Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's. Marcie Dave Carlin <davizona@...> wrote: thanx for the reply Re: [low dose naltrexone] For anyone who had received the Nodict tabs I recently received a batch. No noticeable change in its effect compared to Revia, which is good. It dissolves readily. I followed Bruce's advice and am now putting whole pills in water without crushing and it works fine. wrote:>Anything noticeable you want to comment about. How it dissolves, any >noticeable improvements, anything at all?>>>>>>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 We are going away for a few days -we have a really busy few months coming up. I just want to leave you guys with a few thoughts. First of all its been incredible being here on this board even though I may disagree with people I really do understand.I"ve seen a lot of thing that alarm me and I'll you why. when people go off and do their own thing and there is a problem they will not blame the people who went off to do these things they will blame the drug. There is a huge issue with compounding-one false move and its news at 11 and the congress gets all bent out of shape. Most of its a bunch of baloney but you know these guys- if you watch c-span at all \you'll what a bunch bozos these guys can be.the other thing is - we will never the recognition we need unless there is some consistently -- there are too many variables .Dr Gluck created a list of approved pharmacies why? because these pharmacies provided the most consistent LDN and the people that were involved were people that understood the drug and could deal with the patients. If someone wants to be on that list I suggest they contact them get on the list. and these are the people who have putting their own personal money into supporting you guys.I'm not trying to be mean-- its like that lady who prescribed two times a day for peg-did she ask anyone? does she know how the drug works? I'm glad pet got it but i'm also glad she found her way here. think of all the people who havn't -some doctor prescribes it wrong and when it could help it won't because someone won't pick up the phone and make a phone or ask a question.back in a few unless we find a hotel with wificyndi On Jul 1, 2006, at 9:35 AM, Marcie wrote: I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's. Marcie . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 Cyndi, Because of all the typos in your post, I have to assume that you either typed it very quickly without really paying too much attention to what you wrote, or else you were very nervous typing it. That being said, I'm sure that if anyone here felt uncomfortable making their own treatment or taking anything that required some type of guidance, I think for the most part we're intelligent enough to make the right decision about how to pursue it. I can understand your endorsement of that list, especially with your husband being one of the people ON that list. I'm not trying to be mean myself, but I ALSO noticed the nice little advertising you did for his pharmacy on the trailer that you made. I feel you need to be somewhat careful, you dont want yourself looking like an advertising campaign for Skips Pharmacy. This is all about LDN, not Skip Re: [low dose naltrexone] Dissolving tablets We are going away for a few days -we have a really busy few months coming up. I just want to leave you guys with a few thoughts. First of all its been incredible being here on this board even though I may disagree with people I really do understand. I"ve seen a lot of thing that alarm me and I'll you why. when people go off and do their own thing and there is a problem they will not blame the people who went off to do these things they will blame the drug. There is a huge issue with compounding-one false move and its news at 11 and the congress gets all bent out of shape. Most of its a bunch of baloney but you know these guys- if you watch c-span at all \you'll what a bunch bozos these guys can be. the other thing is - we will never the recognition we need unless there is some consistently -- there are too many variables . Dr Gluck created a list of approved pharmacies why? because these pharmacies provided the most consistent LDN and the people that were involved were people that understood the drug and could deal with the patients. If someone wants to be on that list I suggest they contact them get on the list. and these are the people who have putting their own personal money into supporting you guys. I'm not trying to be mean-- its like that lady who prescribed two times a day for peg-did she ask anyone? does she know how the drug works? I'm glad pet got it but i'm also glad she found her way here. think of all the people who havn't -some doctor prescribes it wrong and when it could help it won't because someone won't pick up the phone and make a phone or ask a question. back in a few unless we find a hotel with wifi cyndi On Jul 1, 2006, at 9:35 AM, Marcie wrote: I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's. Marcie .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2006 Report Share Posted July 1, 2006 I support Dave's comment on this. I questioned Cyndi's comments in my mind too... If anyone writes their emails in Outlook, it's easy to turn on Outlook's free spell-checker: Go to Tools, Options, click the spelling tab and put a check in every box on the page--then OK. Outlook then checks your spelling before sending, stopping on any word it doesn't recognize so you have the chance to ignore or accept an alternate spelling. (And if you can't stand it, ignore what I've said! Your feedback is welcome and I'm not complaining!) Cheers, Rae From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Dave CarlinSent: Saturday, July 01, 2006 11:30 AMlow dose naltrexone Subject: Re: [low dose naltrexone] Dissolving tablets Cyndi, Because of all the typos in your post, I have to assume that you either typed it very quickly without really paying too much attention to what you wrote, or else you were very nervous typing it. That being said, I'm sure that if anyone here felt uncomfortable making their own treatment or taking anything that required some type of guidance, I think for the most part we're intelligent enough to make the right decision about how to pursue it. I can understand your endorsement of that list, especially with your husband being one of the people ON that list. I'm not trying to be mean myself, but I ALSO noticed the nice little advertising you did for his pharmacy on the trailer that you made. I feel you need to be somewhat careful, you dont want yourself looking like an advertising campaign for Skips Pharmacy. This is all about LDN, not Skip Re: [low dose naltrexone] Dissolving tablets We are going away for a few days -we have a really busy few months coming up. I just want to leave you guys with a few thoughts. First of all its been incredible being here on this board even though I may disagree with people I really do understand. I"ve seen a lot of thing that alarm me and I'll you why. when people go off and do their own thing and there is a problem they will not blame the people who went off to do these things they will blame the drug. There is a huge issue with compounding-one false move and its news at 11 and the congress gets all bent out of shape. Most of its a bunch of baloney but you know these guys- if you watch c-span at all \you'll what a bunch bozos these guys can be. the other thing is - we will never the recognition we need unless there is some consistently -- there are too many variables . Dr Gluck created a list of approved pharmacies why? because these pharmacies provided the most consistent LDN and the people that were involved were people that understood the drug and could deal with the patients. If someone wants to be on that list I suggest they contact them get on the list. and these are the people who have putting their own personal money into supporting you guys. I'm not trying to be mean-- its like that lady who prescribed two times a day for peg-did she ask anyone? does she know how the drug works? I'm glad pet got it but i'm also glad she found her way here. think of all the people who havn't -some doctor prescribes it wrong and when it could help it won't because someone won't pick up the phone and make a phone or ask a question. back in a few unless we find a hotel with wifi cyndi On Jul 1, 2006, at 9:35 AM, Marcie wrote: I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's. Marcie .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 I see no problem with advertising for Skip's on the LDN video. Funds were not solicited from the LDN group for making the video or to send them to the conference. Any expenses they incurred, I think, would at least qulify Skip's as a 'sponsor' deserving recognition. I am grateful that they had the 'heart' to give their efforts on our behalf. Not only do they deserve to be able to advertise on the video, it is their right. If Biogen made a video, do you think there would not be a plug for Avonex? > > > > > > > I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. > > Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's. > > Marcie > > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 How was this video or anything Skip does done on my behalf? If you want my opinion, any and ALL recognition should go to Dr Bihari. Advertising on a video like this looks a little tacky to me. [low dose naltrexone] Re: Dissolving tablets I see no problem with advertising for Skip's on the LDN video. Funds were not solicited from the LDN group for making the video or to send them to the conference. Any expenses they incurred, I think, would at least qulify Skip's as a 'sponsor' deserving recognition. I am grateful that they had the 'heart' to give their efforts on our behalf. Not only do they deserve to be able to advertise on the video, it is their right. If Biogen made a video, do you think there would not be a plug for Avonex? > > > > > > > I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. > > Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's.> > Marcie> > .> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Do you plan to use this video at all? If so it is on 'your behalf'. If not you should have no problem with ANY content. > > > > > > > > > > > > > > I was told by Y., a lady who used to check the board, > that she found the dissolving method much easier than trying to crush > them. > > > > Also, a compounding pharmacy locally does sell a month's supply > for $11.00 per month. They use the Revia tablets. So far they only > have one patient buying, therefor, buying pure naltrexone powder is > not feasible for them. The one patient is doing well though. She's > very pleased. My doc asked why I did not use the local compounder. > I explained the difference, and he understood. I use Skip's. > > > > Marcie > > > > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Do you plan to use this video at all? If so it is on 'your behalf'. If not you should have no problem with ANY content. > > > > > > > > > > > > > > I was told by Y., a lady who used to check the board, > that she found the dissolving method much easier than trying to crush > them. > > > > Also, a compounding pharmacy locally does sell a month's supply > for $11.00 per month. They use the Revia tablets. So far they only > have one patient buying, therefor, buying pure naltrexone powder is > not feasible for them. The one patient is doing well though. She's > very pleased. My doc asked why I did not use the local compounder. > I explained the difference, and he understood. I use Skip's. > > > > Marcie > > > > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 No, I dont plan on using this video in any way. I started LDN long before I knew who Skip was. I hope there is a lot more reference to Dr. Bihari on the final product. Maybe then I can get beyond the tacky advertising. [low dose naltrexone] Re: Dissolving tablets Do you plan to use this video at all? If so it is on 'your behalf'. If not you should have no problem with ANY content.> > > > > > > > > > > > > > I was told by Y., a lady who used to check the board, > that she found the dissolving method much easier than trying to crush > them. > > > > Also, a compounding pharmacy locally does sell a month's supply > for $11.00 per month. They use the Revia tablets. So far they only > have one patient buying, therefor, buying pure naltrexone powder is > not feasible for them. The one patient is doing well though. She's > very pleased. My doc asked why I did not use the local compounder. > I explained the difference, and he understood. I use Skip's.> > > > Marcie> > > > .> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Tacky Dave, Obviously you don't know ANYTHING about Skip. If you had been around this group for more than a few weeks, you would not be so nasty. Your ignorance is showing through your ugliness. Your coment about typing too quickly or being too nervous is idiotic. If you knew anything about MS, you would know that there are plenty of MSers in this group who have a real difficulty typing. Is that beyond your scope? You don't know anything about any of us. I don't want your opinion. Goodbye EdDave Carlin <davizona@...> wrote: How was this video or anything Skip does done on my behalf? If you want my opinion, any and ALL recognition should go to Dr Bihari. Advertising on a video like this looks a little tacky to me. [low dose naltrexone] Re: Dissolving tablets I see no problem with advertising for Skip's on the LDN video. Funds were not solicited from the LDN group for making the video or to send them to the conference. Any expenses they incurred, I think, would at least qulify Skip's as a 'sponsor' deserving recognition. I am grateful that they had the 'heart' to give their efforts on our behalf. Not only do they deserve to be able to advertise on the video, it is their right. If Biogen made a video, do you think there would not be a plug for Avonex? > > > > > > > I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. > > Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's.> > Marcie> > .> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 I just think it smacks of favoritism if we give Skip's Pharmacy a big opportunity to let them make an apparently exclusive plug to fill LDN prescriptions at the conference, etc, if we don't give other compounders that same opportunity (Irmats, etc.). Think of it this way: The MS Society can't endorse one MS drug over another, so it gives all drug companies equal opportunity to promote to their audience at MS events or in publications, making a disclaimer somewhere that they don't endorse any specific supplier. As I see it, we are the 'LDN society'. I think we need to be careful not to give too big an implied endorsement of Skips Pharmacy, when in reality people can get their LDN from a number of suppliers. Bren--your thoughts on the subject? Rae [low dose naltrexone] Re: Dissolving tablets I see no problem with advertising for Skip's on the LDN video. Funds were not solicited from the LDN group for making the video or to send them to the conference. Any expenses they incurred, I think, would at least qulify Skip's as a 'sponsor' deserving recognition. I am grateful that they had the 'heart' to give their efforts on our behalf. Not only do they deserve to be able to advertise on the video, it is their right. If Biogen made a video, do you think there would not be a plug for Avonex? > > > > > > > I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. > > Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's. > > Marcie > > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Hi Rae, Do you think that the conferences are not allowing Irmat and other companies a chance to do a presentation or a promotion? I would hope that everyone is given the same opportunity. I think Skip might just be the best and most dynamic to have stuff ready to promote (video, data, presentations etc.). Skip does have a big hart also. He often helps people out on the phone, even when they are not his clients. He also keeps his prices low, which helps many people on small budgets. My very best Aletha [low dose naltrexone] Re: Dissolving tablets > > I see no problem with advertising for Skip's on the LDN video. Funds were > not solicited from the LDN group for making the video or to send them to > the > conference. Any expenses they incurred, I think, would at least qulify > Skip's as a 'sponsor' deserving recognition. I am grateful that they had > the > 'heart' to give their efforts on our behalf. Not only do they deserve to > be > able to advertise on the video, it is their right. If Biogen made a video, > do you think there would not be a plug for Avonex? > > > >> >> >> >> >> >> >> I was told by Y., a lady who used to check the board, > that she found the dissolving method much easier than trying to crush > them. >> >> Also, a compounding pharmacy locally does sell a month's supply > for $11.00 per month. They use the Revia tablets. So far they only have > one patient buying, therefor, buying pure naltrexone powder is not > feasible > for them. The one patient is doing well though. She's very pleased. My > doc asked why I did not use the local compounder. > I explained the difference, and he understood. I use Skip's. >> >> Marcie >> >> . >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 bye Ed [low dose naltrexone] Re: Dissolving tablets I see no problem with advertising for Skip's on the LDN video. Funds were not solicited from the LDN group for making the video or to send them to the conference. Any expenses they incurred, I think, would at least qulify Skip's as a 'sponsor' deserving recognition. I am grateful that they had the 'heart' to give their efforts on our behalf. Not only do they deserve to be able to advertise on the video, it is their right. If Biogen made a video, do you think there would not be a plug for Avonex? > > > > > > > I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. > > Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's.> > Marcie> > .> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Oh, and Mr Ed, it appears that YOU are the one being nasty! > > > > > > > > > > > > > > I was told by Y., a lady who used to check the board, > that she found the dissolving method much easier than trying to crush > them. > > > > Also, a compounding pharmacy locally does sell a month's supply > for $11.00 per month. They use the Revia tablets. So far they only > have one patient buying, therefor, buying pure naltrexone powder is > not feasible for them. The one patient is doing well though. She's > very pleased. My doc asked why I did not use the local compounder. > I explained the difference, and he understood. I use Skip's. > > > > Marcie > > > > . > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 You're right Ed, I dont know anything about any of you, and you dont know anything about me, and since I'm one of you (us), that makes you just as much of a jerk as you claim I am. Wow, this is really getting complicated. Why dont you just chill out Ed? [low dose naltrexone] Re: Dissolving tablets Oh, and Mr Ed, it appears that YOU are the one being nasty!> > > > > > > > > > > > > > I was told by Y., a lady who used to check the board, > that she found the dissolving method much easier than trying to crush > them. > > > > Also, a compounding pharmacy locally does sell a month's supply > for $11.00 per month. They use the Revia tablets. So far they only > have one patient buying, therefor, buying pure naltrexone powder is > not feasible for them. The one patient is doing well though. She's > very pleased. My doc asked why I did not use the local compounder. > I explained the difference, and he understood. I use Skip's.> > > > Marcie> > > > .> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 How can I chill out when you keep sending me these idiotic emails. This is an open forum and you can say anything you want just like me. I took these exchanges private but you chose to bring back to the group. Why? Dave Carlin <davizona@...> wrote: You're right Ed, I dont know anything about any of you, and you dont know anything about me, and since I'm one of you (us), that makes you just as much of a jerk as you claim I am. Wow, this is really getting complicated. Why dont you just chill out Ed? [low dose naltrexone] Re: Dissolving tablets Oh, and Mr Ed, it appears that YOU are the one being nasty!> > > > > > > > > > > > > > I was told by Y., a lady who used to check the board, > that she found the dissolving method much easier than trying to crush > them. > > > > Also, a compounding pharmacy locally does sell a month's supply > for $11.00 per month. They use the Revia tablets. So far they only > have one patient buying, therefor, buying pure naltrexone powder is > not feasible for them. The one patient is doing well though. She's > very pleased. My doc asked why I did not use the local compounder. > I explained the difference, and he understood. I use Skip's.> > > > Marcie> > > > .> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 lol, Ed, you really need to calm down. > > > > > > > > > > > > > > > > > > > > > I was told by Y., a lady who used to check the > board, > > that she found the dissolving method much easier than trying > to crush > > them. > > > > > > Also, a compounding pharmacy locally does sell a month's > supply > > for $11.00 per month. They use the Revia tablets. So far > they only > > have one patient buying, therefor, buying pure naltrexone > powder is > > not feasible for them. The one patient is doing well though. > She's > > very pleased. My doc asked why I did not use the local > compounder. > > I explained the difference, and he understood. I use Skip's. > > > > > > Marcie > > > > > > . > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Ed. I have absolutely no desire to do anything with you privately. I stated an opinion on this forum, you have the right to agree with me or disagree with me. but you chose to start a confrontation. And now you're emailing me calling me names. What do you want from me Ed? [low dose naltrexone] Re: Dissolving tablets Oh, and Mr Ed, it appears that YOU are the one being nasty!> > > > > > > > > > > > > > I was told by Y., a lady who used to check the board, > that she found the dissolving method much easier than trying to crush > them. > > > > Also, a compounding pharmacy locally does sell a month's supply > for $11.00 per month. They use the Revia tablets. So far they only > have one patient buying, therefor, buying pure naltrexone powder is > not feasible for them. The one patient is doing well though. She's > very pleased. My doc asked why I did not use the local compounder. > I explained the difference, and he understood. I use Skip's.> > > > Marcie> > > > .> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 I thought the purpose of this group is to help each other, not to continually slam someone. Let's get back to what we want to do and that is to get the information out about LDN and to help our peers with their questions and giving your knowledge to others, not criticizing how some one writes a letter or how she might be making free advertising for Skip. Seems to me he is trying to help us so let's stop slamming and get back to helping. -- Re: [low dose naltrexone] Re: Dissolving tablets Tacky Dave, Obviously you don't know ANYTHING about Skip. If you had been around this group for more than a few weeks, you would not be so nasty. Your ignorance is showing through your ugliness. Your coment about typing too quickly or being too nervous is idiotic. If you knew anything about MS, you would know that there are plenty of MSers in this group who have a real difficulty typing. Is that beyond your scope? You don't know anything about any of us. I don't want your opinion. Goodbye EdDave Carlin <davizona@...> wrote: How was this video or anything Skip does done on my behalf? If you want my opinion, any and ALL recognition should go to Dr Bihari. Advertising on ! a video like this looks a little tacky to me. [low dose naltrexone] Re: Dissolving tablets I see no problem with advertising for Skip's on the LDN video. Funds were not solicited from the LDN group for making the video or to send them to the conference. Any expenses they incurred, I think, would at least qulify Skip's! as a 'sponsor' deserving recognition. I am grateful that they had the 'heart' to give their efforts on our behalf. Not only do they deserve to be able to advertise on the video, it is their right. If Biogen made a video, do you think there would not be a plug for Avonex? > > > > > > > I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. > > Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's.> > Marcie> > .> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 How about everyone stopping the ad hominem attacks. If you have a disagreement with another member, aim your attacks at what is being said. Calling people idiots and stupid is unproductive and hurtful. It does nothing to foster understanding and intelligent discussions/intelligent arguments and disagreements which could (easily?) be resolved by sticking to documented or anecdotal information/facts. Call me a stupid jerk and all that's going to happen is you will anger me, and, in the past, gotten me to respond at the same low level of discourse as has been found here. However, I've learned that this kind of response is not appropriate, useful or helpful in any manner. Please stop it. Also, PLULEEEEEZE edit out all the old material from your posts. I can't tell you how frustrating it is to have to scroll down a gazillion lines before getting to the next post, only to find 2 lines of new copy wherein one member is calling another member a name, then it's scroll city for another half hour before getting to the next new copy. What a waste of bandwidth and I'm probably going to get carpal tunnel syndrome from all the mouse clicking . . . lol As a newbie here, I must say that I find dealing with all the bs a little tiring and more than boring. Please regulate and police yourself and show respect for others, even if you disagree with them. Especially if you disagree with them. Warmly, Dan Wulfe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2006 Report Share Posted July 2, 2006 Davesorry about the typos I was walking out the door.as far as the advertising for Skip's Pharmacy goes -- just so I'm really clear and your understand.I am Skip's wife and I am a filmmaker. I am also a RN. We , Adam (my son) and I were volunteered to go to the LDN Conference to videotape it. Skips Pharmacy paid the bill for our trip up and back, our hotel room our food so we could accomplish this. They also pay for it to edited and they will pay all the bills for making this and because of this I am able to offer it for approximately 10 dollars. Skip wanted it to be free and I had to remind him of how much we had spent so far.In the world of filmmaking the person that pays the bill gets the credit. They are the executive producer. Last year I made a film and the guy that gave me the money was the executive producer.So at the end of my trailer is Skips Pharmacy and also Break 42 Productions which is my sons company. His gets to be there because of all the work he has done most of it for nothing and the same goes for me because we only get paid so much the rest of gratis, on the house.why because all of us believe in LDN so much and see the need in every day life and understand what this can mean.What I said about being careful i said out of experience. I've sat up until 3 am watching congress have hearings on compounding. and I sat screaming at my tv because they had a bunch of bad information. But I think my favorite was a woman pretending to be a journalist coming to interview us getting a great interview and using another interview from another compounder that was frightening.What I said was understand how things work. and I can guarantee you that if people start doing weird things it will affect the drug and everyones ability to get it. not the person that did ithere is an example. someone made up some kind of cream sold it to a doctor in one of the Carolinas. The doctor applied it in his clinic wrapped these people up in plastic wrap and the woman died. who was the news -the people from IACP.not the doctor.oh and the parents of the girl who wrapped her self in plastic wrap.The reason I mentioned the approved list of compounders is I know Dr Gluck put ALL those names up there because he understands I think better than anyone who someone could disparage LDN - see why you are taking it there are all these people working for you to make sure you can keep it. Cyndi On Jul 1, 2006, at 11:29 AM, Dave Carlin wrote:Cyndi, Because of all the typos in your post, I have to assume that you either typed it very quickly without really paying too much attention to what you wrote, or else you were very nervous typing it. That being said, I'm sure that if anyone here felt uncomfortable making their own treatment or taking anything that required some type of guidance, I think for the most part we're intelligent enough to make the right decision about how to pursue it. I can understand your endorsement of that list, especially with your husband being one of the people ON that list. I'm not trying to be mean myself, but I ALSO noticed the nice little advertising you did for his pharmacy on the trailer that you made. I feel you need to be somewhat careful, you dont want yourself looking like an advertising campaign for Skips Pharmacy. This is all about LDN, not Skip Re: [low dose naltrexone] Dissolving tabletsWe are going away for a few days -we have a really busy few months coming up. I just want to leave you guys with a few thoughts. First of all its been incredible being here on this board even though I may disagree with people I really do understand.I"ve seen a lot of thing that alarm me and I'll you why. when people go off and do their own thing and there is a problem they will not blame the people who went off to do these things they will blame the drug. There is a huge issue with compounding-one false move and its news at 11 and the congress gets all bent out of shape. Most of its a bunch of baloney but you know these guys- if you watch c-span at all \you'll what a bunch bozos these guys can be.the other thing is - we will never the recognition we need unless there is some consistently -- there are too many variables .Dr Gluck created a list of approved pharmacies why? because these pharmacies provided the most consistent LDN and the people that were involved were people that understood the drug and could deal with the patients. If someone wants to be on that list I suggest they contact them get on the list. and these are the people who have putting their own personal money into supporting you guys.I'm not trying to be mean-- its like that lady who prescribed two times a day for peg-did she ask anyone? does she know how the drug works? I'm glad pet got it but i'm also glad she found her way here. think of all the people who havn't -some doctor prescribes it wrong and when it could help it won't because someone won't pick up the phone and make a phone or ask a question.back in a few unless we find a hotel with wificyndi On Jul 1, 2006, at 9:35 AM, Marcie wrote: I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's. Marcie . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Thank you, Thank you, Thank you Cyndi. I knew there was probably a pretty good explanation for everything. I would still very much want one of the videos when they're available. Re: [low dose naltrexone] Dissolving tablets We are going away for a few days -we have a really busy few months coming up. I just want to leave you guys with a few thoughts. First of all its been incredible being here on this board even though I may disagree with people I really do understand. I"ve seen a lot of thing that alarm me and I'll you why. when people go off and do their own thing and there is a problem they will not blame the people who went off to do these things they will blame the drug. There is a huge issue with compounding-one false move and its news at 11 and the congress gets all bent out of shape. Most of its a bunch of baloney but you know these guys- if you watch c-span at all \you'll what a bunch bozos these guys can be. the other thing is - we will never the recognition we need unless there is some consistently -- there are too many variables . Dr Gluck created a list of approved pharmacies why? because these pharmacies provided the most consistent LDN and the people that were involved were people that understood the drug and could deal with the patients. If someone wants to be on that list I suggest they contact them get on the list. and these are the people who have putting their own personal money into supporting you guys. I'm not trying to be mean-- its like that lady who prescribed two times a day for peg-did she ask anyone? does she know how the drug works? I'm glad pet got it but i'm also glad she found her way here. think of all the people who havn't -some doctor prescribes it wrong and when it could help it won't because someone won't pick up the phone and make a phone or ask a question. back in a few unless we find a hotel with wifi cyndi On Jul 1, 2006, at 9:35 AM, Marcie wrote: I was told by Y., a lady who used to check the board, that she found the dissolving method much easier than trying to crush them. Also, a compounding pharmacy locally does sell a month's supply for $11.00 per month. They use the Revia tablets. So far they only have one patient buying, therefor, buying pure naltrexone powder is not feasible for them. The one patient is doing well though. She's very pleased. My doc asked why I did not use the local compounder. I explained the difference, and he understood. I use Skip's. Marcie .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Dave I'm sorry you did not understand. I try really hard to be clear. its kinda of all summed up in DATS SHOW BIZ! I feel so lucky to be able to do this project -- its beyond just putting something together for the sake of putting something together. I think I know how mary felt when she was writing her book-she just wanted people to understand - I feel like its more than a a dvd its more like a mission to get people to listen. thats why I put everything else aside to work on it. When we left to do this conference I had no idea that all this would happen-but as each person spoke and then the interviews I got the more blown away I got - and I thought -I have the chance to do some extraordinary. really incredible. I have the footage that doctors will watch and say "hey look men in suits (and woman also) standing at NIH talking about this drug. When I sat and edited I sat and cried. when I hear dr McCandles speak I am dumbfound - when I think of all those children all i can think of these poor children. and when Dr McCandles speaks of the cdc hiding records its totally freaks me out and I wonder what else are they hiding. When I listen to Dr Boyle speak about all his sucesses with LDN or Dr Glick when he proudly stood up there like a proud papa telling us and folks like Suzie, Bill Ann so bravely standing there and talking about their lives. Heres Suzie doing this whole conference and her father just died shortly before but she put on a happy face and got up there and made sure everything went well. These people are so brave. Like I said the entire day blew me away- the speakers-the work being done-getting to meet people. It was the hugest honor to be able to tape it. I feel like I am so fortunate to know you guys. To be able to see what you go through your eyes. and I think like did with her book I do the same thing with film. Because I understand. I hear over and over and over and over again what you guys go through when you go to the doctors. and I think if I have so many problems getting a doctor to listen to me about simple things - you guys must have to through hell.so when I saw a chance to do something about that I did. enough about all this and back to LDNcyndi On Jul 2, 2006, at 8:36 PM, Dave Carlin wrote:Thank you, Thank you, Thank you Cyndi. I knew there was probably a pretty good explanation for everything. I would still very much want one of the videos when they're available. Re: [low dose naltrexone] Dissolving tabletsDavesorry about the typos I was walking out the door.as far as the advertising for Skip's Pharmacy goes -- just so I'm really clear and your understand.I am Skip's wife and I am a filmmaker. I am also a RN. We , Adam (my son) and I were volunteered to go to the LDN Conference to videotape it. Skips Pharmacy paid the bill for our trip up and back, our hotel room our food so we could accomplish this. They also pay for it to edited and they will pay all the bills for making this and because of this I am able to offer it for approximately 10 dollars. Skip wanted it to be free and I had to remind him of how much we had spent so far.In the world of filmmaking the person that pays the bill gets the credit. They are the executive producer. Last year I made a film and the guy that gave me the money was the executive producer.So at the end of my trailer is Skips Pharmacy and also Break 42 Productions which is my sons company. His gets to be there because of all the work he has done most of it for nothing and the same goes for me because we only get paid so much the rest of gratis, on the house.why because all of us believe in LDN so much and see the need in every day life and understand what this can mean.What I said about being careful i said out of experience. I've sat up until 3 am watching congress have hearings on compounding. and I sat screaming at my tv because they had a bunch of bad information. But I think my favorite was a woman pretending to be a journalist coming to interview us getting a great interview and using another interview from another compounder that was frightening.What I said was understand how things work. and I can guarantee you that if people start doing weird things it will affect the drug and everyones ability to get it. not the person that did ithere is an example. someone made up some kind of cream sold it to a doctor in one of the Carolinas. The doctor applied it in his clinic wrapped these people up in plastic wrap and the woman died. who was the news -the people from IACP.not the doctor.oh and the parents of the girl who wrapped her self in plastic wrap.The reason I mentioned the approved list of compounders is I know Dr Gluck put ALL those names up there because he understands I think better than anyone who someone could disparage LDN - see why you are taking it there are all these people working for you to make sure you can keep it. Cyndi . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Thank you Cyndi. I apologize for taking anything away from you regarding this project. A few of the folks here got overly emotional and thought I was attacking you, I wasnt, I am just trying to understand your intentions with this video. I understand them now, and like I said before, I applaud your and your sons efforts. Re: [low dose naltrexone] Dissolving tablets Dave sorry about the typos I was walking out the door. as far as the advertising for Skip's Pharmacy goes -- just so I'm really clear and your understand. I am Skip's wife and I am a filmmaker. I am also a RN. We , Adam (my son) and I were volunteered to go to the LDN Conference to videotape it. Skips Pharmacy paid the bill for our trip up and back, our hotel room our food so we could accomplish this. They also pay for it to edited and they will pay all the bills for making this and because of this I am able to offer it for approximately 10 dollars. Skip wanted it to be free and I had to remind him of how much we had spent so far. In the world of filmmaking the person that pays the bill gets the credit. They are the executive producer. Last year I made a film and the guy that gave me the money was the executive producer. So at the end of my trailer is Skips Pharmacy and also Break 42 Productions which is my sons company. His gets to be there because of all the work he has done most of it for nothing and the same goes for me because we only get paid so much the rest of gratis, on the house. why because all of us believe in LDN so much and see the need in every day life and understand what this can mean. What I said about being careful i said out of experience. I've sat up until 3 am watching congress have hearings on compounding. and I sat screaming at my tv because they had a bunch of bad information. But I think my favorite was a woman pretending to be a journalist coming to interview us getting a great interview and using another interview from another compounder that was frightening. What I said was understand how things work. and I can guarantee you that if people start doing weird things it will affect the drug and everyones ability to get it. not the person that did it here is an example. someone made up some kind of cream sold it to a doctor in one of the Carolinas. The doctor applied it in his clinic wrapped these people up in plastic wrap and the woman died. who was the news -the people from IACP.not the doctor. oh and the parents of the girl who wrapped her self in plastic wrap. The reason I mentioned the approved list of compounders is I know Dr Gluck put ALL those names up there because he understands I think better than anyone who someone could disparage LDN - see why you are taking it there are all these people working for you to make sure you can keep it. Cyndi .. Quote Link to comment Share on other sites More sharing options...
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