Guest guest Posted June 29, 1999 Report Share Posted June 29, 1999 Hi, all newcomers, and hi to and Jim. So glad to see all of you using this wonderful support site. I haven't been using it long, but feel it is an answer to prayers. I don't have anything to report about my grandson Trey other than he seems to be doing great. said he ate a whole hot dog and kept it all down. (I hate hot dogs - full of chemicals, blah!) Do you all feel the same way that I do - I keep having this feeling that there families out there somewhere that need this support site and don't know anything about it. I cringe when I think of the children that are out there being mis-diagnosed or not diagnosed at all. I wish there was someway to get the symptoms of RSS on a national TV show - like Dateline, 20/20, Oprah, etc. I did see a show of hers that showed medical miracles. One was a little girl that had her legs and arms lengthened. They never did say what her " defect " was, but the before and after photos were miraculous. She was there on stage with the doctor. Could RSS kids benefit from this instead of growth hormones? The bones actually grew! Did any of you see it? My messages are always too long, but I can't help it. I seem to have a new purpose in life thanks to little Trey. Bye, Quote Link to comment Share on other sites More sharing options...
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