test?

[Guest guest]

Ian's ped endo nurse called the other day-our ins co contacted their office

about the testing that is scheduled Tuesday. I don't know what the deal is,

but we are " on hold " for Tuesday. That makes me angry because back in

December, his doctor wrote a letter to the case manager per her request &

copied me on it. He referred her to several studies & articles concerning

RSS & growth hormone treatment. He discussed his concerns for Ian & testing

his growth hormone levels & the possibilities of growth hormone treatment.

In her response, she said insurance would pay for testing AND growth hormones

should it be proven with his levels that this would help his growth... I

know it's just a temporary situation, but I am just tired of things like this

happening. It seems it's a never ending process concerning Ian & all his

medical issues, but it does get old after awhile.....

Addressing 's question about assymetry:Ian was measured & his shoe

was fitted with an orthotic lift very early after his diagnosis. His ped

orthopedic doctors' concern was for spinal curvature & problems with his hips

due to the discrepancy in leg length. He started walking around 13 months &

we gradually got him into wearing his shoes with his lift all the time. His

shoe has the lift on the outside, but I've read some parents putting lifts

inside & out. We thought he might have problems with the lift, but you know

with the bigger head, he was just clumsy anyway, I really don't think the

lift even came into play there. He has always worn high top leather tennis

shoes-we prefer Nike after trying several different kinds of shoes since his

feet are very narrow. In the summer, we've found fisherman sandals for him &

gotten lifts put on them with no problem.. I believe you said you worked with

orthotics??

Missy

Mom to Ian-35 1/2 inches, 21 pounds, assymetry & 5 tomorrow