Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 please email me with any tips on living with this !! I was dx'd in sept. 2005, am 52 and am sometimes at my wits end - my insurance with aflac expires in oct., and social security has already turned me down! am paying necessary bills, but have gotten little help from ms society, am still trying with ms foundation. have no family living close by, and friends can only do so much. would appreciate any advice anyone has to give. am taking 4.5 mg LDN /day (night), but my life is so stressful because of the financial situation, I haven't seen any results - only been on it for a couple months.....doctors seem to think I am in the small percentage of those with Progressive MS - they say I may have had it for years, and sx's were so 'subtle' that I just didn't pay attention to them. Most of the lesions are on my brain, and a spinal tap confirmed that it is definitely MS. Please post replies here, or email me at as1953@... - I'm dealing with it ok, but am not driving because left eye is affected, and I hate feeling so isolated. I look forward to hearing from you. Annette is my name. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2006 Report Share Posted June 11, 2006 Annette, Go to www.copingandprevailing.com If you cannot afford to pay for the book send me your mailing address and I will send it to you. Regards, Tom [low dose naltrexone] 'newbie' here - would like to hear from others who are alone,, and ones on LDN please email me with any tips on living with this !! I was dx'd in sept. 2005, am 52 and am sometimes at my wits end - my insurance with aflac expires in oct., and social security has already turned me down! am paying necessary bills, but have gotten little help from ms society, am still trying with ms foundation. have no family living close by, and friends can only do so much. would appreciate any advice anyone has to give. am taking 4.5 mg LDN /day (night), but my life is so stressful because of the financial situation, I haven't seen any results - only been on it for a couple months.....doctors seem to think I am in the small percentage of those with Progressive MS - they say I may have had it for years, and sx's were so 'subtle' that I just didn't pay attention to them. Most of the lesions are on my brain, and a spinal tap confirmed that it is definitely MS. Please post replies here, or email me at as1953@... - I'm dealing with it ok, but am not driving because left eye is affected, and I hate feeling so isolated. I look forward to hearing from you. Annette is my name. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2006 Report Share Posted June 12, 2006 I am in the same situation as you are Annette- alone, no income, no insurance, progressive MS, wheelchair bound and I don't like to think about the future but am trying to make myself believe that things are not so bad.Wil lwrite to you off list. Nola [low dose naltrexone] 'newbie' here - would like to hear from others who are alone,, and ones on LDN please email me with any tips on living with this !! I was dx'd in sept. 2005, am 52 and am sometimes at my wits end - my insurance with aflac expires in oct., and social security has already turned me down! am paying necessary bills, but have gotten little help from ms society, am still trying with ms foundation. have no family living close by, and friends can only do so much. would appreciate any advice anyone has to give. am taking 4.5 mg LDN /day (night), but my life is so stressful because of the financial situation, I haven't seen any results - only been on it for a couple months.....doctors seem to think I am in the small percentage of those with Progressive MS - they say I may have had it for years, and sx's were so 'subtle' that I just didn't pay attention to them. Most of the lesions are on my brain, and a spinal tap confirmed that it is definitely MS. Please post replies here, or email me at as1953@... - I'm dealing with it ok, but am not driving because left eye is affected, and I hate feeling so isolated. I look forward to hearing from you. Annette is my name. Quote Link to comment Share on other sites More sharing options...
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