Hi Y'all

[Guest guest]

Hi everybody,

I'm - new to the group. I'm 43 and was diagnosed with Fibro last Fall, though

from what I've learned since then I think I had Chronic Fatigue for two years before that

following a viral infection that completely wiped me out and I didn't come out of until

around the same time as I was diagnosed with Fibro. I was referred to a rheumy who ran

ALL the bloodwork to rule anything else out - she gave me the "good" news when I came

back for the results. I say good because I thought I was going to die! Now that I know I

won't die from it, there are some days I wish I would. Just when I have a few good days,

I get multiple reminders that I am a sick girl and appear to be destined to hurt. My body's

newest trick is pins and needles in my hands, and sharp pains in my right foot (the foot

I use to drive for 4 to 5 hours every day on my job). The pains have traveled up my ankle

and then jumped up to my right thigh. Hey, it's been a few months since I had a new

"thing" so I suppose it was time.

I take trazodone 100mg at bedtime to help me sleep, cymbalta in the morning to help

with pains, darvocetN for pain. Just found out that my cholesterol is high but won't find

out for a few weeks what We are going to do about it. Good grief - I hope chocolate

doesn't turn out to be on my bad list 'cause they will just have to shoot me if I can't have it!!

When I was first diagnosed, my rheumy prescribed me relafen - an anti-inflammatory -

which did not agree with me, and I didn't understand why she prescribed it for me in the first

place after I read that fibro is not an inflammation-caused pain, so I didn't take anymore

after the one and only pill that I took. I am one of those peoples who hate drugs anyway,

and would much rather go the natural route and address the cause rather than the symptoms.

Well after 8 months of me not making a dent in the pain, I happened to have an appointment

with my Mitral Valve Prolapse doctor (anybody else got that?). She had left her old multi-

doctor practice the year before and started her own, and lo and behold, she not only now treats Fibromyalgia, she has it herself! She also only makes ONE APPOINTMENT AT A TIME (!)

and your appointment is scheduled for ONE HOUR. You are taken back at the time your

appointment was made for. Can you guys tell what my pet peeves are?? Ha ha.

Anyhoo, I felt better within two days of taking meds and experienced much less pain.

Hallelujah, thank you God! However, at my next appointment she was not satisfied that I

was getting sufficient sleep and switched my trazadone for flexeril. Bad move for me. Had

to fight myself to stay awake driving to work in the mornings, and even though I was getting

a little more sleep than I did on 50 mg of trazadone, my pain level has increased dramatically

and the darvocetN does little for it. I put myself back on trazadone about a week and a

half ago and doubled my dose to 100 mg after looking up dosages for peoples with fibro.

I am still waiting for the miracle response I had the first time, besides being worried that my wonderful doctor is going to be mad at me for doctoring myself. If anyone in the Birmingham,

AL area is looking for a good doctor look up Sawyer at Montclair Hospital, fourth floor.

What's good for pain that I can take during the day and still work? Anybody else's soles of

the feet feel bruised when you get up from sitting or lying down? Mine hurt so bad I hobble

around for a few minutes, then it mostly goes away. The rest of the pains don't go away,

especially my mid/upper back area. I would say that's my most painful area on a consistent

basis. Sitting at this computer certainly does not help!

I have no childrens (two grown step-sons and three step-granchildrens), so my own personal

babies are my dogs. Currently I have ten, but that is going to change when I start giving away

some very large puppies. They are half German Shepherd, one quarter Siberian Husky, and one quarter must remain nameless for my own protection! They are beautiful, sweet, gentle, extra

large pups. Know anyone interested I can e-mail photos. We had one woman drive all the way

from Michigan (to Alabama!) for her puppy and she is absolutely ecstatic over her. She was

on the road for a total of three and a half days just to get her. By the way, we have a substantial

amount of property under 6 foot chain-link fence so it's not like I'm one of those Collectors

who has 50 dogs in the house living in three feet of dog poop.

I also have one very spoiled Chihuahua (Marilynne). She is my Little Baby Girl, and man she

is so not impressed with our newest addition, Molly. Molly is a tiny 9 week old Border Collie

who was the runt of the litter - she only weighs 2 lbs! My husband is worse than I am - he was

supposed to tell me NO when I asked him what he thought about her, not "Let's take her home!" Henry is the old man, an Australian Shepherd/Brittany mix who is The Perfect Dog. Never

chews on anything that doesn't belong to him, only had One accident in the house at 6 weeks

old, perfect manners, loves everyone (even loves to go to the vet because he gets to see people). is the black German Shepherd who is the daddy of the pups - last weigh in he was 120 pounds at less than two years. There's more, but your're all bored by now - sorry.

Thanks for the ears, er, eyes!

Thanks for the group,

(aka: marilynnesmommy)

to my - Newbie here: Scribbler's Heart

Hi! My name is Teri and my primary diagnosis isEhlers Danlos Syndrome with accompanying Fibromyalgia. My passions are my family, writing, researching. My approach to my EDS and Fibro is to do my best to stay positive, keep my lifestyle in a condition to be able to survive and enjoy life in spite of or even with the help of my diagnosis and to do my best each day, understanding that tomorrow my best will be even better. Having said that, that's the mind set but not always the reality! lol. I have two children still at home. My son is 19 and has EDS and fibro and my daughter is 21, the mother of my 9 month old grandson, and also has EDS and Myofacial Pain Syndrome. My grandson is being watched by our geneticist to make sure if he's inherited the EDS, he doesn't end up with the permanent damage the kids and I have.

My husband had a fall in March and has not been well since. He broke two ribs, exacerbated an intestinal ileus and tore his rotator cuff. He just had surgery on the rotator cuff. At 50 this might not have been so scary but he'll be 70 this summer and is having a bit of a tough time coming out on top of it all.

All in all we have our challenges.

I have a li'l blurb about me on my website for a fuller history. Who is Scribbler? I'm sure looking forward to getting to know you all.

Gentle hugs,Teri