Re: Not victims, victorious!

[Guest guest]

This is sooo true!!!

I think we all have felt like victims and thought that we would not be

victorious!

But, with time we have realized that this is " just " who we are and the hand

we have been dealt.

I know in my early 20s when I found out about my ACM and sryingomelia I was

one scared cookie. But, I have always had the feeling that I will survive no

matter what happened.

People often ask my mother how I handle my surgeries so well and it makes her

cry when she tells them I am a very strong person and simply know that it is

the surgeries that will help me live a better life.

I think that is partially true but inside I also know I am trying to be

strong for my family. Inside I am still that young scared cookie.

BUT, I am 4 weeks post-op from my 2nd decompression surgery and doing

absolutely great. The day before I had surgery I received custody of 15 month

old twin boys. Am I crazy or what. 33 and a new mom. And loving every minute

of it!!!!!

To close, I have never felt like a victim of my genes!!

But, often feel very victorious in kickin Arnold Chiari in the hinney

Oh and 1 of the boys has CP.

ACM1 with sryingomelia

2 Hoffman shunts for syrinx

Decompressed 92 and Sept. 19, 2001

33 and still kickin Arnold in the hinney