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Hi ! I'll give you my opinions, for what they are worth!

First, don't accept an " ok " as an answer. Get copies of ALL your lab

test results, including the viral load if she did one. My liver function

tests (AST, ALT) were only very slightly elevated and sometimes normal for

at least 5 years that I know of before a doctor thought to check for hep,

but a biopsy showed signs of chronic inflammation and early fibrosis. LFT's

can only be used as a guide, they are not accurate in determining the

amount, if any, of liver damage. You need all this information, along with

a good doctor, to make an informed decision. Yes, I personally believe you

should see a specialist. Unless your doctor has special training in

diseases of the liver she probably is not qualified to handle HepC. I guess

MY answer to your question 'what to ask' would be for an appointment with a

GI doc. (My doctor wasn't going to send me to a specialist either because my

LFT's were so mildly elevated, so I asked her if it was her, what would she

do. She thought about it, then said, I guess I'd see a specialist.) Hope

I've been some help! Be assertive!!

Claudine

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Hi ! I'll give you my opinions, for what they are worth!

First, don't accept an " ok " as an answer. Get copies of ALL your lab

test results, including the viral load if she did one. My liver function

tests (AST, ALT) were only very slightly elevated and sometimes normal for

at least 5 years that I know of before a doctor thought to check for hep,

but a biopsy showed signs of chronic inflammation and early fibrosis. LFT's

can only be used as a guide, they are not accurate in determining the

amount, if any, of liver damage. You need all this information, along with

a good doctor, to make an informed decision. Yes, I personally believe you

should see a specialist. Unless your doctor has special training in

diseases of the liver she probably is not qualified to handle HepC. I guess

MY answer to your question 'what to ask' would be for an appointment with a

GI doc. (My doctor wasn't going to send me to a specialist either because my

LFT's were so mildly elevated, so I asked her if it was her, what would she

do. She thought about it, then said, I guess I'd see a specialist.) Hope

I've been some help! Be assertive!!

Claudine

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, it's me again!

You asked about symptoms - Many people don't have ANY! Or they are so

vague you don't realize you are having them. Probably the #1 symptom is

fatigue, lack of energy, etc. Some people have occasional fever, body aches,

nausea. There is lots of info at web sights like

Hepatitis-Central and others. Check them out. Claudine

>

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Claudine,

Thanks. You know how men can be about going to the doc. I know I should be

more proactive. I hear an answer like 'it's OK' and I go with it. Thanks

for the support.

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Hi Donna, I could be wrong, but if you don't have any active virus it's not

there in your liver to damage it. Your very lucky! Just keep following up

with your doc to recheck. Claudine

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Hi Donna, I could be wrong, but if you don't have any active virus it's not

there in your liver to damage it. Your very lucky! Just keep following up

with your doc to recheck. Claudine

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Hey all, donna here, I am in sort of the same limbo as . In June 1998

- I was told by GP doing a routine physcial that I had tested positive for

Hep C. - Needless to say - it rocked my world and I went into shock and then

denial. Finally in April 99 I went to PCP who referred me to Liver

specialist. He was discussing modes of treatment when he went over my last

blood test and said- On never mind, you have no active virus at this time. I

will see you in 6 months for another blood test? He said that a small

percentage of people exposed to hep c can clear virus w/o treatment and that

I did test positive for Hep C anti-bodies but had no active virus. He never

mention a biopsy. Any suggestions.

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Thanks Claudine - I sure hope so. I dealt with some very serious Hep B back

in the 70's - had chronic, persistant hep for about 3 years. Had 2 separate

biopsy's and finally underwent surgery for a blockage in the hepatic duct.

Once that was removed I got better and have had decent blood work every year

until the Hep C news. I hope is stays gone. we all deserve good health.

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Hi . This is Heidi. Since you do not seem to have much information

about Hep C I would suggest ingesting as much information as possible. A

very good site to visit is Hepatitis Central.com. It is full of articles

regarding every aspect of the disease. There is also a bulletin board/chat

room for fellow suffers to chat. Best of luck and, I agree, you need a

different doctor.

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Hi. Try finding some good literature on the WWW, either at Hepatitis Central

or another site, march into your docs office, drop it off for some weekend

reading, and then go see a specialist. This is nothing to mess around with.

Good luck. Heidi

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,

Following basic tests are required to consider starting anti- viral

therapy:

Elevated AST/ALT

Positive HCV-RNA

Changes of ch hep on liver biopsy

If any two are present you should be on therapy.

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,

Following basic tests are required to consider starting anti- viral

therapy:

Elevated AST/ALT

Positive HCV-RNA

Changes of ch hep on liver biopsy

If any two are present you should be on therapy.

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  • 2 years later...
Guest guest

,

When I talk about " brain fog " it is a feeling of just

kind of being disconnected,

or " spaced out. "

Here's what I tell people: It's the feeling you would

have mentally if you

stayed up all night working and then went to sleep for

one hour. Then,

someone woke you up. That would be a " brain fog "

experience.

Immunity - now that has become my BIGGEST problem

since October.

All this winter, I have been sick with SOMETHING.

I've had numerous

sinus infections and bronchitis and three or four

intestinal viruses. As I

write, I have a bad head and chest cold. The longest

stretch of time that

I haven't had a virus this winter has been one week!

If you get the chance, tell me more about your

immunity problems, .

There are not a lot of men who visit these thyroid

boards.

Best regards, Jim

--- " Codling, " <john.codling@...> wrote:

> Jim I would be very happy if you would expand on the

> sentence below. this is how I feel. The brain fog is

> sometime like an empty box or I cannot digest

> things. Fatigue I understand and go you go into

> depth Immunity.

>

> Thanks

>

> C

>

>

>

>

> > But I still have terrible immunity,

> > > fatigue and brain fog.

> > >

> > > Jim

> > >

> > >

> > > >.

>

>

>

**********************************************************************

> This message may contain information which is

> confidential or privileged.

> If you are not the intended recipient, please advise

> the sender immediately

> by reply e-mail and delete this message and any

> attachments

> without retaining a copy.

>

>

**********************************************************************

>

>

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  • 4 years later...
Guest guest

I have had both pvc's and ventricular palpatations. Both make you feel

like your heart is jumping out of your chest. The ventricular

palpatations were caused by an abherrant nerve. It is common for

persons with MS to get an abherrant nerve in the heart. As my

cardiologist said, hearts are all electrical anyway.

The PVC (premature ventricular contraction) I got were caused by a

food allergy, specifically nutrisweet. A nurse told me that

nutrisweet causes a type of " sludge " around your nerves. This is

particularly a problem for persons with MS who already have a troubled

nervous system. When I gave up nutrisweet I never had them again.

The ventricular palpations I had were exacerbated by another

autoimmune disease - graves disease. This is an overactive thyroid.

It is also common for autoimmune diseases to come in pairs. If you

have the palpatations frequently and are also suffering any of the

other symptoms of graves disease (hair thinning, frequent bowels,

weight loss, fatigue, loss of eyebrows, ) I would get a thyroid level

check. Graves disease is treatable. Once I got my thyroid under

control I rarely had palpatations again.

There is a quick trick to stop the palpatations if you catch it

early. Sit down and drop your head as far as you can between your

legs. If you spread your legs apart you can roll forward on your

thighs to get your heart down around your knees. Then also, drink

water.

Take care and good health.

Pam

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