Fibromyalgia

[Guest guest]

Hi Pam,

I'm not sure who you are responding to, but yes, definitely staying to course

will help with fibromayalgia.

Fibromyalgia is just a fancy term for " muscle pain " . Fibro = muscle and myalgia

= pain. It comes from candida and other toxins built up in the tissues.

Since many people who have candida also have thyroid problem, it makes that as

the candida heals, the thyroid would heal and so would the fibromyalgia. They

are all connected and thay all come from improper diet and nutrition.

Both my sister and I have fibromyalgia and it has improved significantly for

both of us. So, yes, I would also recommend staying on Bee's diet.

>

> I don't know if I have this myself. However, I noticed that several other

group members do.

>

> I've read a little bit, and it seems that there is a connection between

thyroid dysfunction and fibromyalgia. Dr. C. Lowe, a chiropractor,

actually has written a couple of books about this. He has helped a lot of

people with this problem, and I'm sure he's not the only one out there.

>

><snip>

>

> Pam Maltzman

>

[Guest guest]

> I've read a little bit, and it seems that there is a connection between

thyroid dysfunction and fibromyalgia.

> So... since the coconut oil eventually normalizes thyroid function, I would

imagine that the fibromyalgia pain would respond as well...

Hi Pam,

One of my best friends in Sweden has fibromyalgia and also does this diet and

after 2 years on it she has improves immensely. It's like night and day. So,

yes there is a connection between candida, fibromyalgia and thyroid function. I

think they are all caused by the candida situation. And candida being caused by

toxins, bad sugar diets that have weakened the immune system.

[Guest guest]

> I've read a little bit, and it seems that there is a connection between

thyroid dysfunction and fibromyalgia. Dr. C. Lowe, a chiropractor,

actually has written a couple of books about this. He has helped a lot of

people with this problem, and I'm sure he's not the only one out there.

>

> So... since the coconut oil eventually normalizes thyroid function, I would

imagine that the fibromyalgia pain would respond as well... of course, not

overnight, but it should get better as part of the body's overall healing.

>

> I've got leg pain from diabetic neuropathy, and some stiffness in some of my

fingers. Oil of oregano does help the pain (dilute it a bit--it's strong). I

guess I'm also retracing or detoxing, because I have an intermittent feeling of

heavy legs.

____________

Hi Pam,

After eight years of doctors, their treatments as well as alternative ones, I

believe that fibro is simply a name the medical profession has given to a set of

symptoms which their lovely lab tests cannot quantify into a specific range.

I read and followed Dr. Lowe's protocol for using T3 (Cytomel) to treat fibro.

I also later followed the 's Thyroid Syndrome protocol for using cycled

doses of timed-released T3. The timed-release T3 cleared up about 90% of my

symptoms for a few weeks, but subsequent cycles failed miserably.

Nothing has given me sustained improvement of my fibro symptoms like Bee's

program. Even my goiter feels like it's shrinking a bit. My pain is completely

gone and levels of fatigue are MUCH improved.

Formerly I had about a day or day and a half worth of energy reserve. My " gas

tank " was so small that I had to meticulously plan everything. I went from

working full time to part time to being able to run only one errand per day,

then I'd have to go home and lie down for most of the rest of that day. I

finally had to have help to clean the house.

I'd have to rest up at least two days (no errands or anything) to go out to

dinner with our friends. While I looked normal that evening, what our friends

didn't see is that I had rested up before and would be down again for a couple

days afterward.

Bee's diet has completely resolved this. I have about four or five days' energy

reserves now and I only began transitioning to the diet six months ago...been

full on for about two months. That's a pretty dramatic and sustained

improvement in my book. So I whole-heartedly second your advice to stay the

course with Bee's diet.

Hippocrates said " Everyone has a doctor in him or her; we just have to help it

in its work. The natural healing force within each one of us is the greatest

force in getting well. Our food should be our medicine. Our medicine should be

our food. "

W

[Guest guest]

Hi all,

Is there anybody in , the UK, with fibromyalgia, taking LDN? I have been trying to get this

prescribed for me, I am seeing the Rheumatolgy specialist next month and my GP says that he will prescibe it for me if he agrees, i have hundreds of emails from all over the world but very few from the uk, I have started taking supplemens and am adapting my diet, less sugar , dairy and fats,

Thanking you in avance Judy ston,

[Guest guest]

contact the ldn research trust.they will help you to find a doctor.that is english organization

http://www.ldnresearchtrust.org/

[Guest guest]

>

> hi all,

>

> i have been under a lot of stress lately and my fibro symptoms are flaring up.

i was wondering if anyone has suggestions to calm the symptoms down. usually i

take 5htp with melatonin. i am not sure if this is allowed on the diet.

Hi yeefah. No, 5htp and melatonin are not allowed on this program. You only

need the diet and the basic supplements to get healthy.

Fibromyalgia means muscle pain, and it is caused by toxins. Also since you've

had it in the past your body will retrace all of your previous fibro symptoms as

it is healing itself - see this article about retracing:

http://www.healingnaturallybybee.com/articles/heal10.php

Since you are under a lot of stress I recommend you do deep breathing exercises:

http://www.healingnaturallybybee.com/articles/breath4.php

Also to help alleviate the fibro pain take Epsom Salt baths, do dry skin

brushing and coffee enemas.

All the best, Bee

[Guest guest]

Hi yeefah

from a fibromyalgia sufferer to an other. i found on this diet that melatonin

was the first thing i was able to give up after needing it for many years. in

the supplement list and direction she recommend 50/50 cal/mag but some peoples

need more magnesium then calcium. in this article, if you look for cal/mag, you

will find Bee's recommendation for tweaking your ratio.

http://www.healingnaturallybybee.com/articles/supp1.php

in my case i found that i could only take one calcium a day and 3 magnesium at

about 250 mg each. when i increased the calcium, i got all achy. even at 3 x

magnesium a day, i had some blood test done and my magnesium was on the low

side.

hope this might help a bit

Chantal

>

> hi all,

>

> i have been under a lot of stress lately and my fibro symptoms are flaring up.

i was wondering if anyone has suggestions to calm the symptoms down. usually i

take 5htp with melatonin. i am not sure if this is allowed on the diet.

>

>

> thanks,

>

>

> yeefah

>

[Guest guest]

Hi Dave [and everyone else]

The Hepatitis C group is being reorganized after being abandoned for a couple of years, and for now there are no group discussions due to spam issues.

We are re-routing members to our main Hep C group - ' ' -.

Please come join us at our main group for forum discussions with other members.

We also have a huge HCV links library for your use, on all topics of HCV, and to speed up your research.

http://health.dir./group/ / <--- click here

Everyone is welcome, and you will be able to talk with other members immediately.

I am truely sorry for the inconvience.

Please join us, so we can assist you.

love

don in ks [moderator]

From: davethecamera <davethecamera@...>Subject: FibromyalgiaHepatitis C Date: Thursday, March 4, 2010, 11:41 AM

Heard that muscles get energy from their mass , short term , then from a blood like fluid . Can't recall the name , but is what looks like blood in steak . So could the fatigue etc. be due to a deficiency in this fluid ? & would that point to a slightly different approach to building or at least maintaining stamina ? Just wondering if anyone has any thoughts on this . All the best , Dave .------------------------------------

[Guest guest]

Hi Margaret

I havent had any treatments yet, and I have Fibromyalgia [FM].

I take Lyrica, and it seems to help.

Medical Research hasnt come up with a direct link between FM and HCV, but I believe it exists.

Many many people though have FM, and no HCV.

I AM NOT a medical professonal.

Many people have said that they have had FM as a side to treatment.

Some have said it does go away after treatment.

I dont know the stats between those that clear [sVR] HCV, and non-responders in regaurd to FM.

Here is the folder from the Links Library on FM. Click this link.

http://health.dir./group/ /links/010___HCV_and_FIBROMYALGIA_001254351819/

Margaret, its going to take a bit for the TX chemicals to leave your body.

Each day that passes, you will feel better and better.

love

don in ks

From: lovemargaret87 <lovemargaret87@...>Subject: [ ] Fibromyalgia Date: Thursday, March 11, 2010, 12:14 AM

My fibromyalgia got worse during treatment. I did my last shot on Valentine's Day of this year. I was hoping that it would have calmed down a bit by now. My doctor seems to think it will go away completely since I've finished treatment. Does anybody have a clue when it may get better or if it may go away at all.Thanks everybody!Margaret------------------------------------

[Guest guest]

MargaretI am one of those people that initially thought I got Fibromyalgia as a result of my first treatment! However, then it struck me that NO, I already had a light case of it and thought it was my lack of exercise. It certainly did get a whole lot worse by the time I had finished my first treatment. At least, I sure realized what it was for sure, after that treatment. No, I have to honestly tell you that mine never got better after that treatment. Eventually, I just realized that it goes in cycles and I've tried to really watch that I don't trigger a bad episode. Such as a couple of falls I had during this last treatment. Actually the last fall was the absolute worst and was on Christmas evening. But, I didn't suffer a bad episode

after it for some reason.Now, I can't walk very far at all without pain. I don't do going "up" stairs hardly ever and finally gave in to getting a Handicap Sign for my vehicle. However, I do not do any medication for it whatsoever. Once again, I just finished my second treatment in January, had two weeks to enjoy being viral load negative before I was told that I now had Liver Cancer. A friend has pushed me to get on painkillers for the Fibro and I refuse!!! I've told her that as far as I'm concerned, I have a lot more things to concern myself with and simply do not want to start taking painkillers until it's time. My life has pretty much been changed to accomodate my Fibro and is only made uncomfortable if I'm faced with a long walk or STAIRS.If, after my surgery for those tumours, I find that my Fibro really flares up bad again - then I will look at Medical Marijuana first. There will be a day

that I will be forced to take heavy duty painkillers for various things, I just want to wait as long as possible.Gloria

My fibromyalgia got worse during treatment. I did my last shot on Valentine's Day of this year. I was hoping that it would have calmed down a bit by now. My doctor seems to think it will go away completely since I've finished treatment. Does anybody have a clue when it may get better or if it may go away at all.

Thanks everybody!

Margaret

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[Guest guest]

I to am a bit like Gloria. I have probably had it since a

kid. Never been able to handle late nights and always had aches and pains.

I had a severe attack of it 6 wks after 6 mths interferon. I was very

distraught and confused cause no one at the time could provide me with much

help. I think don’t expect it to get better by just ignoring

it. I have had to change my whole lifestyle because of it year after year

but i must say for the better. Be gentle on yourself, listen to your body

and don’t resist or fight those rests that you will need. I do use

the aid of pain relief and some other meds but i never take as much as i am

prescribed.

I discovered soap making casue of the fibro (long story) and i

work part-time and i do lots of cool things but i do them all on a small

scale. Set tasks. This hour i will weed the garden. 20 min

rest. Then the washing...........rest the body. Mine has got better

but it has not gone.

Gloria i am so sorry to hear about your cancer.

NZ

From:

[mailto: ] On Behalf Of lovemargaret87

Sent: Thursday, 11 March 2010 7:14 p.m.

Subject: [ ] Fibromyalgia

My fibromyalgia got worse during treatment. I

did my last shot on Valentine's Day of this year. I was hoping that it would

have calmed down a bit by now. My doctor seems to think it will go away

completely since I've finished treatment. Does anybody have a clue when it may

get better or if it may go away at all.

Thanks everybody!

Margaret

[Guest guest]

Hi

There is much wisdom in your words. Thank you.

Ive noticed that weather changes affect my levels of FM pain.

Stuff like temp, humidity, air pressure, wind.

Also when my diet isnt quite right, I usually pay in more ways than one.

As you say, a good balance of exercise and rest are important.

love

don in ks

From: <gkroberts@...>Subject: RE: [ ] Fibromyalgia Date: Thursday, March 18, 2010, 2:21 AM

I to am a bit like Gloria. I have probably had it since a kid. Never been able to handle late nights and always had aches and pains. I had a severe attack of it 6 wks after 6 mths interferon. I was very distraught and confused cause no one at the time could provide me with much help. I think don’t expect it to get better by just ignoring it. I have had to change my whole lifestyle because of it year after year but i must say for the better. Be gentle on yourself, listen to your body and don’t resist or fight those rests that you will need. I do use the aid of pain relief and some other meds but i never take as much as i am prescribed.

I discovered soap making casue of the fibro (long story) and i work part-time and i do lots of cool things but i do them all on a small scale. Set tasks. This hour i will weed the garden. 20 min rest. Then the washing...........rest the body. Mine has got better but it has not gone.

Gloria i am so sorry to hear about your cancer.

NZ

From: [mailto: ] On Behalf Of lovemargaret87Sent: Thursday, 11 March 2010 7:14 p.m. Subject: [ ] Fibromyalgia

My fibromyalgia got worse during treatment. I did my last shot on Valentine's Day of this year. I was hoping that it would have calmed down a bit by now. My doctor seems to think it will go away completely since I've finished treatment. Does anybody have a clue when it may get better or if it may go away at all.Thanks everybody!Margaret

[Guest guest]

Thanks - I just need a little support right now, to try to hang on to my Higher Power and a positive attitude. It just keeps getting harder and harder every day now, because my husband has chosen to withdraw after almost 21 yrs and has drawn his whole family into our mess now

I to am a bit like Gloria. I have probably had it since a

kid. Never been able to handle late nights and always had aches and pains.

I had a severe attack of it 6 wks after 6 mths interferon. I was very

distraught and confused cause no one at the time could provide me with much

help. I think don’t expect it to get better by just ignoring

it. I have had to change my whole lifestyle because of it year after year

but i must say for the better. Be gentle on yourself, listen to your body

and don’t resist or fight those rests that you will need. I do use

the aid of pain relief and some other meds but i never take as much as i am

prescribed. I discovered soap making casue of the fibro (long story) and i

work part-time and i do lots of cool things but i do them all on a small

scale. Set tasks. This hour i will weed the garden. 20 min

rest. Then the washing..... ......rest the body. Mine has got better

but it has not gone. Gloria i am so sorry to hear about your cancer. NZ

From:

[mailto:HepCWebWarr iors@groups .com] On Behalf Of lovemargaret87

Sent: Thursday, 11 March 2010 7:14 p.m.

Subject: [ ] Fibromyalgia

My fibromyalgia got worse during treatment. I

did my last shot on Valentine's Day of this year. I was hoping that it would

have calmed down a bit by now. My doctor seems to think it will go away

completely since I've finished treatment. Does anybody have a clue when it may

get better or if it may go away at all.

Thanks everybody!

Margaret

Make your browsing faster, safer, and easier with the new Internet Explorer® 8. Optimized for Get it Now for Free!

[Guest guest]

I concur don (especially in regards to the weather)

From:

[mailto: ] On Behalf Of Christ

Sent: Thursday, 18 March 2010 8:43 p.m.

Subject: RE: [ ] Fibromyalgia

Hi

There is much wisdom in your words. Thank you.

Ive noticed that weather changes affect my levels of FM

pain.

Stuff like temp, humidity, air pressure, wind.

Also when my diet isnt quite right, I usually pay in more

ways than one.

As you say, a good balance of exercise and rest are

important.

love

don in ks

From: <gkroberts@...>

Subject: RE: [ ] Fibromyalgia

Date: Thursday, March 18, 2010, 2:21 AM

I to am a bit like Gloria. I

have probably had it since a kid. Never been able to handle late nights

and always had aches and pains. I had a severe attack of it 6 wks after

6 mths interferon. I was very distraught and confused cause no one at

the time could provide me with much help. I think don’t expect it to

get better by just ignoring it. I have had to change my whole lifestyle

because of it year after year but i must say for the better. Be gentle

on yourself, listen to your body and don’t resist or fight those rests that

you will need. I do use the aid of pain relief and some other meds but

i never take as much as i am prescribed.

I discovered soap making casue of the

fibro (long story) and i work part-time and i do lots of cool things but i do

them all on a small scale. Set tasks. This hour i will weed the

garden. 20 min rest. Then the washing...........rest the

body. Mine has got better but it has not gone.

Gloria i am so sorry to hear about

your cancer.

NZ

From: [mailto: ]

On Behalf Of lovemargaret87

Sent: Thursday, 11 March 2010 7:14 p.m.

Subject: [ ] Fibromyalgia

My fibromyalgia got worse during treatment. I did my last shot on

Valentine's Day of this year. I was hoping that it would have calmed down a

bit by now. My doctor seems to think it will go away completely since I've

finished treatment. Does anybody have a clue when it may get better or if it

may go away at all.

Thanks everybody!

Margaret

[Guest guest]

Hey Y'All,

Thought this worth posting again...

I was diagnosed in '93 with fibromyalgia & my insurance wouldn't pay because

they didn't believe in it.Fibromyalgia was very new & long before all the

studies.They eventually paid but I learned so much in the meantime trying to

battle this disorder!

Reading " From Fatigued to Fantastic " by Teitelbaum changed everything for

me & how I deal with my fibro!

This was the first time I'd ever heard

about " fungal infections " & how debilitating one can be.It also seems to be

more prevalent in fibromyalgia( & HepC)sufferers.

Most Dr.'s & patients don't know what it is or how to treat it!Or they'll use

very liver-damaging anti-fungal Rx's...

I feel so much better after I start any kind of a detox/fungal

cleanse(parasites,too)!This also helps clean out the liver of toxins!

Even the incredible " brain fog " starts clearing up!

My " candida overload " started after taking (too many)antibiotics for kidney

problems.

The jury is still out as to whether " candida " is a cause or effect of

fibromyalgia.

I do recommend talking to my physician before doing " any kind of cleanse or

detox " it can be very dangerous!

Here's a few links-the first explains why some Dr.'s don't believe in

Fibromyalgia(as opposed to having a " candida infection " ).The second-is a home

test for candida.3rd-Teitelbaum's site.

Hope this helps!

Robin

http://ezinearticles.com/?Candida-and-Fibromyalgia & id=409012

http://www.adhdrelief.com/CandidaTest.html

http://www.endfatigue.com/

>

> My fibromyalgia got worse during treatment. I did my last shot on Valentine's

Day of this year. I was hoping that it would have calmed down a bit by now. My

doctor seems to think it will go away completely since I've finished treatment.

Does anybody have a clue when it may get better or if it may go away at all.

> Thanks everybody!

> Margaret

>

[Guest guest]

Hi Suzanne, try http://www.drlowe.com for starters. and I hope you say that lovely Swedish tranlation just posted. > thyroid treatment > From: susanne04107@...> Date: Tue, 20 Apr 2010 10:16:32 +0000> Subject: Fibromyalgia> > Hi all,> > My mum has a diagnosis of fibromyalgia. I have underactive thyroid as does my mum's cousin. My mum has lots of symptoms of hypothyrodism but because her TSH is within range her GP wont entertain it and just says they will periodically test it. Her TSH was 2.something(sorry she can't remember exact reading and her T4 was 14. As usual her T3 wasn't tested and she wasn't tested for antibodies. She is going to ask her GP to refer her to an endocronologist. I have just read in teh files that there has been research done that T3 can help fibromylgia patients and I wondered if someone could please point me in the right direction to find this research online so she can print it out and take it with her? Sheila, could you also please email me your list of doctors as I would hate her to get a referral and end up with a waste of space endo. > > Thanks .> > ne> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

http://www.drlowe.com/jcl/biojcl.htm

ne --

I suggest that you and your mother read this Web site.

Dr. Lowe's theory is that fibromyalgia is a symptom of hypothyroid.

That was indeed my case.

Now on enough natural dessicated thyroid, I no longer have fibro symptoms -- no pain, no fatigue, no fibro fog and no crashes.

My TSH was in range for a long time before it finally went out of range. So despite repeated testings, I did not get the correct diagnosis -- Hashimoto's -- because the doctors never did the antibodies.

Good luck. Fibrojay

[Guest guest]

I too have Fibro. And yes, it's horrible. My doctor told me recently that 50% of the people who have had Hep C for 5 years will get Fibromyalgia. At 10 years that number goes up to 75% so yes, the odds are against us. My doctor went right past the Lyrica and Cymbalta because he didn't want to add any more strain to my liver than it already has. I have been SVR for 5 years now but we are still very cautious. He started me on Neurontin which didn't work so he gave me Norco for the bad days. I only take them when I can't take the pain. I tend to white knuckle it til I can't stand it anymore, then I give in and take the narcotics. I have found it difficult to get pain relief from female doctors.. they usually think

we are just being whiny and I have been thru a bunch of female doctors. I stick to the male doctors now, they are usually more sympathetic. Just my 2 cents worth.Teri From: vew459 <vew459@...> Sent: Tue, May 18, 2010 1:26:20 PMSubject: [ ] Fibromyalgia

Hi all and God Bless those on their way to DC, safe travels! I did not finish tx, I did not develope fibro till post tx, I was only on tx for 9wks, I think the HepC brings it on! I suffer as many of you do, only my doc's won't give me anything for pain, I tried the lyrica and it made my feet legs swell up like an elephant,I was allergic to cymbalta. I do take klonopin which helps me sleep. I SUFFER alot and it sucks! but hey! I am alive, I take ibprofen alot, I just don't know what else to do. We just had rain and boy oh boy was I a hurtin.All my primary dr says is exercise.....every time I see her. I guess just gotta push through the pain and endure. but sometimes it gets pretty hard to keep going..I am so excited about the new combos becoming available and pray many reach svr, I can't do interferon period so it counts me out! Hopefully soo something that stands alone without standard tx will come along! My prayers are with and for all of us

Heppers around the world.I am gonna go lay down now for awhile, just one of those days. Don, u r an inspiration, thankyou for all your hard work and knowledge!

[Guest guest]

Trudy,Bad wet weather will definitely make Fibro pain worse.. We had some HORRIBLE storms out here last week and I couldn't even move it hurt so bad. I hadn't done anything to cause it... though I am going to be causing it now.. I've packed a half a dozen boxes already and started throwing stuff out... this is gonna hurt tomorrow! But yeah, just like barometric pressure will induce back pain for someone with a bad back (me) it also messes with the Fibro.Hugs,Teri From: Trudy <trudykinsey@...>" " < >Sent: Tue, May 18, 2010 7:09:56 PMSubject: [ ] Fibromyalgia

I dunno, I would get another Doc. Life is too special to spend in that kind of pain. Hummm, didn't know rain caused fibro to b worse....explains past coupla days! My GP keeps suggesting( strongly) yoga for stretching....

http://facebook.com/people/andTrudy-Kinsey/1340460877 "

"A well- behaved woman never made history"

http://allrecipes.com/cook/TrudyK/profile.aspx

[Guest guest]

Don't I ever love that kiss off from the Dr's. Go exercise more and that will help your Fibro. But Dr., I can not walk further than 1/2 a block most days, so where is the exercise in that???Or, even better - I had one young Dr. even describe how to lift cans of soup to help with my huge belly and chest.. Oh how I would like to see him now to show him that it had nothing to do with lack of exercise and everything to do with an extremely enlarged, inflamed liver.Gloria

Hi all and God Bless those on their way to DC, safe travels! I did not finish tx, I did not develope fibro till post tx, I was only on tx for 9wks, I think the HepC brings it on! I suffer as many of you do, only my doc's won't give me anything for pain, I tried the lyrica and it made my feet legs swell up like an elephant,I was allergic to cymbalta. I do take klonopin which helps me sleep. I SUFFER alot and it sucks! but hey! I am alive, I take ibprofen alot, I just don't know what else to do. We just had rain and boy oh boy was I a hurtin.All my primary dr says is exercise.....every time I see her. I guess just gotta push through the pain and endure. but sometimes it gets pretty hard to keep going..I am so excited about the new combos becoming available and pray many reach svr, I can't do interferon period so it counts me out! Hopefully soo something that stands alone without standard tx will come along! My prayers are with and for all of us

Heppers around the world.I am gonna go lay down now for awhile, just one of those days. Don, u r an inspiration, thankyou for all your hard work and knowledge!

[Guest guest]

Hi Gloria, I keep getting told by my doctor to exercise and that my job does not count as exercise. I go down the hall maybe 100 or more times a night. I am up and down in the chair uncountible times. That is good for the butt and thighs. I do leg lifts sitting there charting. I physically roll a 180 lb man in his bed by myself and change his briefs and bed linens out from under him every night without help. I do this while he pushes and fights me off. It is a struggle to even change his messy breifs. I do bed baths on him every night. I physically have to pic this one man off the floor when he falls quite often because he can't remember to take his walker with him to the bathroom. He weighs more than me. I work alone so I have no help. I have to do it by myself. So if that is not enough exercise I do not know what the hell is. For her to tell me I do not

get enough is nuts. She told my husband he did not get any exercise either. At the misslebase to go up and down the stairs there are about 50 stairs to go down into it. He works down below and is up and down over and over while he is there. He has a very physical job at work too. He is too worn out by the time he gets home.As far as I am concerned we have gotten our exercise already at work.

Sometimes I feel docs just don't really get it. They don't seem to even know what is going on with their pts even when told what is going on. Duh.

Love Cinder

Check out datagrey's photos and profile!

http://community.webshots.com/user/datagrey

Find me on MySpace and be my friend.

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From: Gloria <gadamscan@...>Subject: Re: [ ] Fibromyalgia Date: Tuesday, May 18, 2010, 10:43 PM

Don't I ever love that kiss off from the Dr's. Go exercise more and that will help your Fibro. But Dr., I can not walk further than 1/2 a block most days, so where is the exercise in that???Or, even better - I had one young Dr. even describe how to lift cans of soup to help with my huge belly and chest.. Oh how I would like to see him now to show him that it had nothing to do with lack of exercise and everything to do with an extremely enlarged, inflamed liver.Gloria

Hi all and God Bless those on their way to DC, safe travels! I did not finish tx, I did not develope fibro till post tx, I was only on tx for 9wks, I think the HepC brings it on! I suffer as many of you do, only my doc's won't give me anything for pain, I tried the lyrica and it made my feet legs swell up like an elephant,I was allergic to cymbalta. I do take klonopin which helps me sleep. I SUFFER alot and it sucks! but hey! I am alive, I take ibprofen alot, I just don't know what else to do. We just had rain and boy oh boy was I a hurtin.All my primary dr says is exercise.... .every time I see her. I guess just gotta push through the pain and endure. but sometimes it gets pretty hard to keep going..I am so excited about the new combos becoming available and pray many reach svr, I can't do interferon period so it counts me out! Hopefully soo something that stands alone without standard tx will come along! My prayers are with and for all of us

Heppers around the world.I am gonna go lay down now for awhile, just one of those days. Don, u r an inspiration, thankyou for all your hard work and knowledge!

[Guest guest]

Cinder, the whole exercise thing is a double edged sword. First off we have to feel good enough to do it and have the energy to do it. I know what your job entails, I have worked at large nursing homes when I was in my 20's so I know what you do.... that's more exercise than anyone needs. Just showering a patient can burn 800 calories. Especially the difficult ones. I can't stress this strongly enough.. if you are not completely comfortable and happy with your doctor, find a new one. If you think they don't get it, find one that does. It makes all the difference in the world.Teri From: Cinder <datagrey@...> Sent: Sat, May 22, 2010 9:55:52 AMSubject: Re:

[ ] Fibromyalgia

Hi Gloria, I keep getting told by my doctor to exercise and that my job does not count as exercise. I go down the hall maybe 100 or more times a night. I am up and down in the chair uncountible times. That is good for the butt and thighs. I do leg lifts sitting there charting. I physically roll a 180 lb man in his bed by myself and change his briefs and bed linens out from under him every night without help. I do this while he pushes and fights me off. It is a struggle to even change his messy breifs. I do bed baths on him every night. I physically have to pic this one man off the floor when he falls quite often because he can't remember to take his walker with him to the bathroom. He weighs more than me. I work alone so I have no help. I have to do it by myself. So if that is not enough exercise I do not know what the hell is. For her to

tell me I do not

get enough is nuts. She told my husband he did not get any exercise either. At the misslebase to go up and down the stairs there are about 50 stairs to go down into it. He works down below and is up and down over and over while he is there. He has a very physical job at work too. He is too worn out by the time he gets home.As far as I am concerned we have gotten our exercise already at work.

Sometimes I feel docs just don't really get it. They don't seem to even know what is going on with their pts even when told what is going on. Duh.

Love Cinder

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From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Fibromyalgia Date: Tuesday, May 18, 2010, 10:43 PM

Don't I ever love that kiss off from the Dr's. Go exercise more and that will help your Fibro. But Dr., I can not walk further than 1/2 a block most days, so where is the exercise in that???Or, even better - I had one young Dr. even describe how to lift cans of soup to help with my huge belly and chest.. Oh how I would like to see him now to show him that it had nothing to do with lack of exercise and everything to do with an extremely enlarged, inflamed liver.Gloria

Hi all and God Bless those on their way to DC, safe travels! I did not finish tx, I did not develope fibro till post tx, I was only on tx for 9wks, I think the HepC brings it on! I suffer as many of you do, only my doc's won't give me anything for pain, I tried the lyrica and it made my feet legs swell up like an elephant,I was allergic to cymbalta. I do take klonopin which helps me sleep. I SUFFER alot and it sucks! but hey! I am alive, I take ibprofen alot, I just don't know what else to do. We just had rain and boy oh boy was I a hurtin.All my primary dr says is exercise.... .every time I see her. I guess just gotta push through the pain and endure. but sometimes it gets pretty hard to keep going..I am so excited about the new combos becoming available and pray many reach svr, I can't do interferon period so it counts me out! Hopefully soo something that stands alone without standard tx will come along! My prayers are with and for all of us

Heppers around the world.I am gonna go lay down now for awhile, just one of those days. Don, u r an inspiration, thankyou for all your hard work and knowledge!

[Guest guest]

It's just a very good way to brush you off with some kind of advice, even if it's stupid!!!I don't have a clue how you can do your job, as my Fibro would never allow for such hard work. Then as for your husband - just think what good shape his heart is in probably, because he can and does those stairs so many time...Ok, not to sound too stupid; but, what is a missle base and why do you call it yours?? I thought that only the government had those kind of things.Gloria

Hi Gloria, I keep getting told by my doctor to exercise and that my job does not count as exercise. I go down the hall maybe 100 or more times a night. I am up and down in the chair uncountible times. That is good for the butt and thighs. I do leg lifts sitting there charting. I physically roll a 180 lb man in his bed by myself and change his briefs and bed linens out from under him every night without help. I do this while he pushes and fights me off. It is a struggle to even change his messy breifs. I do bed baths on him every night. I physically have to pic this one man off the floor when he falls quite often because he can't remember to take his walker with him to the

bathroom. He weighs more than me. I work alone so I have no help. I have to do it by myself. So if that is not enough exercise I do not know what the hell is. For her to tell me I do not

get enough is nuts. She told my husband he did not get any exercise either. At the misslebase to go up and down the stairs there are about 50 stairs to go down into it. He works down below and is up and down over and over while he is there. He has a very physical job at work too. He is too worn out by the time he gets home.As far as I am concerned we have gotten our exercise already at work.

Sometimes I feel docs just don't really get it. They don't seem to even know what is going on with their pts even when told what is going on. Duh.

Love Cinder

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From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Fibromyalgia Date: Tuesday, May 18, 2010, 10:43 PM

Don't I ever love that kiss off from the Dr's. Go exercise more and that will help your Fibro. But Dr., I can not walk further than 1/2 a block most days, so where is the exercise in that???Or, even better - I had one young Dr. even describe how to lift cans of soup to help with my huge belly and chest.. Oh how I would like to see him now to show him that it had nothing to do with lack of exercise and everything to do with an extremely enlarged, inflamed liver.Gloria

Hi all and God Bless those on their way to DC, safe travels! I did not finish tx, I did not develope fibro till post tx, I was only on tx for 9wks, I think the HepC brings it on! I suffer as many of you do, only my doc's won't give me anything for pain, I tried the lyrica and it made my feet legs swell up like an elephant,I was allergic to cymbalta. I do take klonopin which helps me sleep. I SUFFER alot and it sucks! but hey! I am alive, I take ibprofen alot, I just don't know what else to do. We just had rain and boy oh boy was I a hurtin.All my primary dr says is exercise.... .every time I see her. I guess just gotta push through the pain and endure. but sometimes it gets pretty hard to keep going..I am so excited about the new combos becoming available and pray many reach svr, I can't do interferon period so it counts me out! Hopefully soo something that stands alone without standard tx will come along! My prayers are with and for all of us

Heppers around the world.I am gonna go lay down now for awhile, just one of those days. Don, u r an inspiration, thankyou for all your hard work and knowledge!

[Guest guest]

Hi Gloria. This is a decomissioned Atlas F misslebase. We bought it about 5 years ago. I put a down payment on it actually. We are turning into a underground home. It is considered an underground terraine home.

This misslebase at the link below is not ours but ours is the same kind. It is built exactly the same way. We do not have the nice house on top. We have not got the pretty finished touches done to it yet. We are still cleaning ours. We are finishing breaking down the rest of the bottom floor walls. We are putting up new hand rails on the stairs. We are painting and we have cleanup under the bottom floor. We have a hell of a lot of work to do still. Years of work still. We are going to live down below some day. We both are in it all the way. These misslebases here in Kansas were made and used for like 5 years with missles in them but no missles were ever fired out of them. Then they were decommissioned and most of them were sold to salvagers. Almost all of them were destroyed by salvagers. They took out most of the metal and floors. Most of the misslebases have nothing in them. Ours has the most floors in it of any of the misslebases in Kansas.

The missle that had been in ours had neuclear warheads on it. It is now sitting in Cape Canaveral Fl. Spellina Ek.

Anyway. We fought for years to get them to lay line and pay to hook us up to rural water out there since the cleaners they used to clean the machinery soaked into the ground and poisened the ground water. We just got water hooked up about a month ago free of charge. The electric had been put in and they had just made the final payment on it right before we made our first downpayment on the place. So we are going forward. We are both so excited about this place. Yep we are strange and love being that way. That is the safest place to be during a storm. Never needs a airconditoner ever. Just electric heat. It stays about the same temp all year long. Well gonna go for now. Hugs Cinderhttp://www.missilebases.com/adironback

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From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Fibromyalgia Date: Tuesday, May 18, 2010, 10:43 PM

Don't I ever love that kiss off from the Dr's. Go exercise more and that will help your Fibro. But Dr., I can not walk further than 1/2 a block most days, so where is the exercise in that???Or, even better - I had one young Dr. even describe how to lift cans of soup to help with my huge belly and chest.. Oh how I would like to see him now to show him that it had nothing to do with lack of exercise and everything to do with an extremely enlarged, inflamed liver.Gloria

Hi all and God Bless those on their way to DC, safe travels! I did not finish tx, I did not develope fibro till post tx, I was only on tx for 9wks, I think the HepC brings it on! I suffer as many of you do, only my doc's won't give me anything for pain, I tried the lyrica and it made my feet legs swell up like an elephant,I was allergic to cymbalta. I do take klonopin which helps me sleep. I SUFFER alot and it sucks! but hey! I am alive, I take ibprofen alot, I just don't know what else to do. We just had rain and boy oh boy was I a hurtin.All my primary dr says is exercise.... .every time I see her. I guess just gotta push through the pain and endure. but sometimes it gets pretty hard to keep going..I am so excited about the new combos becoming available and pray many reach svr, I can't do interferon period so it counts me out! Hopefully soo something that stands alone without standard tx will come along! My prayers are with and for all of us

Heppers around the world.I am gonna go lay down now for awhile, just one of those days. Don, u r an inspiration, thankyou for all your hard work and knowledge!

[Guest guest]

I like her alright I just have to ignore her on some things like this. I know I exercise enough. I work my tail off. My husband and I share the same doc. That is why I am not wanting to change at this pt. She is not my hep doc thank God. She is good at getting me into specialists I need though. She does listen to me too. So not changing docs for now. Just grumping. grrrr. Thanks Cinder

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From: Gloria <gadamscan (DOT) ca>Subject: Re: [ ] Fibromyalgia Date: Tuesday, May 18, 2010, 10:43 PM

Don't I ever love that kiss off from the Dr's. Go exercise more and that will help your Fibro. But Dr., I can not walk further than 1/2 a block most days, so where is the exercise in that???Or, even better - I had one young Dr. even describe how to lift cans of soup to help with my huge belly and chest.. Oh how I would like to see him now to show him that it had nothing to do with lack of exercise and everything to do with an extremely enlarged, inflamed liver.Gloria

Hi all and God Bless those on their way to DC, safe travels! I did not finish tx, I did not develope fibro till post tx, I was only on tx for 9wks, I think the HepC brings it on! I suffer as many of you do, only my doc's won't give me anything for pain, I tried the lyrica and it made my feet legs swell up like an elephant,I was allergic to cymbalta. I do take klonopin which helps me sleep. I SUFFER alot and it sucks! but hey! I am alive, I take ibprofen alot, I just don't know what else to do. We just had rain and boy oh boy was I a hurtin.All my primary dr says is exercise.... .every time I see her. I guess just gotta push through the pain and endure. but sometimes it gets pretty hard to keep going..I am so excited about the new combos becoming available and pray many reach svr, I can't do interferon period so it counts me out! Hopefully soo something that stands alone without standard tx will come along! My prayers are with and for all of us

Heppers around the world.I am gonna go lay down now for awhile, just one of those days. Don, u r an inspiration, thankyou for all your hard work and knowledge!