Im getting worse and Im scared

December 13, 2000

I am getting worse by the day and its scaring me to death. My headaches/head

pressure are almost as bad as before my decompression which was 1-10-00. I

was taken by ambulance to the ER on Thursday of last week and twice this week

I was close to calling one again. All they do there is give me shots of

demerol and visterol. My local docs here havent called me......they were

told by Dr. Frim (he did the decompression) to order a flow study but since

its almost a week since i was in the ER and have heard nothing from them my

husband called the office today and he wasnt a happy man! He gave them a

piece of his mind. Finally......hours later the nurse called me and gave me

a number to call to schedule the test. It took them a week to do this? God

knows how long it wouldve taken if my hubby didnt call. They know I have

been in bed in pain and it still took them a week. The docs never returned

our calls either. I can see if I was a pain in the butt.......but Im not.

When I write email to doctor Frim in Chicago who is a much busier doc by far,

he gets back to me in less than a day. I cant stand the docs here on Long

Island and Im at my wits end. If i could afford it I would be on a plane

back to Chicago to see doc Frim. Maybe after the holidays I will be able to

but with me out of work its tough. In the ER the local doc put me on diamox

and they just increased it. Im nauseous, constipated, weak and whoosey.

Im sorry for the whining but I am getting real depressed again and I just

had to vent. This chiari monster is eating me alive slowly and i dont know

how much more i can take! I wish there were more doctors that truly

care and understand like Dr. Frim but unfortunetly there arent any here on

the island. Believe me I called most.

They either dont know much about chiari......or they just dont want to get

involved with this disease. This new doc promised he would help me and he

promised to keep in touch with doc frim and so far he hasnt done a thing.

Well i guess i better get to bed.

Goodnight and thanks for listening.

TERRI

Acm1 surgery 1-10-00 by Doc Frim

C6-C7 laminectomy surgery 8-99 in NY

tendonitous

degenerative disk disease

thoracic outlet syndrome

high blood pressure

torn cartlidge in shoulder

6 buldging disks

all triggered from car accident 10-95

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