 100 mg. twice daily on MWF and has remained there for over a year

now. My iv clindys were upped during the year to 900 mg. every other week

and then five days of 900 mg. a day every three months. And I am moving! I

have not gone back to read your old messages but think you were rheumatoid

arthritis. I do believe there are some oldies who are now drug free - that

will not be an option for me in regard to the Minocin, but I am comfortable

with it. The only effects I had at the beginning were the diziness etc.

which you already read about here at the site in some previous posts and

that passed quickly. So in answer to your question, the 200 mg is where I

started and remain and I do just fine. If the herxes are too bad for you,

back down and build up to that dosage. More than likely, you will do fine

if you keep the attitude that the herxes are positive signs, not negative

ones, and you can grit your teeth and go through them to the other side.

What I am impressed about is that you are obviously not going to be a

" passive " participant in your disease but one who intends to learn more than

the doctor and to " be there " in the decisions. I call that a winner. Go

reread your book. If you don't think you have time, put it in the bathroom.

You will have time then! Love,

rb09322@... wrote:

> Hello everyone:

>

> I need some experienced advice. I've been doing some

> reading on the AP and the suggested dosage. I explained

> earlier that my doctor is new to AP so he is learning as

> I am. My rheumatologist (whom I saw this week) is

> suggesting that I take minonin 200 mg a day. For long

> term is this safe? Anyone have any experience with this

> dosage and effects? Thanks again!

> Roni

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

[Guest guest]

Hi there! I have a question about dosage for LDN and would appreciate

any feedback; my doctor is unfamiliar with LDN and therefore can't

really help me with this. I have RMMS and have been on the 3mg dose of

LDN for a little over two months. I haven't noticed any improvement in

my symptoms (and I do know that it takes time), and if anything my

walking (spacticity, drop-foot, etc.) seems to have gotten a little

worse. I worked my way up to 3mg, and I thought I noticed improvement

while taking 2mg. I know that the optimum dose is 3mg, but has anybody

out there experienced that maybe for some an even lower dose is

better? I am generally extremely sensitive to medication, but

thankfully I haven't had any sleeplessness with the LDN at the 3mg

dose even when I first moved up to it. I did however have slight sleep

disturbances for the first few nights at 2mg. This is my first posting

and I'm not very familiar with webgroups, so I hope I gave enough info

to solicit some responses. Thank you for any help you can offer!

[Guest guest]

I went to the LDN Homepage and clicked on the 2006 conference. Then scroll down to Skip's Lenz's talk and click on 'complete audio'.

Listen to his talk. He explains a lot that I didn't know and talks about the sleeplessness. It isn't a bad thing as I thought it was. His talk is very helpful.

Peg

-- [low dose naltrexone] Dosage question

Hi there! I have a question about dosage for LDN and would appreciateany feedback; my doctor is unfamiliar with LDN and therefore can'treally help me with this. I have RMMS and have been on the 3mg dose ofLDN for a little over two months. I haven't noticed any improvement inmy symptoms (and I do know that it takes time), and if anything mywalking (spacticity, drop-foot, etc.) seems to have gotten a littleworse. I worked my way up to 3mg, and I thought I noticed improvementwhile taking 2mg. I know that the optimum dose is 3mg, but has anybodyout there experienced that maybe for some an even lower dose isbetter? I am generally extremely sensitive to medication, butthankfully I haven't had any sleeplessness with the LDN at the 3mgdose even when I first moved up to it. I did however have slight sleepdisturbances for the first few nights at 2mg. This is my first postingand I'm not very familiar with webgroups, so I hope I gave enough infoto solicit some responses. Thank you for any help you can offer!

[Guest guest]

According to

http://www.low dose naltrexone.org/#What_dosage_and_frequency:

What dosage and frequency should my physician prescribe?

The usual adult dosage is 4.5mg taken once daily at night. Because of

the rhythms of the body's production of master hormones, LDN is best

taken between 9pm and 3am. Most patients take it at bedtime.

People who have multiple sclerosis that has led to muscle spasms are

advised to use only 3mg daily and to maintain that dosage.

Rarely, the naltrexone may need to be purchased as a solution — in

distilled water — with 1mg per ml dispensed with a 5ml medicine

dropper. If LDN is used in a liquid form, it is important to keep it

refrigerated.

The therapeutic dosage range for LDN is from 1.75mg to 4.5mg every

night. Dosages below this range are likely to have no effect at all,

and dosages above this range are likely to block endorphins for too

long a period of time and interfere with its effectiveness.

> IMPORTANT: Make sure to specify that you do NOT want LDN in a slow-

release form (see above).

However, you may want to post your question on LDN_Users as well

for further feedback.

--- In low dose naltrexone , " a_widony " <awidony@...>

wrote:

>

> Hi there! I have a question about dosage for LDN and would

appreciate

> any feedback; my doctor is unfamiliar with LDN and therefore can't

> really help me with this. I have RMMS and have been on the 3mg dose

of

> LDN for a little over two months. I haven't noticed any improvement

in

> my symptoms (and I do know that it takes time), and if anything my

> walking (spacticity, drop-foot, etc.) seems to have gotten a little

> worse. I worked my way up to 3mg, and I thought I noticed

improvement

> while taking 2mg. I know that the optimum dose is 3mg, but has

anybody

> out there experienced that maybe for some an even lower dose is

> better? I am generally extremely sensitive to medication, but

> thankfully I haven't had any sleeplessness with the LDN at the 3mg

> dose even when I first moved up to it. I did however have slight

sleep

> disturbances for the first few nights at 2mg. This is my first

posting

> and I'm not very familiar with webgroups, so I hope I gave enough

info

> to solicit some responses. Thank you for any help you can offer!

>

[Guest guest]

A tough question. Some on this group have said higher doses have caused

them spasticity and reducing the dose helped. Dr. Bihari, I believe,

says 4.5 mg is the optimum dose, but enourages people to take less if

higher doses affect them negatively. I have read that 1.75 mg is the

minimum recommended dose. If 2 mg worked for you but you're looking for

better results and you are unsure of 3 mg, you could try 2.5 mg?

a_widony wrote:

>Hi there! I have a question about dosage for LDN and would appreciate

>any feedback; my doctor is unfamiliar with LDN and therefore can't

>really help me with this. I have RMMS and have been on the 3mg dose of

>LDN for a little over two months. I haven't noticed any improvement in

>my symptoms (and I do know that it takes time), and if anything my

>walking (spacticity, drop-foot, etc.) seems to have gotten a little

>worse. I worked my way up to 3mg, and I thought I noticed improvement

>while taking 2mg. I know that the optimum dose is 3mg, but has anybody

>out there experienced that maybe for some an even lower dose is

>better? I am generally extremely sensitive to medication, but

>thankfully I haven't had any sleeplessness with the LDN at the 3mg

>dose even when I first moved up to it. I did however have slight sleep

>disturbances for the first few nights at 2mg. This is my first posting

>and I'm not very familiar with webgroups, so I hope I gave enough info

>to solicit some responses. Thank you for any help you can offer!

>

>

>

>

>

>

>

>

[Guest guest]

From previous osta over the last couple of years, it is my understanding that Dr B feels anything less than 3 mg doesn't stop progression.

To a_widony - I only got bladder relief from the ldn, no other symptom improvement, and that took 8 months. It is recommended to give the ldn at least 6-9 months. The thing that ldn is supposed to do, is stop progression, any symptom relief is a bonus.

Regards,

Arlene (ldn since April, 2004)

-------------- Original message -------------- From: Wesley <inspirfe@...> > A tough question. Some on this group have said higher doses have caused > them spasticity and reducing the dose helped. Dr. Bihari, I believe, > says 4.5 mg is the optimum dose, but enourages people to take less if > higher doses affect them negatively. I have read that 1.75 mg is the > minimum recommended dose. If 2 mg worked for you but you're looking for > better results and you are unsure of 3 mg, you could try 2.5 mg? > > > a_widony wrote: > > >Hi there! I have a question about dosage for LDN and would appreciate > >any feedback; my doctor is unfamiliar with LDN and therefore can't > >really help me with this. I have RMMS and have been on the 3mg dose of > >LDN for a little over two mo

nths. I haven't noticed any improvement in > >my symptoms (and I do know that it takes time), and if anything my > >walking (spacticity, drop-foot, etc.) seems to have gotten a little > >worse. I worked my way up to 3mg, and I thought I noticed improvement > >while taking 2mg. I know that the optimum dose is 3mg, but has anybody > >out there experienced that maybe for some an even lower dose is > >better?

[Guest guest]

We are giving mega doses - yes its the adult size. I think that at

some point I may be able to decrease the omega dose now that less

should be oxidized " theoretically " with vitamin E. But at the moment I

don't want to mess with what is working. -claudia

> ,

>

> You say you give 9 EFA's in 3 doses. Are you using the Pro-EFA

(adult

> size) or the 3-6-9 junior (which are small and half the dosage). It

> gets a little confusing because of the different forms available

now.

> Thanks! Sena

>