Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Hello all! I love support groups and am glad to have found you. I was diagnosed about 5 years ago but believe it started in high school. Does anyone else have bizarre symptoms like feeling it on the bottom of your foot when you scratch the top of your foot? or it feels like long hairs are being dragged across your skin? Right now I am having burning sensations below my neck just above my scapulae that feels like a severe sunburn. My new husband is very supportive of me and recognizes when I need to rest or take a nap. It's so wonderful to have someone who is supportive. I have two wonderful daughters and a beautiful grandaughter who are also wonderful supports. I cannot use magnetic therapy because I have a pacemaker. I saw this wonderful contraption at the fair and sat down with the group to read the literature, and then it said if you have a pacemaker you can't use it. Rats! I take Trazadone and Flexaril at night and I take Paxil in the morning. It seems to help. What about the supplements like CQ10 and Chromium? I have been taking them but have not noticed any changes. I would appreciate any feedback you can give. Thanks, Sparkly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Hi Sparkly, I know that strange foot sensation and I've experienced burning neck as well. Glad YOU found US! I've taken amitriptyline,trazadone,lexapro and now celexa,strattera,Klonopin,Ambien,Robaxin,tramadal and a few others. I also take CoQ10 w/my many other suppliments. I suffered in silence for years before I sought medical help only to find REAL help isn't easy to come by. I hope You find the love,encouragement and support I have these past few months since joining. May GOD Bl;ess YOU ! ! ! . . . ........................................ sparklyone2008 wrote: Hello all! I love support groups and am glad to have found you. I was diagnosed about 5 years ago but believe it started in high school. Does anyone else have bizarre symptoms like feeling it on the bottom of your foot when you scratch the top of your foot? or it feels like long hairs are being dragged across your skin? Right now I am having burning sensations below my neck just above my scapulae that feels like a severe sunburn. My new husband is very supportive of me and recognizes when I need to rest or take a nap. It's so wonderful to have someone who is supportive. I have two wonderful daughters and a beautiful grandaughter who are also wonderful supports. I cannot use magnetic therapy because I have a pacemaker. I saw this wonderful contraption at the fair and sat down with the group to read the literature, and then it said if you have a pacemaker you can't use it. Rats! I take Trazadone and Flexaril at night and I take Paxil in the morning. It seems to help. What about the supplements like CQ10 and Chromium? I have been taking them but have not noticed any changes. I would appreciate any feedback you can give. Thanks, Sparkly 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2007 Report Share Posted October 10, 2007 Hi Sparkly, Welcome to the group. This is a great place to find support and answers to questions. I don't know a lot about vitamins and supplements but a lot of people here do. I can tell you that I do have a lengthy experience with magnetic therapy. I have used it all over the years from magnetic shoe liners to bracelets and maytress covers. I never found any that helped me, even the expensive ones that claim to be better. The mattress liner had evenly spaced flat round magnets in it, after my fibro became worse, it was like the princess (not that I think I am one) and the pea. I started to feel like I had evenly spaced bruises all over until I figured it out. LOL!!! I know someone will be able to help you with your other question. Love, Annie > > Hello all! I love support groups and am glad to have found you. I was > diagnosed about 5 years ago but believe it started in high school. > Does anyone else have bizarre symptoms like feeling it on the bottom of > your foot when you scratch the top of your foot? or it feels like long > hairs are being dragged across your skin? Right now I am having > burning sensations below my neck just above my scapulae that feels like > a severe sunburn. My new husband is very supportive of me and > recognizes when I need to rest or take a nap. It's so wonderful to > have someone who is supportive. I have two wonderful daughters and a > beautiful grandaughter who are also wonderful supports. I cannot use > magnetic therapy because I have a pacemaker. I saw this wonderful > contraption at the fair and sat down with the group to read the > literature, and then it said if you have a pacemaker you can't use it. > Rats! I take Trazadone and Flexaril at night and I take Paxil in the > morning. It seems to help. What about the supplements like CQ10 and > Chromium? I have been taking them but have not noticed any changes. I > would appreciate any feedback you can give. Thanks, Sparkly > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 LOL (mostly) - I have been making that Princess and the Pea joke since I was probably 8 or 9, and it has worsened over the years. Then there is the fact that you find something comfortable to sleep on (finally), then within a few months it feels as if you are lying on a bed of rocks. To: Fibromyalgia_Support_Group@...: agott@...: Thu, 11 Oct 2007 03:26:16 +0000Subject: Re: fibro Hi Sparkly,Welcome to the group. This is a great place to find support and answers to questions. I don't know a lot about vitamins and supplements but a lot of people here do. I can tell you that I do have a lengthy experience with magnetic therapy. I have used it all over the years from magnetic shoe liners to bracelets and maytress covers. I never found any that helped me, even the expensive ones that claim to be better. The mattress liner had evenly spaced flat round magnets in it, after my fibro became worse, it was like the princess (not that I think I am one) and the pea. I started to feel like I had evenly spaced bruises all over until I figured it out. LOL!!!I know someone will be able to help you with your other question.Love,Annie>> Hello all! I love support groups and am glad to have found you. I was > diagnosed about 5 years ago but believe it started in high school. > Does anyone else have bizarre symptoms like feeling it on the bottom of > your foot when you scratch the top of your foot? or it feels like long > hairs are being dragged across your skin? Right now I am having > burning sensations below my neck just above my scapulae that feels like > a severe sunburn. My new husband is very supportive of me and > recognizes when I need to rest or take a nap. It's so wonderful to > have someone who is supportive. I have two wonderful daughters and a > beautiful grandaughter who are also wonderful supports. I cannot use > magnetic therapy because I have a pacemaker. I saw this wonderful > contraption at the fair and sat down with the group to read the > literature, and then it said if you have a pacemaker you can't use it. > Rats! I take Trazadone and Flexaril at night and I take Paxil in the > morning. It seems to help. What about the supplements like CQ10 and > Chromium? I have been taking them but have not noticed any changes. I > would appreciate any feedback you can give. Thanks, Sparkly> _________________________________________________________________ Peek-a-boo FREE Tricks & Treats for You! http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 , I know what you mean about a bed of rocks. We had to stay in a motel for several months because we lost everything in a fire (mostly from smoke damage) and a restoration company was working on our house. This was before I was diagnosed with fibro. The first couple of nights I slept really good because I was so exausted. Then I would get up in the morning all stiff and unable to walk well. I complained to my husband that it was like sleeping on a cement slab. He said that he didn't feel that way but there was nothing we could do anyway. I went to the mall a bought a very thick feather bed. After I put it on the bed I was finally comfortable. Until my fibro got worse and then was finally diagnosed, I beleived the hotel had extremely uncomfortable beds. I told a lot of people about it. After my diagnosis and my discovery about the magnetic mattress liner, I finally realized that it was me, not the bed. (LOL) Love, Annie >> Hello all! I love support groups and am glad to have found you. I was > diagnosed about 5 years ago but believe it started in high school. > Does anyone else have bizarre symptoms like feeling it on the bottom of > your foot when you scratch the top of your foot? or it feels like long > hairs are being dragged across your skin? Right now I am having > burning sensations below my neck just above my scapulae that feels like > a severe sunburn. My new husband is very supportive of me and > recognizes when I need to rest or take a nap. It's so wonderful to > have someone who is supportive. I have two wonderful daughters and a > beautiful grandaughter who are also wonderful supports. I cannot use > magnetic therapy because I have a pacemaker. I saw this wonderful > contraption at the fair and sat down with the group to read the > literature, and then it said if you have a pacemaker you can't use it. > Rats! I take Trazadone and Flexaril at night and I take Paxil in the > morning. It seems to help. What about the supplements like CQ10 and > Chromium? I have been taking them but have not noticed any changes. I > would appreciate any feedback you can give. Thanks, Sparkly> > > > > > > > _________________________________________________________________ > Peek-a-boo FREE Tricks & Treats for You! > http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 *nod* I put a down comforter over my mattress when I put the sheets on, to soften it up a little. Was told once that Fibro sufferers are better off with a water bed, because it moves with us. While I had one, I did have less of the " slept on a rock mattress " pain/stiffness. But mine got a hole and my ex decided to throw it out instead of letting me just fix it. To: Fibromyalgia_Support_Group@...: agott@...: Sat, 13 Oct 2007 23:48:48 +0000Subject: Re: fibro ,I know what you mean about a bed of rocks. We had to stay in a motel for several months because we lost everything in a fire (mostly from smoke damage) and a restoration company was working on our house.This was before I was diagnosed with fibro. The first couple of nights I slept really good because I was so exausted. Then I would get up in the morning all stiff and unable to walk well. I complained to my husband that it was like sleeping on a cement slab. He said that he didn't feel that way but there was nothing we could do anyway. I went to the mall a bought a very thick feather bed. After I put it on the bed I was finally comfortable. Until my fibro got worse and then was finally diagnosed, I beleived the hotel had extremely uncomfortable beds. I told a lot of people about it. After my diagnosis and my discovery about the magnetic mattress liner, I finally realized that it was me, not the bed. (LOL)Love,Annie>> Hello all! I love support groups and am glad to have found you. I was > diagnosed about 5 years ago but believe it started in high school. > Does anyone else have bizarre symptoms like feeling it on the bottom of > your foot when you scratch the top of your foot? or it feels like long > hairs are being dragged across your skin? Right now I am having > burning sensations below my neck just above my scapulae that feels like > a severe sunburn. My new husband is very supportive of me and > recognizes when I need to rest or take a nap. It's so wonderful to > have someone who is supportive. I have two wonderful daughters and a > beautiful grandaughter who are also wonderful supports. I cannot use > magnetic therapy because I have a pacemaker. I saw this wonderful > contraption at the fair and sat down with the group to read the > literature, and then it said if you have a pacemaker you can't use it. > Rats! I take Trazadone and Flexaril at night and I take Paxil in the > morning. It seems to help. What about the supplements like CQ10 and > Chromium? I have been taking them but have not noticed any changes. I > would appreciate any feedback you can give. Thanks, Sparkly> > > > > > > > __________________________________________________________> Peek-a-boo FREE Tricks & Treats for You!> http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Hi Ladies, I use all my kids old comfortrs from when they were little. you know, the disney ones etc. Some have been much loved but work great to layer and lay on. Now my husband does it on his bed and he finds it more comfortable especially when he had to spend so much time in bed after his foot surgery. They are washable which is great when I have the fatigue and my bladder muscles also get fatigued and sweat from hot flashes and the summer heat as I try to stay away from air conditioning because it sets off my asmatha and and then fall into pneumonia. Judy Mer ---- MacKenzie wrote: > *nod* I put a down comforter over my mattress when I put the sheets on, to soften it up a little. Was told once that Fibro sufferers are better off with a water bed, because it moves with us. While I had one, I did have less of the " slept on a rock mattress " pain/stiffness. But mine got a hole and my ex decided to throw it out instead of letting me just fix it. > > > To: Fibromyalgia_Support_Group@...: agott@...: Sat, 13 Oct 2007 23:48:48 +0000Subject: Re: fibro > > > > > ,I know what you mean about a bed of rocks. We had to stay in a motel for several months because we lost everything in a fire (mostly from smoke damage) and a restoration company was working on our house.This was before I was diagnosed with fibro. The first couple of nights I slept really good because I was so exausted. Then I would get up in the morning all stiff and unable to walk well. I complained to my husband that it was like sleeping on a cement slab. He said that he didn't feel that way but there was nothing we could do anyway. I went to the mall a bought a very thick feather bed. After I put it on the bed I was finally comfortable. Until my fibro got worse and then was finally diagnosed, I beleived the hotel had extremely uncomfortable beds. I told a lot of people about it. After my diagnosis and my discovery about the magnetic mattress liner, I finally realized that it was me, not the bed. (LOL)Love,Annie>> Hello all! I love support groups and am glad to have found you. I was > diagnosed about 5 years ago but believe it started in high school. > Does anyone else have bizarre symptoms like feeling it on the bottom of > your foot when you scratch the top of your foot? or it feels like long > hairs are being dragged across your skin? Right now I am having > burning sensations below my neck just above my scapulae that feels like > a severe sunburn. My new husband is very supportive of me and > recognizes when I need to rest or take a nap. It's so wonderful to > have someone who is supportive. I have two wonderful daughters and a > beautiful grandaughter who are also wonderful supports. I cannot use > magnetic therapy because I have a pacemaker. I saw this wonderful > contraption at the fair and sat down with the group to read the > literature, and then it said if you have a pacemaker you can't use it. > Rats! I take Trazadone and Flexaril at night and I take Paxil in the > morning. It seems to help. What about the supplements like CQ10 and > Chromium? I have been taking them but have not noticed any changes. I > would appreciate any feedback you can give. Thanks, Sparkly> > > > > > > > __________________________________________________________> Peek-a-boo FREE Tricks & Treats for You!> http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Guys, I call my blankets,comforters, sleepbags etc.... my nest I have to sleep on. I am worried also because we are leavin in a couple of weeks and heading South and know motel beds can really suck. So not sure what to do? Lori H loveit1@... wrote: Hi Ladies, I use all my kids old comfortrs from when they were little. you know, the disney ones etc. Some have been much loved but work great to layer and lay on. Now my husband does it on his bed and he finds it more comfortable especially when he had to spend so much time in bed after his foot surgery. They are washable which is great when I have the fatigue and my bladder muscles also get fatigued and sweat from hot flashes and the summer heat as I try to stay away from air conditioning because it sets off my asmatha and and then fall into pneumonia. Judy Mer ---- MacKenzie wrote: > *nod* I put a down comforter over my mattress when I put the sheets on, to soften it up a little. Was told once that Fibro sufferers are better off with a water bed, because it moves with us. While I had one, I did have less of the " slept on a rock mattress " pain/stiffness. But mine got a hole and my ex decided to throw it out instead of letting me just fix it. > > > To: Fibromyalgia_Support_Group@...: agott@...: Sat, 13 Oct 2007 23:48:48 +0000Subject: Re: fibro > > > > > ,I know what you mean about a bed of rocks. We had to stay in a motel for several months because we lost everything in a fire (mostly from smoke damage) and a restoration company was working on our house.This was before I was diagnosed with fibro. The first couple of nights I slept really good because I was so exausted. Then I would get up in the morning all stiff and unable to walk well. I complained to my husband that it was like sleeping on a cement slab. He said that he didn't feel that way but there was nothing we could do anyway. I went to the mall a bought a very thick feather bed. After I put it on the bed I was finally comfortable. Until my fibro got worse and then was finally diagnosed, I beleived the hotel had extremely uncomfortable beds. I told a lot of people about it. After my diagnosis and my discovery about the magnetic mattress liner, I finally realized that it was me, not the bed. (LOL)Love,Annie>> Hello all! I love support groups and am glad to have found you. I was > diagnosed about 5 years ago but believe it started in high school. > Does anyone else have bizarre symptoms like feeling it on the bottom of > your foot when you scratch the top of your foot? or it feels like long > hairs are being dragged across your skin? Right now I am having > burning sensations below my neck just above my scapulae that feels like > a severe sunburn. My new husband is very supportive of me and > recognizes when I need to rest or take a nap. It's so wonderful to > have someone who is supportive. I have two wonderful daughters and a > beautiful grandaughter who are also wonderful supports. I cannot use > magnetic therapy because I have a pacemaker. I saw this wonderful > contraption at the fair and sat down with the group to read the > literature, and then it said if you have a pacemaker you can't use it. > Rats! I take Trazadone and Flexaril at night and I take Paxil in the > morning. It seems to help. What about the supplements like CQ10 and > Chromium? I have been taking them but have not noticed any changes. I > would appreciate any feedback you can give. Thanks, Sparkly> > > > > > > > __________________________________________________________> Peek-a-boo FREE Tricks & Treats for You!> http://www.reallivemoms.com?ocid=TXT_TAGHM & loc=us> > Quote Link to comment Share on other sites More sharing options...
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