Jump to content
RemedySpot.com

new group

Rate this topic


Guest guest

Recommended Posts

Guest guest

New Group

Thanks ,

I'm sure a lot of the others will join. While I'm on I will ask if you (we) have any specific guidelines. I really get turned off by bickering and opinionated people putting others down as I have seen in other groups. I like knowing where people are from and what they do. Are you able to prevent messages from being posted? Luckily the previous list owner couldn't or didn't.

Best wishes to all in this new group.

Dennis from NH

dhuber@...

Link to comment
Share on other sites

Guest guest

Hi Dennis,

I don't think we will have that problem here. We all want to just be

ourselves and I don't see that there will be that type of a problem....

We had a super group going, but sometimes people let it go to their

head..... Enough about that....

We are a whole new group, and I want to thank you so

much....... Looking forward to a lot of support and sharing!!!!!!

Love, Light & Faith,

Angel Hugs,

Diane

Angels protect & guide us in our journey thru life!!

Link to comment
Share on other sites

Guest guest

Hi Dennis

Yes I do have the ability to prevent messages from being posted. I hope that it won't be necessary though. I hope that it will be the same kind of group as Hepatitis-Family was. Only I don't want to force anything on anybody.

I have to go right now one of the neighbors has come over to check her email.

New Group

Thanks ,

I'm sure a lot of the others will join. While I'm on I will ask if you (we) have any specific guidelines. I really get turned off by bickering and opinionated people putting others down as I have seen in other groups. I like knowing where people are from and what they do. Are you able to prevent messages from being posted? Luckily the previous list owner couldn't or didn't.

Best wishes to all in this new group.

Dennis from NH

dhuber@...

Link to comment
Share on other sites

Guest guest

Hi ,

I can understand how you feel.... We all need somewhere to go to to

vent and I just know we will all get the understanding and support we

need here.... We will make this new group survive!!!!! We are the same

people at a different address!!!! ;-)

Love, Light & Faith,

Angel Hugs,

Diane

Angels protect & guide us in our journey thru life!!

Link to comment
Share on other sites

Guest guest

Hi

Welcome to the group.

You can discuss just about anything you want here. Your post isn't really off topic. Watching Xena was in a way therapeutic since it helped take your mind off of your worries, even if it was only an hour.

I started this group because the last one was starting to go in a direction that is going to be too restrictive for me. It does not matter to me what method of treatment that one chooses. We are all in this together and ought to be able to help one another in what ever way that we deem appropriate.

[ ] new group

Thank you, , for inviting me to join this group. I think I subscribed but I'm not sure. I hope that all are welcome here. The main thing on my mind right now is rather off topic but I will be bold and explain this...I just watched the final episode of Xena: Warrior Princess and I'm sad. This is related to hep c, in my mind anyway, by the following: I am an Army Reservist and was diagnosed with hcv in 1999 while away from home for training. I was supposed to be working at Eisenhower Army Hospital for five weeks for proficiency training as a nurse but after the diagnosis I stayed their at Ft. Gordon, away from home and living in the barracks for three months. I did much hcv research in the medical library and learned enough to be almost scared to death. This is where Xena comes in....after working all day in the emergency room and injecting the interferon there wasn't much left to do but worry...On weekdays I would walk back over to the hospital and find an empty waiting room and watch TV. For one whole hour I was totally absorbed in the show and completely forgot about my plight. I had never been much of a TV watcher but this series was my salvation for a few months. Now the series has ended, Xena is dead (for the greater good) and I still have this disease....oh well, life goes on....thank you for letting me vent...I'll try to not be off topic too much...I do feel a debt of gratitude to the production staff, actors, etc...they helped me to maintain some semblance of sanity...now I have this group....

Link to comment
Share on other sites

  • 1 month later...
  • 2 months later...

Great idea Crystal!

I hope a group of you can get together and offer some wonderful tips and

ideas on how to get through the grind.

=)

Robynn

[ ] New Group

> I feel a little silly for creating yet another group on here, but I

> really want a group that focuses on having lyme while being a

> student, especially a college student-so I founded one last night.

> Anyone who wants to join is welcome. The group can be found at

> lymestudents

>

> I'm not looking to split away from lyme-aid, just to offer a more

> focused option if anyone is interested.

>

> Hope to see some of you there. ;-)

> -Crystal

Link to comment
Share on other sites

Cool!

I will certainly remain in Lyme Aid - I have made some wonderful friends

here. :)

I am psyched about having a group for students, too! Thanks, Crystal!

See you there.

Marie

trying to write her dissertation one word at a time

(I think I wrote today's word already - but with Lyme fog, who can

be sure? LOL!)

Link to comment
Share on other sites

  • 6 months later...
Guest guest

Good for you for taking this initiative. I wish you luck and hope you get a good user group going!

-dz-

stuffenough <stuffenough@...> wrote: I am Trishdish13's daughter. I am 18 years old I started a group for teens and kids. its a place for teens and kids to share their feelings regarding Hep C. If they, a loved one or friend has Hep C this is a safe place to talk about it. It's also a place to find friends who understand and know how you're feeling I hope you check it out, and if you have teens or kids let them know they are welcomethe address isStephsHepCforteensandkidsThanks Stuffenough

Link to comment
Share on other sites

Guest guest

I think that is a great idea. A lot of people don't realize that this

disease affects the whole family in one way or another.

[ ] new group

> I am Trishdish13's daughter. I am 18 years old I started a group for

> teens and kids. its a place for teens and kids to share their

> feelings regarding Hep C. If they, a loved one or friend has Hep C

> this is a safe place to talk about it. It's also a place to find

> friends who understand and know how you're feeling

> I hope you check it out, and if you have teens or kids let them know

> they are welcome

> the address is

> StephsHepCforteensandkids

>

> Thanks

> Stuffenough

>

>

>

>

Link to comment
Share on other sites

Guest guest

,

I know that when I found out my mother had Hepatitis C I was confused and needed someone to talk to. I was 13 at the time. I am 18 now and I still am trying to understand. but I am just trying to have a sort of support for kids and teens for some one who need to talk. but thanks again Stuffenough

Link to comment
Share on other sites

Guest guest

I have forwarded this info to my 14 year old

daughter, I hope she will join. I think it's a really

great idea.

Sharon

--- stuffenough <stuffenough@...> wrote:

> I am Trishdish13's daughter. I am 18 years old I

> started a group for

> teens and kids. its a place for teens and kids to

> share their

> feelings regarding Hep C. If they, a loved one or

> friend has Hep C

> this is a safe place to talk about it. It's also a

> place to find

> friends who understand and know how you're feeling

> I hope you check it out, and if you have teens or

> kids let them know

> they are welcome

> the address is

>

StephsHepCforteensandkids

>

> Thanks

> Stuffenough

>

>

__________________________________________________

Link to comment
Share on other sites

Guest guest

Stuffenough I am grateful for young adults like you..My kids don't fully understand my disease either..I have tried to explain it to them but they don't quite understand..They are 12...13...14..I am giving them your e-mail addy so they can go to yoru site..Thanks for helping other children of parents with Hep C....

Link to comment
Share on other sites

Guest guest

Jannewilms42@... wrote: Stuffenough I am grateful for young adults like you..My kids don't fully understand my disease either..I have tried to explain it to them but they don't quite understand..They are 12...13...14..I am giving them your e-mail addy so they can go to yoru site..Thanks for helping other children of parents with Hep C....

Link to comment
Share on other sites

Guest guest

Jannewilms42 I hope your kids do join. I was only 13 when she was diagnose with hep. I am just trying to help kids that need help. I know that I didnt understand when adults tried to explain it to me. I know that it helps to talk to some one who knows how to explain it better! I hope I can help.

thank you for helping me out,

Stuffenough ( )

Link to comment
Share on other sites

  • 4 weeks later...
Guest guest

Hi

I tried to find that new group for people with O.I. who are single,

that you just started, and i cannot find it. Maybe you could try to

post that hyperlink again.

However, there are three other groups out there for people with O.I.

that I didnt even know about. Shame on you guys for not sharing and

telling anybody. (just kidding) :P

sincerely,

little lady

Link to comment
Share on other sites

Guest guest

Im sorry to bother you , but for some reason i am still not

able to find it. I went to " Groups Home " thats at the top of this

site, and then typed it " oisingles " and nothing is coming up. Am i

the only one having problems?

sincerely,

little lady

Link to comment
Share on other sites

Guest guest

I think this may help...

oisingles/

a

> Im sorry to bother you , but for some reason i am still not

> able to find it. I went to " Groups Home " thats at the top of this

> site, and then typed it " oisingles " and nothing is coming up. Am

i

> the only one having problems?

>

> sincerely,

>

> little lady

Link to comment
Share on other sites

  • 1 year later...
Guest guest

Thanks! I have been studying it for years.

http://foodforyourbloodn.goemerchant7.com

<http://foodforyourbloodn.goemerchant7.com/>

New group

/group/bloodtypeandpersonality

This groups is about the alleged link between personality and blood

type. In the United States, the Zodiac is the most popular trend, but

in Japan, this is the trend, and is certainly more scientifically

accurate.

Link to comment
Share on other sites

  • 4 weeks later...

Hi

I am a mother who has a son that was on the drug Strattera. It didn't help my

son at all, It made him have two more grand mole seizures. fyi.

Kerrie Medeiros

spider <christoph1998@...> wrote:

Hello all,

This is a Open letter to all that I know. I would lke to invite

everybody to my new group for peope that are takning Strattera. Other

people might have taken this drug and had side efficts and I would like

to talk and chat with them and see if I can learn about how this drug

has effeceted them. To see if they have taken any other A.D.D drugs. I

will get new members soon. I think that this group will be great soon.

Question are any one that you know know taking Strattera.

christoph1998/

Link to comment
Share on other sites

WHATEVER YOU DO DON'T USE KEPPRA, I NEVER HAD SO MANY SEIZURES WITH ANY MEDICINE

I HAD 63 SEIZURES IN LESS THAN 3 MONTHS.

Kerrie Medeiros <kerrie_medeiros@...> wrote:Hi

I am a mother who has a son that was on the drug Strattera. It didn't help my

son at all, It made him have two more grand mole seizures. fyi.

Kerrie Medeiros

spider <christoph1998@...> wrote:

Hello all,

This is a Open letter to all that I know. I would lke to invite

everybody to my new group for peope that are takning Strattera. Other

people might have taken this drug and had side efficts and I would like

to talk and chat with them and see if I can learn about how this drug

has effeceted them. To see if they have taken any other A.D.D drugs. I

will get new members soon. I think that this group will be great soon.

Question are any one that you know know taking Strattera.

christoph1998/

Link to comment
Share on other sites

  • 3 months later...

> AlwaysAutistic/

>

> This is a group for parents, professionals, and anyone interested to

> discuss their experience, treatments, and results with children who

> did not regress into autism.

>

> We appear to be in the minority and there is not much out there by

> way of information. If you know an autistic child who does not have

> regressive autism, and you want to discuss treatment and potential

> causes, you've come to the right place.

My son did not regress, he was " born this way " . He is now recovered.

This list sounds like a good idea, altho I don't like the title " always

autistic " because it sounds defeatist, like " my child will always be

autistic " . Instead of being a reference to the past [did not regress], it

sounds like a reference to the future [will always be autistic].

Just my 2 cents anyway.

Good luck with your new list.

Dana

Link to comment
Share on other sites

  • 1 year later...
Guest guest

----- Original Message -----

From: " rob radke " <robchilla1@...>

> I am starting a new group for 30 to 35 year old men who suffer from RA ,are

approximately 5'10 " and about 215 lbs....with red beards and are slightly

receding....lol..Im kidding .......

:-) Funny!

Nina

Link to comment
Share on other sites

  • 9 months later...

le,

I love your name!! I think your group is a great idea. I also checked

out your profile, and should tell you that I'm very familiar with

Finlandia~! A great school!

Johanna

>

> I started a new support group for college aged heppers called Campus

> Heppers. So if your in college age around 17-25 give or take a few

> years. Check it out. We will discuss treatment (something I don't

> know), telling friends roomates, and things that teens face living

> with hep.

> CampusHeppers/?yguid=167986144

> le

>

Link to comment
Share on other sites

  • 2 months later...
Guest guest

Go for it ...if it's necessary to start a new group in order to

eliminate the " spam, " I think it's great. Can we be sure it would

though?

Sue, hate to disappoint you, but I don't go to Alanon...;o)

tori

Link to comment
Share on other sites

Join the conversation

You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

Loading...
×
×
  • Create New...