Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 This might be a question to ask on the willis group... cerebral palsy > Does anybody know if a diet, supplements, etc. can help children with > cerebral palsy also? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 > Does anybody know if a diet, supplements, etc. can help children with > cerebral palsy also? This might help http://www.danasview.net/ataxia.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 My daughter's primary diagnosis is CP. She also has a seizure disorder. I like to call her " biologically autistic " because she has alot of the deficiences assocaited with autism. Her neuro says that she thinks that her seizures are metabolic in nature but says that any problem we might find is cetainly incurable! She even took my daughters record to the NIH and all of the experts came up with the same answer " We don't know what is wrong with her. " I certainly recommend Willis' site. His paper is awesome. A lot of info that relates to my daughter. > > Does anybody know if a diet, supplements, etc. can help children with > > cerebral palsy also? > > > This might help > > http://www.danasview.net/ataxia.htm > > Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hello , You can be assured that if the NIH stated they don't know what's wrong with your daughter that she probably has vaccine induced autism with hypotonic muscle weakness and the host of other unpleasant kinks in their systems that go along with it. I tend to think that if a doctor states something is incurable that is a sure sign it IS curable .....think about the body as a fine tuned computer with all the right parts but heaven help us(literally!) if the computer gets a virus(no pun intended!)....you just have to find the right mechanic that knows how to patch the virus if not delete it all together.Keep on going with your instincts ,your on the right track referring to Willis's book.I am only a mom not a doctor so don't take anything I say as medical advice because it is only my opinion. R Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2003 Report Share Posted November 25, 2003 > I was reading about celiac disease and it said that it could cause > cerebral calcifications and seizures. Would that show up as CP on an > MRI? What kind of seizures? I don't know much about CP, but consider gluten ataxia http://www.danasview.net/ataxia.htm Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2005 Report Share Posted February 10, 2005 Do you have a Family Resource Center in your area? They usually have a library that has a lot of information on disabilities. HTH, Rhonda in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Does anyone know of any results on cp after using naltrexone? I have a granddaughter who is seven years old with this condition and would like any information available on treating it. Thank you. Jim Hoodenpyle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Hi Jim, I have not heard of anyone myself, I hope someone could shed more light. My very best to you and your granddaughter, and bless you for looking for answers. LDN has certainly been an wonderful answer for my husbands MS. I hope something comes up just as wonderful for your granddaughter. Aletha [low dose naltrexone] cerebral palsy Does anyone know of any results on cp after using naltrexone? I have a granddaughter who is seven years old with this condition and would like any information available on treating it. Thank you. Jim Hoodenpyle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Aletha, Thanks so much for your reply. If you have time please send me the welcome package also. Best regards, Jim Hoodenpyle [low dose naltrexone] cerebral palsyDoes anyone know of any results on cp after using naltrexone? I have agranddaughter who is seven years old with this condition and would likeany information available on treating it.Thank you.Jim Hoodenpyle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 Jim, This is not LDN related, but before I found LDN, I had pretty bad ataxia in my right foot after what I think was an attack. A friend of mine who has MS has been doing Hyperbaric Oxygen Therapy (HBOT) for years for her MS and that is all she does and is doing very well so I tried it. After 15 treatments, my ataxia disappeared and I was thrilled, but I met a few CP patients and their parents and saw some before pictures (before starting HBOT) and they have come so far. I understand you have to do a lot of treatments, something like 20 - 40 for CP and then just do maintenance, but I never knew that HBOT could help that. One girl that stands out is now a champion ice skater and wasn't very active before. Let me know if you are interested, and I'll give you the phone number of a guy who has been very proactive in HBOT for over 30 years and I am sure he would talk to you. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Annette; HBOT, what type a therapy is it? if it would work for MS, yes, I would be interested, and I would like to talk to the person if you would send the phone number. Jim Re: [low dose naltrexone] cerebral palsy Jim, This is not LDN related, but before I found LDN, I had pretty bad ataxia in my right foot after what I think was an attack. A friend of mine who has MS has been doing Hyperbaric Oxygen Therapy (HBOT) for years for her MS and that is all she does and is doing very well so I tried it. After 15 treatments, my ataxia disappeared and I was thrilled, but I met a few CP patients and their parents and saw some before pictures (before starting HBOT) and they have come so far. I understand you have to do a lot of treatments, something like 20 - 40 for CP and then just do maintenance, but I never knew that HBOT could help that. One girl that stands out is now a champion ice skater and wasn't very active before. Let me know if you are interested, and I'll give you the phone number of a guy who has been very proactive in HBOT for over 30 years and I am sure he would talk to you. Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Has your daughter's friend been tested for Lyme's? That is one of the symptoms... Maarit > > > Hello Friends, > > Anyone here know if LDN could be of benefit for people w/ CP? > My daughters friend at college has CP and I was wondering if my > daughter should mention LDN to her friend. > > Thanks All, > ette > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2008 Report Share Posted November 19, 2008 Hi Maarit ... thanks for responding .... My daughter's friend has had CP since an infant. [low dose naltrexone] Re: Cerebral Palsy Has your daughter's friend been tested for Lyme's? That is one of the symptoms... Maarit > > > Hello Friends, > > Anyone here know if LDN could be of benefit for people w/ CP? > My daughters friend at college has CP and I was wondering if my > daughter should mention LDN to her friend. > > Thanks All, > ette > Quote Link to comment Share on other sites More sharing options...
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