Re: LDN for Idiopathic Hypersomnia/Susie Sedlock has CF

July 1, 2006

Maybe she'll see this and give you a run-down on her experience with LDN.

========

--- In low dose naltrexone , " macdesign_2000 " <excellentluck@...>

wrote:

>

> Hi there,

>

> I just received a prescription for 3mg of LDN nightly from my primary

> care doctor via my request and the information I provided her. I will

> have to get it sent from one of the pharmacies on the list as my local

> Walgreens doesn't seem to have it in such a small dose.

>

> Has anyone heard of anyone with Idiopathic Hypersomnia taking it?

>

> If you are curious about Idiopathic Hypersomnia there is a group

> for that too. It is excessive sleepiness without apparent cause (sleep

> is deep but ultimately unrefreshing leaving us tired and dragging

> around most of the time). I inherited mine from my father. We've both

> had limited success with medication, although Provigil helps (it's

> expensive though and we build an immunity to it very quickly).

>

> My friend has had stunning success for several years on LDN for her MS

> and recommended I try it for my life long fatigue problem. I will keep

> you posted if you're interested. I'd love to hear from anyone with

> I.H. or fatigue from other diagnoses (eg. M.S., Chronic Fatigue

> Syndrome, etc).

>

> Good Health,

> Ann

>

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