Guest guest Posted January 8, 2009 Report Share Posted January 8, 2009 First, there isn't a study that I know about for LDN. I am asking my MS doctor about getting some because of converstations in this group. Because (1) it seems to help some people and (2) it isn't expensive. FTY720 is a medicine that has been studied for a long time. I think the trial I am on the waiting list to start is the 3 phase of the trials. I'm not sure I am going to do it (I had just that day received my diagnosis and needed time to consider my alternatives). It is more attractive to me because it isn't a shot, and if on a study the meds are provided, as are tests, etc. It is blind study, so I am not even sure that I'd get " real " medication and not the placebo. I don't want to do interferon because I have known several people with Hepititis C that did an interferon treatment and it made them very sick, destroyed their immune system so that they were always " flu like " and caught every cold and flu that came along for over a year. (I know, it isn't the 'same' interferon), it IS interferon. AND, it is expensive. AND, when I was diagnosed, the MS doc said it isn't that effective for PPMS any way. ............... said " Last night I fell into the wall while oulling up my pj bottoms. I have another nasty bruise " . , I got in the habit of sitting or leaning while dressing. I am at the stage now that I HAVE to have some support or I would fall over. Even when I go to the bathroom I put the back of my right calf against the toilet to pull down my pants and my forehead against the wall so I can use both hands to pull them back up when I'm done. We have a stack washer/dryer. I have to rest my elbow against the dryer so I can use both hands to fold a piece of laundry. ............... I asked my eye doctors office the name of the computer aided tests they use. It is Optomap Retinal Exam. There is a picture on this page I googled to show you: http://www.vsa2020.com/Services.asp what the computer image looks like. The office girl said it was new about 5 years ago and was quite expensive for them to install, so she didn't think that many doctors use it, yet. Better yet, www.optomap.com has a couple videos. Quote Link to comment Share on other sites More sharing options...
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