Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 There is a correlation between the distribution of people afflicted with MS and lattitude. What aspect of lattitude isn't completely clear. There are more people with MS in colder climates. Some believe only the climate in which one spends their childhood matters. Vitamin D deficiency has been proposed to explain the correlation. There are also MS " hot spots " . Scotland I think is one. I saw a blurb on a local news cast in my new home base saying Northeast Wisconsin is another, though I haven't been able to corroborate the information. Some things to think about and research, which I think is what you're asking. georgina374 wrote: >Hi Cindi, Michele, Wesley, Duncan, W2, and Perfectlysunnyday, > >Thank you all for answering. I hoped I could discover some specific >thing which might point to the " AHA, that's when it all started " , but >we each have such a variety of experiences. > >I'm stumped because I am the only one in my family with MS. While it >is not necessarily a familial condition I have heard from many who >have at least one other family member with MS, and numerous families >have several members with MS or at least with MS symptoms. > >I guess what I am trying to get at is, if we knew what the catalist(s) >was/is then perhaps something could be done to prevent it; IE: Intall >given to people with known allergies to prevent a histamine reaction >from allergen exposure. Are some people more prone to getting MS than >others, etc., and is there data in this regard? > >I feel Blessed and thankfull we have LDN to halt progression, but >can't help but hope for better minds than mine to discover how to >prevent this insideous disease. > >Gigi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 I am imagine that you are newly diagnosed with MS...I remember the incredible NEED to know why and how. There are no answers so far. That's one of the reasons doctors don't know a lot more than us. About the time there seems to be a pattern, there is a MSer that does not fit. The generalities are: more women than men (true for a lot of diseases), more up north than down south (I'm a southern girl and always have been). I am the most healthy sick person you will meet..I seem to skip viruses and " things going around " even though I work with the public. There is no one in my family with MS and not even a " sister " disease. We are supposed to be heat intollerant, but I do much better in heat than in cold. I have only last year started taking vitamins and have never really chosen foods just because they are good for you. We are all , doctors, too, still asking your questions. So we understand your fear and confusion. > > Hi Cindi, Michele, Wesley, Duncan, W2, and Perfectlysunnyday, > > Thank you all for answering. I hoped I could discover some specific > thing which might point to the " AHA, that's when it all started " , but > we each have such a variety of experiences. > > I'm stumped because I am the only one in my family with MS. While it > is not necessarily a familial condition I have heard from many who > have at least one other family member with MS, and numerous families > have several members with MS or at least with MS symptoms. > > I guess what I am trying to get at is, if we knew what the catalist (s) > was/is then perhaps something could be done to prevent it; IE: Intall > given to people with known allergies to prevent a histamine reaction > from allergen exposure. Are some people more prone to getting MS than > others, etc., and is there data in this regard? > > I feel Blessed and thankfull we have LDN to halt progression, but > can't help but hope for better minds than mine to discover how to > prevent this insideous disease. > > Gigi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 I am the only one in my family with ms. I am the only one who ever had mono... although another kid had mono the same time as me, and he is well. All of my extended family is healthy. I have two Aunts who are 91... I think I was the most emotional and the most misunderstood. I look for answers too...but all that I can find is it is different for everyone..... Did you ever read Deadly Emotions - Don Colbert. That makes the most sense in my life.... lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 Wesley, I think you'll find that the Shetland Islands, Scotland, are the MS capital of the world. I know, I come from there. Danny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2006 Report Share Posted June 23, 2006 One of the possible and probable reasons for the latitude phenomen is sun exposureand too little vitamin D, as vitamin D has an immunostimulating / protecting effect...Geir Flatabø On 6/23/06, Wesley <inspirfe@...> wrote: There is a correlation between the distribution of people afflicted withMS and lattitude. What aspect of lattitude isn't completely clear.There are more people with MS in colder climates. Some believe only the climate in which one spends their childhood matters. Vitamin Ddeficiency has been proposed to explain the correlation.There are also MS " hot spots " . Scotland I think is one. I saw a blurbon a local news cast in my new home base saying Northeast Wisconsin is another, though I haven't been able to corroborate the information.Some things to think about and research, which I think is what you'reasking.georgina374 wrote:>Hi Cindi, Michele, Wesley, Duncan, W2, and Perfectlysunnyday, >>Thank you all for answering. I hoped I could discover some specific>thing which might point to the " AHA, that's when it all started " , but>we each have such a variety of experiences. >>I'm stumped because I am the only one in my family with MS. While it>is not necessarily a familial condition I have heard from many who>have at least one other family member with MS, and numerous families >have several members with MS or at least with MS symptoms.>>I guess what I am trying to get at is, if we knew what the catalist(s)>was/is then perhaps something could be done to prevent it; IE: Intall >given to people with known allergies to prevent a histamine reaction>from allergen exposure. Are some people more prone to getting MS than>others, etc., and is there data in this regard?>>I feel Blessed and thankfull we have LDN to halt progression, but >can't help but hope for better minds than mine to discover how to>prevent this insideous disease.>>Gigi>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 > > > > Hi Cindi, Michele, Wesley, Duncan, W2, and Perfectlysunnyday, > > > > Thank you all for answering. I hoped I could discover some specific > > thing which might point to the " AHA, that's when it all started " , > but > > we each have such a variety of experiences. > > > > I'm stumped because I am the only one in my family with MS. While it > > is not necessarily a familial condition I have heard from many who > > have at least one other family member with MS, and numerous families > > have several members with MS or at least with MS symptoms. > > > > I guess what I am trying to get at is, if we knew what the catalist > (s) > > was/is then perhaps something could be done to prevent it; IE: > Intall > > given to people with known allergies to prevent a histamine reaction > > from allergen exposure. Are some people more prone to getting MS > than > > others, etc., and is there data in this regard? > > > > I feel Blessed and thankfull we have LDN to halt progression, but > > can't help but hope for better minds than mine to discover how to > > prevent this insideous disease. > > > > Gigi > > > Thank you all for your suggestions and answers. I have read the various stats about a greater propensity for people in colder climates, vit. D, lack of sun exposure, etc. but for me it doesn't add up. Although I was born and spent 32 years in the northeast, I was always outdoors and had plenty of vit. D rich foods/sun time. I can't help but think that with all the people known to have MS that there isn't more than just speculation about it's etiology. Perfectlysunny, Now, I too am a Southerner. I've lived in the south for 24+ years and was diagnosed a little over one year ago, but my symptoms, (falling, etc.) began over 30 years ago. I think the results would be most interesting if there were a questionnair designed to ask all the pertinent questions, (illness, trauma, location, etc., etc.), perhaps then we might be able to develop a pattern, and with a pattern comes a possibility to alter it for the better for others. Thanks again and be well. Gigi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 I wonder if someone is collecting all this information? It has to have changed by now. I lived on the So. Calif coast all my life nice weather always the same not too hot, not too cold. Moved to Texas and BAM! Hot weather and I turned into a blob of drunk Jello! and "Jello" MS. Juice georgina374 <georgina374@...> wrote: Hi Cindi, Michele, Wesley, Duncan, W2, and Perfectlysunnyday, Thank you all for answering. I hoped I could discover some specificthing which might point to the "AHA, that's when it all started", butwe each have such a variety of experiences. I'm stumped because I am the only one in my family with MS. While itis not necessarily a familial condition I have heard from many whohave at least one other family member with MS, and numerous familieshave several members with MS or at least with MS symptoms. I guess what I am trying to get at is, if we knew what the catalist(s)was/is then perhaps something could be done to prevent it; IE: Intallgiven to people with known allergies to prevent a histamine reactionfrom allergen exposure. Are some people more prone to getting MS thanothers, etc., and is there data in this regard?I feel Blessed and thankfull we have LDN to halt progression, butcan't help but hope for better minds than mine to discover how toprevent this insideous disease. Gigi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 > > Hi Cindi, Michele, Wesley, Duncan, W2, and Perfectlysunnyday, > > Thank you all for answering. I hoped I could discover some specific > thing which might point to the " AHA, that's when it all started " , but > we each have such a variety of experiences. > > I'm stumped because I am the only one in my family with MS. While it > is not necessarily a familial condition I have heard from many who > have at least one other family member with MS, and numerous families > have several members with MS or at least with MS symptoms. > > I guess what I am trying to get at is, if we knew what the catalist (s) > was/is then perhaps something could be done to prevent it; IE: Intall > given to people with known allergies to prevent a histamine reaction > from allergen exposure. Are some people more prone to getting MS than > others, etc., and is there data in this regard? > > I feel Blessed and thankfull we have LDN to halt progression, but > can't help but hope for better minds than mine to discover how to > prevent this insideous disease. > > Gigi > Gigi, I am a MS'r who also has no other family member with MS, or sx. However, my mom has RA, my uncle has diabetes as does his daughter,my cousin. Could this be a autoimmune connection? That is one thought I keep. Mimi ( hoping that's cute ......) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 Lori, I think you are right. I have been an emotional wreck my whole life. Middle child syndrome. I do believe that my parents pushed me over the edge as a teen ager. There was no way to be perfect enough for them, and there was certainly NO room for mistakes. I am the only one that has MS. My other two rebel sisters are fine! MarcieLori <lorigrady214@...> wrote: I am the only one in my family with ms. I am the only one who ever had mono... although another kid had mono the same time as me, and he is well.All of my extended family is healthy. I have two Aunts who are 91...I think I was the most emotional and the most misunderstood.I look for answers too...but all that I can find is it is different for everyone.....Did you ever read Deadly Emotions - Don Colbert. That makes the most sense in my life....lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 I have 3 second cousins with MS....they are all 25 yrs older than me and we were diagnosed within 5 yrs. These members are all on my mothers side of the family. However 4 years ago an uncle on my fathers side was diagnosed with Devics Disease....a nasty form of MS....he is 10 yrs older than me.......The one thing we all have in common is that either us or the spouses worked around petroleum products. I can't go near an airport without getting dizzy as hell.....I did have Mono as a young adult but all that came of that was an allergy to penicillian amd codine(the treatment of choice at the time). Then I found out that in 1993 it was discovered to not be wise to administer those meds for recovery of mono......My question is (finally) is it something we have been exposed to? meds we may have been given?.....I find it really ironic that soon after the discovery of penicillian......that is when a looooooot of MS dxs poped up. W2 --- georgina374 <georgina374@...> wrote: > Hi Cindi, Michele, Wesley, Duncan, W2, and > Perfectlysunnyday, > > Thank you all for answering. I hoped I could > discover some specific > thing which might point to the " AHA, that's when it > all started " , but > we each have such a variety of experiences. > > I'm stumped because I am the only one in my family > with MS. While it > is not necessarily a familial condition I have heard > from many who > have at least one other family member with MS, and > numerous families > have several members with MS or at least with MS > symptoms. > > I guess what I am trying to get at is, if we knew > what the catalist(s) > was/is then perhaps something could be done to > prevent it; IE: Intall > given to people with known allergies to prevent a > histamine reaction > from allergen exposure. Are some people more prone > to getting MS than > others, etc., and is there data in this regard? > > I feel Blessed and thankfull we have LDN to halt > progression, but > can't help but hope for better minds than mine to > discover how to > prevent this insideous disease. > > Gigi > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 I'm pretty sure diabetes is not an autoimmune disease. The body just stops making its own insulin. > > Gigi, > I am a MS'r who also has no other family member with MS, or sx. > However, my mom has RA, my uncle has diabetes as does his > daughter,my cousin. Could this be a autoimmune connection? > That is one thought I keep. > > Mimi > > ( hoping that's cute ......) > > --------------------------------- > Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2006 Report Share Posted June 24, 2006 > > I'm pretty sure diabetes is not an autoimmune disease. The body just > stops making its own insulin. > -- Type 1 Diabetes usually develops due to an autoimmune disorder. Type 2 Diabetes, the most commom, may be due to genetics or obseity. http://www.endocrineweb.com/diabetes/1diabetes.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Hi geogina 374 & wensu baki & co. I came across your story with interest and I have a tail that may also interest. I am 49 and was diagnosed at 20 with MS. I have been on LDN for 2 Months with some improvement. My Mother had MS for something like 50 years. She came from a time before LDN, and effective management using diet, and nutrient/suppliement statagies. I am alergic to penicillin. My family originates from a Baltic nordic country which again adds to susseptability, through the low levels of sunlight (Vit D) at certain times of the year. I have been working in a chemical/ toxic enviroment for 30 years, most of which are petroleum derivatives (glues, resins,paints, solvents. etc) but the volatile toxins still get through to your blood system. You are provided with gloves, and masks, but they still get through. I feel that this exposure would make you more sensetive to allergies, and causing a histamine reaction. If the conditions are there to trigger MS, and you'r geneticaly susseptable. It will get you. This is only one tail, of many. >From: wensu baki <wensubar@...> >Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] MS Onset Q/A >Date: Sat, 24 Jun 2006 14:16:00 -0700 (PDT) > >I have 3 second cousins with MS....they are all 25 yrs >older than me and we were diagnosed within 5 yrs. >These members are all on my mothers side of the >family. However 4 years ago an uncle on my fathers >side was diagnosed with Devics Disease....a nasty form >of MS....he is 10 yrs older than me.......The one >thing we all have in common is that either us or the >spouses worked around petroleum products. I can't go >near an airport without getting dizzy as hell.....I >did have Mono as a young adult but all that came of >that was an allergy to penicillian amd codine(the >treatment of choice at the time). Then I found out >that in 1993 it was discovered to not be wise to >administer those meds for recovery of mono......My >question is (finally) is it something we have been >exposed to? meds we may have been given?.....I find >it really ironic that soon after the discovery of >penicillian......that is when a looooooot of MS dxs >poped up. > >W2 > >--- georgina374 <georgina374@...> wrote: > > > Hi Cindi, Michele, Wesley, Duncan, W2, and > > Perfectlysunnyday, > > > > Thank you all for answering. I hoped I could > > discover some specific > > thing which might point to the " AHA, that's when it > > all started " , but > > we each have such a variety of experiences. > > > > I'm stumped because I am the only one in my family > > with MS. While it > > is not necessarily a familial condition I have heard > > from many who > > have at least one other family member with MS, and > > numerous families > > have several members with MS or at least with MS > > symptoms. > > > > I guess what I am trying to get at is, if we knew > > what the catalist(s) > > was/is then perhaps something could be done to > > prevent it; IE: Intall > > given to people with known allergies to prevent a > > histamine reaction > > from allergen exposure. Are some people more prone > > to getting MS than > > others, etc., and is there data in this regard? > > > > I feel Blessed and thankfull we have LDN to halt > > progression, but > > can't help but hope for better minds than mine to > > discover how to > > prevent this insideous disease. > > > > Gigi > > > > > > > > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Hi geogina 374 & wensu baki & co. I came across your story with interest and I have a tail that may also interest. I am 49 and was diagnosed at 20 with MS. I have been on LDN for 2 Months with some improvement. My Mother had MS for something like 50 years. She came from a time before LDN, and effective management using diet, and nutrient/suppliement statagies. I am alergic to penicillin. My family originates from a Baltic nordic country which again adds to susseptability, through the low levels of sunlight (Vit D) at certain times of the year. I have been working in a chemical/ toxic enviroment for 30 years, most of which are petroleum derivatives (glues, resins,paints, solvents. etc) but the volatile toxins still get through to your blood system. You are provided with gloves, and masks, but they still get through. I feel that this exposure would make you more sensetive to allergies, and causing a histamine reaction. If the conditions are there to trigger MS, and you'r geneticaly susseptable. It will get you. This is only one tail, of many. >From: wensu baki <wensubar@...> >Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] MS Onset Q/A >Date: Sat, 24 Jun 2006 14:16:00 -0700 (PDT) > >I have 3 second cousins with MS....they are all 25 yrs >older than me and we were diagnosed within 5 yrs. >These members are all on my mothers side of the >family. However 4 years ago an uncle on my fathers >side was diagnosed with Devics Disease....a nasty form >of MS....he is 10 yrs older than me.......The one >thing we all have in common is that either us or the >spouses worked around petroleum products. I can't go >near an airport without getting dizzy as hell.....I >did have Mono as a young adult but all that came of >that was an allergy to penicillian amd codine(the >treatment of choice at the time). Then I found out >that in 1993 it was discovered to not be wise to >administer those meds for recovery of mono......My >question is (finally) is it something we have been >exposed to? meds we may have been given?.....I find >it really ironic that soon after the discovery of >penicillian......that is when a looooooot of MS dxs >poped up. > >W2 > >--- georgina374 <georgina374@...> wrote: > > > Hi Cindi, Michele, Wesley, Duncan, W2, and > > Perfectlysunnyday, > > > > Thank you all for answering. I hoped I could > > discover some specific > > thing which might point to the " AHA, that's when it > > all started " , but > > we each have such a variety of experiences. > > > > I'm stumped because I am the only one in my family > > with MS. While it > > is not necessarily a familial condition I have heard > > from many who > > have at least one other family member with MS, and > > numerous families > > have several members with MS or at least with MS > > symptoms. > > > > I guess what I am trying to get at is, if we knew > > what the catalist(s) > > was/is then perhaps something could be done to > > prevent it; IE: Intall > > given to people with known allergies to prevent a > > histamine reaction > > from allergen exposure. Are some people more prone > > to getting MS than > > others, etc., and is there data in this regard? > > > > I feel Blessed and thankfull we have LDN to halt > > progression, but > > can't help but hope for better minds than mine to > > discover how to > > prevent this insideous disease. > > > > Gigi > > > > > > > > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Hi geogina 374 & wensu baki & co. I came across your story with interest and I have a tail that may also interest. I am 49 and was diagnosed at 20 with MS. I have been on LDN for 2 Months with some improvement. My Mother had MS for something like 50 years. She came from a time before LDN, and effective management using diet, and nutrient/suppliement statagies. I am alergic to penicillin. My family originates from a Baltic nordic country which again adds to susseptability, through the low levels of sunlight (Vit D) at certain times of the year. I have been working in the film industry, a chemical/ toxic enviroment for 30 years, most of which are petroleum derivatives (glues, resins,paints, solvents. etc) but the volatile toxins still get through to your blood system. You may be provided with gloves, and masks, but they still get through. I feel that this exposure would make one more sensetive to allergens, and causing histamine reactions. If the conditions are there to trigger MS, and you'r geneticaly susseptable. It will get you. This is only one tail, of many. >From: wensu baki <wensubar@...> >Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] MS Onset Q/A >Date: Sat, 24 Jun 2006 14:16:00 -0700 (PDT) > >I have 3 second cousins with MS....they are all 25 yrs >older than me and we were diagnosed within 5 yrs. >These members are all on my mothers side of the >family. However 4 years ago an uncle on my fathers >side was diagnosed with Devics Disease....a nasty form >of MS....he is 10 yrs older than me.......The one >thing we all have in common is that either us or the >spouses worked around petroleum products. I can't go >near an airport without getting dizzy as hell.....I >did have Mono as a young adult but all that came of >that was an allergy to penicillian amd codine(the >treatment of choice at the time). Then I found out >that in 1993 it was discovered to not be wise to >administer those meds for recovery of mono......My >question is (finally) is it something we have been >exposed to? meds we may have been given?.....I find >it really ironic that soon after the discovery of >penicillian......that is when a looooooot of MS dxs >poped up. > >W2 > >--- georgina374 <georgina374@...> wrote: > > > Hi Cindi, Michele, Wesley, Duncan, W2, and > > Perfectlysunnyday, > > > > Thank you all for answering. I hoped I could > > discover some specific > > thing which might point to the " AHA, that's when it > > all started " , but > > we each have such a variety of experiences. > > > > I'm stumped because I am the only one in my family > > with MS. While it > > is not necessarily a familial condition I have heard > > from many who > > have at least one other family member with MS, and > > numerous families > > have several members with MS or at least with MS > > symptoms. > > > > I guess what I am trying to get at is, if we knew > > what the catalist(s) > > was/is then perhaps something could be done to > > prevent it; IE: Intall > > given to people with known allergies to prevent a > > histamine reaction > > from allergen exposure. Are some people more prone > > to getting MS than > > others, etc., and is there data in this regard? > > > > I feel Blessed and thankfull we have LDN to halt > > progression, but > > can't help but hope for better minds than mine to > > discover how to > > prevent this insideous disease. > > > > Gigi > > > > > > > > > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 diabetes and RA are both considered auto immune diseases.....my mom has really bad RA and i often wondered the same thing about the connection..(related to the MS)..no one else in my family has MS either..... [low dose naltrexone] Re: MS Onset Q/A I'm pretty sure diabetes is not an autoimmune disease. The body just stops making its own insulin.>> Gigi,> I am a MS'r who also has no other family member with MS, or sx.> However, my mom has RA, my uncle has diabetes as does his > daughter,my cousin. Could this be a autoimmune connection?> That is one thought I keep. > > Mimi> > ( hoping that's cute ......)> > ---------------------------------> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 ---petroleum/airport?-- This is VERY interesting to me. I grew up on air force bases, Dad was a pilot.(he flew the SR-71 among many planes for 33 years). My best friend is a pathologist now but she also grew up on air force bases.Now she is an army doctor at Walter in DC. She knows I have MS .My dad had Parkinson's , hers has Alzheimer's, and she sees people and statistics all day, every day, about military personnel and health problems.She sold me several times that it is more than just a gut feeling she has, that MS and other neurological diseases-which are on the uprise, practically reaching epidemic proportions- especially among military people --have got to be environmentally related. She has remarked several times to me that she wonders if it has something to do with living on bases. Now after reading these comments about petroleum, airports, etc, it really makes me wonder too. Military people are never far away from big machinery-planes, etc. And I regret how much I always liked the smell of gasoline when I was a kid. Maybe lingering longer at the e gas pump when my parents would get gas in the car was much worse than anyone knew? Nola Re: [low dose naltrexone] MS Onset Q/A > Hi geogina 374 & wensu baki & co. > I came across your story with interest and I have a tail that may also > interest. > I am 49 and was diagnosed at 20 with MS. I have been on LDN for 2 Months > with some improvement. > My Mother had MS for something like 50 years. She came from a time before > LDN, and effective management using diet, and nutrient/suppliement > statagies. > I am alergic to penicillin. My family originates from a Baltic nordic > country which again adds to susseptability, through the low levels of > sunlight (Vit D) at certain times of the year. > I have been working in the film industry, a chemical/ toxic enviroment for > 30 years, most of which are petroleum derivatives (glues, resins,paints, > solvents. etc) but the volatile toxins still get through to your blood > system. You may be provided with gloves, and masks, but they still get > through. I feel that this exposure would make one more sensetive to > allergens, and causing histamine reactions. > If the conditions are there to trigger MS, and you'r geneticaly susseptable. > It will get you. > This is only one tail, of many. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 How about if someone does a poll? My mom is diabetic too come to think of it?Kathy Lintzenich <mykittypaws@...> wrote: Dr. Swank says someone is usually a diabetic in the family and he also states that tuberculosis may be implicated in the family somehow. . My cousin and I had TB vaccinations and we were both around the same age. All other family members had the vaccination also but noone was nearly as close in age as my cousin and I. We both also had very bad bronchitis as children so high viral loads. We are the only ones in the family who have ms. Grandmother was a diabetic and my grandfather had TB. There are so many correlations with ms and noone knows for sure about the causative factors. We do know diet helps manage our ms. I think that is a given. Go figure the rest. It is so different for all of us. [low dose naltrexone] Re: MS Onset Q/A I'm pretty sure diabetes is not an autoimmune disease. The body just stops making its own insulin.>> Gigi,> I am a MS'r who also has no other family member with MS, or sx.> However, my mom has RA, my uncle has diabetes as does his > daughter,my cousin. Could this be a autoimmune connection?> That is one thought I keep. > > Mimi> > ( hoping that's cute ......)> > ---------------------------------> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Dr. Swank says someone is usually a diabetic in the family and he also states that tuberculosis may be implicated in the family somehow. . My cousin and I had TB vaccinations and we were both around the same age. All other family members had the vaccination also but noone was nearly as close in age as my cousin and I. We both also had very bad bronchitis as children so high viral loads. We are the only ones in the family who have ms. Grandmother was a diabetic and my grandfather had TB. There are so many correlations with ms and noone knows for sure about the causative factors. We do know diet helps manage our ms. I think that is a given. Go figure the rest. It is so different for all of us. [low dose naltrexone] Re: MS Onset Q/A I'm pretty sure diabetes is not an autoimmune disease. The body just stops making its own insulin.>> Gigi,> I am a MS'r who also has no other family member with MS, or sx.> However, my mom has RA, my uncle has diabetes as does his > daughter,my cousin. Could this be a autoimmune connection?> That is one thought I keep. > > Mimi> > ( hoping that's cute ......)> > ---------------------------------> Talk is cheap. Use Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 OH you just reminded me of an article that came out in a magazine here in Austin called the Business Journal. We have a big plant out here called Motorola. They make computer chips from the ground up LITERALLY! There is this place called Enchanted Rock. They dig deep and pull these long cylinders of this rock that is black and shiny. They are about 4 ft. long and look like a long round mirror. Then they get that long piece of rock and slice it real real thin into wafers and that's where they build all the thousands of layers of little electrical circuits that make up the computer chips that go into your cell phones, microwaves, TV, cars, etc., you know everything we use. Well there was an article in that Business Journal magazine that showed people in a "Fab" like Motorola working but it was in Australia and it was referring to how there might be a connection to the tiny amounts of the shavings from the wafers being inhaled and crossing the blood brain barriers and attributing to the cause of MS. It a metal of some sort. I took the article to my Neuo because I worked at Motorola here in Austin and he dismissed it. Like it was nothing. But I remember him asking me if I had ever been exposed to alot of metal? I said no. Then when I took the article he skimmed over it real quick and said "no I really doubt it" I think it had something to do with it. I was fine till I worked there. That's where I had my first exacerbation or "brain zap" as so affection ally call them. Interesting right? My sister two ys. older gets real bad vertigo where she hangs on to walls in order to walk and so does my younger sister. But neither will go get checked. Sincerely, Juice Vane <toomasvane@...> wrote: Hi geogina 374 & wensu baki & co.I came across your story with interest and I have a tail that may also interest.I am 49 and was diagnosed at 20 with MS. I have been on LDN for 2 Months with some improvement.My Mother had MS for something like 50 years. She came from a time before LDN, and effective management using diet, and nutrient/suppliement statagies.I am alergic to penicillin. My family originates from a Baltic nordic country which again adds to susseptability, through the low levels of sunlight (Vit D) at certain times of the year.I have been working in the film industry, a chemical/ toxic enviroment for 30 years, most of which are petroleum derivatives (glues, resins,paints, solvents. etc) but the volatile toxins still get through to your blood system. You may be provided with gloves, and masks, but they still get through. I feel that this exposure would make one more sensetive to allergens, and causing histamine reactions.If the conditions are there to trigger MS, and you'r geneticaly susseptable. It will get you.This is only one tail, of many.>From: wensu baki >Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] MS Onset Q/A>Date: Sat, 24 Jun 2006 14:16:00 -0700 (PDT)>>I have 3 second cousins with MS....they are all 25 yrs>older than me and we were diagnosed within 5 yrs.>These members are all on my mothers side of the>family. However 4 years ago an uncle on my fathers>side was diagnosed with Devics Disease....a nasty form>of MS....he is 10 yrs older than me.......The one>thing we all have in common is that either us or the>spouses worked around petroleum products. I can't go>near an airport without getting dizzy as hell.....I>did have Mono as a young adult but all that came of>that was an allergy to penicillian amd codine(the>treatment of choice at the time). Then I found out>that in 1993 it was discovered to not be wise to>administer those meds for recovery of mono......My>question is (finally) is it something we have been>exposed to? meds we may have been given?.....I find>it really ironic that soon after the discovery of>penicillian......that is when a looooooot of MS dxs>poped up.>>W2>>--- georgina374 wrote:>> > Hi Cindi, Michele, Wesley, Duncan, W2, and> > Perfectlysunnyday,> >> > Thank you all for answering. I hoped I could> > discover some specific> > thing which might point to the "AHA, that's when it> > all started", but> > we each have such a variety of experiences.> >> > I'm stumped because I am the only one in my family> > with MS. While it> > is not necessarily a familial condition I have heard> > from many who> > have at least one other family member with MS, and> > numerous families> > have several members with MS or at least with MS> > symptoms.> >> > I guess what I am trying to get at is, if we knew> > what the catalist(s)> > was/is then perhaps something could be done to> > prevent it; IE: Intall> > given to people with known allergies to prevent a> > histamine reaction> > from allergen exposure. Are some people more prone> > to getting MS than> > others, etc., and is there data in this regard?> >> > I feel Blessed and thankfull we have LDN to halt> > progression, but> > can't help but hope for better minds than mine to> > discover how to> > prevent this insideous disease.> >> > Gigi> >> >> >> >>>>__________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Why don't you have a hair analysis for heavy metals? Re: [low dose naltrexone] MS Onset Q/A>Date: Sat, 24 Jun 2006 14:16:00 -0700 (PDT)>>I have 3 second cousins with MS....they are all 25 yrs>older than me and we were diagnosed within 5 yrs.>These members are all on my mothers side of the>family. However 4 years ago an uncle on my fathers>side was diagnosed with Devics Disease....a nasty form>of MS....he is 10 yrs older than me.......The one>thing we all have in common is that either us or the>spouses worked around petroleum products. I can't go>near an airport without getting dizzy as hell.....I>did have Mono as a young adult but all that came of>that was an allergy to penicillian amd codine(the>treatment of choice at the time). Then I found out>that in 1993 it was discovered to not be wise to>administer those meds for recovery of mono......My>question is (finally) is it something we have been>exposed to? meds we may have been given?.....I find>it really ironic that soon after the discovery of>penicillian......that is when a looooooot of MS dxs>poped up.>>W2>>--- georgina374 wrote:>> > Hi Cindi, Michele, Wesley, Duncan, W2, and> > Perfectlysunnyday,> >> > Thank you all for answering. I hoped I could> > discover some specific> > thing which might point to the "AHA, that's when it> > all started", but> > we each have such a variety of experiences.> >> > I'm stumped because I am the only one in my family> > with MS. While it> > is not necessarily a familial condition I have heard> > from many who> > have at least one other family member with MS, and> > numerous families> > have several members with MS or at least with MS> > symptoms.> >> > I guess what I am trying to get at is, if we knew> > what the catalist(s)> > was/is then perhaps something could be done to> > prevent it; IE: Intall> > given to people with known allergies to prevent a> > histamine reaction> > from allergen exposure. Are some people more prone> > to getting MS than> > others, etc., and is there data in this regard?> >> > I feel Blessed and thankfull we have LDN to halt> > progression, but> > can't help but hope for better minds than mine to> > discover how to> > prevent this insideous disease.> >> > Gigi> >> >> >> >>>>__________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Hi All, The shetland isles is known as ms capital of Europe. I'v heard of one family has 3 or 4 with ms.Again vit-D is a culprit. http://www.duncans-travel.co.uk/ BE HAPPY http://www.newhopecentre.co.uk/home.php http://www.regenerativenutrition.com/ http://www.serrapeptase.info/ http://www.rain-tree.com/graviola.htm http://www.stem-cells.com/ http://www.duncans-travel.co.uk/ >From: Wesley <inspirfe@...> >Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] MS Onset Q/A >Date: Fri, 23 Jun 2006 13:35:23 -0500 > >There is a correlation between the distribution of people afflicted with >MS and lattitude. What aspect of lattitude isn't completely clear. >There are more people with MS in colder climates. Some believe only the >climate in which one spends their childhood matters. Vitamin D >deficiency has been proposed to explain the correlation. > >There are also MS " hot spots " . Scotland I think is one. I saw a blurb >on a local news cast in my new home base saying Northeast Wisconsin is >another, though I haven't been able to corroborate the information. > >Some things to think about and research, which I think is what you're >asking. > > >georgina374 wrote: > > >Hi Cindi, Michele, Wesley, Duncan, W2, and Perfectlysunnyday, > > > >Thank you all for answering. I hoped I could discover some specific > >thing which might point to the " AHA, that's when it all started " , but > >we each have such a variety of experiences. > > > >I'm stumped because I am the only one in my family with MS. While it > >is not necessarily a familial condition I have heard from many who > >have at least one other family member with MS, and numerous families > >have several members with MS or at least with MS symptoms. > > > >I guess what I am trying to get at is, if we knew what the catalist(s) > >was/is then perhaps something could be done to prevent it; IE: Intall > >given to people with known allergies to prevent a histamine reaction > >from allergen exposure. Are some people more prone to getting MS than > >others, etc., and is there data in this regard? > > > >I feel Blessed and thankfull we have LDN to halt progression, but > >can't help but hope for better minds than mine to discover how to > >prevent this insideous disease. > > > >Gigi > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Im feeling that those of us in MS groups or other organizations could probably post notices and questions to get answers. I am part of some groups and could possibly get the answers to them for one bunch of answers. right now, I am Located in Ct. Would anyone else be willing to work on this with me? 2 --- oothappam <oothappam@...> wrote: > oh!!!!!!! Man!!!!!!! I am amazed!!! > I wish we can get some statistics on this! > nola > Re: [low dose naltrexone] MS Onset Q/A > > > > Hi geogina 374 & wensu baki & co. > > I came across your story with interest and I > have a tail that may also > > interest. > > I am 49 and was diagnosed at 20 with MS. I > have been on LDN for 2 Months > > with some improvement. > > My Mother had MS for something like 50 years. > She came from a time before > > LDN, and effective management using diet, and > nutrient/suppliement > > statagies. > > I am alergic to penicillin. My family > originates from a Baltic nordic > > country which again adds to susseptability, > through the low levels of > > sunlight (Vit D) at certain times of the year. > > I have been working in the film industry, a > chemical/ toxic enviroment for > > 30 years, most of which are petroleum > derivatives (glues, resins,paints, > > solvents. etc) but the volatile toxins still > get through to your blood > > system. You may be provided with gloves, and > masks, but they still get > > through. I feel that this exposure would make > one more sensetive to > > allergens, and causing histamine reactions. > > If the conditions are there to trigger MS, and > you'r geneticaly > susseptable. > > It will get you. > > This is only one tail, of many. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 I'm a mathematician and computer scientist, among other things. I could help some, but my time is currently limited. wensu baki wrote: >Im feeling that those of us in MS groups or other >organizations could probably post notices and >questions to get answers. I am part of some groups >and could possibly get the answers to them for one >bunch of answers. right now, I am Located in Ct. >Would anyone else be willing to work on this with me? > >2 > >--- oothappam <oothappam@...> wrote: > > > >>oh!!!!!!! Man!!!!!!! I am amazed!!! >>I wish we can get some statistics on this! >>nola >> Re: [low dose naltrexone] MS Onset Q/A >> >> >> > Hi geogina 374 & wensu baki & co. >> > I came across your story with interest and I >>have a tail that may also >> > interest. >> > I am 49 and was diagnosed at 20 with MS. I >>have been on LDN for 2 Months >> > with some improvement. >> > My Mother had MS for something like 50 years. >>She came from a time before >> > LDN, and effective management using diet, and >>nutrient/suppliement >> > statagies. >> > I am alergic to penicillin. My family >>originates from a Baltic nordic >> > country which again adds to susseptability, >>through the low levels of >> > sunlight (Vit D) at certain times of the year. >> > I have been working in the film industry, a >>chemical/ toxic enviroment for >> > 30 years, most of which are petroleum >>derivatives (glues, resins,paints, >> > solvents. etc) but the volatile toxins still >>get through to your blood >> > system. You may be provided with gloves, and >>masks, but they still get >> > through. I feel that this exposure would make >>one more sensetive to >> > allergens, and causing histamine reactions. >> > If the conditions are there to trigger MS, and >>you'r geneticaly >> susseptable. >> > It will get you. >> > This is only one tail, of many. >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2006 Report Share Posted June 25, 2006 Huh. My dad was a Military pilot as well, I also was raised on base for a lot of my childhood...we lived in a Quonset hut at the end of the runway at one place when I was very little. He is passed now, he didn't live long enough to get Alzheimers, the booze did him in before that, he *did* have a brain tumor and I know my mother was operated on for one a few years back. HHHHmmmmm...... Peace and Blessings ~*~ Akiba ~*~ Pragmatic Visionary http://yodamamma.blogspot.com/ http://www.solay-twinflames.com -- [low dose naltrexone] MS Onset Q/A ---petroleum/airport?--This is VERY interesting to me. I grew up on air force bases, Dad was apilot.(he flew the SR-71 among many planes for 33 years). My best friend isa pathologist now but she also grew up on air force bases.Now she is anarmy doctor at Walter in DC. She knows I have MS .My dad hadParkinson's , hers has Alzheimer's, and she sees people and statistics allday, every day, about military personnel and health problems.She sold meseveral times that it is more than just a gut feeling she has, that MS andother neurological diseases-which are on the uprise, practically reachingepidemic proportions- especially among military people --have got to beenvironmentally related. She has remarked several times to me that shewonders if it has something to do with living on bases. Now after readingthese comments about petroleum, airports, etc, it really makes me wondertoo. Military people are never far away from big machinery-planes, etc.And I regret how much I always liked the smell of gasoline when I was a kid.Maybe lingering longer at the e gas pump when my parents would get gas inthe car was much worse than anyone knew?Nola Re: [low dose naltrexone] MS Onset Q/A> Hi geogina 374 & wensu baki & co.> I came across your story with interest and I have a tail that may also> interest.> I am 49 and was diagnosed at 20 with MS. I have been on LDN for 2 Months> with some improvement.> My Mother had MS for something like 50 years. She came from a time before> LDN, and effective management using diet, and nutrient/suppliement> statagies.> I am alergic to penicillin. My family originates from a Baltic nordic> country which again adds to susseptability, through the low levels of> sunlight (Vit D) at certain times of the year.> I have been working in the film industry, a chemical/ toxic enviroment for> 30 years, most of which are petroleum derivatives (glues, resins,paints,> solvents. etc) but the volatile toxins still get through to your blood> system. You may be provided with gloves, and masks, but they still get> through. I feel that this exposure would make one more sensetive to> allergens, and causing histamine reactions.> If the conditions are there to trigger MS, and you'r geneticalysusseptable.> It will get you.> This is only one tail, of many. Quote Link to comment Share on other sites More sharing options...
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