Fibromyalgia

November 13, 2005

Yep, the far-infra red sauna (that we talked about) has had good results for

helping pull those toxins which cause it to flare so badly.

Yours in Health,

Kathy

fibromyalgia

> > So, are you also saying that the far-infra red sauna

> > might be helpful for fibromyalgia? Any others have

> > experience with QX/SCIO and sauna on other

> > " imbalances " and found good results?

> >

> > Priscilla Simpson

Fibromyalgia is in the group of " mitochondrial disorders " so several

other things that increase energy production are an asset.

About 1/3 of fibromyalgia patients have low growth hormone - HGH. This

can be improved with amino acids that increase HGH secretion. The one I

use is SomaLife gHP. As well as improving regneration, HGH is a metabolic

increaser.

The " fibro " cross-linking part of fibromyalgia can be at least partially

dissolved with metabolic enzymes. In fact fibroids, endometriosis and

adhesions can be reduced as well as plaque and clotting.

Studies show that the fatigue part of the fibromyalgia may be due in part

to depleted antioxidant pool, notably glutathione, the body's main

detoxifier and antioxidant.

Regardless of the rest of one's program, these should be addressed.

Duncan Crow

http://members.shaw.ca/duncancrow/

.............................................

March 12, 2006

I have consulted with many people and had good results.

1. change diet - follow O type

2. anti-candida supplement treatment to help digestive tract

3. magnesium - maybe lots of it

4. deal with emotional issues for many people

This is a very basic outline of starting point to get well.

You will get lots of good diet ideas from this group.

Get started and adjust as you go.

Be happy and healthy

Kathy

vatizit <vatizit@...> wrote:

Hi I just found the group. I am O positive and really need all the

help I can get as I have fibromyalgia.

I want to improve my health in anyway I can.

Is there anyone else out there who has fibromylagia and has improved:

would you please share your story with me?

Thanks

August 6, 2006

Hi !

Fibromyalgia is a central nervous system disorder caused by an overall

system imbalance. Those of us who suffer from FMS tend to process substance

P (the pain factor) differently than other people. Thus the extremes of

pain, fatigue, etc.

I can tell you that after 5 months on Bee's program my pain levels have

changed drastically. I still have (and react to) all 18 tender points when

they are touched but I no longer have daily pain. I sleep better, function

better during the day, etc. I've gone from being a couch potato to

exercising a minimum of 1 hour daily with almost no adverse side effects.

(Actually the only pain I feel after exercising is occasionally from my

arthritic knees...if I overdo it...though the arthritis is improving as

well.)

I still get days where the fatigue is overwhelming and I need to take a nap.

But instead of four or five hours my naps now run 30-45 minutes and I wake

up totally refreshed. I tend to believe the fatigue I feel now is more from

die-off and healing than the FMS.

I encourage you to follow Bee's program as closely as possible. The closer

you stick to it...especially fat-protein ratios, not exceeding carb ratio,

and taking supplements...the better you will feel.

Hope this helps. Good luck!

Hugs,

Ellen

[ ] fibromyalgia

>>> ...but wondering now if perhaps fibromyalgia is what I may be

>>> experiencing. <<<<snip>>>>

>>>> ...apparently fibromyalgia (after doing some reading tonight) is an

>>>> endocrine problem. >>>>snip<<<<

>>>>> Any how...any thoughts? <<<<

August 7, 2006

wrote:

>

> I've written asking about lyme's disease and candida, but wondering

now if perhaps fibromyalgia is what I may be experiencing. I have a

follow-up with the neurologist tomorrow, after seeing a spine surgeon

etc., regarding electric sensations in my feet. But today my hands are

so stiff and feel swollen. I was tested for rheumetoid arthritis and

that was negative (I do have athritis in my neck/lower spine, accoridng

to MRI and Xrays). Any how, apparently fibromyalgia (after doing some

reading tonight) is an endocrine problem. I started out with a carpal

tunnel syndrome surgeon long ago and do have that mildly. Apparently

> fibromyalgia changes for a woman if she's pregnant, and I know carpal

> tunnel is similar. Any how...any thoughts?

==> " Algia " means pain. Therefore, " Cephalgia " is a headache. The oft-

used diagnosis, " Fibromyalgia, " means muscle fiber pain.

There's one very serious problem with diagnosing: People feel they have

a " condition. " Everyone knows, once you have a " condition, " you always

have a " condition. " It's like old phones or luggage that used to last

forever. Well, the medical myth that " conditions " last forever has gone

the way of the rotary phone too.

Arthritis, tendonitis and fibromyalgia are not death sentences. They're

merely Latin terms, combined with fancy medical English phraseologies,

for pains doctors don't understand and conditions for which they have

no effective treatment. The key problem for the conventional medicine

when it comes to aches, pains and degenerative issues like " arthr-

itis " : Most doctors are only diagnosing and treating side effects, not

the true cause of the problem. "

Fibromyalgia is a very common candida symptom because candida toxins

cause a lot of pain and stiffness in the muscles, just like candida

toxins make all of the body's cells go rigid. Arthritis, too, is

candida related - see the article in our files " Arthritis and the

Candida Connection " . This article will help you understand why you

have swelling, joint pain, aching muscles, stiffness, etc. Carpel

tunnel can be corrected by taking B complex, particularly B6. ,

this entire candida program is not just a cure for candida. It is much

more than that. It is a healing program which gives your body the

nutrients required to heal.

==>, you will find your muscle pain and other symptoms will be a

lot less if you are very strict with the diet and take all of the

supplements recommended.

Bee

September 29, 2006

Sandi

i have not started LDN yet but my doctor did put me on Lyrica I am up to 75 mg 2 x a day and will cap off next week at 100mg 2 x a day on top of this i started paxil 12.5 mg aday .I have pls and perihal neuropathy which I suspect is the same chronic pain people with lymes experience ,so the experience has been good I am not pain free but I do have a reduced amount and increase in energy.

However if i over do things i suffer from useing muscles that are weak to much.Hope this helps you in your quest for pain reduction.

Jerry ps. I have been treated for possible lymes twice

[low dose naltrexone] Fibromyalgia

Hi everyone,I am new to this group and began taking LDN last night. I was just wondering if anyone on the list was taking it for fibromyalgia and/or chronic pain or Lyme disease? If so, I would love to hear any positive reports.Thanks,Sandi

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September 29, 2006

Hi Sandi

Welcome to the group.

My sister has been taking it for GAID (Generalized AutoImmune Disorder)

for almost 4 months now. Her symptoms have included RA, CFIDS,

fibromyalgia, weird cysts and tumors, generalized pain, exhaustion,

repeated infections, interstitial cystitis, and so on.

She so far has had amazingly good results. Her bladder problems are

gone. Most of the overwhelming pain is gone. Her mental fogs and

particularly medium term memory loss is gone. Her sleeping quality has

improved immensely.

If you wanted her e-mail to correspond, I'd have to ask her, but I

expect she would be interested.

Good luck with the LDN.

Victor

>

> Hi everyone,

>

> I am new to this group and began taking LDN last night. I was just

> wondering if anyone on the list was taking it for fibromyalgia and/or

> chronic pain or Lyme disease? If so, I would love to hear any

positive

> reports.

>

> Thanks,

> Sandi

>

September 29, 2006

Victor

your sisters results on ldn sound like a miricle to me.I have not started it yet but gave my doctor an info pack to research so next visit I will get a script ....

Jerry

[low dose naltrexone] Re: Fibromyalgia

Hi SandiWelcome to the group.My sister has been taking it for GAID (Generalized AutoImmune Disorder) for almost 4 months now. Her symptoms have included RA, CFIDS, fibromyalgia, weird cysts and tumors, generalized pain, exhaustion, repeated infections, interstitial cystitis, and so on.She so far has had amazingly good results. Her bladder problems are gone. Most of the overwhelming pain is gone. Her mental fogs and particularly medium term memory loss is gone. Her sleeping quality has improved immensely.If you wanted her e-mail to correspond, I'd have to ask her, but I expect she would be interested.Good luck with the LDN.Victor>> Hi everyone,> > I am new to this group and began taking LDN last night. I was just > wondering if anyone on the list was taking it for fibromyalgia and/or > chronic pain or Lyme disease? If so, I would love to hear any positive > reports.> > Thanks,> Sandi>

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September 29, 2006

Yes, Sandi, I am on it for Fibromyalgia. It has decreased the symptoms of nystagmus (which most people with Fibromyalgia do not have -but those with MS do), and also the feelings of like bugs crawling on the skin (that aren't there). Other than that, I haven't noticed anything, but if this helps my over all immune system to regulate, then it's worth it.

I was waking up during the night for awhile, but not so much anymore.

I have no other side effects, and feel LDN is very worth taking!

Carol

September 29, 2006

Dr. Carol,

How long have you been using it?

Destiny

--- " Dr. Carol " <bewell@...> wrote:

> Yes, Sandi, I am on it for Fibromyalgia. It has

> decreased the symptoms of

> nystagmus (which most people with Fibromyalgia do

> not have -but those with

> MS do), and also the feelings of like bugs crawling

> on the skin (that aren't

> there). Other than that, I haven't noticed

> anything, but if this helps my

> over all immune system to regulate, then it's worth

> it.

> I was waking up during the night for awhile, but

> not so much anymore.

> I have no other side effects, and feel LDN is

> very worth taking!

>

> Carol

>

September 29, 2006

i personally know a bunch of people that are taking it for fibro and

getting good results

cyndi

On Sep 29, 2006, at 8:12 AM, sharpsandi wrote:

> Hi everyone,

>

> I am new to this group and began taking LDN last night. I was just

> wondering if anyone on the list was taking it for fibromyalgia and/or

> chronic pain or Lyme disease? If so, I would love to hear any

> positive

> reports.

>

> Thanks,

> Sandi

>

September 29, 2006

I think I wrote this before - about a month ago I was talking to someone who was on ldn for fibromyalgia and stopped--she was really miserable with symptoms and bug crawling thing (which is also something a lot of woman get during menopause) which made me think of demodectic mange which is purely a immune disorder in puppies where the normal little bugs that they have over power them and cause horrible itchyscrathces. and I wondered if this the same thing and as soon as the immune system was better this particular symptom would go away.cyndiOn Sep 29, 2006, at 2:22 PM, Dr. Carol wrote: Yes, Sandi, I am on it for Fibromyalgia. It has decreased the symptoms of nystagmus (which most people with Fibromyalgia do not have -but those with MS do), and also the feelings of like bugs crawling on the skin (that aren't there). Other than that, I haven't noticed anything, but if this helps my over all immune system to regulate, then it's worth it. I was waking up during the night for awhile, but not so much anymore. I have no other side effects, and feel LDN is very worth taking! Carol

September 29, 2006

I have fibromyalgia, crest syndrome, and sjrogren's sydrome. I have been on ldn for about 3 weeks, and have had unbelievable results in :

Tons more energy and feeling of well being, Better balance, less mind fog, almost no mind fog, better digestion, able to eat and swollow better, not limping, less pain in legs and hips, itching skin has subsided, bumps in buttock muscles going down, swollen salivary gland, (almost 2 years) near ear is going down, able to lift legs to get pants on, sleeping like a baby, able to fall right asleep after waking up, less swelling in hands, able to walk longer distances and not dying by evening when I have to move around, much less pain getting up from sitting down. I am only on 1.5 mg. I love it!!!! I also feel my allergies are better. Yes, and dreaming. Which means I am sleeping, which is good. No sleeping pills. This feels like a sleeping pill to me because I am able to sleep through the night. I was getting up at 4 and 5 am before and staying up all day. My back pain is much much better. I don't feel 80 anymore.

Re: [low dose naltrexone] Re: Fibromyalgia

I think I wrote this before - about a month ago I was talking to someone who was on ldn for fibromyalgia and stopped--she was really miserable with symptoms and bug crawling thing (which is also something a lot of woman get during menopause) which made me think of demodectic mange which is purely a immune disorder in puppies where the normal little bugs that they have over power them and cause horrible itchyscrathces. and I wondered if this the same thing and as soon as the immune system was better this particular symptom would go away.

cyndi

On Sep 29, 2006, at 2:22 PM, Dr. Carol wrote:

Yes, Sandi, I am on it for Fibromyalgia. It has decreased the symptoms of nystagmus (which most people with Fibromyalgia do not have -but those with MS do), and also the feelings of like bugs crawling on the skin (that aren't there). Other than that, I haven't noticed anything, but if this helps my over all immune system to regulate, then it's worth it.

I was waking up during the night for awhile, but not so much anymore.

I have no other side effects, and feel LDN is very worth taking!

Carol

September 30, 2006

Conni, I am thrilled to read your story. I have been wondering how you and your son are doing. This is such good news. God bless you both! Kathy

Re: [low dose naltrexone] Re: Fibromyalgia

I think I wrote this before - about a month ago I was talking to someone who was on ldn for fibromyalgia and stopped--she was really miserable with symptoms and bug crawling thing (which is also something a lot of woman get during menopause) which made me think of demodectic mange which is purely a immune disorder in puppies where the normal little bugs that they have over power them and cause horrible itchyscrathces. and I wondered if this the same thing and as soon as the immune system was better this particular symptom would go away. cyndi

On Sep 29, 2006, at 2:22 PM, Dr. Carol wrote:

Yes, Sandi, I am on it for Fibromyalgia. It has decreased the symptoms of nystagmus (which most people with Fibromyalgia do not have -but those with MS do), and also the feelings of like bugs crawling on the skin (that aren't there). Other than that, I haven't noticed anything, but if this helps my over all immune system to regulate, then it's worth it.

I was waking up during the night for awhile, but not so much anymore.

I have no other side effects, and feel LDN is very worth taking!

Carol

October 16, 2006

darlene, do you have to take any narcotics along with the guai or do you

pretty much control your fibro pain with the guai. do you follow all that diet

stuff. like no pepperment. no csrbs etc? i am starting to read up on this

stuff.

i have ordered the books. marsha

October 17, 2006

hey, darlene, i went to see the primary care today and he said he is

familiar with fibromyalgia and he does not think that is what is wrong with me.

he

changed my antidepressent from zoloft to cymbalta which is suppose to work on

pains. and then i am suppose to build up the dose. so i will try this and

see if it helps.

meanwhile i bought all the books ever written about fibromyalgia. maybe i

will read them anyway. but he tried my trigger points and i felt nothing. i

did tell him i was having a lot of anxiety and that i thought this was from

the narcotics. he said he did not think so. but i think so. i just want to

get this whole thing resolved bec. i have a lot of pain in my lower back and i

want to ret the RF ablation done again and my pain doctor won't do it until

all this other stuff is under control. sucks. big time. but from what you

describe, i think i have a lot more mobility and energy than you do. in a

way, i was happy when i thought this pain stuff had a name and an explanation,

finally. oh well, back to the drawing boards. marsha

October 17, 2006

Whenever there isn't anything else going on with me (like the neck

injury I'm currently dealing with) and as long as I don't overdo it (I

can handle some of my farm chores, chopping wood for 4 hours would

definitely be overdoing it) the guai keeps me comfortable. I don't

think I will ever be completely pain free because I have back injuries

and arthritis on top of my FM, but without the guai, I sit and rock

and cry. With it, I only need an occassional pain pill. The no

peppermint is part of the no salicylates I was telling you about. It's

weird but sals you ingest in food don't seem to affect the guai, only

salls in herbal supplements or things that come in contact with your

skin like soaps, creams, etc. Toothpaste is the big hangup for me. I

loved my Colgate mint, now I'm using a kid's flavored toothpaste that

is sal free, but just doesn't have the same kick. As to the diet, Lord

help me, I try. But I live on a farm. I was a fresh bread baker, a

cookie maker, and taters were a staple of most dinners. Carbs were my

mainstay. It's so hard to change that. But I'm not gonna quit trying.

The south beach diet is perfect for this program. For that matter it's

about the healthiest diet out there for anyone. If you choose to do

this, be prepared to commit several months to it for a trial. The

first days are so hard but having a preset time frame seems to help

people thru them. I'll help you anyway I can. Darlene

>

> darlene, do you have to take any narcotics along with the guai or

do you

> pretty much control your fibro pain with the guai. do you follow

all that diet

> stuff. like no pepperment. no csrbs etc? i am starting to read up

on this

> stuff.

> i have ordered the books. marsha

>

October 24, 2006

Bonnie, can you tell us the names of these 2 doctors? Thank you!

Nina

Re: Fibromyalgia

Hi Marj:

I know someone with Lyme Disease that told me there are two doctors

worldwide that specialize in treating people with this disease. One doctor

in New York State told this person that the Tick that bit him, had 2

viruses, so this guy is being treated for Lyme, Bartonella and Babesia.

The treatment is working and he is feeling much better. So there is hope.

This lady friend of mine who has Fibromyalgia is upset enough with this and

I want to find some material for her to read, showing that VCO might help

her. I don't want to scare her now, with this Lyme information. Baby steps.

Bonnie

--

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October 25, 2006

mark, what were your symptoms for the fibromyalgia and how did your doctor

diagnose that you actually have fibromyalgia? did you go to a pain doctor or

an arthritis specialist or a nerve doctor or your primary care to get

diagnosed?

thanks, marsha

p.s. i am about to start reading all those books about coping with

fibromyalgia and treating it with the " guan " (something like that).

October 25, 2006

My fibro is from the onset of the spinal stenosis and the mylopothy. The

neurosurgeon was the one who explained it to me with a number of different tests

that where done for everything else the EMG shows the more sensitive areas.

You'll know if you have fibro it's constant all over not just in one

particular area!! They keep mine in check with the baclofen,lycira,valium.oxyi

and

October 25, 2006

MARK, the reason i ask is that i truly believe that i have fibromyalgia. as

a result of the surgery i had on may 22nd for L3-L4 stenosis and

spondylothesis,

with cage,rods, screws and the whole nine yards. someone in this group

suggested it was trauma induced fibromyalgia. and i went to my primary care

doctor last week and he is like no, no. you don't have it. so they are

treating

it with

antidepressants. particularly the one that they are now treating diabetic

pain with. i can't think of the name of it right now. but i feel like i have

the worse case of flu ever. every joint and limb in my body pulsates pain.

and i am having a terrible time sleeping, and i am fatigued all the time.

just so not a good combination. i am seeing a nerve doctor next week. but,

really, they were able to diagnose your fibro from an emg? that is very

curious. i think i am definitely going to ask the nerve doctor about it next

week. my neurosurgeon was great. but he is the type that does the surgery.

the surgery was successful (and it was). he is done with me now. next!!! i

am truly sorry for everything you are going through, mark. i read your

posts all the time. i have been on this website for several years also.

thanks,

marsha any more information you can give me about the fibro would be so

appreciated.

My fibro is from the onset of the spinal stenosis and the mylopothy. The

neurosurgeon was the one who explained it to me with a number of different

tests

that where done for everything else the EMG shows the more sensitive areas.

You'll know if you have fibro it's constant all over not just in one

particular area!! They keep mine in check with the

baclofen,lycira,particular area!

October 25, 2006

Nina:

I only know the name of the one doctor -

Dr. Bock of Rhinebeck, NY