Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 , I've been on LDN for only four months, but I still am having increased weaknesses and progressive symptoms. It has helped though with a lot of symptoms so I continue to take it. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 , According to MRIs, which I hear don't mean much, I show no progression. I think lack of mobility makes me feel like I'm progressing. So, it's hard to say. Marciekeith kowalis <wescokk@...> wrote: Cristopher, Artie and Nola,and everyone else, Is LDNstill stopping your progression? When I got on thisweb site 8 months ago and then started LDN 6 monthsago, everyone at the time told me, LDN might not giveyou any symptom improvement, but would stop yourprogression. It's not stopping mine. How bout yours?Let me know. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Hi, My husbands only lesion is now inactive (does not enhance) It has been 1.5+ years on LDN. He does not have any new lesions and his symptoms are 95% gone. Aletha [low dose naltrexone] ability to walk > Cristopher, Artie and Nola,and everyone else, Is LDN > still stopping your progression? When I got on this > web site 8 months ago and then started LDN 6 months > ago, everyone at the time told me, LDN might not give > you any symptom improvement, but would stop your > progression. It's not stopping mine. How bout yours? > Let me know. Thanks > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 I started on LDN at 4.5 mg 10 days ago. I do feel like it may be helping my stamina. I have been able to work in my garden for over an hour and still been able to walk to go into the house. This was with the temperature over 80 degrees. Last month if I did more than 15-20 minutes I would have to sit in a chair outside for at least another 15 minutes to just be able to walk into the house. This morning I actually jogged about15 yards on the way to the mailbox on a gravel road. I have not done that for a long time. I feel like I need to find a big tree to knock on. Peg -- [low dose naltrexone] ability to walk Cristopher, Artie and Nola,and everyone else, Is LDNstill stopping your progression? When I got on thisweb site 8 months ago and then started LDN 6 monthsago, everyone at the time told me, LDN might not giveyou any symptom improvement, but would stop yourprogression. It's not stopping mine. How bout yours?Let me know. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 I have PPMS and know I'm progressing, despite a year on LDN, but I'm HOPING the drug has had an effect. Maybe it only helps those with RRMS... It could be like Copaxone: I doubt LDN is working in me, but my neuros have all said to me that "you never know how much worse you'd have been by now if you had never gone on the drug". So I take LDN with Copaxone, hoping like hell it's doing something to delay further decline... Hang in there, . What choice do we have. Give up fighting MS? Not me--no way! Rae From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of Marcie Sent: Monday, July 03, 2006 1:48 PMlow dose naltrexone Subject: Re: [low dose naltrexone] ability to walk , According to MRIs, which I hear don't mean much, I show no progression. I think lack of mobility makes me feel like I'm progressing. So, it's hard to say. Marciekeith kowalis <wescokk@...> wrote: Cristopher, Artie and Nola,and everyone else, Is LDNstill stopping your progression? When I got on thisweb site 8 months ago and then started LDN 6 monthsago, everyone at the time told me, LDN might not giveyou any symptom improvement, but would stop yourprogression. It's not stopping mine. How bout yours?Let me know. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 > > , > I've been on LDN for only four months, but I still am having increased > weaknesses and progressive symptoms. It has helped though with a lot of > symptoms so I continue to take it. > Annette > ======= I was diagnosed Progressive Relapsing MS in 1989 and 4.5mg LDN has halted my progression 3 years July 11, 2006. I have done other things to hopefully keep that good result, like doing a very strict low carb diet(all my foods were organically grown) and eliminating from that diet all dairy except for occasional organic butter and organic cottage cheese. You need to be Sugar free(use stevia sweetener from a healthfood store), wheat free, soy free, gluten free, and dairy free as much as possible for 6 months. I did the Atkins diet and adjusted it even stricter by eliminating almost all dairy and wheat. I did this strict diet for 6 months making sure the candida had was way down. I took and still do take many candida ridding supplements and an anti-viral...L-Lysine 500mg twice per day, (dairy free)-Acidophilus, Oil of Oregano, Olive Leaf Extract, Garlic(lots of it), Caprylic Acid, Grapefruit Seed Extract. Milk Thistle for my liver. Adrenucleo(for adrenal exhaustion) and Enzimmune(to further boost immune system) both by Enzyme Process(do a google search for Enzyme Process). I take 4 Tart Cherry capsules per day by Solaray for inflammation. I take 4 CranActin cranberry capsules per day to keep bladder infections away. I have not ha a bladder infection in 18 years since I started taking cranberry capsules daily. I drink no coffee, no tea, no soft drinks. I stay clear of aspartame and splenda. I drink water and lemonade made with stevia sweetener and fresh squeezed organic lemons. Organic Herbal teas would be fine to drink. I exercised in a pool regularly, but any exercise/physical therapy is good and I also get lymphatic drainage massage for my lymphatic system. Note, if you do the strict low carb diet and you get extreme fatigue, headaches, hives and such, welcome these symptoms as they are an indication of healing. I try to get adequate sleep and keep my stress level as low as possible. I've even had to go as far as dis-owning some relatives and ditching some so-called friends who were making my life stressful. I want to continue to do as well as I am now and nobody's going to come along and cause me lots of stress and screw this up for me, I will get rid of them if they do. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 > > Cristopher, Artie and Nola,and everyone else, Is LDN > still stopping your progression? When I got on this > web site 8 months ago and then started LDN 6 months > ago, everyone at the time told me, LDN might not give > you any symptom improvement, but would stop your > progression. It's not stopping mine. How bout yours? > Let me know. Thanks > > ======== Upon the Autistic children starting LDN Dr. McCandless has seen that the yeast is brought to the forefront by the LDN in these kids and diet and supplements to help with yeast and possibly a 3 week course of Diflucan if one wants to use traditional medicine is what is neccessary. Nystatin does not get to the deep down yeast but Diflucan does. See the post I made at the link below. I go into the candida ridding diet in that link and supplements that I take. One MUST do the low carb diet to get the yeast to lower and later you can change to a more alkaline diet for overall health. low dose naltrexone : Message: Re: ability to walk low dose naltrexone/message/38893 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 --- In low dose naltrexone , keith kowalis <wescokk@...> wrote: > > Cristopher, Artie and Nola,and everyone else, Is LDN > still stopping your progression? When I got on this > web site 8 months ago and then started LDN 6 months > ago, everyone at the time told me, LDN might not give > you any symptom improvement, but would stop your > progression. It's not stopping mine. How bout yours? > Let me know. Thanks > > -- Hey , Some days I say yes and other days no. If I were to draw a line from last year to now the curve would be down. I am very confused. I can't walk as far as I could but my eyesight is fairly stable (not as blurry, less double vision). My bladder control at night is almost perfect (no more accidents) but at times it is difficult to begin voiding. My fatigue is based upon what kind of sleep I get the night before. When I awake I know right away what kind of day I'll have. My balance going down stairs is cautious and going up if I didn't have the handrail it would be impossible. As I said in a previous post my libido has disappeared. Not sure what to blame that on. I've tried DHEA with zero results. Viagra helps but it's not the same. One thing I do know is that I will NEVER go back to the CRAB drugs and Novantrone. I wish I could sue someone for pushing that garbage. So for now I stay on LDN. It's not hurting me and my yearly MRI shows no change from the year before so I guess this is good news. Hang in there, buddy. Maybe you need to increase your dosage to 4.5mg if you're not already on that or maybe you need to try DLPA? I take 500mg three times a day. Have you considered trying Prokarin. I use it. Seems to help a bit. Good luck. Multiple sclerosis SUCKS! Artie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2006 Report Share Posted July 6, 2006 , I'm sorry I did not reply to this earlier Well, I've been on LDN basically since February 2006.So far I cant see any relief of my mobility or bladder problems althouhthe terrible tinnitus has disaappeared ! THAT is good. BUt I know I've not been on this long enough yet to be able to say whether it's stopped the progression or not. So far it seems the same except for the tinnitus ggoing away. Nola [low dose naltrexone] ability to walk Cristopher, Artie and Nola,and everyone else, Is LDNstill stopping your progression? When I got on thisweb site 8 months ago and then started LDN 6 monthsago, everyone at the time told me, LDN might not giveyou any symptom improvement, but would stop yourprogression. It's not stopping mine. How bout yours?Let me know. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 In a message dated 7/3/2006 10:36:36 AM Pacific Standard Time, wescokk@... writes: Cristopher, Artie and Nola,and everyone else, Is LDNstill stopping your progression? When I got on thisweb site 8 months ago and then started LDN 6 monthsago, everyone at the time told me, LDN might not giveyou any symptom improvement, but would stop yourprogression. It's not stopping mine. How bout yours?Let me know. Thanks I believe that LDN has stopped the progression and that my sitdown profession and historical laziness about stretching and exercising and not building on strength vs disuse atrophy has allowed a steady decline in my mobility as if I had 2ndary Progressive MS. Unless I do have 2ndary Progressive MS. The test for 2ndary Progressive MS vs atrophy is an agressive weight training & PT. If you begin to recover your losses then it is NOT 2ndary Progressive MS In the mean time I enjoy a worry free bladder, and deep sleep. -Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2006 Report Share Posted July 29, 2006 An MRI of the Brain doesn't show the spinal cord activity of MS and doesnt show the effect of fatigue on our under exercised bodies _Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 thanks for the response. I have never been told I have 2nd ary progressive by my neuro, but my legs are getting weaker. If I do any exercise, whether it be in the pool, stationary bike, weights. I can do it, but I pay the price the next day, barely able to walk, and then the following days, no better than if I didn't exercise. I'm only doing like 5 minutes of exercise anyway. My last MRI last year was very active in the brain and spinal cord. I too am an office sales rep, so I am still working full time, with many naps to get through the day. I just wish the LDN would stop the progression, and I wouldn't get any worse. I have not done the PT yet. Maybe it's time. Thanks again keith Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.