A letter from Kay-PLease write her :)

[Guest guest]

Hi My Sweety Tweety,

How are you doing?

I'm having a lot of trouble using the computer, but wanted to update you.

I'm not really sure where I left off, but I have learned a lot since I

e-mailed you the last time. Mom told me that I was in the hospital in Aug.

because of my staph infection. They were trying to put a pick line for my

IVs. They accidentally punctured my left lung. They had to put in a drain

tube from that lung and get it to re inflate. They couldn't get me awake

after this was done. A few days later I woke up, but I couldn't talk.

Finally I began talking. My entire family came to be with me. I had no idea

I was so close to dying. I was in the hospital for 12 days. I don't

remember any of this.

I was in the hospital for 26 days of Sept. and Oct. I spent most of this

time in critical care. I had my shunt taken out in Sept. I remember most of

that. I had a few rounds of grand mal seizures during Aug. and Sept. (My

neurologist thinks it's from all the trauma.) When I came home, I had to

have IVs every 6 hours. I have had whelps from head to toe from the

antibiotics, but it is something that I've had to live with to get the staph

infection under control. had to take emergency leave from work so he

could do the IVs every 6 hours. I had a home health care nurse during this

time. I have had a very good infectious disease doctor ever since. I got to

stop my IVs 2 days ago. I had learned to do the IVs by myself. was

hospitalized with pneumonia during this time. He was able to go back to work

yesterday.

I know I've left out a lot, but I can't remember some of it. My memory is

getting better though. If it's not too much to ask, would you please post to

the group a little of what has been going on with me? I will be back with

the group when I'm feeling better. It's going to take some time. I would

love to hear from any of the group, but I can't answer most of them at this

time. I've already gotten a lot of e-mails from them and I really appreciate

their concerns and prayers. has been asking about me and I plan on

answering her.

Love you,

Kay

In His name,

Kay

Deep in the heart of Texas

Dallas/Ft. Worth Metroplex

ACM 1/hydrocephalus - " external " shunt surgery on June 8, 2001 by Dr.

Frim (Chicago pediatric neurosurgeon) / Age 54/ ill and 95% homebound for 17

years / CFS? / FM / NMH / hypothyroidism / low cerebral blood flow /

Barrett's Esophagus.........