Re: My daughter - I need help!!!

[Guest guest]

My answer to this is that it can be bad enough to prevent you working. The lack

of sleep is a killer for a start.

Most people can hold down a job for a while but some of us can't. I managed to

work for many years and then became too ill to do anything at all.

You can probably judge by what your daughter does with her daytime hours. If

she isn't doing any hobby or out enjoying herself all the time then I should

think it's a fair bet that she doesn't feel up to work either.

I hope your daughter can get sympathetic medical help. Painkillers may help her

manage.

Penny

On 07/07/2006 19:57:22, reginabean1952 (reginabean1952@...) wrote:

> Hello everyone,

>

> I have a 21 year old daughter who was diagnosed with Fibromyalgia

> about three weeks ago. She is always hurting, and is also depressed.

> Her friends think everything is in her head, and she is making this

> all up, the aches the pains and the headaches so bad she cannot

> sleep at nite, therefore she

> can't get up early or anything because

> lack of a good nite sleep. She has no insurance and is currently

> not working, but has looked for jobs, but no takers as yet.

>

> But she seriously thinks she cannot work full time she says because

> of how bad she feels on a regular basis. The rheumatoligist

> prescribed flexorall and myobic for her, but she says it doesn't

>

> work. I cannot afford to pay for the Rheumatolgist she is supposed

> to see on a monthly basis. We are in financial straits ourselves.

>

> She was turned down before for medical assistance until she could

> find a job, but was turned down awhile back.

>

> Does anyone have any resources for her??? And if you do have

> Fibromyalgia, is it that bad that you cannot work funcionally well

> on jobs???

>

>

> I would appreciate any help you can give me.

>

[Guest guest]

I am so sorry about your daughter, She is so young. I have a daughter who is 34,

married and has 2 kids. She was just diagnoised with fibro a few months ago. She

has applied for medicare (medicade) and has been able to receive it. She was

living in FL, then move to PA, but only for 8 months and now has moved back to

FL, but she was able to get it at both places. I know she wasn't able to go to

the best of dr's and didn't have much of a choice, but she was able to be

covered. I don't know if having kids helps to get this or not, but her husband

had been working and she was still able to get the medical help that she needed.

As far as being able to work, that is hard especially when you don't sleep well

at night. I am suppose to be taking on a new job in about a week or so and I am

worried about it because I see what I don't get done around here within a day

and sometimes I think I am crazy for thinking that I could hold down a job, but

it is only part time and I am hoping to give it a try. Like people tell me I can

always quit. I have been working for my son the last 11 yrs. helping him with

his business and that keeps me busy, but that is mostly office work where I get

to sit most of the time so it isn't too bad. I would try and look into what kind

of medical, etc. that is offered in the state you live in. There has to be

something out there that can help.

>

> Does anyone have any resources for her??? And if you do have

> Fibromyalgia, is it that bad that you cannot work funcionally well

> on jobs???

>

>

> I would appreciate any help you can give me.

>

[Guest guest]

I think it is very important to realise the diversity of handicap that

Fibromyalgia bestows on people.

The doctor's remark that " curling up in bed is the worst thing for Fibromyalgia "

may be true for some people, but after many years of struggling to work, then

cutting down to part time, then giving up and just staying at home for a couple

of years I am now in such a condition that all I can do is curl up in bed. I

have many hospital appointments and going to those puts me in a flare for a week

or so afterwards. I can only stand with the aid of sticks and can walk only two

or three paces. This happened before I took to my bed... Not because I did. I

recognise that this is not the most usual result of Fibromyalgia, but

nevertheless it is a possibility.

If your daughter's Fibromyalgia is really bad I would hate to see her pushed

into doing something beyond her capabilities.

Penny UK

> Hi ~ I am sorry for your

> daughter's diagnosis, but she got diagnosed way

> sooner thaln most of us. I am able to work full time (as an elem. teacher).

> Luckily, I do get my summers off to re-charge, but I must say that since I

> have been off this summer (since June 23rd) I have felt worse than I did all

> year. I think it's

> partly b/c I am out of my usual routine. My family doc (who

> diagnosed my fibro) told me the worst thing you can do for fibro is get in

>

> bed, curl up, and stay there. I always think of that when

> I'm having a bad day.

> Good luck, Kathy in NY

>

>

>

[Guest guest]

Hi, I am sorry about your daughter. I was diagnosed with

fibromyalgia almost a year ago when I was 26. I was in a lot of

pain and had a very hard time sleeping at night. Once the doctors

put me on Elavil I had no problem sleeping, they also use this for

the pain. It never got to a point where I couldnt work. My

boyfriend at the time massaged my legs everyday and that helped

until I got on more medicine. I think they caught it early so I was

pretty lucky. They also put me on Guaifenesin (which is mucinex

over the counter) and this really helped me with the pain. The

downside on using this is that you have to watch the products you

use. There is a list of products you can use while taking this

medicine and if you use something such as soap, shampoo, etc that

isnt on the list it interfers with the guaifenesin and cancels it

out. They have stated not to try to use the guafinison without a

doctors supervision. Once she gets a chance to see a doctor she may

want to try this. I still have flare ups but I don't feel anything

like I did a year ago. I also made sure I decreased my stress and

worked out regularly which helped with the pain. I even went and

bought several Yoga videos. I have also heard that Malic Acid and

Magnesium helps with the pain. There were several websites I went

to where they discussed how many mgs to take.

I hope this helped.

>

> Hello everyone,

>

> I have a 21 year old daughter who was diagnosed with Fibromyalgia

> about three weeks ago. She is always hurting, and is also

depressed.

> Her friends think everything is in her head, and she is making

this

> all up, the aches the pains and the headaches so bad she cannot

> sleep at nite, therefore she can't get up early or anything

because

> lack of a good nite sleep. She has no insurance and is currently

> not working, but has looked for jobs, but no takers as yet.

>

> But she seriously thinks she cannot work full time she says

because

> of how bad she feels on a regular basis. The rheumatoligist

> prescribed flexorall and myobic for her, but she says it doesn't

> work. I cannot afford to pay for the Rheumatolgist she is

supposed

> to see on a monthly basis. We are in financial straits

ourselves.

>

> She was turned down before for medical assistance until she could

> find a job, but was turned down awhile back.

>

> Does anyone have any resources for her??? And if you do have

> Fibromyalgia, is it that bad that you cannot work funcionally well

> on jobs???

>

>

> I would appreciate any help you can give me.

>

> Thank you, Jean

>