Guest guest Posted May 12, 2006 Report Share Posted May 12, 2006 I was taking Betaseron for over a year and had to quit because of suicide thoughts and depression and panic attacks. I quit about 3 weeks ago and started LDN the 2 of May. I noticed my fatigue is worse and that seems to bring out some MS syptoms. I was wondering if anyone else went through this and if so does it go away. I think the reason I am so fatigued is becaused the LDN is causing me to dream all night and then I wake up feeling like I haven't slept at all. Also does anyone know if the dreams go away or not. Any imput would help thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2010 Report Share Posted August 8, 2010 Has anyone ever heard of taking LDN every other day? Since my DM appears to be either gone or in remission, my Dr. suggested that I take it every other day. Thoughts? Thanks, Jen rheumatic From: holloway-eva@... Date: Sun, 8 Aug 2010 10:49:36 -0700 Subject: Re: rheumatic Question about LDN it has helped me and I have both Interstitual lung disease and DM. My lungs are clear now and my DM is a lot better. It will take some time and you have to take your medication at all time. I also take NAC which helps with the lung. Just look up the letters NAC on the computer, it will give you lots of help, also ALA. regards, Eva From: Celia <DustBunniesAndBooks@...> Subject: rheumatic Question about LDN " Rheumatic " <rheumatic > Date: Sunday, August 8, 2010, 11:44 AM Does LDN help with Interstitial Lung Disease? I have it and dermatomyositis and wondering if the LDN might help both? --Celia <>< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 It has helped my pulmonary hypertension (I think, my symptoms at least) so it may very well help that as well. > > Does LDN help with Interstitial Lung Disease? I have it and > dermatomyositis and wondering if the LDN might help both? --Celia <>< > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Can I ask what meds you are taking for PH? And how were you dx with PH? do you have SD? Thanks, Debbie rheumatic Re: Question about LDN It has helped my pulmonary hypertension (I think, my symptoms at least) so it may very well help that as well. > > Does LDN help with Interstitial Lung Disease? I have it and > dermatomyositis and wondering if the LDN might help both? --Celia <>< > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 I take no meds for PH, yet. My Dr. says 3 more pressure points and I have to. I was diagnosed thru echocardiogram. I have CREST. > > > > Does LDN help with Interstitial Lung Disease? I have it and > > dermatomyositis and wondering if the LDN might help both? --Celia <>< > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Hi, I have Crest as well....what was your pulm pressure if you don't mind my asking....my heart Dr tells me he sees damages on the rt side of the heart in addition to the triscupid leak pressure...and that he sees the left ventricle getting smaller.... Did your heart DR want to do a heart cath? My cardiac Dr wants to and I am saying no, I just don't feel I need one at this time... I am going for another echo in a few months, different DR...just to get more info.. Keep us posted...Debbie rheumatic Re: Question about LDN I take no meds for PH, yet. My Dr. says 3 more pressure points and I have to. I was diagnosed thru echocardiogram. I have CREST. > > > > Does LDN help with Interstitial Lung Disease? I have it and > > dermatomyositis and wondering if the LDN might help both? --Celia <>< > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 My pressure was 26 in January 2009, 34 in January 2010 and 41 in June 2010. I am concerned that it is going up quickly. I have mild regurgitation also but no other damage so to speak. In 2009 the echo said severe mitral valve prolapse but for some reason the echo now doesn't say that. My cardiologist is not that concerned but I said I was so I sought out a PH specialist. He has not said I need to do a heart cath at this time, nor do I want to. I had a bronchoscopy in '07 and had a severe inflammatory response so I want to avoid any unnecessary invasive procedures. I am satisfied I have PH so I don't really see the point in doing the heart cath. My goal is to reverse the PH through AP and LDN. May be a pipe dream but that is my goal! > > > > > > Does LDN help with Interstitial Lung Disease? I have it and > > > dermatomyositis and wondering if the LDN might help both? --Celia <>< > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 My pressure changes depending on where and who does and reads the Echo...I know that the PH spec here in town, Cincinnati, said he believes in beginning the PH meds immediately when dx...because that way you can try and stop it from climbing higher, limit damage to the heart... Yes, I have severe responses to anything they do invasively.....I had a lung biopsy years ago, etc...and everything that can happen, did...That is my feeling...why do the heart cath, if you think I have it, go ahead and treat me...or if you can see the heart damage from the PH on the echo, then treat me...he wants the gold standard of diagnostic tools, the heart cath... Since he is the only PH spec here in town, I won't burn bridges but I see no reason to do the heart cath now... Hang in there. Debb rheumatic Re: Question about LDN My pressure was 26 in January 2009, 34 in January 2010 and 41 in June 2010. I am concerned that it is going up quickly. I have mild regurgitation also but no other damage so to speak. In 2009 the echo said severe mitral valve prolapse but for some reason the echo now doesn't say that. My cardiologist is not that concerned but I said I was so I sought out a PH specialist. He has not said I need to do a heart cath at this time, nor do I want to. I had a bronchoscopy in '07 and had a severe inflammatory response so I want to avoid any unnecessary invasive procedures. I am satisfied I have PH so I don't really see the point in doing the heart cath. My goal is to reverse the PH through AP and LDN. May be a pipe dream but that is my goal! > > > > > > Does LDN help with Interstitial Lung Disease? I have it and > > > dermatomyositis and wondering if the LDN might help both? --Celia <>< > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 Hi Marla. it is not a pipe dream. I had severed pulmonary fibrosis back when I was diagnosed with CREST and MCTD & R/A. My doc's said I had approximately 5-6 months more to live. That is how bad my lungs were sclerosed. I went for pulmonary function test and was breathing at 50% capacity so they sent me for PH test which called for me getting on a treadmill. I nearly passed out and so the test was aborted. I never went back, but stayed on my minocin for 5 yrs and gradually got better. My ANA & RF were sky high at 640 and in the high 90's. My scans confirmed the Fibrosis in the lungs. Today, my blood work is 0 & 0 and my latest chest x-rays show no sign of disease. The findings are all normal..... I still take 50 mg. of Minocin MWF as a preventative. My doc has declared me in complete remission. Tomorrow I will be 74 yrs. old. I can dance, sing, snorkle, hike, lift heavy things and take care of my 96 yr. old Mom with Als.I have elinimated all heart meds, asthma meds, cholesterol meds, have halved my diabetes meds and my antihypertensive meds. The final organ to heal is my digestive track. That is healing fine. I am no longer on Proton pump meds and the diarrhea is gone. I take a lactaid once in a while for lactose intolerance, but find that I am becoming more and more tolerant to most dairy products. Once I had to carry bottles of medication around with me. Now I take 3-4 pills per/day and feeling fine and stronger than ever..... That pipe dream can be a reality. Just hang in there. Best to you, Dolores From: DEBBIE GIBSON <Debbullwinkle@...> Subject: Re: rheumatic Re: Question about LDN rheumatic Date: Thursday, August 19, 2010, 8:56 AM  My pressure changes depending on where and who does and reads the Echo...I know that the PH spec here in town, Cincinnati, said he believes in beginning the PH meds immediately when dx...because that way you can try and stop it from climbing higher, limit damage to the heart... Yes, I have severe responses to anything they do invasively.....I had a lung biopsy years ago, etc...and everything that can happen, did...That is my feeling...why do the heart cath, if you think I have it, go ahead and treat me...or if you can see the heart damage from the PH on the echo, then treat me...he wants the gold standard of diagnostic tools, the heart cath... Since he is the only PH spec here in town, I won't burn bridges but I see no reason to do the heart cath now... Hang in there. Debb rheumatic Re: Question about LDN My pressure was 26 in January 2009, 34 in January 2010 and 41 in June 2010. I am concerned that it is going up quickly. I have mild regurgitation also but no other damage so to speak. In 2009 the echo said severe mitral valve prolapse but for some reason the echo now doesn't say that. My cardiologist is not that concerned but I said I was so I sought out a PH specialist. He has not said I need to do a heart cath at this time, nor do I want to. I had a bronchoscopy in '07 and had a severe inflammatory response so I want to avoid any unnecessary invasive procedures. I am satisfied I have PH so I don't really see the point in doing the heart cath. My goal is to reverse the PH through AP and LDN. May be a pipe dream but that is my goal! > > > > > > Does LDN help with Interstitial Lung Disease? I have it and > > > dermatomyositis and wondering if the LDN might help both? --Celia <>< > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 Hi Dolores, your reply to Marla about the pipe dream being real, was so encouraging to me, and I'm sure many others. 4yrs homebound with RA (and only 60yrs young)  hard at times to remember all I use to do. I know the body can heal, and know AP and LDN is the road to heal. Thank you!! Blessings, sally Re: rheumatic Re: Question about LDN rheumatic Date: Thursday, August 19, 2010, 8:56 AM  My pressure changes depending on where and who does and reads the Echo...I know that the PH spec here in town, Cincinnati, said he believes in beginning the PH meds immediately when dx...because that way you can try and stop it from climbing higher, limit damage to the heart... Yes, I have severe responses to anything they do invasively.....I had a lung biopsy years ago, etc...and everything that can happen, did...That is my feeling...why do the heart cath, if you think I have it, go ahead and treat me...or if you can see the heart damage from the PH on the echo, then treat me...he wants the gold standard of diagnostic tools, the heart cath... Since he is the only PH spec here in town, I won't burn bridges but I see no reason to do the heart cath now... Hang in there. Debb rheumatic Re: Question about LDN My pressure was 26 in January 2009, 34 in January 2010 and 41 in June 2010. I am concerned that it is going up quickly. I have mild regurgitation also but no other damage so to speak. In 2009 the echo said severe mitral valve prolapse but for some reason the echo now doesn't say that. My cardiologist is not that concerned but I said I was so I sought out a PH specialist. He has not said I need to do a heart cath at this time, nor do I want to. I had a bronchoscopy in '07 and had a severe inflammatory response so I want to avoid any unnecessary invasive procedures. I am satisfied I have PH so I don't really see the point in doing the heart cath. My goal is to reverse the PH through AP and LDN. May be a pipe dream but that is my goal! & gt; & gt; & gt; & gt; & gt; & gt; Does LDN help with Interstitial Lung Disease? I have it and & gt; & gt; & gt; dermatomyositis and wondering if the LDN might help both? --Celia & lt; & gt; & lt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 That is so encouraging! I really want to heal my lungs with my current treatment which is AP and LDN and not muddy the waters with other more toxic and expensive drugs that may be unnecessary. I see it as a race against time. If I can get my pressures down with these two meds then I won't have to go on the other stuff. > > > > > > > > Does LDN help with Interstitial Lung Disease? I have it and > > > > dermatomyositis and wondering if the LDN might help both? --Celia <>< > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2010 Report Share Posted August 19, 2010 Debbie did something calle photophoresis for her PH Ask her about that. She said it helped her a lot. I believe it was thru her doctor, Dr. Whitman in NJ. I also saw Dr. Whitman a few times. But by that time I was well on my way to recovery so I didn't need to do anything further than antibiotics. Best to you. Dolores > From: marlaprendergast <kws11@...> > Subject: rheumatic Re: Question about LDN > rheumatic > Date: Friday, August 20, 2010, 12:18 AM > > > > > > > > > > > > > > > >  > > > > > > > > > > That is so encouraging! I really want to heal my > lungs with my current treatment which is AP and LDN and not > muddy the waters with other more toxic and expensive drugs > that may be unnecessary. I see it as a race against time. If > I can get my pressures down with these two meds then I > won't have to go on the other stuff. > > > > > > > > > > > > > > > > Does LDN help with Interstitial Lung > Disease? I have it and > > > > > > dermatomyositis and wondering if the > LDN might help both? --Celia <>< > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 To all who are desperately seeking wellness, it can be achieved. It is a long hard battle, with lots of tears, frustrations and setbacks. But hang in there, all of you please. This battle can be won. It takes much patience and strength. When you feel like giving up, just post a note and think of the ones like myself who have made it to remission. Stay on your antibiotics and off toxic meds. There is no such thing as a quick fix. Your diseases were slow in developing and they will be slow in healing. What ever you all do, don't give up, ever. Everytime I got discouraged I thought about Lance Armstrong who beat the odds of terminal cancer and that kept me going. Find a dream and a hero and hang on to that. You will see it thru....I did!~~~Still in remission and still on Minocin 50mg now MWF as a preventative. RF-0 & ANA-0---no sign of former Pulmonary Fibrosis. Healing process still on going from Scleroderma (CREST)-R/A, & MCTD......Dolores From: DEBBIE GIBSON & lt;Debbullwinkle@... & gt; Subject: Re: rheumatic Re: Question about LDN rheumatic Date: Thursday, August 19, 2010, 8:56 AM  My pressure changes depending on where and who does and reads the Echo...I know that the PH spec here in town, Cincinnati, said he believes in beginning the PH meds immediately when dx...because that way you can try and stop it from climbing higher, limit damage to the heart... Yes, I have severe responses to anything they do invasively.....I had a lung biopsy years ago, etc...and everything that can happen, did...That is my feeling...why do the heart cath, if you think I have it, go ahead and treat me...or if you can see the heart damage from the PH on the echo, then treat me...he wants the gold standard of diagnostic tools, the heart cath... Since he is the only PH spec here in town, I won't burn bridges but I see no reason to do the heart cath now... Hang in there. Debb rheumatic Re: Question about LDN My pressure was 26 in January 2009, 34 in January 2010 and 41 in June 2010. I am concerned that it is going up quickly. I have mild regurgitation also but no other damage so to speak. In 2009 the echo said severe mitral valve prolapse but for some reason the echo now doesn't say that. My cardiologist is not that concerned but I said I was so I sought out a PH specialist. He has not said I need to do a heart cath at this time, nor do I want to. I had a bronchoscopy in '07 and had a severe inflammatory response so I want to avoid any unnecessary invasive procedures. I am satisfied I have PH so I don't really see the point in doing the heart cath. My goal is to reverse the PH through AP and LDN. May be a pipe dream but that is my goal! & gt; & gt; & gt; & gt; & gt; & gt; Does LDN help with Interstitial Lung Disease? I have it and & gt; & gt; & gt; dermatomyositis and wondering if the LDN might help both? --Celia & lt; & gt; & lt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 yes, the pipe dreams become reality. Even after I broke my hip I stayed on my antibiotic protocol. They were suprised how well I heald in a short time. I went home 11 days of rehab  even the surgoen and my GP told me, after 4 weeks that I heald very well in a short time and my colors were good. I am still limping some, using a cane but it has only been 6 weeks since the surgery and I am almost back to normal. I think it had something to do with the antibiotic protocol and the supplements I take. Yes I took LDN for 10 months but due to the fact that I right now take pain medication ( 1 pill a day) I can not take it, but hoping to get of the pain meds and back to using the 4.5 mg of LDN to let me sleep better. Dolores, I am so glad you keep encouraging the people that are fairly new to the AP. I know without your help and the RBF I would probably be in bed all the time and needing help to get up. My husband thought he would have to retire, but he is still going strong working every day and I am getting better all the time. My pulmonary doctor told me a cuple of months ago he has never seen someone get back to normal pulmonary functions with this illness. If someone has pulmonary issues take a look at NAC it is very helpful if you have pulmanry fibrosis, Eva From: DEBBIE GIBSON & lt;Debbullwinkle@... & gt; Subject: Re: rheumatic Re: Question about LDN rheumatic Date: Thursday, August 19, 2010, 8:56 AM  My pressure changes depending on where and who does and reads the Echo...I know that the PH spec here in town, Cincinnati, said he believes in beginning the PH meds immediately when dx...because that way you can try and stop it from climbing higher, limit damage to the heart... Yes, I have severe responses to anything they do invasively.....I had a lung biopsy years ago, etc...and everything that can happen, did...That is my feeling...why do the heart cath, if you think I have it, go ahead and treat me...or if you can see the heart damage from the PH on the echo, then treat me...he wants the gold standard of diagnostic tools, the heart cath... Since he is the only PH spec here in town, I won't burn bridges but I see no reason to do the heart cath now... Hang in there. Debb rheumatic Re: Question about LDN My pressure was 26 in January 2009, 34 in January 2010 and 41 in June 2010. I am concerned that it is going up quickly. I have mild regurgitation also but no other damage so to speak. In 2009 the echo said severe mitral valve prolapse but for some reason the echo now doesn't say that. My cardiologist is not that concerned but I said I was so I sought out a PH specialist. He has not said I need to do a heart cath at this time, nor do I want to. I had a bronchoscopy in '07 and had a severe inflammatory response so I want to avoid any unnecessary invasive procedures. I am satisfied I have PH so I don't really see the point in doing the heart cath. My goal is to reverse the PH through AP and LDN. May be a pipe dream but that is my goal! & gt; & gt; & gt; & gt; & gt; & gt; Does LDN help with Interstitial Lung Disease? I have it and & gt; & gt; & gt; dermatomyositis and wondering if the LDN might help both? --Celia & lt; & gt; & lt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; & gt; Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Marla,  I have taken LDN for 10 months and it has helped me a lot. I could not stand upright due to the fact I also have Dermatomyositis and it causes muscle weakness. after taking it for 2 months I noticed that I was more upright and by July this year I was almost walking normal (until I fell in a store and broke my hip). It gave me a better sleep, more energy and in the time I took the LDN I only had taken 3 Tylenol for other pain then RA. The amount you take is so minimal that it doesn't stay in your body longer then 16 hours. If you do not sleep well at night, then you may consider LDN, but if you have no sleep issues than don't take it. I never could sleep more than 1 hour or 2 and then I would lay awake for hours before I fell asleep again because of the RA pain. Eva From: marlaprendergast <kws11@...> Subject: rheumatic Re: Question about LDN rheumatic Date: Thursday, August 19, 2010, 11:18 PM  That is so encouraging! I really want to heal my lungs with my current treatment which is AP and LDN and not muddy the waters with other more toxic and expensive drugs that may be unnecessary. I see it as a race against time. If I can get my pressures down with these two meds then I won't have to go on the other stuff. > > > > > > > > Does LDN help with Interstitial Lung Disease? I have it and > > > > dermatomyositis and wondering if the LDN might help both? --Celia <>< > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 HI everyone, just wanted to clarify, I did photopheresis for 3.5 yrs...I developed the lung condition, common to RA...Obliterative Bronchiolitis..my body rejected my lungs...the bronchioles were being obliterated. The photopheresis stopped this disease in its tracks...Photopheresis has been used, to stop pulmonary fibrosis....as well...but I did not receive it for PF or for PH...it is NOT used for PH... Hope this helps. Debbie rheumatic Re: Question about LDN That is so encouraging! I really want to heal my lungs with my current treatment which is AP and LDN and not muddy the waters with other more toxic and expensive drugs that may be unnecessary. I see it as a race against time. If I can get my pressures down with these two meds then I won't have to go on the other stuff. > > > > > > > > Does LDN help with Interstitial Lung Disease? I have it and > > > > dermatomyositis and wondering if the LDN might help both? --Celia <>< > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Hi Debbie, Thank you for clearing that up. It is me, Dolores who sent out the message about people asking you re: photophoresis. I don't know much about it. Glad it worked for the specific condition you had. Sorry, folks, I was mistaken about its' use. It is not for PF or PH....Dolores > From: DEBBIE GIBSON <Debbullwinkle@...> > Subject: Re: rheumatic Re: Question about LDN > rheumatic > Date: Friday, August 20, 2010, 11:05 AM > > > > > > > > > > > > > > > >  > > > > > > > > > > HI everyone, just wanted to clarify, I did > photopheresis for 3.5 yrs...I developed the lung condition, > common to RA...Obliterative Bronchiolitis..my body rejected > my lungs...the bronchioles were being obliterated. The > photopheresis stopped this disease in its > tracks...Photopheresis has been used, to stop pulmonary > fibrosis....as well...but I did not receive it for PF or for > PH...it is NOT used for PH... > > Hope this helps. Debbie > > rheumatic Re: Question about LDN > > > > That is so encouraging! I really want to heal my lungs with > my current treatment which is AP and LDN and not muddy the > waters with other more toxic and expensive drugs that may be > unnecessary. I see it as a race against time. If I can get > my pressures down with these two meds then I won't have > to go on the other stuff. > > > > > > > > > > > > > > > > Does LDN help with Interstitial Lung > Disease? I have it and > > > > > > dermatomyositis and wondering if the > LDN might help both? --Celia <>< > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have > been removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 Yes, Photo is used for PF....just not in my case...Yale has a photopheresis unit and they use photo on SD patients all the time for PF...but as far as I know, not for PH. Thanks rheumatic Re: Question about LDN > > > > That is so encouraging! I really want to heal my lungs with > my current treatment which is AP and LDN and not muddy the > waters with other more toxic and expensive drugs that may be > unnecessary. I see it as a race against time. If I can get > my pressures down with these two meds then I won't have > to go on the other stuff. > > > > > > > > > > > > > > > > Does LDN help with Interstitial Lung > Disease? I have it and > > > > > > dermatomyositis and wondering if the > LDN might help both? --Celia <>< > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have > been removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2010 Report Share Posted August 20, 2010 I stand corrected again. Maybe, I should check this out more or maybe I should not comment on things I know nothing about. My PF got cured with only the Minocin. I guess I am just one of the lucky ones. Dolores Thank you all my friends for the wonderful birthday greetings. Now to enjoy my breakfast and the rest of the day with family.....Dolores > > > > > From: DEBBIE GIBSON <Debbullwinkle@...> > > > Subject: Re: rheumatic Re: Question about LDN > > > rheumatic > > > Date: Friday, August 20, 2010, 11:05 AM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > HI everyone, just wanted to clarify, I did > > > photopheresis for 3.5 yrs...I developed the lung > condition, > > > common to RA...Obliterative Bronchiolitis..my body > rejected > > > my lungs...the bronchioles were being obliterated. > The > > > photopheresis stopped this disease in its > > > tracks...Photopheresis has been used, to stop > pulmonary > > > fibrosis....as well...but I did not receive it for > PF or for > > > PH...it is NOT used for PH... > > > > > > Hope this helps. Debbie > > > > > > rheumatic Re: Question about LDN > > > > > > > > > > > > That is so encouraging! I really want to heal my > lungs with > > > my current treatment which is AP and LDN and not > muddy the > > > waters with other more toxic and expensive drugs > that may be > > > unnecessary. I see it as a race against time. If I > can get > > > my pressures down with these two meds then I > won't have > > > to go on the other stuff. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Does LDN help with Interstitial > Lung > > > Disease? I have it and > > > > > > > > > > dermatomyositis and wondering if > the > > > LDN might help both? --Celia <>< > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message > have > > > been removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have > been > > > removed] > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.