MS specialist vs Neuro?

[Guest guest]

I have seen 3 neuros, no one wants to commit to anything, I have an

upcoming appointment with Dr. Kahn of the Detroit Medical Center

@ Wayne State, in Michigan. THis is a one time consult only visit,

since it is outside my insurance system.

My question is what do you think my chances are in getting any answers

from a MS specialist at university clinic as opposed to the plain old

neuros, who have seemed to ignore me?

I won't go through all the I have this and positive for that, lets

just say other specialists are confused as to a lack of diagnosis, as

well as my PCP. He has me on LDN, 4 months now started right off the

bat at 4.5mg. No problems, some relief.

Pat

[Guest guest]

Hi Pat, I am in Southfield, MI. I have RRMS, and Dr. Khan was the last Neuro I dealt with in 2003, since discovering LDN, and being exacerbation free. Dr. Khan is a Copaxone fan, at least he was back in 2003, although I ran into someone recently (they have M.S.), and they stated Dr. Khan is pushing Tysabri, now. Anyway, I can tell you he will not give you a prescription for LDN. Dr. khan would say no clinical proof to support efficacy. I say it is not enough cost to patients, and money to be paid to physicians whom prescribe. Good Luck, and God Bless, Dee > Hello,> > My

name is Dee and I am just now finding out about LDN. I have not had a chance to discuss this with my Neuro yet, although I bet he will give me a hard time about prescribing it. I am in the Metro Detroit area, my Neuro is Dr. Khan. The support group I used to attend loved him, but I can"t say the same. He is a big fan of Copaxone, which I do not believe is the best therapy for me. > > The only medication that has ever worked for me is Novantrone. I began Novantrone treatments in 2000 before it was FDA approved. I felt like a "normal" person immediately after the intravenous injection. There was no dizziness, fatigue, my legs felt normal, instead of like bricks, and I did not have vertigo. I was suppose to return for another injection every 3 months. However, when I did return my Neuro informed me that their clinic was not prescribing Novantrone to any of its patients anymore because one of them ended up in

the hospital. No other doctors would prescribe Novantrone for me because they claimed I was not "Secondary Progressive".> > Novantrone was finally FDA approved and I returned to my old Neuro who prescribed it, and it did nothing for me. I had dizziness, extreme fatique, bladder problems, etc... 3 months later I went for another injection. When it was finished I knew immediately that I did not feel any better. I had a phobia against needles and still do so my Neuro put me on Methotrexate pills. I was on those for almost 6 months, but the use of this drug has severe side effects, sometimes fatal. My support group urged me to see Dr. Khan. He is a Copaxone fan.> > Please if anyone out there is seeing a physician in the metro Detroit area who will prescribe LDN let me know.> > Thanks,> Dee> > > > Pat <pals@...>

wrote: I have seen 3 neuros, no one wants to commit to anything, I have anupcoming appointment with Dr. Kahn of the Detroit Medical Center@ Wayne State, in Michigan. THis is a one time consult only visit,since it is outside my insurance system. My question is what do you think my chances are in getting any answersfrom a MS specialist at university clinic as opposed to the plain oldneuros, who have seemed to ignore me?I won't go through all the I have this and positive for that, letsjust say other specialists are confused as to a lack of diagnosis, aswell as my PCP. He has me on LDN, 4 months now started right off thebat at 4.5mg. No problems, some relief.Pat

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[Guest guest]

most people get their prescriptions from their GP's . I notices on

the list that was sent out that there was a significant amount of

psychiatrists that order it. I think thats because psychiatrists

have been ordering off label stuff for years. Many drfugs that are

used for Bipolar disorder were actually developed for seizure

disorders. something I want to discuss with Skip is the off label use

of patented medications -- what I mean is off label use of new drugs

that drug companies are making money on.

I know as a nurse I used to enjoy going to conferences-- the last one

I went to was New Orleans (I'm glad I went only because I had such a

good time with my friends) but the whole day was sponsored by drug

companies and you could tell the data was not quite--well honest.

that was the last time I went to a nurses conference --i just do my

hours online.

cyndi

On Apr 16, 2006, at 6:30 PM, Delicia Rucker wrote:

> Hi Pat,

>

> I am in Southfield, MI. I have RRMS, and Dr. Khan was the last

> Neuro I dealt with in 2003, since discovering LDN, and being

> exacerbation free. Dr. Khan is a Copaxone fan, at least he was

> back in 2003, although I ran into someone recently (they have

> M.S.), and they stated Dr. Khan is pushing Tysabri, now.

>

> Anyway, I can tell you he will not give you a prescription for

> LDN. Dr. khan would say no clinical proof to support efficacy. I

> say it is not enough cost to patients, and money to be paid to

> physicians whom prescribe.

>

> Good Luck, and God Bless,

> Dee

>

>

>