Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 hi names nancy brothers got ms progressed like yours Always getting worse never a remission. He started on betaseron then avonex then copaxone now hes not on anything but will go on LDN soon. Copaxone what can i say about it. Nothing it did nothing helped nothing if anything we believe this interfered with his vitamin /nutrient/herb regamin and if anything he progressed even faster.When he was at his worst a few yrs ago doctor got him off muscle relaxers and avonex and within few weeks he was doing much better.diagnosed 12 yrs ago he cannot transfer himself at all. have you asked anyone if they dropped their copaxone after starting LDN? By the way we have surplus copaxone still in frig if you want it,So expensive cant bring myself to throw away >From: " Rae & Doug Bower " <radbower@...> >Reply-low dose naltrexone ><low dose naltrexone > >Subject: RE: [low dose naltrexone] question >Date: Fri, 26 May 2006 09:38:00 -0400 > > > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 I concur about copaxone. I believe it did nothing at all for my wife. She's relapsing remitting and had more exacerbations while on copaxone than at any other time during her 10 year battle with MS. Not to say that copaxone caused them, but it didn't prevent them, either. She stopped copaxone at the same time as starting LDN. The skin lesions from it were horrible. I, too, couldn't bring myself to throw away the left over copaxone, knowing we would never use it. Threw it away after it expired. Strange the attachments we develop. nancy millar wrote: >hi names nancy brothers got ms progressed like yours Always getting worse >never a remission. He started on betaseron then avonex then copaxone now >hes not on anything but will go on LDN soon. Copaxone what can i say about >it. Nothing it did nothing helped nothing if anything we believe this >interfered with his vitamin /nutrient/herb regamin and if anything he >progressed even faster.When he was at his worst a few yrs ago doctor got him >off muscle relaxers and avonex and within few weeks he was doing much >better.diagnosed 12 yrs ago he cannot transfer himself at all. >have you asked anyone if they dropped their copaxone after starting LDN? >By the way we have surplus copaxone still in frig if you want it,So >expensive cant bring myself to throw away > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 I also concur about copaxone. I am rrms and started Copaxone and LDN at the same time 3.5 years ago. I quit Copaxone 3 months ago -am still doing fine. I also have kept some in the refrigerator "just in case". Take care Dianna (Toronto, ON) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 yes well brother came home to live with me from hospital in warm springs ga at this time was only on mentioned alternative meds but docs took him off all alternatives and when he arrived here he had a catheter that was clogged which bought on his first seizure and severe uti,we spent 6 months trying to get right seizure meds for him and tried to get him back on alternative meds but this seizure made his memory worse and the meds did not work he had 2 more seizures and then docs changed his seizure meds to valporic acid and put him on copaxone.During these 2 yrs he has been in hospital 4 times in 04 and 8 times in 05 5 times in 06 so far before the copaxone and the uti from clogged up cath he would get sick 1-2 times a year needing hospital. the more he went in the hospital the worse he came home,proven fact. our copaxone has a while yet before we throw it out. yes strange attachments lol >From: Wesley <inspirfe@...> >Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] ray & doug >Date: Fri, 26 May 2006 13:12:16 -0500 > > > > >I concur about copaxone. I believe it did nothing at all for my wife. > >She's relapsing remitting and had more exacerbations while on copaxone > _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Many people have dropped their copaxine after starting LDN. It is nice however that someone could take the two together so they don't feel scared about being without something while starting out with LDN. , you are a wonderful sister to be there for your brother. Aletha RE: [low dose naltrexone] question >>Date: Fri, 26 May 2006 09:38:00 -0400 >> >> >> >> > > _________________________________________________________________ > Express yourself instantly with MSN Messenger! Download today - it's FREE! > http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2006 Report Share Posted May 26, 2006 Hi all. I was going to reply to privately, then thought several LDN users out there might have leftover Copaxone out there, and might appreciate this advice... Thanks for offering your surplus Copaxone. If you don't have the packaging anymore, it's not worth trying to ship it to me. Instead, why don't you give it to your local MS Support Group, where you'll likely find a local user for it in your area. If you do have the packaging, I'm in St sburg, FL, and you can reach me privately on raebower@.... Best regards, Rae Re: [low dose naltrexone] ray & doug >Date: Fri, 26 May 2006 13:12:16 -0500 > > > > >I concur about copaxone. I believe it did nothing at all for my wife. > >She's relapsing remitting and had more exacerbations while on copaxone > _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2006 Report Share Posted May 27, 2006 hi i wonder 3 1/2 yrs with both meds cant help but wonder if you had not been taking the copaxone how would you be right now. most people i read about are very new to ldn makes one wonder what if? >From: evilangl22@... >Reply-low dose naltrexone >low dose naltrexone >Subject: [low dose naltrexone] Re: ray & doug >Date: Fri, 26 May 2006 18:39:56 EDT > >I also concur about copaxone. I am rrms and started Copaxone and LDN at >the >same time 3.5 years ago. I quit Copaxone 3 months ago -am still doing >fine. >I also have kept some in the refrigerator " just in case " . > >Take care > >Dianna >(Toronto, ON) _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.