Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 Eve - Probiotics are important in fighting yeast and these other organisms, they are the good bacteria. www.kirkmanlabs.com sells some great products. There are several strains that need to be replaced in the body to help fight yeast and the other out of control organisms. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 Eve - Autism is now classified as an intestinal disorder and brain injury, of course, this is very cutting edge presently. In Ethan, they found Candidiasis, so longstanding that they treat medically, diet alone being insufficient. They also found Clostridia in him. The toxins of both organisms are known to be potent neurotoxins causing part of the brain injury in autism. Clostridia and yeast, the toxins, they throw into the system are notorious for interfering in muscle function. They have immune system dysfunction because the immune system fails to recognize the yeast and other organisms and does nothing about it, nothing appropriate, that is. Hence, the use of LDN among them now, to stimulate the immune system to do its job. This immune system problem in the autism spectrum disorders is said to be the common between autism, MS and other disorders, like lupus and some cancers - see the LDN site for the list of disorders having this same underlying problem. They tossed around MS for me for a long time but could not find the lesions either. Important - the chemicals in our food act like antibiotics in the intestine, killing off the good bacteria we need to prevent some of this. Limit them as much as you can and supplement with probiotics. Hope some of this helps you!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 Hi Natilie, my doctor did prescribe an antifungal, diflucan, and it made my liver shut down and almost killed me, I had such a terrible reaction to it. I was told I was extremely allergic to it, so I've just been trying to control it with diet. I will begin supplementing with probiotics at the same time I begin taking LDN, and I have blended fresh garlic cloves into tomato juice off and on during my life and handle that well so I will resume that, too. Autism. When was it classfied as an intestinal disorder and a brain injury? Was it recently? I'm wondering why I am having to take this information to my doctor, not the other way around. I took her the info on LDN as well. Eve Re: [low dose naltrexone] Heavy metal tests? To Eve - Candidiasis Eve - Autism is now classified as an intestinaldisorder and brain injury, of course, this isvery cutting edge presently. In Ethan, they foundCandidiasis, so longstanding that they treatmedically, diet alone being insufficient. Theyalso found Clostridia in him. The toxins ofboth organisms are known to be potent neurotoxinscausing part of the brain injury in autism. Clostridia and yeast, the toxins, they throw intothe system are notorious for interfering in musclefunction. They have immune system dysfunction because theimmune system fails to recognize the yeast andother organisms and does nothing about it, nothingappropriate, that is. Hence, the use of LDN amongthem now, to stimulate the immune system to do itsjob. This immune system problem in the autism spectrumdisorders is said to be the common betweenautism, MS and other disorders, like lupus andsome cancers - see the LDN site for the list ofdisorders having this same underlying problem. They tossed around MS for me for a long time butcould not find the lesions either. Important - the chemicals in our food act likeantibiotics in the intestine, killing off the goodbacteria we need to prevent some of this. Limitthem as much as you can and supplement with probiotics.Hope some of this helps you!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 Hi Eve. Ethan started on Nystatin and usually takes that, no side effects, just lies in the intestines killing yeast and then passes out of the body in the stool. He does Diflucan only when he is on an antibiotic for something else. His liver is carefully monitored then. I do fresh garlic in carrot juice or just eat garlic slices on a baked potato, etc. because I can't convince one of my doctors to treat me like the autism doctors treat Ethan. The DAN! (Defeat Autism Now!) doctors have been working on it for ten years or so, I think. They are doctors whose children or grandchildren got autism. Like us, they got no help from the medical doctors. All were very good doctors with lucrative practices when they started researching autism. Until recently and their research, there was no " medical " research on autism. Now, they are calling it a gut-brain syndrome not the " psych " disorder that it has traditionally been considered to be. Really fascinating. Anyway, some of the kids they treat come all the way to recovery and lose their autism diagnosis. Some recovery fully but keep the label. Some don't respond completely to treat, and they are still looking into why. If Ethan responds completely to the LDN in a few months, he may be completely recovered. These doctors are on the cutting edge now. I asked them about all my almost diagnoses of MS, lupus, fibromyalgia, etc. - have symptoms but can't positive tests. They maintain that these are " adult " forms of the same gut-brain syndrome, the same biologically as autism in many respects. The variations come in each individuals genetics, their age at exposure to their own unique etiologies for the diseases (for example, the specific live viruses or other organisms in play, the specific heavy metals and amounts, etc.) In the Caribbean (I'm not sure of spelling), people are getting autism from tin in their drinking water. They collect rain water off of tin roofs, and get autism that way. Stay in touch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 Hi , you have so much information for me, that I feel I truly need, and this list has so many people with their own problems, I thought perhaps you might like to email me directly? my email is jacquie@.... I can't thank you enough. Door upon doors upon doors are opening. I'm just not sure yet what to do about it. Eve Re: [low dose naltrexone] Heavy metal tests? To Eve - Candidiasis Hi Eve. Ethan started on Nystatin andusually takes that, no side effects, justlies in the intestines killing yeast andthen passes out of the body in the stool. He does Diflucan only when he is onan antibiotic for something else. His liver is carefully monitored then.I do fresh garlic in carrot juice orjust eat garlic slices on a bakedpotato, etc. because I can't convinceone of my doctors to treat me like theautism doctors treat Ethan. The DAN! (Defeat Autism Now!) doctorshave been working on it for ten yearsor so, I think. They are doctors whosechildren or grandchildren got autism.Like us, they got no help from the medical doctors. All were very gooddoctors with lucrative practices whenthey started researching autism. Until recently and their research,there was no "medical" research on autism. Now, they are calling it a gut-brain syndromenot the "psych" disorder that it has traditionally been considered to be. Really fascinating. Anyway, some ofthe kids they treat come all the wayto recovery and lose their autismdiagnosis. Some recovery fully butkeep the label. Some don't respondcompletely to treat, and they are still looking into why. If Ethanresponds completely to the LDN ina few months, he may be completelyrecovered. These doctors are on the cuttingedge now. I asked them about allmy almost diagnoses of MS, lupus,fibromyalgia, etc. - have symptomsbut can't positive tests. Theymaintain that these are "adult" formsof the same gut-brain syndrome, thesame biologically as autism in manyrespects. The variations come ineach individuals genetics, theirage at exposure to their ownunique etiologies for the diseases(for example, the specific liveviruses or other organisms in play,the specific heavy metals and amounts,etc.) In the Caribbean (I'm not sureof spelling), people are getting autismfrom tin in their drinking water. Theycollect rain water off of tin roofs,and get autism that way. Stay in touch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2006 Report Share Posted July 7, 2006 Thank you for this information. It is so mind boggling for me that I have other people who have these same problems. And, thank you for telling me what DAN is, had no clue. I have followed my husband of 46 years all over the world, have lived in Morocco, Spain, and many other places that have no laws about chemical contamination, and have huge problems iwth parasites etc. Who knows what has happened to me. Now, I have some leads. Thank you. Eve Re: [low dose naltrexone] Heavy metal tests? To Eve - Candidiasis Hi Eve. Ethan started on Nystatin andusually takes that, no side effects, justlies in the intestines killing yeast andthen passes out of the body in the stool. He does Diflucan only when he is onan antibiotic for something else. His liver is carefully monitored then.I do fresh garlic in carrot juice orjust eat garlic slices on a bakedpotato, etc. because I can't convinceone of my doctors to treat me like theautism doctors treat Ethan. The DAN! (Defeat Autism Now!) doctorshave been working on it for ten yearsor so, I think. They are doctors whosechildren or grandchildren got autism.Like us, they got no help from the medical doctors. All were very gooddoctors with lucrative practices whenthey started researching autism. Until recently and their research,there was no "medical" research on autism. Now, they are calling it a gut-brain syndromenot the "psych" disorder that it has traditionally been considered to be. Really fascinating. Anyway, some ofthe kids they treat come all the wayto recovery and lose their autismdiagnosis. Some recovery fully butkeep the label. Some don't respondcompletely to treat, and they are still looking into why. If Ethanresponds completely to the LDN ina few months, he may be completelyrecovered. These doctors are on the cuttingedge now. I asked them about allmy almost diagnoses of MS, lupus,fibromyalgia, etc. - have symptomsbut can't positive tests. Theymaintain that these are "adult" formsof the same gut-brain syndrome, thesame biologically as autism in manyrespects. The variations come ineach individuals genetics, theirage at exposure to their ownunique etiologies for the diseases(for example, the specific liveviruses or other organisms in play,the specific heavy metals and amounts,etc.) In the Caribbean (I'm not sureof spelling), people are getting autismfrom tin in their drinking water. Theycollect rain water off of tin roofs,and get autism that way. Stay in touch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 Hi Eve - Wow - about all the places you have lived and things you might be exposed to. The DAN doctors are kind of sounding the warning about that to all - their work really has great application even outside the world of autism. There is so much pollution now no matter where you live or what the laws are - I'm starting to think we all have more in common with our ailments than we think. The various labels are different, especially depending on how you acquire yours - but inside there are such striking similarities. Keep in touch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 Hi , Warning, long email, and probably too personal. I will keep in touch. Right now I'm just reading these posts and absorbing and learning. I've been in stall and accept mode for far too long. When I think of all the chemicals I came in contact with, used regularly, that are now banned, it's scary. Typewriter cleaning fluid, flea sprays, cleaning compounds... I am letting my hair grow out, and long enough for a sample, how long is that? It's only about an inch long now. I am learning all I can about Lyme, a definite possibility. I saw that someone posted that he/she had 35 out of 38 Lyme symproms, can anyone tell me where to find these? From reading, I've noticed I have several that my doctor has just sort of lumped in with the others -- facial numbness and mouth and tongue numbness for two. I am definitely going on LDN, as soon as possible, should I insist on an MRI first so I have a base to compare with? Lyme, MS, Mercury poisoning (investigating chelation) all scary but at least they would be answers and I am discovering perhaps I don't have to actually have a diagnosis to receive treatment? I am picking up that many of you are getting treatment without a firm diagnosis. There is a doctor in a town nearby that does IV chelation therapy, which is better, oral or IV? Lyme is a spirocete bacteria, I know. When we lived in Morocco, years ago, we were told over 60 percent of the population had syphyllis, also a spirocete bacteria, and saw people walking the streets with end stage nerve damage that is very similar to the walking/balance problem I have now, just like Lyme incurs. If I don't have an arm crutch (canes don't work for me because of tremor) I can walk but I stagger as though I'm intoxicated. I've always been a one-man woman and dh of 46 years is extremely healthy and strong, so I probably wouldn't have caught that, even though for two years we did live exclusively in Kenitra. We never tried to isolate ourselves as we were told to do, because we wanted the experience of actually living in another country and getting to know people. And there are so many parasites I could have picked up and still be harboring, including things like malaria. As you can tell, this not knowing is a constant source of anxiety for me, I am literally grasping at any straw I can think of. Knowing would be so much better. Not knowing causes one to worry and wonder about so many things it just seems impossible to investigate them all. I can't live at the clinic. I already go three times a week for physical therapy because I have a really bad knee and need to have it replaced and I need to build up strength and stamina or I might not be able to get back on my feet because I am so weak and achey and tired. ly, I know my doctor just wants to see me once every few months so she can renew the many prescriptions I have, and my oxygen machine and sleep apnea equipment. I go in and out. I need to find a new doctor who actually takes an interest but I'm not certain there are any, anywhere. I'm even thinking about asking for a new referral to Mayo. Lots has changed in nine years. Sorry for the length. Eve, still investigating, and glad to be here... Re: [low dose naltrexone] Heavy metal tests? To Eve - Candidiasis Hi Eve - Wow - about all the placesyou have lived and things you mightbe exposed to. The DAN doctors arekind of sounding the warning aboutthat to all - their work really hasgreat application even outside theworld of autism. There is so muchpollution now no matter where youlive or what the laws are - I'm starting to think we all have morein common with our ailments than wethink. The various labels are different, especially depending onhow you acquire yours - but insidethere are such striking similarities. Keep in touch. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 Eve, I have done IV and oral chelation. My preference was the IV method. The oral method caused my feet, ankles and legs to retain fluid. I don't know why except possibly due to the anti-virals that one doctor has me on, the ingredients in that product were pulling too much toxins at once. As far as an MRI before starting LDN...it would be interesting to know if and when changes occur. LDN is certainly worth trying. Marcie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 > > Eve, > > I have done IV and oral chelation. My preference was the IV method. The oral method caused my feet, ankles and legs to retain fluid. I don't know why except possibly due to the anti-virals that one doctor has me on, the ingredients in that product were pulling too much toxins at once. > > As far as an MRI before starting LDN...it would be interesting to know if and when changes occur. > > LDN is certainly worth trying. > > Marcie > -- April 1988 is when I had my initial attack of multiple sclerosis and have gotten a yearly MRI ever since. It always comes back unchanged from the year before yet these last few years my symptoms worsen. Go figure. Yes, LDN IS worth trying. You have nothing to lose and everything to gain. I wish I had found out about it sooner. Good luck! Artie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2006 Report Share Posted July 9, 2006 Thanks for the reply Marcie. Eve Re: [low dose naltrexone] Heavy metal tests? To Eve - Candidiasis Eve, I have done IV and oral chelation. My preference was the IV method. The oral method caused my feet, ankles and legs to retain fluid. I don't know why except possibly due to the anti-virals that one doctor has me on, the ingredients in that product were pulling too much toxins at once. As far as an MRI before starting LDN...it would be interesting to know if and when changes occur. LDN is certainly worth trying. Marcie Quote Link to comment Share on other sites More sharing options...
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