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RE: vulvar pain

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How long have you been on the meds?? Vioxx, Flexeril, Benedryl and

Vagifem? Did you start the Vagifem one every nite and then one tablet

twice weekly before going to once weekly?

You don't tell us your age - are you menopausal?

Has your doc given you a dianosis or is he/she just guessing at what your

problem is? By this I mean have there been any diagnostic tests like a

vulvar biopsy?

How long have you been suffering with this?

Really sorry that you had reasons to look for us, but glad you found us - we

understand your pain.

Dusty

vulvar pain

I was hoping someone would be able to suggesst something to take

away the pain of a burning red vulva. My doc has me on vioxx and

also just put me on flexeril which I will start tonight. The pain

is almost unbearable at this point. I am using vagifem one tablet

weekly and icing along with taking benadryl. I am at a lose and the

pain is so bad I don't know what to do anymore. On a side note I am

going to Dr. Goldstein next week. Any input would be

appreciated. I am also starting PT tomorrow.

Thanks

*****END OF MESSAGE/REMOVE WHEN REPLYING*****

http://groups.yahoo.com/group/VulvarDisorders

to search our archive or view our files.

***

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Dusty

I just started the vioxx on Saturday, the benadryl I have been

taking for a while, flexeril I am starting tonight and the vagifem I

have only been using once a week for two weeks. Thursday will be 3

weeks for the vagifem. The doctor only prescribed the vagifem one

tablet weekly. I have had VV for 3 years but only recently have I

been having a major flare up. No there were no biopsy done but I am

hoping that Dr. Goldstein will do one. I am 35 years old and do not

think I am peri menopausal since I am currently undergoing

infertility treatments and have had some testing done. I don't

think the doc was guessing at the diagnosis I just think things may

have changed and something else is going on to bring on all this

pain.

- In VulvarDisorders , " dusty " <dusty@b...> wrote:

> How long have you been on the meds?? Vioxx, Flexeril, Benedryl

and

> Vagifem? Did you start the Vagifem one every nite and then one

tablet

> twice weekly before going to once weekly?

>

> You don't tell us your age - are you menopausal?

>

> Has your doc given you a dianosis or is he/she just guessing at

what your

> problem is? By this I mean have there been any diagnostic tests

like a

> vulvar biopsy?

>

> How long have you been suffering with this?

>

> Really sorry that you had reasons to look for us, but glad you

found us - we

> understand your pain.

>

> Dusty

>

> vulvar pain

>

>

> I was hoping someone would be able to suggesst something to take

> away the pain of a burning red vulva. My doc has me on vioxx and

> also just put me on flexeril which I will start tonight. The pain

> is almost unbearable at this point. I am using vagifem one tablet

> weekly and icing along with taking benadryl. I am at a lose and

the

> pain is so bad I don't know what to do anymore. On a side note I

am

> going to Dr. Goldstein next week. Any input would be

> appreciated. I am also starting PT tomorrow.

>

> Thanks

>

>

>

>

>

> *****END OF MESSAGE/REMOVE WHEN REPLYING*****

> http://groups.yahoo.com/group/VulvarDisorders

> to search our archive or view our files.

>

> ***

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The things that are changing - could they maybe be infertility drugs??

High doses of progesterone and other drugs? I would guess that if the

answer to that is yes, you are probably reacting to the changes in your

" normal " levels of progesterone and estrogen being increased to facilitate

fertility. I know that for me, (in menopause and using HRT which

requires 10 days of Progesterone to cause a bleed) the 10 days of

Progesterone cause increased pain as does the early two days of the actual

bleed.

On the Vagifem - I was given that and told that it wouldn't be effective

unless I inserted EVERY nite the first two week and then twice a week

thereafter. If the problem is lack of estrogen to the vulvar area - one

Vagifem a week isn't going to rectify it, I don't think. You might want to

check the Vagifem insert and read the instructions there and if they sort of

agree with me, call the doc and see tell him what you read and ask if you

shouldn't be using in that manner.

Vioxx takes a while to build up too, though not two weeks. I take it for

arthritis and if I stop it for a while and start up again - it takes a week

or so to REALLY get relief, though there is a little relief generally right

away.

Benedryl is a good antihistamine but if the problem is allergy, it won't go

away over nite - and it won't go away at all if you are still being

subjected to the allergens.

I have been told that Dr. Goldstein is a surgeon. Have you decided to have

surgery for your problem?

Dusty

vulvar pain

>

>

> I was hoping someone would be able to suggesst something to take

> away the pain of a burning red vulva. My doc has me on vioxx and

> also just put me on flexeril which I will start tonight. The pain

> is almost unbearable at this point. I am using vagifem one tablet

> weekly and icing along with taking benadryl. I am at a lose and

the

> pain is so bad I don't know what to do anymore. On a side note I

am

> going to Dr. Goldstein next week. Any input would be

> appreciated. I am also starting PT tomorrow.

>

> Thanks

>

>

>

>

>

> *****END OF MESSAGE/REMOVE WHEN REPLYING*****

> http://groups.yahoo.com/group/VulvarDisorders

> to search our archive or view our files.

>

> ***

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Guest guest

>

> In a message dated 6/30/04 3:48:05 AM,

VulvarDisorders writes:

>

> << I was hoping someone would be able to suggesst something to

take

> away the pain of a burning red vulva. My doc has me on vioxx and

> also just put me on flexeril which I will start tonight. The pain

> is almost unbearable at this point. I am using vagifem one tablet

> weekly and icing along with taking benadryl. >>

>

> Hi ,

>

> The Vagifem could be causing the burning. The estrogen in it

could cause an

> yeast infection or the ingredients mixed with it maybe irritating

you. A

> couple of months of Vioxx did work for me, it put me in a semi-

remission. When

> the burning is terrible for me, Atropine cream works to relieve

the inflammation

> and burning. It's a compounded prescription cream and you can

find

> information about it in the archives. I also have found that

sometimes applying a

> little Lidocaine 5% ointment when it's really hurting helps. I'll

even apply a

> little to a cotton ball during the day and nestle it in the

opening of my vagina

> for pain relief. Other women find aloe gel, Crisco or Vitamin E

helps during

> a flare.

>

> <<On a side note I am going to Dr. Goldstein next week. >>

>

> After you give him approximately a thousand dollars, he'll

probably offer

> either Effexor and daily baths or surgery. He will occasionally

suggest physical

> therapy or biofeedback with Glazer. (He and Glazer have an

referral

> agreement). Unless you know your insurance will cover his fees or

you are positive

> you are a surgery candidate, I'd search the archives of this list,

the

> Vulvodynia list and the LS list for his treatments and suggest

them to a much more

> affordable doctor. He really does not offer anything that a $100

per visit

> doctor can't do.

>

> Good luck with the physical therapy, many women find it helps.

>

> Debbie

> Tiger

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