Guest guest Posted June 19, 2003 Report Share Posted June 19, 2003 Hi guys, I have a question. How much azulfidine do all of you that are on it take? My Rumy just upped mine to 2000 a day. That seams a little high to me. I thought that I would see how much all of you are on. Thanks, [Ed. Note: Anything above 1500 mg per day caused excessive tinnitus for me, but if I recall correctly, one of my rheumies said you could go as high as 6000mg/day. Ron] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2003 Report Share Posted June 20, 2003 I am on 2 pills a day. (honestly, I am not sure how much that is!) One in the AM and one in the PM. I'll admit, lately I have upped my dose to 3-4 pills a day, and my Rheumy said that's fine if I feel the need. How many pills do you take a day? I don't think it comes in different strengths does is? Thanks! In a message dated 6/19/2003 7:05:06 PM Eastern Standard Time, morningstar75166@... writes: > Hi guys, > I have a question. How much azulfidine do all of you > that are on it take? My Rumy just upped mine to 2000 > a day. That seams a little high to me. I thought that > I would see how much all of you are on. > Thanks, > > > > [Ed. Note: Anything above 1500 mg per day caused excessive tinnitus for me, but if I recall correctly, one of my > rheumies said you could go as high as 6000mg/day. Ron] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 that's what i was just upped to i had read that you can go to 4000 mg/day. im upped to 2000 and im just not sure yet, but i haventseen any good out of it yet, since im only beginning month two. i hope youre doingok. btw, Ron what's tinnitus? please forgive my ignorance. thanks, holly Re: [ ] Digest Number 1946 Hi guys, I have a question. How much azulfidine do all of you that are on it take? My Rumy just upped mine to 2000 a day. That seams a little high to me. I thought that I would see how much all of you are on. Thanks, [Ed. Note: Anything above 1500 mg per day caused excessive tinnitus for me, but if I recall correctly, one of my rheumies said you could go as high as 6000mg/day. Ron] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2003 Report Share Posted June 22, 2003 > btw, > Ron what's tinnitus? please forgive my ignorance. > > thanks, > holly Hi Holly, It's ringing in the ears. Most people have it from time to time (at least I assume they do), but mine gets to be so intense sometimes that it's almost painful and no amount of external noise can mask it out. Please see: http://www.ata.org/ Since none of the rest of us have it, I assume it's unrelated to the Ps or PA. -- Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2003 Report Share Posted June 22, 2003 In a message dated 6/22/2003 6:12:56 AM Eastern Standard Time, PA@... writes: > Since none of the rest of us have it, I assume it's > unrelated to the > Ps or PA. > > -- Ron I have to sleep with a sound machine at night because of the ringing. This only happened as the PA worsened. Actually it came about when my SED rate was really high. It has subsided some over the last year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2003 Report Share Posted June 24, 2003 In a message dated 6/22/2003 6:07:14 PM Eastern Daylight Time, pookiegut@... writes: > > I have to sleep with a sound machine at night because of the ringing. This > only happened as the PA worsened. Actually it came about when my SED rate was > really high. It has subsided some over the last year. > > That is so funny. I also sleep with a sound machine and come to think of it the tinnitis started when all the other autoimmune illness started. I just never put the two of them together. WOW, TIFFANY Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 In a message dated 11/3/2003 7:22:21 AM Mountain Standard Time, writes: > If anyone should apologize it is your friend. Her grandson was > acting very rudely. She should have stopped him the first time. I completely agree with this, but I have to add that is this person really your " friend " ? Where do you think her grandson learned this attitude? Kids usually accept other kids unless they are told otherwise. It seems to me your " friend " should apologize not only for her grandson but for her own behavior as well. And if she doens't (as I suspect she won't) she isn't really a friend. Janis proud mom of 3 (6,4 and 2yr old with DS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Moderator note: The calendar link to this event is here: http://www.rhinoed.com/calendar.htm ======================================================= Please have readers know that the BioPhysics Institute will have a meeting in Fayetteville, North Carolina on September 17, 18 and 19th. For Information, please go to www.rhinoed.com, on the front page and then follow the click ins at the top. Thank you! Dana On 9 Sep 2004 15:47:23 -0000 wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Hi Larry, were you contacted by the BBC ?? Greg Is there Really NO MDPhD Curious? Ok, I've been taking LDN for a couple of years now (along with Copaxone). I've not gotten any worse which means nothing except I haven't gotten worse. I don't subscribe to the theory that because Pharmaceutical companies are only in it for the bucks there is no way to get an FDA approved study of LDN (but this feeling is fading). Pharmaceutical companies may be heartless corporate entities but there must be some researchers that want to find a sucessful treatment (without regard to striking it rich). Heck,you'd think a possivle Nobel prize or one of the tens or hundreds of other prizes or just help us would provide some incentive. I think having conferences is a good way to help us taking LDN feel good and make friends but is it doing anything to help the hundreds or thousands of people who won't go outside of their Doctor's treatment regimine. Since the National MS Society doesn't have any profit motive. can't we as a group put pressure on them to fufill there stated purpose, " to end the devastating effects of MS. " At least they no longer dismiss LDN out of hand. Larry [This message contained attachments] ________________________________________________________________________ ________________________________________________________________________ ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
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