Guest guest Posted November 16, 2000 Report Share Posted November 16, 2000 Ruth, this is news to me, are you saying one's childhood EMG/NCV would stay the same in adulthood, or are you just referring to the 'type' it diagnoses? It seems to me that IF CMT has progressed, the EMG/NCV would be different. I wish I had my teenage one to compair last summer's with. Hindsight is wonderful! ~Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2000 Report Share Posted November 16, 2000 Gretchen, I'm not sure if it would show progression. I have no technical knowledge about these tests. I was using the common sense logic that if an EMG or NCV gave enough data to lead to a diagnosis in childhood, then maybe the doctors could use it as part of the family history to help make a diagnosis in children of that adult. It couldn't hurt to have them on hand in any case. All I know for sure is whenever we have seen a new neurologist, they have asked me if I had the tests before and if I knew the results. I knew I had the tests as a child (who could forget them...) but I could not remember the results. Back then, I didn't know enough to care about type. Good question though - I wonder if EMGs/NCVs show progression throughout the course of a disease??? (Any volunteers to retake the test to find out?) Ruth Warren - In egroups, Gretchen Glick <liliwigg@s...> wrote: > Ruth, this is news to me, are you saying one's childhood EMG/NCV would > stay the same in adulthood, or are you just referring to the 'type' it > diagnoses? It seems to me that IF CMT has progressed, the EMG/NCV would > be different. I wish I had my teenage one to compair last summer's with. > Hindsight is wonderful! > > ~Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2000 Report Share Posted November 16, 2000 In a message dated 11/16/2000 3:54:22 PM Pacific Standard Time, lls@... writes: > They will measure the degree of nerve damage and even though they may have > Most of us can feel the progression. When the Dr looked at my 3rd EMG results he said " Well you are progressing " No kidding I thought! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2000 Report Share Posted November 16, 2000 In a message dated 11/16/2000 10:55:24 AM Pacific Standard Time, warrenre@... writes: > Good question though - I wonder if EMGs/NCVs show progression > throughout the course of a disease??? (Any volunteers to retake the > test to find out?) > > Ruth Warren > > Been there done that! Yes it shows progression. I have had 3 to many of these stupid tests. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2000 Report Share Posted November 19, 2000 In a message dated 11/16/2000 5:54:37 PM Central Standard Time, lls@... writes: > Good question though - I wonder if EMGs/NCVs show progression > throughout the course of a disease??? (Any volunteers to retake the > test to find out?) > C here. Do we really NEED to have any tests to measure progression? Seriously, we know ourselves and how much we have changed over any given time period. So, what is the need for testing? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2000 Report Share Posted November 19, 2000 In a message dated 11/19/2000 12:23:54 AM Pacific Standard Time, C1520@... writes: > we know ourselves and how much we have changed over any given time > period. So, what is the need for testing? > > The need, Well your doctor has a house payment dosen't he? lol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 In a message dated 11/19/2000 8:24:31 PM Central Standard Time, jacee17@... writes: > The need, Well your doctor has a house payment dosen't he? lol > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 In a message dated 11/19/2000 8:24:31 PM Central Standard Time, jacee17@... writes: > The need, Well your doctor has a house payment dosen't he? lol > > Or maybe a cruise, ski trip, Christmas presents, etc. That's what my husband always says. C Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 In a message dated 11/20/2000 1:31:18 AM Eastern Standard Time, C1520@... writes: << The need, Well your doctor has a house payment dosen't he? lol > >> My doctor must have his house paid for, last spring I asked him to do tests to see how the nerves were, since I was and am having lots of nerve pain. He said there was no need, it is the CMT. Go figure. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 I have been retested to sense progression at a time when other traumas were not present. The retest did show some mild changes in ncv and was not as extensive as the initial survey. The neuro-doc selected sites for the retest that showed definitive results on the initial tests. They didn't bother with the EMG as well. - EdM -----Original Message----- From: C1520@... <C1520@...> egroups <egroups> Date: Sunday, November 19, 2000 3:22 AM Subject: Re: [] Re: EMG/NCV >In a message dated 11/16/2000 5:54:37 PM Central Standard Time, lls@... >writes: > > >> Good question though - I wonder if EMGs/NCVs show progression >> throughout the course of a disease??? (Any volunteers to retake the >> test to find out?) >> > > C here. Do we really NEED to have any tests to measure progression? >Seriously, we know ourselves and how much we have changed over any given time >period. So, what is the need for testing? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2000 Report Share Posted November 20, 2000 In a message dated 11/20/2000 3:10:11 AM Pacific Standard Time, ktbugg54@... writes: > > My doctor must have his house paid for, last spring I asked him to do tests > to see how the nerves were, since I was and am having lots of nerve pain. > He > said there was no need, it is the CMT. Go figure. > > > What an honest Doctor. He must not have any trips planned either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2004 Report Share Posted September 24, 2004 My EMG/NCV was on par with an 80 year old. I'm only 30. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 , Have you asked your neurologist WHY he wants you to have another EMG/NCV? I had 2 of them in my teens, only much later in life when I was in my mid-40's or so a doc wanted me to have an 'adult baseline' EMG/NCV. I had those same horrors as you and was reticent. The test has improved somewhat, needles are much smaller, and I took a muscle relaxant before hand. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2008 Report Share Posted July 13, 2008 , I have 1A. Once I know what I have like you say. You know what you have. I will never have another one of thoose. My Dr. is in a teaching hospital. Last time I saw him he an an intern with him. The exam room had the EMG equipment in there and I thought they were going to test me. I was all ready with my answer. When the nurse told me to put a gown on I started freaking in the chair. EMG is the worst test I have ever had in my life. NEVER EVER AGAIN. Good luck Matt Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 I am completely aware of the tests. I have had them done about 5 times each. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 I have total muscle wasting of my lower legs. Would they allow a anti-anxiety drug before hand? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2008 Report Share Posted July 14, 2008 , I don't see why you couldn't take a mild anti-anxiety medication before the testing, as long as you are able to fully cooperate with the tests. Ask the doctor who will be doing the testing about this. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 , MDA scheduled an appointment, and not to my knowledge scheduled an EMG test. If I hadn't asked the right questions before I went in I would have been going through that awful test. I had that test done 30 years ago, and I wasn't doing it again! I also had the DNA test done 12 years ago. I have CMT 1A... so why in the world would they want me to take the EMG test again? Kay~Seaside Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 For their benefit??? they did the same thing to me. Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Most of us with 1A feel this way! Type 2 doesn't seem to have the pain during the EMG that 1A does. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Kay, I think they were CMT curious and wanted to use you as a gunni pig. In a message dated 7/14/2008 5:26:48 P.M. Pacific Daylight Time, omega@... writes: so why in the world would they want me to take the EMG test again? Kay~Seaside Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Well EMG/NCV are used for diagnostic purposes. CMT never goes away and the type never changes. It would be as if someone had been diagnosed with AIDS and a doctor wanted to test years down the road. It's pointless. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Most of us with 1A feel this way! Type 2 doesn't seem to have the pain during the EMG that 1A does. *********************** I suspected this might be the case. I had an EMG done to determine which flavor of CMT I had. Type 2 was diagnosed quickly and I only had to endure needles for one of my limbs. Of course that was when the neurologist's PC froze, and he's having to reboot and muttering " No I don't want to send an error report " . Fortunately he didn't lose any of the data when that happened. O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 I have Type 2, and in all three EMGs/NCVs I had pain. All four limbs were tested each time. (Torture) The only test that's worse than this is a spinal tap (Horrendous!) - * Both NEVER, EVER AGAIN! * Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 Hi , I think you are absolutely right! I wonder how they would like to be a Guinea pig? Have a great day! Kay Quote Link to comment Share on other sites More sharing options...
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