-My name is Fibromyalgia!

[Guest guest]

Hi I am new to Fibro and this group, I couldn't for the life of me even begin to explain to anyone what was happening to me. I started noticing the pains and exhaustion of the disease a little over a year ago. I use to say to my husband, "How Did I ever Work A Job." I get up in the morning exhasted and have no motivation to do much of anything. I do what I have to do if I can walk to do it. some days it is hard to even get up from the bed and walk. The Dr put me on Celebrex and after I had 2 TIA's (mini Strokes) she took me off it. The Celebrex was a wonder drug for me. Now all I have left is Percocet and I do not want to have to take it forever. She also gave me a new anti-depressant that helps with Fibro. I start it on thurs, I sure hope it is the answer to at least some of the pain. Thank you so much for the My Name Is Fibromyalgia. Page, so helpful to put it into words. I love the support I have seen so far. Hugs tte BladesKissofDeath wrote: i got this email this am. I fight it everyday I wont given in, I wont loose... I hope by sending this that just one person will walk away with a better understanding of this illness. HI, MY NAME IS FIBROMYALGIA I'm an Invisible Chronic Illness. I am now velcroed to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain or, if I'm in a good mood, I can just cause you to ached all over. Remember when you and Energy ran around together and had fun? I took Energy from you, and gave you Exhaustion. Try to have fun now! I also took Good Sleep

from you and, in its place, gave you Brain Fog( i love that you cant remeber anything). I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh, yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away, too. You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma. Well, anyway, I'm here to stay!I hear you're going to see a doctor who can rid of me. I'm rolling on the floor, laughing. Just try. You will have to go to many, many doctors until you find one who can help you effectively. You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENS unit, get massaged, told if you just sleep and exercise properly I will go

away, told to think positively, poked, prodded and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitation life is every day.Your family, friends and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease. Some of them will say things like Oh, you're just having a bad day. Well, remember, you can't do the things you use to do 20 YEARS ago, not hearing that you said 20 DAYS ago. Some will start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a Normal person, and can't remember what you were going to say next! I will cause you to lose your friends and family too. Only the true friends will stay with you.In closing, (I was hoping that I kept this part a secret), I guess you've

already found out: the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia. Jenifer Ames

Ring'em or ping'em. Make PC-to-phone calls as low as 1¢/min with Yahoo! Messenger with Voice.