Re: weight, kindergarten, etc...

[Guest guest]

Hi, Missy

Thanks. I happened to talk to the principal of the

elementary school that Jake will attend next year (his

big sis is in the 3rd grade there currently--we're

there every day to drop off and pick up--we're only

two blocks away). Actually, I was at first curious to

know how I could be at two places at one time--you

see, Kindergartners are bussed while my daughter is a

'walker'. I also, however, asked about seat belts,

car seats, etc. because Jake is 27 lbs and will not be

40 lbs. by Sept., I'm sure.

Anyway, it seems that all I have to do is call the

Child Study Team at about the time I register Jake for

Kindergarten (May) and let them know that he will need

the " little " bus (how appropriate), instead of the big

bus. We'll see if it's that easy in May. I think it

will be, tho.

Debbi, Mom to Jake, 5 on Feb. 20, 27 1/4 lbs., 37 1/2 "

--- Missy Shost wrote:

>

>

> Debbi, Well, let's see. Ian has always had a large

> head compared to his body, he never crawled due to

> the fact that he could not support the weight of his

> head, so he scooted on his butt to get around. He

> was initially dx'd as failure to thrive the first yr

> until he was dx'd with RSS right before his 1st

> bday. Yes, I think he has low set prominent

> ears,but that seems to be diminshing as he gets

> older. I'll post an old photo I have of him as a

> baby so that the parents with younger ones can see

> how much he as really changed in the past few years,

> the forehead and chin don't seem to be as " small " as

> they did, oh well, when I put it on, I think you'll

> see what I mean. I don't know if I would call it

> starvation, but he has never seemed to gain weight,

> I know I've seen pics of some of the other kids,

> especially mr. cutie and his little face just

> seems down right pudgy compared to Ian!! By the

> way, he had two small slices of Pizza Hut pizza for

> dinner tonight and was talking about his fat tummy!!

> HA HA HA HA Regarding kindergartne, Dennise's Ross

> also started this year, so you might want to check

> with her also. Yes, the school district MUST provide

> a desk, chair, etc for him that is accomodating for

> him also. They also must send adequate bussing for

> them, need be. My school district required a letter

> from his dr stating the reason why we would require

> a " mini bus " instead of a regular bus. I do have 2

> letters from his endo and ortho, but was taking a

> new job and did not have the ten working days it was

> going to take to get the smaller bus on route to

> pick him up or drop him off, so I went ahead and

> sent him to a " chain " childcare facility about a

> mile away from his school. they also required a

> letter from his dr stating that he would need to be

> in a carseat. Their transportation is a van, so he

> does not have to navigate the large steps. It is

> rather worrisome sending them off to school and I

> won't go into long detail, but if you want to know

> more, you can write me and I'll be happy to answer

> in more detail if you want.Missymom to Ian 5 yrs

> old-3 ft tall and 23 pounds

>

> ---------------------------------

>