Attn: Patti / Re: KGD & Osteo

[Guest guest]

Patti,

I wonder if a vibrating Lazyboy recliner would help too or if the

actual standing part makes the difference? I would like to read an

article about this.

and one of the things they devised for them was a vibrating platform

for them to stand on (strapped down to it). The vibration apparently

stimulated new bone growth and offset the usual bone loss they had

seen. So... this young lady's determined mom made a vibrating

platform for her daughter that she can use while in some sort of

standing frame. Seems like this would be a good sensory integration

thing, too. I am trying to inspire my husband to figure out how to

make one of these since I know Katera will be at least at risk...

since she doesn't yet walk without help (at almost 6) and certainly

doesn't run and jump like other kids her age, plus was on AEDs for

four years, plus now the diet for almost 2 years. Anyway, just

thought this was interesting.

>

> Patti

> Attn: Patti / Re: KGD & Osteo

>

>

> Patti,

>

> << This is interesting.... but please remember that the Keto diet

is NOT a

> high-protein diet. >>

>

> True . . . But, unfortunately we all use protein that is mainly

from animal

> sources which is acid, and contributes to the increase risk of

kidney stones

> AND bone loss.

>

> Ainsley has now been on the diet now for 6.2 years and is

suffering from

> severe osteoporosis. Fortunately she never suffered from kidney

stones.

>

> You will find that as some children drop down in ratio, you have

the

> opportunity to slant more towards protein, as we chose to do with

Ainsley.

> Thereby increasing the acid overload. We did try to use more

alkaline foods

> as we were dropping ratio, but unfortunately her little brain

could not

> tolerate the carbs/glucose. So we have maintained a 3.3:1 ratio

for the past

> year with reasonable (hey, I'm delighted success. Ainsley is

about 95%

> seizure free (drug free). The fact that she has an occassional

partial

> seizure causes me hesitation to lower the ratio. We are hanging

in limbo

> land for the time being.

>

> We recently met with an Endocrinologist regarding the

Osteoporosis. She

> admitted that " they/docs " were still unclear on how to treat

osteoporosis in

> teenage girls. She wanted me to submit any articles I had

regarding the KGD

> and osteo and she would follow up with some research in to it and

advise on

> treatment in several months.

>

> So . . . if any of you loopers have anything valuble saved, could

you please

> forward it on to me and I will submit it to the doctor. Thanks

in advance

>

> Anyway, back to the article . . . I thought it was very

interesting that

> being on a low carbohydrate diet (also interpretted as the KGD)

for 6 weeks

> delivers a marked acid

> load to the kidney, increases the risk for stone formation,

decreases

> estimated calcium balance, and may increase the risk for bone

loss.

>

> I think it's something to be aware of, especially for the newbies.

>

> Just my thoughts for the day Good luck to all going back to

school next

> week

>

> Lori R.

>

>