EFAs

[Guest guest]

Hi

I get even more cranky without the O-6's. I take them all in one go first

thing in the morning with Zyme - breakfast LOL I didn't feel at all well when

I just did it with CLO (which is a pity - I have 2 big pots of caps which Sam

wouldn't take much of - thats why I'm usign them up), buzzing but mood swings

(till LOL) if I just took O-6's. I like the Eye Q as it gves a balance of

both 3 & 6's and theres Vit E is there too, when I run out of the CLO caps I

will switch to Eye Q only.

The sesamee oil is great on salads, baked pototoes and stuff. Having said all

that, I'm sure it was the 2Pep between meals that was making the difference

over the last few days. Reordered yesterday from our new UK supplier so I'll

move on to dosing with food and the extra Pep between meals. Now we don;t

have to pay VAT, duty and the post office to collect the same, HNI work out

20% cheaper than coming in from US - so this helps with me using them too

I have also but way back on the VIt C per , so I guess it could be that

too!

Mandi in UK

PS I take all those caps in one go (they don't tcall me gobby for nothing

LOL)

> Sesame Oil is omega 3's (similar make up as fish oil),

> I believe.

>

> I get tired just thinking about taking all those

> capsules you're taking.

>

> You don't have trouble with so much EPO? I can get

> manic on the one 500 mg cap (18% GLA) I take. Have to

> take it first thing in the morning or it keeps me up

> at night ;-)

>

> I am taking 4 grams of Salmon Oil a day (180 EPA, 120

> DHA each). Good finger nails. Too many pills .....

>

> P

>

>

[Guest guest]

> Is it best to give efa's on an empty stomach or with food?

Definitely with food and with enzymes

[Guest guest]

Thanks. I was also told to give it with her Carnitine, does that sound

right? Or maybe it was give the Carnitine with EFA's? God, I hate this

crap. Why can't it all be more cut and dried?

[Guest guest]

Can you give me some idea of what to expect? Good and bad. I'm kinda

nervous and am starting both at once so any advice or examples would be

greatly appreciated.

Thanks again.

[Guest guest]

Also, not to be a pest or anything, but how much of each? How many times

a day? She's 2 and a half, 25 lbs. I have Acetyl L-Carnitine 500

(Jarrow) and Nordic Naturals Children's DHA ultimate Omega. Both are

capsules.

Thanks Steve. I'm very grateful for any and all help!

Rhonda

[Guest guest]

We've had good results giving carnitine and EFAs with meals

(carnitine is the only amino we give with meals). Try it and see how

you go, but be prepared to change if things go wrong or don't seem to

work.

Start with low doses of both carnitine and EFAs.

Good luck.

> Thanks. I was also told to give it with her Carnitine, does that

sound

> right? Or maybe it was give the Carnitine with EFA's? God, I hate

this

> crap. Why can't it all be more cut and dried?

[Guest guest]

Hopefully you will see improvements in muscle tone, strenght and

muscle mass, and a reduction in severity of hypoglycemia (ie should

be able to go longer without snacks, should eventally crave carbs

less). You may also see better mood, more alertness, better general

mental functioning. But you may not. Acetyl carnitine tends to help

with acetylcholine production. We have tried acetyl carnitine and l-

carnitine, and I have concluded that 1. I prefer l-carnitine for my

son and 2. his problems aren't related to acetylcholine production

(though they could be related to receptors)

Bad results could be anything, I guess - probably temper tantrums

etc - but you are unlikely to get anything alarming if you start with

low doses and build up slowly, backing off when ever you see bad

results.

Because you are using acetyl carnitine you are likely to see mental

functioning improve (if it is going to improve) before physical

functioning does. See how you go. You may want to switch to l-

carnitine later.

Re the DHA, I don't know what to expect. cod liver oil seemed to help

our son's gut (vitamin A etc) but didn't have much impact on his

mental functioning. I prefer EPA-rich oils (check the archives for

comments on this) but with these oils you have to also add a vitamin

A supp. Try the DHA and when it runs out, decide if you want to stick

with it or switch. DHA seems to be more related to brain

structure/building, EPA to functioning. It's probably not a bad idea

to start with DHA, then experiment with EPA later. But that's just my

opinion.

I would also give some omega 6's as well. perhaps evening primrose

and sunflower oil (both cold-pressed).

Also, acetylcarnitine may be best given on an empty stomach, while l-

carnitine is best given with food. Start with about 50mg once a day,

build up to three or four times a day, then start inching the dose up

till you get the whole 500mg in. You may be able to go even higher

than that, particularly if your daughter starts gaining weight.

I don't know about the DHA. I guess start with 1/4 or 1/5 the

recommended dose and build up. Maybe even less, given that your

daughter is so small. No harm in erring on the side of caution.

Good luck

Steve

> Also, not to be a pest or anything, but how much of each? How many

times

> a day? She's 2 and a half, 25 lbs. I have Acetyl L-Carnitine 500

> (Jarrow) and Nordic Naturals Children's DHA ultimate Omega. Both

are

> capsules.

> Thanks Steve. I'm very grateful for any and all help!

> Rhonda

[Guest guest]

I'm sorry Steve and Rhonda, but, what are EFA's?

> > Also, not to be a pest or anything, but how much of each? How

many

> times

> > a day? She's 2 and a half, 25 lbs. I have Acetyl L-Carnitine 500

> > (Jarrow) and Nordic Naturals Children's DHA ultimate Omega. Both

> are

> > capsules.

> > Thanks Steve. I'm very grateful for any and all help!

> > Rhonda

[Guest guest]

essential fatty acids

[Guest guest]

Hello All,

Just joined the Group. My daughter (4 yrs old) has been on 100% a

GF/CF diet for about 3 months and there has been very good

improvements. I am thinking of starting with Enzymes and then

Chelation soon.

I came across this posting in the archive and thought to add on to

it. 4 weeks ago, my daughter started on " eye q " Oil Capsules which

contains EPA-186mg, DHA-58mg, evening Primrose and Natural Vitamin E.

There has been the best improvement so far, with this supplement. She

is so much more sociable, happier, better eye contact, and

concentrates better at therapy sessions. Everyone has noticed the

change.

Regards,

Violet

> > Thanks. I was also told to give it with her Carnitine, does that

> sound

> > right? Or maybe it was give the Carnitine with EFA's? God, I

hate

> this

> > crap. Why can't it all be more cut and dried?

[Guest guest]

Hi Sunny!

Brand names are not important -only dosage -formula - purity. The

formula we found to be best is in the archives here and in The Late

Talker book -and listed below.

EFA stands for essential fatty acid -kind of an umbrella name for

all EFAs. (and for the person that asked -EPA stands for an Omega 3

PUFA found in fish called eicosapentaenoic acid -which is why we

will just all call it EPA!)

To answer your question in short -Nordic Naturals is the

manufacturer of ProEFA, ProDHA and ProEPA. ProEFA is an Omega 3 and

Omega 6 formula like Efalex and Eye Q -the only other two formulas

we hear positive feedback from in large numbers. Coromega is not

found to be as effective as the Omega 3/6 formulas -it's a pure

Omega 3) Like Coromega -ProDHA and ProEPA are both pure Omega 3

formulas. Most store bought EFAs are rancid, so be aware of this.

Oxygen and fish oil do not mix. Smell or taste (for the brave) fish

oils to compare and make sure the fish oil you use is pure. Again

most of us use ProEFA, Efalex or EyeQ -you can use others -just make

sure the company is reputable. Coramega is very pure -it's just that

it's only an Omega 3. If the oil you are giving your child smells

like rancid fish -it probably is. As you can imagine -it's hard

enough -and nasty enough -trying to give " pure " fish oil to a

toddler on a spoon!

Most of us found success with adding the ProEPA to the ProEFA -but

down the road a bit as talked about here

http://www.speech-express.com/alternative-therapy/efa-faqs.html

It is the CHERAB Foundation that found which dosage, and formula of

EFA worked the best for our children from feedbacks since 1999. You

can read more about this at http://www.cherab.org

http://www.cherab.org/news/scientific.html

Here are just two archived messages that I hope will also help you

to understand more about EFAs (in the long version). And while you

are searching for answers -ask your parents or grandparents -most of

them were given cod liver oil -a pure Omega 3 with DHA and EPA (also

now called DHA Jr. as a brand name!) as children.

" About the EFAs -once again brand name does not matter, brand name

does not matter, brand name does not matter, brand name does not

matter, did I tell you guys that brand name does not matter?

What matters when it comes to EFAs are only three things in my

opinion:

Formula

Dosage

Quality of the oils.

I will use the following examples with the brand name ProEFA since

that's the formula/dosage that seems to work the best for most of us

(Efalex and EyeQ are similar Omega 3/6 formulas that also have good

reports) For any brand name of Omega 3/6 formula -you could make

the same formula by mixing together fish oil and either primrose or

borage seed oil if you prefer -or as found -another brand

name with a similar formula (and I hope also a good quality)

If you mix two fish oils together which is fine if you know why you

are doing that: Look at the amount of DHA, EPA (Omega 3) and the

amount of GLA (Omega 6) and then add them all together to see what

formula and dosage you now have is. So for those of you that ask -

you can mix any brand names together you would like -however what

you could change is the three things above (dosage, formula and

*quality (*if one of the companies you start using has rancid oils

which is not uncommon when it comes to fish oils -so make sure all

brands you use are pure) Keep in mind in anecdotal feedback done by

parents from all over through CHERAB -that pure Omega 3 or pure

Omega 6 either showed no results -or very little results in almost

all cases. Pure Omega 3 would include pure cod liver oil, fish oil,

flax seed oil without any Omega 6. So even though there is only a

small amount of GLA (Omega 6) in the formulas we found to be

successful -GLA appears to be important to be there for some

reason. GLA has anti-inflammatory properties which perhaps enable

to DHA and EPA to get to where it's needed in the brain?

Adding extra EPA or DHA is different when you talk about mixing

oils. Adding an oil high in one of these to the basic ProEFA

formula EPA (Omega 3 such as ProEPA) or high in DHA (Omega 3 such

as ProDHA) will raise the EPA or the DHA higher in the formula -and

also raise the Omega 3 to Omega 6 slightly higher as well. With

your child this may be a good thing -or not a good thing -it depends

if you raise the DHA or the EPA. Adding primrose (Omega 6) or

borage seed oil (Omega 6) to the basic ProEFA formula will raise the

Omega 6 -which most of us found not to be a good thing for our

children.

Most of us found that raising the EPA slightly higher than the DHA

over the basic ProEFA formula was effective (a handful find raising

the DHA more to be better) -but most of us do this over time as

Deborah points out -not all at once. What this means is that

unfortunately -the formula most of us found to be the best over time

you can not yet purchase as a brand name -you have to

create...however fortionatly the basic Omega 3/6 brand name

formula's seem to work to start for almost all children (Efalex,

ProEFA and EyeQ)

Dosage of one capsule a day ProEFA that at the lowest dosage appears

to be the best -

148 mg EPA

99 mg DHA

40 mg GLA

Here is what many of us have found to be the best plan

anecdotally...start with the basic formula, one ProEFA a day, we

saw surges in a few days to three weeks which continued for months -

we then reached a plateau after around 6 months. At this point we

raised the dosage to two capsules of ProEFA a day and once again had

those surges which lasted again for months. When we reached the

next plateau after around a year, instead of going to three a day -

we squeezed 1/2 to one capsule of ProEPA into the 2 capsules of

ProEFA and for almost all of us that try -that created another surge.

Over time -you may raise the dosage up higher -and you may slightly

change the formula to raise the Omega 3 over the Omega 6 ratio -but

you need to know your own child, keep track of his progress through

both your own observations and that of the professionals -with the

advice of your child's doctor -to know what is best for him/her.

Here is an archived cut and paste message of mine -there are many

more in the archives both here -as well as more information at

http://www.cherab.org/information/indexinformation.html#diet

http://www.speechville.com

" in our group numerous children were on pure Omega 3 with little to

no results and then the same children responded amazingly well

within one to three weeks when given instead a formula with Omega 3

(DHA and EPA) and a " small " amount of Omega 6 (borage or primrose

oil)

The CHERAB Foundation first did a parent feedback which compared

pure Omega 3 (like cod live oil) to Omega 3/6 formulas (like ProEFA

or Efalex) Check the archives -most of the parents that used the cod

liver oil saw little to no difference -and then as stated above had

moderate to dramatic changes in one to three weeks when switched to

(or just started on) the Omega 3/6 formula. My son Tanner was one

of them. Before I knew the difference I just called all the (pure)

fish oil capsules I tried the " reject " oils and wondered to all why

they didn't work and Efalex or ProEFA (or EyeQ) did.

Why the changes? Only future research will tell. For now -I just

want all to know that if one doesn't work (like pure fish oil) or

work for long -switch to the formula that works for most of us.

Basic formula no matter what fish/borage or primrose formula you use

or make by combining oils:

EPA -150 to 250

DHA 100

GLA 50

If you raise the dosages -the ratio should still stay around the

same.

I believe this is important to note since most that " try " cod liver

oil or another fish oil that doesn't have Omega 6 may find that fish

oil doesn't " work " My point is that formula (dosage and quality)

are all that is important -and no matter what any expert believe in

theory -you can not argue with what we as parents see in our

children in reality.

As always -The proof is in the pudding. "

Homework -go watch Lorenzo's Oil.

~~~~~~~~~~~~~~

I believe the group that EFAs don't " work " for is more than 1%

and less than 10% of the children based on what we hear.

Interesting to note -we've had a dramatic rise in children with

speech disorders in the last 10 years - " 30 fold " (!!) according the

2001 Department of Education stats. According to Dr. Mark Geier via

email " my analysis of this data showed that there was a 30-fold

increase in speech disorders in children born in the mid-1980s to

the mid-1990s. This means that the numbers were 30 times higher in

children born in the mid-1990s than the mid-1980s (i.e. the actual

numbers were approximately 2 per 1,000 children born in the mid-

1980s to approximately 60 per 1,000 children born in the mid-1990 "

So in the 80's 2 out of 1000 speech disordered children were the

norm (and

maybe the ones that would not have

responded) and the 90's it rose to 60 out of 1000. Why the extra 58

children?

And don't assume " more " awareness (that's a joke!), based on what I

just wrote

here -those numbers should probably be

higher.

http://www.cherab.org/information/adhd-speech.html ...

But back to the percentage theory (that some children would have had

a " rare " speech disorder in the past as a norm -and the children in

this small group did not " get " apraxia the same way as the other

58?)

Anecdotally time

doesn't make a difference -and in most cases dosage doesn't either.

If it works -it works with the " right " omega 3/6 formula at even a

very low dosage for some reason, even if it works better at a higher

dosage. (for those of us that have kids that it works for -they'll

know what I mean) and changes are noted in a day to three weeks in

almost all

cases but a handful.

I'm not saying that it's hopeless and that the oil therapy will

never help those in that small group (never say never) - You can try

what

others have tried. Some have tried

changing formula's, (rent Lorenzo's Oil) and I would try not doing

everything at once (both fish oil and carnosine) I'm happy that

both were not available to me to start -I would have done both at

the same time too. However we don't know how one plays with the

other -and we know that one could counteract the other. You also

want to make sure that your child's diet is not big time saturated

fats -that will compromise the positive effects. Worst is french

fries and doughnuts. Try stopping the fried foods for 3 weeks -and

see if there is a change. If your child doesn't eat fast food or

fried foods lots -then that's not it either.

Here is a plan:

Keep a notebook and stop one for a few months. Then stop the

other. Any regressions with either? Then put your child back on

just the Omega 3/6 oil -notes again, any changes? Stop that and

then start the carnosine, any changes?

As we all know now most of the children respond to an Omega 3/ 6

formula similar to

100 DHA

150 -250 EPA

30-50 GLA

As far as starting on the high dosage as Efalex recommends -again

most of us don't have to do that either to see the surge in a day to

three weeks. Also the PhDs say it can take " up to 3 months " if you

want to go by what has been stated about it. Keep in mind that most

people only post if they see great results -or no results. I

recommend finding (or starting) a support group near you where you

can compare notes and talk to others parents -get your children

together etc. This way you will get to talk to those with mild

results too -going from nonverbal to more babble and eye contact -

etc.

If you see any signs in the following archived post let me know.

Rothweiler's son took the longest that I know of to see the

surge -5 weeks, but one other posted it took longer. Most of us see

it in a day to three weeks -or in a handful it doesn't appear to

work no matter how long you give it.

" From what most of us have seen and reported here -the changes on

EFAs again will be typically first be seen from one day to three

weeks (give or take) even though most of the PhD's say up to 3

months to notice the change. Within that time you will just like

you reported hear spontaneous speech -the first word, " break

through " more focus, eye contact and attempts etc. There probably

was an increase in babbling or facial movements before that you may

not have noticed. Again in my experience -in 3 to 5 months most of

the nonverbal children are attempting 2 to 3 word sentences. Each

word alone may be clear -but when put into the sentence -at first

they may break down a bit again -however with a model they can

typically get it right! Tanner's first sentence without a

model? " Ah Of Oooh " (I love you!) You can hear Tanner and other

apraxic children from our group at http://www.debtsmart.com/talk "

" Most of us actually did have nonverbal apraxic or PDD children

prior to EFAs -even though some in this group did not have any

diagnosis other than " delay in speech " . I can tell

you what we have seen as a group, and you can also search the

archives and web for more. Many of those posting here now other than

a few are newer parents as I explain below...

I remember when Tanner first started on Efalex, which is the formula

most of us found to be the best before ProEFA was invented, that I

posted to a list one week later that Tanner was going into corners

and whispering sounds to himself. Just like you I asked if this is

normal activity for an apraxic child because I thought it was kind

of strange. I don't remember if anyone answered, however I do know

that

one week after that -so two weeks after starting the Efalex- is when

Tanner said " lellow " for the first time. I posted that it was like

Bambi when he learned to say " flower " and instead of saying flower -

Tanner walked around looking for things to call " lellow " -he was

just as excited as us to be talking!! What's most amazing about this

is that prior to supplementation Tanner was in therapy 2 to 3 times

a

week one on one for half hour to 45 minute sessions for about 5

months and had learned in that time to blow bubbles, make more

facial

movements, say simple sounds like " ch " or " ooo " with lots of

encouragement and animation -however he still was not able to take

the " ch " and the " ooo " and put them together to say " choo " His only

words essentially at 2 years 10 months prior to EFAs were " mmmm "

and " ma " -and this was with lots of therapy. Just two weeks later

was a world of difference.

I don't know exactly why your child is moving her mouth in unusual

positions, or groping -however to me any changes outside the norm

when you start your child on the EFAs is a great sign that something

is clicking and

that the surge may be soon approaching. (Please let us know when you

see the surge in speech in the next week or two!)

Since I receive lots of calls about this -I wanted to list the most

common changes in an apraxic or other speech disordered child on

EFAs

from what I've read and heard and seen.

1. Increase in babbling or attempts at sounds.

2. Increase in imitation.

Changes also can be looked for in (what you see as positive or

negative)

sleep

attention

appetite

focus

behavior

stools

Next will come a breakthrough of something you were probably working

on for a bit -so you will be excited but will think " Well -I don't

want to get my hopes up we were working on that for awhile now -

maybe

it's just a coincidence " However after the second or third surge in

a short period of time -and then another - you are pretty sure

things

are different and it's at this point the professionals and the rest

of the family and your friends are noticing it too -maybe about two

to three weeks now.

OK -the next stage is pure elation and hope -you see the light and

no

longer feel as desperate and want to share this new information with

everyone and anyone. As the months go by and your child continues to

progress at a much more rapid rate -you may even start to doubt the

original diagnosis -especially if you started EFA supplementation at

two -and perhaps the SLP that diagnosed the apraxia who also was at

first excited is starting to second guess if the original diagnosis

was correct as well. Unless you have to stop the ProEFA (or other

Essential Fatty Acid) and literally have the chance to see the

regression of acquired speech and language skills, attempts, and

changes in behavior like we did with Tanner (and/or have a chance to

again witness the second surge when your child is put back on the

EFAs) -that doubt will probably remain somewhere in your mind and in

others around your child. So the " I told you that he would start

talking when he was ready " comments should be expected of course.

Up to this point is understandable to me -it's the point after this

that is confusing to me, and perhaps not the best stage for our

children and for raising awareness or having research done to find

out what is happening to our children and why. Perhaps because we

have truly hit a paradigm shift...

As Dr. Agin states the EFAs actually appear to be in some

ways " curing " the apraxic child -even those diagnosed with severe

oral and verbal apraxia, hypotonia, sensory and behavioral issues.

Especially those started at younger ages.

The child on ProEFA or some other EFA formula's like it no longer

fits the criteria of the classic definition of apraxia -and yet

doesn't fit the classic perception of what a late talker is either...

Some of the parents become more focused on other everyday activities

with their child and start to drift away from the support sources

(for those who ask why there appears to be trouble with support

groups in the US and outside the US now a days) I found it amazing

that at the New Jersey Speech Hearing Association Conference that a

higher than average number of the parents that attended had children

that did not respond to ProEFA. Basically only parents that were

still desperate for help for their child, or new parents showed up.

Problem with this attitude is that unless your child is really up to

speed on all aspects of speech and language, the support sources

that

helped in the beginning will still benefit your child today. ProEFA

alone is not the only answer and until we know how and why it works

(or why in a handful of children it doesn't) we can't improve on it "

=====

[Guest guest]

Hi everyone,

New to the group and found 's email below very helpful. I am needing

help and feeling desperate. My daughter Georgia is 2 next week. She has mild

hypotonia but is developmentally on target with the exception of speech. She

is nonverbal. She has sounds, raspberrys, trilling, yayayaya (sometimes) she

giggles, squeals and fusses. She smiles on command, but does not know how to

blow out a candle or do the kiss mouth. She is good at licking - but I sense

some muscle weakness due to hypotonia possibly. I have asked EI to look at

her for oral apraxia and they said flatly, " 2 years is WAY too young to

diagnose oral apraxia " ...I ignored that and started her on ProEFA 15 days

ago - and no surges - nothing that I find out of the ordinary. I am looking

for more babbling or more facial movement - it's difficult to say.

Question: What happens if she doesn't respond to this one capsule dosage???

If she turns out to be the handful that do not respond - should I wait until

6 months pass and then see if she responds at all to an increase to two

capsules???? Is there something else I should consider in ProEFA therapy???

Should I just relax and wait longer?????

Appreciate any help or advice

is (Georgia, 2 yrs, mild hyotonia & nonverbal) But very sweet &

affectionate!

>From: " kiddietalk " <kiddietalk@...>

>Reply-

>

>CC: sgalynsk@...

>Subject: [ ] Re: EFAs

>Date: Tue, 13 May 2003 22:10:36 -0000

>

>Hi Sunny!

>

>Brand names are not important -only dosage -formula - purity. The

>formula we found to be best is in the archives here and in The Late

>Talker book -and listed below.

>

>EFA stands for essential fatty acid -kind of an umbrella name for

>all EFAs. (and for the person that asked -EPA stands for an Omega 3

>PUFA found in fish called eicosapentaenoic acid -which is why we

>will just all call it EPA!)...

[Guest guest]

do you have any experience on what is the best timing

during the day to give the proEFA/ProEPA..also from

your experience, is it better to combine them or give

them during different times of the day

Thanks

[Guest guest]

Hi is,

I disagree, oral apraxia is said to be diagnoseable first sometimes

as early as 18 months. Oral motor therapy can certianly be

helpful.Also, what type of therapy is the SLP doing with her? Our

first EI SLP was completely ineffective. Once we switched, the sounds

started coming!

Try and see a developmental pediatrician and/or get an eval with a

private SLP experienced with apraxia.

In terms of Pro-efa, I would wait a little while longer. Also if your

daughter is on a high fat diet, " french toast sticks, french fries,

nuggets, etcc.. " these may also lessen the effect of the EFAs. This

was discussed about a month ago and it did seem to make sense.

denise

I have asked EI to look at

> her for oral apraxia and they said flatly, " 2 years is WAY too

young to

> diagnose oral apraxia " ...I ignored that and started her on ProEFA

15 days

> ago - and no surges - nothing that I find out of the ordinary. I am

looking

> for more babbling or more facial movement - it's difficult to say.

> Question: What happens if she doesn't respond to this one capsule

dosage???

> If she turns out to be the handful that do not respond - should I

wait until

> 6 months pass and then see if she responds at all to an increase to

two

> capsules???? Is there something else I should consider in ProEFA

therapy???

> Should I just relax and wait longer?????

>

>

> Appreciate any help or advice

>

> is (Georgia, 2 yrs, mild hyotonia & nonverbal) But very sweet

&

> affectionate!

> >From: " kiddietalk " <kiddietalk@y...>

> >Reply-

> >

> >CC: sgalynsk@l...

> >Subject: [ ] Re: EFAs

> >Date: Tue, 13 May 2003 22:10:36 -0000

> >

> >Hi Sunny!

> >

> >Brand names are not important -only dosage -formula - purity. The

> >formula we found to be best is in the archives here and in The Late

> >Talker book -and listed below.

> >

> >EFA stands for essential fatty acid -kind of an umbrella name for

> >all EFAs. (and for the person that asked -EPA stands for an Omega

3

> >PUFA found in fish called eicosapentaenoic acid -which is why we

> >will just all call it EPA!)...

[Guest guest]

Hi

Jsut wanted to drop a quick note and thank you for finally putting

your " formula " on the list serve. I have been experimenting with

the dosages for the last 3 years, and my 5 yr old daughter with

diagnosed global apraxia has made amazing strides. The one area in

which we were still having problems was with attention. I upped her

dosage per your formula 2 weeks ago. Within 4 days, I saw a

dramatic improvement in her attention and behavior. she had a break

from preschool for one week, so I was interested to see if I would

receive any note yesterday (her first day back) about the

attention. Guess what -- they noticed. The note said --- " we

attended the spring concert at school -- Hannah sat for 45 minutes!

Her attention was fantastic! "

Thanks for the help!

Kate Schutzler

Mom to Hannah, 5, global apraxia, hypotonia and adhd and Maggie, 9

> Hi Sunny!

>

> Brand names are not important -only dosage -formula - purity. The

> formula we found to be best is in the archives here and in The

Late

> Talker book -and listed below.

>

> EFA stands for essential fatty acid -kind of an umbrella name for

> all EFAs. (and for the person that asked -EPA stands for an Omega

3

> PUFA found in fish called eicosapentaenoic acid -which is why we

> will just all call it EPA!)

>

> To answer your question in short -Nordic Naturals is the

> manufacturer of ProEFA, ProDHA and ProEPA. ProEFA is an Omega 3

and

> Omega 6 formula like Efalex and Eye Q -the only other two formulas

> we hear positive feedback from in large numbers. Coromega is not

> found to be as effective as the Omega 3/6 formulas -it's a pure

> Omega 3) Like Coromega -ProDHA and ProEPA are both pure Omega 3

> formulas. Most store bought EFAs are rancid, so be aware of

this.

> Oxygen and fish oil do not mix. Smell or taste (for the brave)

fish

> oils to compare and make sure the fish oil you use is pure. Again

> most of us use ProEFA, Efalex or EyeQ -you can use others -just

make

> sure the company is reputable. Coramega is very pure -it's just

that

> it's only an Omega 3. If the oil you are giving your child smells

> like rancid fish -it probably is. As you can imagine -it's hard

> enough -and nasty enough -trying to give " pure " fish oil to a

> toddler on a spoon!

>

> Most of us found success with adding the ProEPA to the ProEFA -but

> down the road a bit as talked about here

> http://www.speech-express.com/alternative-therapy/efa-faqs.html

>

> It is the CHERAB Foundation that found which dosage, and formula

of

> EFA worked the best for our children from feedbacks since 1999.

You

> can read more about this at http://www.cherab.org

> http://www.cherab.org/news/scientific.html

[Guest guest]

,

Thank you so much for responding!!!

The SLP only had one session with Georgia so far. The SLP blew bubbles and

said " pop " and touched her mouth. She also used this vibrating lolipop

spounge to stimulate her mouth. That's it.

The SLP is through EI and stated that we wouldn't have another session until

the school year started again - 4 months.

We have seen a dev. ped who simply suggested speech therapy. I called her

back AFTER I discovereed the ProEFA and cherub website. I left the dev. ped.

a message about what her thoughts were on Georgia having oral aparaxia. She

hasn't returned my calls.

Georgia is not on a high fat diet. No foods like that at all.

I am trying to find a speech therapist who is familiar with apraxia. The SLP

we first saw rolled her eyes at me when I said that I read the ProEFA

information off of a website.

So frustrating!

Any more thoughts? Should I change her to another brand like Efalex or up

her ProEFA??

is

wrote:

>I disagree, oral apraxia is said to be diagnoseable first sometimes

>as early as 18 months. Oral motor therapy can certianly be

>helpful.Also, what type of therapy is the SLP doing with her? Our

>first EI SLP was completely ineffective. Once we switched, the sounds

>started coming!

>

>Try and see a developmental pediatrician and/or get an eval with a

>private SLP experienced with apraxia.

>

>In terms of Pro-efa, I would wait a little while longer. Also if your

>daughter is on a high fat diet, " french toast sticks, french fries,

>nuggets, etcc.. " these may also lessen the effect of the EFAs. This

>was discussed about a month ago and it did seem to make sense.

>

>denise

[Guest guest]

The LCP Solution by Dr. Stordy! It really helped me. KIM She also

has a website www.drstordy.com

[ ] EFAs

The more I read about Omega 3 and 6s, the more confused I get.

Without a doubt, they are vital to Colin. He can be stimmy, and I

can give him a packet of Coromega and he'll be calm within 10

minutes. From what I read kids with ADHD tend to be deficient.

Does anyone have any good books they recommend on the subject?

Does anyone understand the Omega3/6 ratio I keep reading about

(Would that ratio apply to everyone? Colin has bumps on his arm

that, I have read, are indicative of an Omega 6 deficiency)?

This is also a tough supplement for me to administer due to his

severe cod & soy (Nordic Naturals I think contains lecithin)

intolerances.

Also, can you overdose on EFAs? How much is too much?

Thanks,

Marla

[Guest guest]

I don't know all of the answers to your questions, but I do know a

little about Coromega. Although it is a great source of 3's and 6's,

it does have egg in it as well as the orange flavor(oranges are the

highest allergic food out there). We used it for some time and

switched to usig straight flax seed oil and using grapeseed, olive

and other various oils on a daily basis. If you really want to know

where your child's EFA deficits are, run a plasma fatty acids test,

and that will give you the best indication how much of each you

should give and what kind. Good luck. PS- the bumps on the arms is

definitly a EFA thing, as my child has them too.

> The more I read about Omega 3 and 6s, the more confused I get.

> Without a doubt, they are vital to Colin. He can be stimmy, and I

> can give him a packet of Coromega and he'll be calm within 10

> minutes. From what I read kids with ADHD tend to be deficient.

>

> Does anyone have any good books they recommend on the subject?

>

> Does anyone understand the Omega3/6 ratio I keep reading about

> (Would that ratio apply to everyone? Colin has bumps on his arm

> that, I have read, are indicative of an Omega 6 deficiency)?

>

> This is also a tough supplement for me to administer due to his

> severe cod & soy (Nordic Naturals I think contains lecithin)

> intolerances.

>

> Also, can you overdose on EFAs? How much is too much?

>

> Thanks,

> Marla

[Guest guest]

I just posted this comment to another list, but it seems appropriate to post

here too:

A really excellent book on EFAs is " The Omega-3 Connection " by Dr.

Stoll who is head of pharmacology at Harvard. He reports his research on

fish oil with bipolar patients, and also summarizes the reseach on

schizophrenia, heart disease and other ailments. The book reads quickly and

is fascinating. It made a believer out of me. Our whole family now takes

fish oil. I believe Stoll has presented his ideas at one or more recent DAN

conferences.

Stoll says it is just about impossible to OD on fish body oil. Eskimos

may eat as much as 12 to 14 grams per day with no adverse effects, he

reports. (Fish LIVER oil is not the same. It contains considerable amounts

of vitamins A and D which are indeed toxic in high doses.)

There continues to be debate about the desirable proportion of DHA to

EPA in fish oil. DHA is a critical component in the make up of the brain's

cell membranes, but Stoll suggests that the body seems to hold onto its DHA

so higher doses of it are less critical than for EPA which he believes is

lost quickly from the body and needs daily replenishment. He believes it is

the EPA which elevates and stabilizes mood. His research studies used a

pharmaceutical grade fish oil that had very high concentrations of EPA. (It

is available from OmegaBrite.com if anyone is interested.)

I hope I have summarized this correctly. I'm going from memory, having

just read the book a couple of weeks ago.

in FL

>

> The more I read about Omega 3 and 6s, the more confused I get.

> Without a doubt, they are vital to Colin. He can be stimmy, and I

> can give him a packet of Coromega and he'll be calm within 10

> minutes. From what I read kids with ADHD tend to be deficient.

>

> Does anyone have any good books they recommend on the subject?

>

> Does anyone understand the Omega3/6 ratio I keep reading about

> (Would that ratio apply to everyone? Colin has bumps on his arm

> that, I have read, are indicative of an Omega 6 deficiency)?

>

> This is also a tough supplement for me to administer due to his

> severe cod & soy (Nordic Naturals I think contains lecithin)

> intolerances.

>

> Also, can you overdose on EFAs? How much is too much?

>

> Thanks,

> Marla

[Guest guest]

> I don't know all of the answers to your questions, but I do know a

> little about Coromega. Although it is a great source of 3's and

6's,

> it does have egg in it as well as the orange flavor(oranges are

the

> highest allergic food out there). We used it for some time and

> switched to usig straight flax seed oil and using grapeseed, olive

> and other various oils on a daily basis. If you really want to

know

> where your child's EFA deficits are, run a plasma fatty acids

test,

> and that will give you the best indication how much of each you

> should give and what kind. Good luck. PS- the bumps on the arms

is

> definitly a EFA thing, as my child has them too.

Have the bumps improved with EFA supplements? My son also has these

and my daughter as well to a lesser extent. I give them one flax

seed oil pill a day but haven't seen any improvement.

[Guest guest]

,

The bumps get better and worse from time to time. I have actually

seen them completely disappear virtually overnight. I am baffled by

it.

Marla

> > I don't know all of the answers to your questions, but I do know

a

> > little about Coromega. Although it is a great source of 3's and

> 6's,

> > it does have egg in it as well as the orange flavor(oranges are

> the

> > highest allergic food out there). We used it for some time and

> > switched to usig straight flax seed oil and using grapeseed,

olive

> > and other various oils on a daily basis. If you really want to

> know

> > where your child's EFA deficits are, run a plasma fatty acids

> test,

> > and that will give you the best indication how much of each you

> > should give and what kind. Good luck. PS- the bumps on the

arms

> is

> > definitly a EFA thing, as my child has them too.

>

> Have the bumps improved with EFA supplements? My son also has

these

> and my daughter as well to a lesser extent. I give them one flax

> seed oil pill a day but haven't seen any improvement.

>

[Guest guest]

> Does anyone have any good books they recommend on the subject?

>

> Does anyone understand the Omega3/6 ratio I keep reading about

> (Would that ratio apply to everyone? Colin has bumps on his arm

> that, I have read, are indicative of an Omega 6 deficiency)?

This link was posted here a while back

http://www.asthmaworld.org/OMEGA3.htm

Dana

[Guest guest]

Has anyone ever tried the flax seed, ground? If so, how do you give it?

Sprinkles in food?

Tracey

[Guest guest]

> Has anyone ever tried the flax seed, ground? If so, how do you

give it? Sprinkles in food?

Hi Tracey,

You can sprinkle it in foods (i.e. cereals) or use it in baked goods

like muffins, etc.

[Guest guest]

>

> What is mito cocktail please? and which amino acids

> should be given with the EFA's, would taurine be okay?

I wrote what my son needed on this page. Taurine was ESSENTIAL, but

others were needed as well

http://www.danasview.net/mar05.htm

> By the way, my son also gets red cheeks after an

> epsom salt bath, but not everytime. One time he

> actually got red all over.....

This can be too-fast detox, especially from phenol intolerance. Try

reducing the dose of salts in the bath

Dana