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[Guest guest]

In a message dated 10/15/2003 7:35:42 AM Eastern Daylight Time,

kneeleee@... writes:

I was having trouble getting my 6 yo

re-qualified for services at our local MR/DD

What is MR/DD?

[Guest guest]

,

In Ohio, MR/DD stands for " Mental Retardation and Developmental

Disabilities. " It is the entity that is supposed to be there for people who are

either MR

or DD or both. Once you qualify for services, you get a caseworker and then

various kinds of help according to what is avaible and what you need.

Roxanna

In a message dated 10/15/2003 8:39:39 AM Eastern Standard Time,

the3stacks@... writes:

I was having trouble getting my 6 yo

re-qualified for services at our local MR/DD

What is MR/DD?

[Guest guest]

CONGRATS !!!!! It is depressing though to have to fight the school

districts (whose mottos are " Striving For Excellance " )(at least all

the dallas texas schools have this on their signs out front) so hard

to help our children be the best they can be! You'd think that

someone would get a clue that us moms are not enjoying these IEP

meetings nor do we love labeling our kids with a disorder but that we

actually do it to help them strive to be the best they can be and be

WINNERS in this world!!! As redundant as it may sound....Go Girl!! I

know it may be bitter sweet for you but it is a great step towards

helping him be a winner and when our children do things right it is

such a self esteem booster to them. Boy did ya get all that? Talk

about a babbling , run on starter of a sentance!!! LOL

Good luck and Have a great day!

(

> As some of you might remember, I was having trouble getting my 6 yo

> re-qualified for services at our local MR/DD. The intake

specialist took one look at

> his IQ scores and dismissed him - literally. It took many months

of letters

> back and forth (many of them rather snotty!) to even get them to do

what they

> are supposed to do - evaluate him. Well, a few weeks ago, they did

evaluate him

> and we just got word that he was found eligible for services once

again.

>

> It's one of those good-bad news feelings - where you finally

achieve what

> you've been after but the fact that your child qualifies is in

itself, rather

> depressing. lol. Can't win, can we. But I am glad that it's over

and I'm glad

> that they bothered to look further at his needs.

> Roxanna ö¿ö

> Autism happens...

>

>

>

[Guest guest]

In a message dated 10/15/2003 8:50:18 AM Eastern Standard Time,

kneeleee@... writes:

In Ohio, MR/DD stands for " Mental Retardation and Developmental

Disabilities. " It is the entity that is supposed to be there for people who

are either MR

or DD or both. Once you qualify for services, you get a caseworker and then

various kinds of help according to what is avaible and what you need.

Roxanne You are lucky here there is a very long waiting

list up to 10,000 people on the list, and even if you qualify you cannot get any

services, some people with severely autistic children have been waiting years

to get help.

[Guest guest]

<<<<<<<It's one of those good-bad news feelings - where you finally achieve

what you've been after but the fact that your child qualifies is in itself,

rather depressing. lol. Can't win, can we. But I am glad that it's over and

I'm glad

that they bothered to look further at his needs.

Roxanna ö¿ö.

Roxanna, I am glad iti s over too and I am gladder that he is now going o get

what he needs. Good going, gal!!!! :-)

F

[Guest guest]

That's great that you got him what he needed! Perseverance is the name of the

game,

don't you hate that?

Liz

kneeleee@... wrote:

> As some of you might remember, I was having trouble getting my 6 yo

> re-qualified for services at our local MR/DD. The intake specialist took one

look at

> his IQ scores and dismissed him - literally. It took many months of letters

> back and forth (many of them rather snotty!) to even get them to do what they

> are supposed to do - evaluate him. Well, a few weeks ago, they did evaluate

him

> and we just got word that he was found eligible for services once again.

>

> It's one of those good-bad news feelings - where you finally achieve what

> you've been after but the fact that your child qualifies is in itself, rather

> depressing. lol. Can't win, can we. But I am glad that it's over and I'm

glad

> that they bothered to look further at his needs.

> Roxanna ö¿ö

> Autism happens...

>

>

[Guest guest]

Yes, I really hate having to push so hard for things he should get so easily.

I think in the land of budget cuts, that our MR/DD wants to get rid of

people and we were first in line. Reece was due for re-evaluation when he was 6

yo

(a year ago) and this thing has just now settled. The guy who is an expert in

developmental psychology even remarked to us that if he can score that high

on an IQ test, it means he must know a lot - implying that factoid knowledge

would translate into ability to get along in the world. Of course, that is not

true.

At his evaluation, he was his typical self for them. Whenever he doesn't

know the answer or doesn't want to answer, he says, " Yeaaaah " as a " filler " in

conversation. He said that A LOT to them so they actually were able to see how

weird it is and how clueless he is. Sometimes he would completely ignore

their questions as if they didn't exist. And sometimes he would give answers

that

were sort of correct but not quite. When they asked him what special class

he had that day at school - PE, art, music - he replied, " I made a flower. " I

never know if he does that because he thinks that is the right answer or if he

anticipates the next question and wants to save time. lol.

Roxanna

In a message dated 10/15/2003 7:57:06 PM Eastern Standard Time,

lbohn@... writes:

That's great that you got him what he needed! Perseverance is the name of the

game,

don't you hate that?

Liz

[Guest guest]

I don't know if I should say Congrats or I'm sorry! (((HUGS))) Help

is good. And hopefully that help will make our children successful.

a

[Guest guest]

June, I don't know just exactly what is going on, but if you have found lumps

under your arms you must have a mammo. I am recovering from breast cancer and I

would hate to see anyone go through what I did. You need a second opinion . I

don't know your age but anyone over 40 should have regular mammograms. I am

sorry that I am on my soapbox. But this is so close to home, I just don't want

anyone to have to walk the road I did. Judith Ann

June Dixon <juner24@...> wrote:Hi friends, I phoned the ortho guy today.

Couldn't phone before because of the lumps that Dr. Bykerk found under my arms

and I had to see a General Surgeon. He is not concerned about the ones under my

right arm but wants the one under my left, out. Therein lies a problem, he won't

do it without a general anesthetic and, of course, I can't have it. Now, we are

leaving it so he wants me go to my gp every two weeks to have the lump measured

and he will assess the situation in 3 months.

Now, getting back to my phone call. I asked the nurse if it would be possible

for her to look in her book and see where on the list I was for my operation. I

was absolutely stunned when she replied, " I can get you in on April 20 if you

like " . Of course I said yes. but still wondering about her statement.

So there you have it, the whole story. Well, not the whole story, the general

surgeon is a lovely man with a great sense of humour. He checked my boobs and

said they felt like sand and when I told him I had never had a mammogram, he

said, do you want one? then drew a picture of how it is done and when I said I

didn't want one he laughed and said he didn't blame me because he thought it

would hurt like hell. Funny, isn't it, if any doctor laughs and shows a sense of

humour, I am convinced he must be good!

Hope to get caught up with my email this weekend since I am very behind. 3

grandchildrens birthdays March 4, 18, 22 and 31. It seems all I have done is

make bread and bake birthday cakes.

Hugs

June

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[Guest guest]

----- Original Message -----

From: Judith Voter

> June, I don't know just exactly what is going on, but if you have found lumps

under your arms you must have a mammo. I am recovering from breast cancer and I

would hate to see anyone go through what I did. You need a second opinion . I

don't know your age but anyone over 40 should have regular mammograms. I am

sorry that I am on my soapbox. But this is so close to home, I just don't want

anyone to have to walk the road I did. Judith Ann

If it's under your arm, it may be as simple as a swollen lymph gland which can

be anything from an infection somewhere to lymphoma. Probably an infection. Do

they hurt? If they do, it's usually nothing serious. I just had a biopsy of

the one under my right arm (which hurt). It was nothing.

Nina

[Guest guest]

June, I second the motion that you need to get a mammogram. From

reading past posts, I have guessed your age as well over 40, LOL. Four

years ago my annual mammogram caught my breast cancer at a very early

stage, for which I am eternally grateful. I didn't even have any lumps.

Mammograms don't detect every single instance of breast cancer, but

they are one of the best weapons we women have to prevent it. Sue

On Thursday, March 31, 2005, at 11:01 PM, Judith Voter wrote:

>

> June, I don't know just exactly what is going on, but if you have

> found lumps under your arms you must have a mammo. I am recovering

> from breast cancer and I would hate to see anyone go through what I

> did. You need a second opinion . I don't know your age but anyone

> over 40 should have regular mammograms. I am sorry that I am on my

> soapbox. But this is so close to home, I just don't want anyone to

> have to walk the road I did. Judith Ann

[Guest guest]

Hi June,

Your surgeon sounds like a winner to me--a sense of humor in a doctor?

Rare!

I have lumps in both breasts (lipomas) and under both arms (adenomas)

which are painful. Yes, the mammogram hurts, for just a bit (you can

take Ibuprofen or similar before to minimize the discomfort) but having

surgery/radiation/chemo hurts much more. You are too special to risk

anything serious by NOT having the mammo, and if it really is too

painful, you can have ultrasound (I did last year). Ask them if they

have Mammopads which actually makes the mammogram less painful.

Take care,

Judi

[Guest guest]

Dear Barb,

Tennis elbow is no fun, but at least it WILL go away! I can relate to

you and caring for a 2-year old. Our daughter has 3 of them, 21/2

years old, and a 5-year old. If you pick one up, you have to pick each

of them up. And with my shoulder they told me NOT to pick any of them

up. But we will be babysitting Friday most of the day and until 9 PM

or later as has to go across the state for 2 days for school.

I'll need to sleep all day Saturday!

Take care, and I hope you mend soon,

Judi

[Guest guest]

Home > News in English > News

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Italians make MS breakthrough

Healthy relatives could hold key to cure disease (ANSA) - Rome, April 19 - Italian scientists have made a breakthrough in multiple sclerosis research, showing that healthy relatives may hold the key to a long-elusive cure for the often devastating condition .The brains of healthy family members have similar lesions to their relatives with MS but their cerebral tissue seems to have reacted to protect itself, a team led by Giovanna Marrosu of Cagliari University and Nicola De Stefano of Siena University say ."At first sight the damage to the nerve-cell sheaths appears the same," Marrosu said in a paper published in the ls of Neurology ."But once you look closer, you see that the MS sufferers have another set of fuzzier alterations," she explained ."We already know the brain is able to repair itself. There's something in the healthy ones that protects the nervous system" ."Perhaps it has something to with a greater plasticity. Anyway, once we find out what it is we may have the key to eliminating the disease" .Marrosu and De Stefano studied some 400 individuals - half healthy, half with MS - for three years .They were all around 30-40, the typical age of onset of MS .At the end of the test period, only one of the healthy subjects had developed the disease and most of the sample had gone past the riskiest age ."We're pretty sure we can establish the differences between the healthy ones and their less fortunate relatives," said De Stefano ."Those protective factors could spell the end of MS" .MS is a lifelong chronic disease diagnosed primarily in young adults, who retain a virtually normal life expectancy .Estimates suggest that there are 2.5 million people living with MS and that women are twice as likely to be affected than men. Persons living with MS describe changes in sensations, visual problems, muscle weakness, depression, loss of bladder control, dizziness, pain and difficulties with walking, clumsiness and halting speech .Scientists have learnt a great deal about MS in recent years. But its cause remains elusive. Many investigators believe MS to be an autoimmune disease - one in which the body, through its immune system, launches a defensive attack against its own tissues. The 'non-aggression pact' between the body and its immune system goes awry. The immune system wrongly identifies parts of the body as a foreign threat and declares war. In the case of MS, it is the nerve-insulating myelin that comes under assault. This may be linked to an unknown environmental trigger - a common virus called Epstein-Barr virus seems the likelist candidate. Multiple sclerosis can range from relatively benign to devastating, as communication between the brain and other parts of the body is disrupted. There are also different forms of the disease. Twenty years ago, MS sufferers faced a hopeless future of long confinement to a wheelchair within 30 years of diagnosis. However, in the last decade, treatment has changed dramatically. There is still no cure but disease-modifying drugs now slow the progression and control symptoms of the disease .