Re: NCC?? seizure questions

[Guest guest]

Amber,

Is this type of seizure " " extremity type " " a " " focal, local, partial or

ian " " seizure? This may be what you are trying to recall. It is a

twitching locally in the muscles affected. Not always (but sometimes)

involving the brain checking out so to say (generalized seizures) , a

local twitching in the arm, leg or face sometimes, hence the eye-twitch.

Careful not to confuse focal seizures with other muscle twitches that can

happen because of not enough potassium or because of over exertion,

hypothermia, or anemia, dehydration, etc. or just being tired and not

sleeping well. This being other reasons for this.

There is a true type of seizure activity in which these muscles are not

getting the signals from the brain

correctly and a muscle stran or group of muscle strans cannot work

properly. Mine happen in the hands and involve the fingers doing strange

anticks at times. And, I have them in the face, and neck, shoulders too.

It can be entertaining in a weird sense of the humor of the whole thing.

But, is certainly not humorous when they lead to full true seizures,

which in some the focal seizure is a precursor to a full (general)

seizure, a warning for those who have already been established as having

a seizure disorder. Part of the aura. I do not have a seizure disorder,

true epilepsy in the sense of how the average lay person would understand

it. Like with grand mal, or petit mal seizures, but have truly been

tested many times because of the focal seizures that I have. They hope

that it does not lead to me having generalized seizures. I assume, in my

case it is neurological damage from my spinal cord injury leading to

stenosis and impinging of the cord itself involving that one set of

nerves in my arm, (I fractured my neck in a diving incident when I was

18) and it does not involve the brain as involved as a seizure disorder

would.

If you are having multiple focal seizures you could be developing a

seizure disorder, or just may have them without explanation. You are

certainly correct, Amber, the best thing is to go see the dr. and find

out.

They can do testing to find out if you are truly suffering with a seizure

disorder and get proper medications to alleviate them. This is one sure

thing. There are great meds. for seizure disorders.

As far as the connection with ACM. It **seems** as though most of us

would have seizures, from what

we go through. But, I have noticed that most do not? I recall a few, but

not many. This is probably the reason. It may stem back to just that, the

brain stem and inner brain. It seems as though most ACMers problems

(symptoms) originate from there. In most seizure patients, the origin of

their problems are not so much at the base of the skull, but in the grey

matter. The cerebral cortex, and the limbic centers in the brain. An ACM

complete blockage causing pressure to the outer brain can cause seizures

in the form of hydrocephalus. But, then, they are temporary, that is if

the hydrocephalus is corrected. Hopefully then, the damage is not

permanent. And, it seems as the body always tries to heal itself, it

would rather form a syrinx from these pressures, before it would let us

get too much pressure above there in the form of hydrocephalus.

Hydrocephalus being an acute state, when the csf just cannot go anywhere

else.

The seizure disorder is a very complex thing to understand. And, in some

cases, the patient may never even know why he began to have seizures.

This amazes me.

in Ala.

On Thu, 25 Oct 2001 22:39:30 -0400 " Amber "

writes:

> Sam,

> It would seem that you are not having Grand Mal seizures where

> the whole

> body is affected but ones where only a limb/extremity is affected.

> I can

> not think of the type of seizures these are right now, but I recall

> learning

> about them briefly in an EMT class I took last year.

> I don't know what to tell you about the breath thing so sorry I

> can't

> help you out there. It may be related but I don't know.

> It is a very good and urgent idea to get into see a Neurologist

> ASAP!

> Be sure to take with you all of your medications that you are

> taking, it

> could be a new development in your condition(s) or a reaction to

> meds you

> are taking. When you call let them know you are having new onset

> extremity

> seizures. They are more likely to get you in quicker.

> If I remember the type of these seizures or find my text book

> (I'm in

> the middle of moving), I'll pass it on to you.

>

> Good Luck,

> Amber in Tampa, FL

> ACM I 5mm+

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