2nd LDN conference Update

[Guest guest]

I attended the 2nd LDN annual conference in Bethesda, MD. First I

would like to thank Susie Sedlock for organizing the event. I love

you Susie and thank you. For those of you who have been privileged

to meet Suzie .. you know what I mean. Lets move on .. I know many

of you are waiting eagerly for info ..

I missed the morning intros as I was placed on the front desk

welcoming people. I believe Susie gave a powerful talk remembering

her late Father.

Turnout was low .. like less than 50 people in all .. but many LDN

experts were present. I wish more people attended.

I missed much of Dr 's speak on Crohns Disease ..

however .... her bottom line was that LDN works for Crohns

Disease. Interestingly ... the LDN effect for Crohns lasted 4 weeks

after she stopped giving the drug. Some people did not go back to

taking LDN .... and disease activity stopped. They remained in

remission without taking LDN again. Others did relapse so she put

them back on it but she was not looking at LDN as a therapy for life

which amazed me. She studied mice and found better results in the

mice with higher doses of LDN .. in people she stuck to the low

dose. Some people took the LDN in the morning because they could not

tolerate the sleepless nights but her results still showed that LDN

is very effective for treating Crohns. This is very, very, exciting

because she will be the first to publish scientific data saying that

LDN works. She was an amazing speaker and her work is in a class all

of its own. I wanted to get her slide show for exact stats as I

didn't have a pen .. but I didn't. She also pointed out that

enkepahlin levels did not rise with LDN .. that made her ask the

question if LDN is working by increasing endorphins .. she expected

enkephalin levels to rise and was shocked that they did not in her

study but that is what science is all about she said. A lovely lady.

She implied that we could be looking at other mechanisms when it

comes to how ldn really works.

Dr J McCandless spoke about autism and how she believes it is

directly linked to poisoning our babies with the mercury in the

vaccines they receive. If she is given a child aged 3 or under she

believes she can have the kid in regular kindergarten without an

aide by the time they are 6. She takes the m off wheat and milk

among other poisons, uses chelation therapy and detoxes their bodies

of mercury. She has started to use LDN as part of her therapy and is

very excited with the results. LDN makes a big difference to these

kids. She gives it to them in cream form .. pure naltrexone powder

mixed with emu oil (emu oil is the secret!) and it goes straight

into the system .. she does this because many have absorption issues

or don't like the taste ... very interesting. Her 13th grandchild

was diagnosed with autism .. hence her interest. Dr McCandless looks

amazing .. she is 74 and filled with energy and enthusiasm helping

many, many people bond with their kids for the first time ever.

LDN Advocates panel .. A lady spoke about her success with LDN for

Chrohns disease. A man spoke about his success with LDN for HIV (on

LDN for 16 years now!) read out a testimony from

detailing her success with LDN for her MS, her Moms breast cancer

and possibly her Grandmother's Alzheimer's. Susie spoke about LDN

and her success with CFS .. it was powerful to see real people give

real testimonies .. Everyone did an excellent job. I also spoke

briefly .. I explained noel continues to thrive on LDN .. his PPMS

is still in remission since september 2002. I am not as sure about

my uncle's Parkinson's .. more time is needed to fully determine how

effective LDN is for PD .. however my uncle is on nothing else and

when resting does better than when under stress .. so I believe

stress reduces the LDN effect. It is difficult when you put your

heart and soul into LDN and your Mom calls you to say that her

cancer has spread to her bones and you insist she is crazy because

she is taking LDN. There is a vulnerability I would like people to

avoid. However Mom is back on LDN having completed conventional

therapy and this time is on ldn with lactose filler instead of

calcium carbonate because maybe the CC filler made the drug slow

release and that is why it failed her the first time. I am proud

that my book Up the Creek with a Paddle has touched so many people

so deeply .. after the conference I firmly believe it is a very

accurate account and I would encourage people to read it because it

has helped and educated many people. I am proud of that. I spoke of

me on LDN .. I was on 4.5 mg and found it turned me into the

energizer bunny. I stepped taking LDN because I was afraid I was

going to burn myself out but said that it is a very good drug for

all hypochondriacs. I renewed my script at the conference. It turns

out most docs present are on it preventatively .. and so are their

families .. the expert minds present suggested I reduce my dose to

3mg and once I hit 45 up it to 4.5mg. I will try that. I also said

that I believe no celebrity will listen to us .. I have tried them

all .. also, I don't believe there is a conspiracy theory .. the

system is set up in such a way that the big drug companies can

simply choose not to hear us .. they don't have to open their door

to anyone that does not serve their interests .. they are not

interested in us. We are still very small. But we are not crazy /..

Dr B has found something worthy of the Nobel Prize .. he has

discovered something wonderful that has changed many lives .. I am

in touch with over 300 people on LDN .. and it works for a whole

spectrum of immune disorders .. many of which don't even have a

name. One guy said that Moms cancer may not repsond to LDN because

she was receptor negative .. he said maybe recpetor negative does

not respond to endorphins .. time will tell.

Then came Dr Phil Boyle. I am proud to say he is my brother and I am

not bias but this guy stole the show. He was so passionate about

LDN. He cannot believe people Doctors are reluctant to script the

drug because he is getting mind blowing results from using the drug

in Ireland. I do believe that Phil is the nicest guy alive .. he is

lovelier than lovely and so humble , natural and driven. I really

love him. Phil is a fertility doc in Ireland with a 6 month waiting

list as it is so he does not need extra work from LDN but he has

helped many people get the drug. He tells people to read my book,

ask their doc for the drug, and if they have no luck to call him. He

firmly believes LDN is clearly linked to endorphin production like

Dr Bihari said .. he believes that Dr Jill didn't see that

because people were taking the oral contraceptive pill in her study

and he believes that would have effected the results. Phil detailed

success stories with RA, MS and fertility! was concerned about

LDN being effective for something else because our issue is that our

credibility suffers because it is effective for so many things! Phil

saw that he could bring women's mense cycle and hormone levels into

line using LDN and therefore help them achieve pregnancy .. He was

using the drug before learning about Dr Bihari from me .. but

adopted Bihari's thinking since and is delighted with the results.

He is the new poster child for LDN .. Don't miss his talk when it

appears on the site .. Ireland is lucky to have him .. We need more

Dr Phil Boyle's globally. He said that it is sad that people are not

getting the drug because docs are afraid to script it for the wrong

reasons. Docs are not afraid of harming their patients .. they are

afraid of getting sued. He detailed how dangerous many of the drugs

prescribed are and that highlighted how remarkable LDN truly is. It

is the most ethical choice for many conditions for the most obvious

of reasons .. Phil compared the LDN story to that of Watergate .. he

believes it is scandalous that people are being kept sick and even

let die for profit. Phil got the whole room pumped!! Phil used to

get a kit to measure endorphins but the US company no longer makes

these kits .. but he said that it is smart to measure endorphins pre

and post LDN ..

And then we had Dr Skip. I have said it before and I will say it

again this guy is a riot! I love this guy. I had the privilege of

having dinner with Skip and his lovely wife Cyndi and son Adam ..

who is gorgeous by the way. Adam and Cyndi filmed and recorded the

whole event. Dr Skip proved without a doubt that the CC filler faile

dmy Mom. Whether her cancer will respond to LDN or not he does not

know for sure but he does know for sure she did not get LDN the

first tiem around .. .. he did a study that proved that CC filler

makes the drug slow release. He also showed us that there are side

effects with LDN but they are minimal in comparison to everything

else. Taking LDN is still a no brainer for Dr Skip who told us that

he makes money from selling LDN so to be wary of what he says. His

studies were difficult to ignore .. this guy knows what he is

talking about .. very, very, intelligent man .. out on his own in

many ways.

Dr Pat Crowley then showed a documentary he made interviewing Dr

Bihari a few years ago. It was beautiful. It was nice to see Dr B in

good health. Dr Crowley has about 30 people in Ireland on LDN and is

also getting great results. Dr Crowley's movie had 2 patients with

MS on LDN saying how they felt like they were given a second chance

at life. His documentary captured Dr Biharis thinking well ..

endorphins dip and LDN fixes them and people live happily ever

after .. There are still questions to be answered and although LDN

works for the majority .. it does not work for everyone .. why .. we

simply do not know. I was very grateful that Dr Crowley made the

trip and shred his passion and knowledge with everyone.

It was a great day for LDN .. a great great day!! So much

information, passion and knowledge .. I got to meet many wonderful

people ... very special people with whom I will always have a bond.

Thank you Susie once again .. a job very well done. thanks also to

and Dr Gluck .. great job guys!

[Guest guest]

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