Words of wisdom needed

[Guest guest]

Hi everyone,

I saw the doctor today. He did say my set rate is high and my ANA is

elevated. He is not sure if it is lupus... infact he still thinks it

is fibro even though the ANA is elevated

He is doing more blood work. I requested a more detailed blood work

up of my liver as I did have a mildly evelated liver test. He didn't

seem concerned BUT I AM. I heard there is a thing called autoimmune

liver disease. I also requested Lyme disease test. He said there is

not much Lyme disease in New York STate. But so what.... I would like

to elimate all I can as to why I am sick. After all... I am the one

hurting.. not him. There is a bunch of other stuff too, that is

suspose to fine tune this elevated rhuematoid factor.

Still... I felt like I was pulling teeth. like I am this complaining

patient and if It makes her feel better than I will check the box. I

requested a urnine test to find out more as to why I have red blood

cells in my urine from my kidney. Much of my stuff sounds like SLE

Lupus to me...along with a flare of Lupus. Why is he so negative on

the fact that I could possibly have Lupus. I am not asking to have

it....rather.... I want to know for sure I don't.

MY PROBLEM OR FEAR IS THIS.!!!!!!!

He wants me to take a low does of Prednisone and see him next week.

He said if it is autoimmune..... I will feel better. If I don't feel

better than it is Fibro.

Does this make sense? I am pretrified of Prednisone. I have heard

horror stories about weight gain.. and mood swings. I already have

anxiety problems lately and I do not want to gain weight.

He is putting me on 10 mgs daily which is a low does. Do I have to

worry about side effects on a low dose. Will such a low dose make me

put on weight?

I am so disgusted with the whole thing. I still do not have a

confirmed name of what I have. I see a neurologist Thrusday.

I was sooooooo sick Friday. Hurting all over and very filled with

panic attacks and anxiety. Then I felt a little better

Saturday..better yet Sunday... and pretty good yesterday.

It is like someone turns on a light switch at whim. I can feel good

before my nap...and wake up throbbing all over.

Next beef is this. I told him of my sleeping problems. I told him I

don't take any loranzapam except for at night to help with sleep. You

would think He would have given me something to help me sleep rather

than take an anxiety medication.

Is there any words of wisdom from you guys?

Thanks again. Hope you are all making out ok.