Guest guest Posted September 5, 2001 Report Share Posted September 5, 2001 Zoe was 95% diagnosed today. She has Familial Mediterranean Fever. If not that, then Sickle Cell/Thalassemia, if not that, then Chiari or a combo of any or all of them. She will be formally tested for them all but was already given the prescription for the meds for the FMF. Dr. said he saw the fatigue in her face when he walked in. She's looked like this since she was a baby.....I'VE TOLD THEM AND TOLD THEM....SOMETHING'S WRONG WITH HER and they wouldn't listen....... Her spleen is enlarged...... Please, please, could the member who sent me info. on this illness before...please send it again...I can't even think right now, can't remember your name....... can't stop crying to think Thank you Much love, Traci ACM1, no surgery, hypothyroidism mom of Andre (15 yrs.), ACM1, cyst on brainstem, scoliosis _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
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