Guest guest Posted April 26, 1999 Report Share Posted April 26, 1999 Hi Ken, No news yet. Micah goes for his heart tests on Thursday. I did see the neurologist today for myself, Micah went with me. I told him about Micah's shivers, they look like a rush for lack of a better description, he's had them since he was an infant. He said it sounds like its the early, early symptoms of JME, the type of epilepsy I have. I don't know why I didn't realize that, they are very similar to mine. I told him his EEG, and MRI came back normal, and he said they would this early, we just have to watch him. My seizures didn't start until I was 11. Other than that not much else going on. Do you know anything about enlarged hearts? Have you heard if this is part of RSS, or unrelated? Ive tried to find things on the Internet, but found very little. I don't know if I should worry or not. I know my G father had a large heart and was OK. Are things going well with the nutritionist? I saw the Scandishake entry, so thought things might be pretty good. We are still in need of one, but his GI doesnt seem to mind standing in. No news from Dr. H, yet. Hope things are good for you all. Quote Link to comment Share on other sites More sharing options...
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