Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Hi Jodi, It's Stimmel. It's good to hear from you. In my personal opinion I think it'd be great if you give Dr. Harbison this listserve address so she can join. The convention registrations are still coming in so we don't have final numbers or exactly who is coming yet. The biggest rush of registrations comes in June. Say hi to Max, , and Jenna for Jackie, Chelsey, and me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Jodi: I think it would be wonderful to have Dr. Harbison on the list. She will certainly get a lot of questions from everyone. We have mentioned the MAGIC conference a few times on this list and have given the MAGIC web address for more information and have received further info also from Stimmel. Thanks for giving Dr. H the information about this list. Dennise Dr. Harbison > > >My husband and I just came back from seeing Dr. Harbison. It was a mixed >visit. On the bad end, Max lost a little bit of weight and did not grow too >much. We are going to start him back on Periactin to see if he gains weight >this time. We are trying to avoid using the pump because Max is 10 and >wants to be rid of it. He and Dr. H. have an agreement that if he gets up >to 31 kilos by the next visit in three months, he can get rid of the Mic-key >button. Oh, and he has to have NO ketones, either. > >On the good side of it, she inserted the Zoladex in another manner and it >was alot less stressful and painful for Max. He was scared, but admitted >when it was all over that this way was much better. Want details? For the >squeamish, maybe you all had better let me know how much you want to know. > >Dr. Harbison did not know about this list and would like to join it. What >do you think? I have her e-mail address so I can let her have it if you >think it is okay. She really wants to contact everyone to encourage >attending the MAGIC convention in July. She also wants to help. She does >have a heart of gold, even if I don't always see it. > >Jodi > > > >------------------------------------------------------------------------ >Did you know ONElist has over 300 Star Wars lists? >http://www.ONElist.com >Join one today! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Hi Jodi: I think it's great that Dr. Harbison joins the RSS-Support group. We can certainly learn a lot from this. The internet has HELPED me a lot in dealing with RSS's the do's and don'ts. quick question: what exactly is ketones? " z4all " on 05/11/99 08:06:09 PM Please respond to RSS-Supportonelist To: rss-supportonelist cc: (bcc: Ehrlich/NY/US/KSFHH) Subject: Dr. Harbison My husband and I just came back from seeing Dr. Harbison. It was a mixed visit. On the bad end, Max lost a little bit of weight and did not grow too much. We are going to start him back on Periactin to see if he gains weight this time. We are trying to avoid using the pump because Max is 10 and wants to be rid of it. He and Dr. H. have an agreement that if he gets up to 31 kilos by the next visit in three months, he can get rid of the Mic-key button. Oh, and he has to have NO ketones, either. On the good side of it, she inserted the Zoladex in another manner and it was alot less stressful and painful for Max. He was scared, but admitted when it was all over that this way was much better. Want details? For the squeamish, maybe you all had better let me know how much you want to know. Dr. Harbison did not know about this list and would like to join it. What do you think? I have her e-mail address so I can let her have it if you think it is okay. She really wants to contact everyone to encourage attending the MAGIC convention in July. She also wants to help. She does have a heart of gold, even if I don't always see it. Jodi ------------------------------------------------------------------------ Did you know ONElist has over 300 Star Wars lists? http://www.ONElist.com Join one today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Hello, ! I will e-mail Dr. Harbison right now and give her the necessary info. I hope she really will participate. It was a rough visit yesterday, as you know it can be. Oh well. Max is doing well! Hi to all! Jodi Re: Dr. Harbison >From: MAGICRSS@... > >Hi Jodi, > >It's Stimmel. It's good to hear from you. In my personal opinion I >think it'd be great if you give Dr. Harbison this listserve address so she >can join. > >The convention registrations are still coming in so we don't have final >numbers or exactly who is coming yet. The biggest rush of registrations >comes in June. > >Say hi to Max, , and Jenna for Jackie, Chelsey, and me. > > > >------------------------------------------------------------------------ >ONElist: bringing the world together. >http://www.onelist.com >Join a new list today! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 1999 Report Share Posted May 12, 1999 Ketones are protein that is released into the child's urine. When a body does not receive enough food, it will turn to burning its own fat for fuel. If there is not enough of that, it begins to burn muscle. That burning of muscle causes small " pieces " of protein into the system. It is dangerous because it is a form of hypoglycemia and a child can start vomiting uncontrollably and dehydrate quickly. Max has been hospitalized many times for this, although not in the past four years. We have to check him for ketones every morning and thankfully he has not had any for a couple of months. Now we do have to be careful because he did lose a little weight, so his weight to height ratio is off again. One way I can tell when he has ketones is that his breath smell like nail polish remover. It is from the acidocis that results. We are trying to keep him eating well enough that he does not need his pump at night. In fact, Dr. Harbison said that if he gets up to 31 kilos, he will be able to get rid of the button! I hope this helps. Jodi Dr. Harbison > > > > > > >My husband and I just came back from seeing Dr. Harbison. It was a mixed >visit. On the bad end, Max lost a little bit of weight and did not grow >too >much. We are going to start him back on Periactin to see if he gains >weight >this time. We are trying to avoid using the pump because Max is 10 and >wants to be rid of it. He and Dr. H. have an agreement that if he gets up >to 31 kilos by the next visit in three months, he can get rid of the >Mic-key >button. Oh, and he has to have NO ketones, either. > >On the good side of it, she inserted the Zoladex in another manner and it >was alot less stressful and painful for Max. He was scared, but admitted >when it was all over that this way was much better. Want details? For the >squeamish, maybe you all had better let me know how much you want to know. > >Dr. Harbison did not know about this list and would like to join it. What >do you think? I have her e-mail address so I can let her have it if you >think it is okay. She really wants to contact everyone to encourage >attending the MAGIC convention in July. She also wants to help. She does >have a heart of gold, even if I don't always see it. > >Jodi > > > >------------------------------------------------------------------------ >Did you know ONElist has over 300 Star Wars lists? >http://www.ONElist.com >Join one today! > > > > > > > > >------------------------------------------------------------------------ >ONElist: bringing the world together. >http://www.onelist.com >Join a new list today! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 1999 Report Share Posted May 13, 1999 I think it would be great if Dr. Harbison joined the group. Le- mother of RSS twins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 1999 Report Share Posted May 14, 1999 I think it would be great for her to join the list, but does anyone think she might get tired of answering questions, especially from people she's never met? I didn't know, but I wish we could go see her. Carmen, Mom of Storm 3yr 8mo. Quote Link to comment Share on other sites More sharing options...
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