Weaning and neuro's opinions (connie)

[Guest guest]

Our neuro has the same attitude.. diet is ok, but don't ask about

weaning unless there is control. He's abrupt, but trying to let me do

what I think. He's nice but I feel a little like I'm leading the

situation. Hmmm. So many in this chat room seem to have Drs. that

believe in the wean. The EFFICACY of the wean against seizures.

Ann

> I have my neuro's support in that he okayed it but I had to

convince him. He

> would never had brought it up himself. I don't believe he thinks

its going

> to work although he is very pro diet. Just not happy about weaning

meds

> until we get control. I convinced him we won't get control until we

wean the

> meds. Once he is med free I will give it 6 months (not written in

stone)

> depending on circumstances.

> Couldn't have done it without the help of this board. It helps to

know what

> others went through even though different child, different

circumstances. I

> think you're doing the right thing. Just have to convince your doc.

>

> Connie ('s mom)

> Re: Connie

>

>

> > Connie,

> > Just curious...do you have doctor's support for the wean or are

you going

> it alone? I began the wean on my own and at the neuro visit in

late October

> I'm just going to tell him what I'm doing and see what he says. He

wasn't

> real positive at the initial visit. I hope to prove him wrong. I

think

> none of the 5 or so families on the diet at the clinic are med free.

> >

> > If you your son is eventually med free and on the diet alone and

still

> doesn't have good control what do you think you will do at that

point? I'm

> debating there. How long do you wait until you know if the diet is

going to

> control the seizures?

> >

> >

> >

> >

> > " The Ketogenic Diet....a realistic treatment option, NOT just a

last

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