Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 Mike, I also have been having problems with more spasticity since being on LDN. I started at 3.5 and after two weeks, it really got worse. I went down to 3.0 and still am having the problems. Mine is more in the form of cramps, but Skip told me cramping is slow spasticity and stiffness is faster spasticity? I am going on 8 weeks on LDN. I don't know if you've listened to the audio portion of the LDN conference at the low dose naltrexone.org website of Dr. Skip talking about the trials he did on new users of LDN, but it seemed besides insomnia, spasticity was the next most common side effect. I am hoping it subsides also!! Annette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 Make your own liquid 3mg batchs. It has worked for me for 2 years. Arnold -------------- Original message -------------- From: M <mscott007@...> I have been on LDN for almost a month and it iscausing not only spasticity in my legs but also musclespasms/contricting my muscles in my abs and chest. Has anyone experienced that before? and if so, isthere anything to do for it except wait for it topass? I take 3 mg from skips.Mike__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Mike, below is what Dr. Lawrence in the UK says about LDN and side effects. Since you got your prescription from Skip's Pharmacy, why don't you call Skip and ask his advice? Introductory Side-effects: There may be some initial transient, though temporary, increase in MS symptoms during the adaptive period when the LDN is first introduced. This usually lasts no more than one week but if symptoms are severe, or more prolonged, then the initial dose of 3 mg may be reduced to 2 mg until the anticipated improvements begin to develop. Introductory symptoms, on starting this treatment, may include such as disturbed sleep, occasionally with vivid, bizarre and disturbing dreams, tiredness, fatigue, spasm and pain. Symptoms related to increased endorphins: These may include such as nausea or constipation. These symptoms diminish naturally as the body adjusts to the increased endorphin level. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 > > > > I have been on LDN for almost a month and it is > causing not only spasticity in my legs but also muscle > spasms/contricting my muscles in my abs and chest. > Has anyone experienced that before? and if so, is > there anything to do for it except wait for it to > pass? I take 3 mg from skips. > > Mike > ========= The extra stiffness lasted 3 months on 4.5mg LDN and then faded. You might add extra potassium, magnesium, zinc, copper, Threonine(do a google search), and milk thistle(google search), Solaray brand B-Complex 100 Vitamins(google search), L-Lysine(anti-viral) and Solaray brand Tart Cherry(anti-inflammatory). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 How are you getting on now ? Sammy. [low dose naltrexone]LDN and muscle spasms > > > I have been on LDN for almost a month and it is > causing not only spasticity in my legs but also muscle > spasms/contricting my muscles in my abs and chest. > Has anyone experienced that before? and if so, is > there anything to do for it except wait for it to > pass? I take 3 mg from skips. > > Mike > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Hi Mike - yes, people have had this before, me included. I dropped to 1.5mg for about a month and that helped, but I'm still having some problems. Question for you - are you on Baclofen, valium, or something similar for spasticity, and if so were you already on it prior to starting the LDN? I recently posted a thought from my Neurologist - I'll add it in here, as I've had little response and I really want to find out if there is might be a relationship. This was part of the post - " ...Hi folks - saw my Neuro today...he threw in a quick thought on LDN and increased spasticity early on (after starting LDN treatment, that should have read)- wondered if the LDN, in at least some cases, might be interfering with the effects of drugs like Baclofen, Valium, taken by some for spasticity... " He also wondered if where the main MS lesion activity was located, i.e. spinal cord or brain, might be relevant. Best advice I've had so far seems to be to drop to 1.5 and try again after a few weeks at that dose. Other advice is to deal with Candida problems, to let the LDN work better. Best of luck with this - Gayle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 Sorry - just re-read this message and realised I'd replied to a reply to an old message. Time for beddy-byes I think... Gayle Re: [low dose naltrexone]LDN and muscle spasms How are you getting on now ? Sammy. [low dose naltrexone]LDN and muscle spasms > > > I have been on LDN for almost a month and it is > causing not only spasticity in my legs but also muscle > spasms/contricting my muscles in my abs and chest. Has anyone > experienced that before? and if so, is there anything to do for it > except wait for it to pass? I take 3 mg from skips. > > Mike > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 In a message dated 6/15/06 2:36:15 AM Pacific Daylight Time, gayle@... writes: Hi Mike I don't think 1.5 mg is enough to stop progression. I don't know about Candida, but for spasticity at night, when fighting the charlie horses, I take 2 baclofen with my 3mg of LDN. Stretching and PT work are the only other things which help me with spasticity during the day. unfortunatly they are only temporary and I'll need to do them again like my mother does for her feet, and her fibromyalgia. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Hi Mike and , Have you tried the Soap trick. My mom has Parkinson's and she had spasms in her feet. I kept telling her about putting soap in her bed at night and she would not try it. She finally tried it out of desperation and it worked. In fact she now told her doctor about it. It has been 3 weeks and is still working most of the day through. It is worth a shot. Just put a whole or half a bar of soap (not dove, or dial, but anything else) near the areas of your body area that is giving you problems. It also works for aches and pains, soar necks etc. Aletha _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 I have heard of the soap trick from two different friends. I thought they were kidding. Both of them have shoulder pain and put a bar of soap under their pillow. It seems to help them. Makes so sense to me, but if it works, hey. Anybody know why this works? Peg -- Re: [low dose naltrexone]LDN and muscle spasms Hi Mike and , Have you tried the Soap trick. My mom has Parkinson's and she had spasms in her feet. I kept telling her about putting soap in her bed at night and she would not try it. She finally tried it out of desperation and it worked. In fact she now told her doctor about it. It has been 3 weeks and is still working most of the day through. It is worth a shot. Just put a whole or half a bar of soap (not dove, or dial, but anything else) near the areas of your body area that is giving you problems. It also works for aches and pains, soar necks etc. Aletha _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Can you describe the stretching excersises you do? What sorot of PT work? I dont have insurance so I cant get PT and my doc is just a big dud.....never tells me anything helpful. Basically I am on my own here. I'd love to know about excercises to reduce the spasticity!! Nola Re: [low dose naltrexone]LDN and muscle spasms In a message dated 6/15/06 2:36:15 AM Pacific Daylight Time, gayle@... writes: Hi Mike I don't think 1.5 mg is enough to stop progression. I don't know about Candida, but for spasticity at night, when fighting the charlie horses, I take 2 baclofen with my 3mg of LDN. Stretching and PT work are the only other things which help me with spasticity during the day. unfortunatly they are only temporary and I'll need to do them again like my mother does for her feet, and her fibromyalgia. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 What if it has to do with the PH of soap?Our body picks up on all kinds of frequencies and subtle things we aren't aware of. Acidity if the beginning of almost every condition. Maybe the soap is alkaline. Re: [low dose naltrexone]LDN and muscle spasms Hi Mike and , Have you tried the Soap trick. My mom has Parkinson's and she had spasms in her feet. I kept telling her about putting soap in her bed at night and she would not try it. She finally tried it out of desperation and it worked. In fact she now told her doctor about it. It has been 3 weeks and is still working most of the day through. It is worth a shot. Just put a whole or half a bar of soap (not dove, or dial, but anything else) near the areas of your body area that is giving you problems. It also works for aches and pains, soar necks etc. Aletha _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 In my experience, exercise doesn't affect spasticity. They only thing that has is a medication called Baclofen, which is only recommended orally up to a maximum dose of 80mg/day (I had been taking 20mg 4x/day). hen this wasn't enough any longer last year, a surgeon implanted a surgical device: A Baclofen pump -- the next step up for users of oral users. Now I have a minute dose of Baclofen directly fed into my spinal fluid, which has made a good difference at controlling my spasticity. Cheers, Rae From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of oothappamSent: Monday, July 03, 2006 8:07 AMlow dose naltrexone Subject: Re: [low dose naltrexone]LDN and muscle spasms Can you describe the stretching excersises you do? What sorot of PT work? I dont have insurance so I cant get PT and my doc is just a big dud.....never tells me anything helpful. Basically I am on my own here. I'd love to know about excercises to reduce the spasticity!! Nola Re: [low dose naltrexone]LDN and muscle spasms In a message dated 6/15/06 2:36:15 AM Pacific Daylight Time, gayle@... writes: Hi Mike I don't think 1.5 mg is enough to stop progression. I don't know about Candida, but for spasticity at night, when fighting the charlie horses, I take 2 baclofen with my 3mg of LDN. Stretching and PT work are the only other things which help me with spasticity during the day. unfortunatly they are only temporary and I'll need to do them again like my mother does for her feet, and her fibromyalgia. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2006 Report Share Posted July 3, 2006 Rae, I have been taking Mirapex 2.3 mg (2 in the AM and 2 @ at bedtime) for Restless Leg Syndrome and it really helps the spasticity and the leg jerks. I think it is a drug used for Parkinson's Disease. I used to use Baclofen but this seems to work better and without the side affects. Peg -- RE: [low dose naltrexone]LDN and muscle spasms In my experience, exercise doesn't affect spasticity. They only thing that has is a medication called Baclofen, which is only recommended orally up to a maximum dose of 80mg/day (I had been taking 20mg 4x/day). hen this wasn't enough any longer last year, a surgeon implanted a surgical device: A Baclofen pump -- the next step up for users of oral users. Now I have a minute dose of Baclofen directly fed into my spinal fluid, which has made a good difference at controlling my spasticity. Cheers, Rae From: low dose naltrexone [mailto:low dose naltrexone ] On Behalf Of oothappamSent: Monday, July 03, 2006 8:07 AMlow dose naltrexone Subject: Re: [low dose naltrexone]LDN and muscle spasms Can you describe the stretching excersises you do? What sorot of PT work? I dont have insurance so I cant get PT and my doc is just a big dud.....never tells me anything helpful. Basically I am on my own here. I'd love to know about excercises to reduce the spasticity!! Nola Re: [low dose naltrexone]LDN and muscle spasms In a message dated 6/15/06 2:36:15 AM Pacific Daylight Time, gayle@... writes: Hi Mike I don't think 1.5 mg is enough to stop progression. I don't know about Candida, but for spasticity at night, when fighting the charlie horses, I take 2 baclofen with my 3mg of LDN. Stretching and PT work are the only other things which help me with spasticity during the day. unfortunatly they are only temporary and I'll need to do them again like my mother does for her feet, and her fibromyalgia. - Quote Link to comment Share on other sites More sharing options...
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