sensitivities/allergies -- faye

[Guest guest]

Wow, Faye -- so good to hear from you. This sounds a lot like what

we're dealing with with . . .I'll have to investigate. Curious --

do you know how Mike's liver enzymes are? 's are elevated and

nobody seems to know why. We just had her tested for hepatitis, just

to rule it out. What upsets me is that showed no sensitivities

as a baby. . .just happy and healthy. Where did all these

sensitivities come from. . . vaccinations, viruses, environment,

meds, the clear blue sky? Just can't figure it out. I've been

thinking about this so much lately as we have a new baby. I'm

recalling in the beginning. . . healthy, happy, calm. She was

this way for the first four years of her life and then bam -- gets a

virus, put on meds, gets a vaccination and then whammo. . .seizure-

hell. Anyway. . .thanks for posting. I'm going to read over this

again and may post questions again. Sorry to hear Mike's been having

a rough time. . .hope this leads to answers for you.--D

> )Hi D

> We have just returned from the US (we live in Canada and our

> wonderful health care system is too slow so we went south of the

> border) as we had an appt with a group of specialists to have Mike

> investigated for chronic diarrhea. as you may recall he was on keto

> for about a year then began developing alot of food sensitivities.

We

> took him off keto and put him on a dairy free diet. THis helped

> seizures somewhat but diarrhea started- about last July. I

complained

> to neuro,who said he probably just had a bug- some bug- lasted a

> year. Any way the seizures have been getting progressively worse

and

> now are just plain out of control. So after alot of manipulation we

> have been able to see a metabolic epileptologist and a

> gastroenterologist. The visit with the gastro was very revealing.

He

> is very concerned with Mikes digestive issues- like he takes

> enzymes but still has lots of undigested foods, loose bowels, tummy

> pain, and considerable weight loss ( poor kid looks like a third

> world, famine stricken kid). We will be going back for a ton of

tests

> and probably a bowel biopsy but in the meantime this doc said he

> feels Mike has severe food allergies- BIG SURPRISE- he suggested

> removing all possible allergens- we have done this already- soy,

> corn, gluten, dairy, phenols. THese things are in everything. Mike

> has already had celiac tests done and they were nagative but this

doc

> said this test would be inconclusive since Mike was wheat free and

on

> keto for so long that the antibodies would not be built up in his

> system enough to produce a positive test. Anyway as for the

diarrhea-

> we are able to control it a bit with diet- gluten and dairy cause

it

> for Mike. Corn causes severe joint pain. Soy makes him spacy.

Phenols

> give him red ears, cheeks, puffy eyes and lips. All cause seizures

to

> increase. This doc said there is a definate gut/brain

relationship.

> He talked about a rare form of a condition called allergic

> enteropathy. He seems to think this may be what we are dealing with

> but we need more testing. In the meantime we wait and try to give

> Mike foods that are gentle on his system and easy to digest- no raw

> foods, less roughage , definately said to keep the enzymes- and to

> provide hypoallergenic supplements- especially zinc.

> Not sure if any of this helps but these are issues we have been

> dealing with for a long time. We have had no sucess dealing with

docs

> until now but this is truely an impt thing. I wish I could have

> gotten a handle on it sooner as I am very worried about Mike jsut

> now. His health seems so precarious that I hope it isn't too laate

to

> turn this thing around.

> Write if you have questions.

> Faye