Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 thanks for the info; I'm on neurontin for peripheral neuropathy, mirapex for restless leg and that's it. Nothing for pain really. Dawn > > Can anyone out there tell me if they are taking some kind of pain > med, > > who has " Fibro " and if so what do you take? I'd just like to know > > for my own benefit. > > > > Thank you for listening. > > Dawn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Peggyb, Thanks for the info. My Dr. claims it's unethical and illegal to prescribe narcotics for Fibro. and also claims he could lose his medical license over it. Also, when I first got so bad with the pain, I had asked him if he would fill out an application for a handicap placard, he refused, stating I wasn't handicapped! Fortunately my Chiroparactor disagreed and filled one out for me, and it seems lately I'm forced into using it more and more. Dawn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Donna, Thanks for the feedback. From everyones comments, I think I've been going to a real quack! He claims he's tried all the meds and for one reason or another they haven't worked out. After looking over the drugs people in just this group have/are taking for the fibro, and I can guarantee you I've not taken a 1/4 of them. Some of them I've never even heard of. With the info I've gleened, I have every intention of going to another DR. Thanks Dawn > > I went to my rheumatologist a couple of times before he > suggested that I take pain meds. He put me on a muscle > relaxer right away, but waited on the pain meds. I have > allergies to alot of meds so he had a difficult time > prescribing me a pain med. I take tylenol#3 at least twice > a day. I can take it up to 4 times. My daughter who also > has fibro takes vicodin es. On the other hand my brother > who also has fibro chooses to use biofeed back & aqua > therapy to deal with his symptoms. If your rheumatologist > won't prescribe for you perhaps your primary care physician > will. I quit my rheumatologist because all he did was poke > at me & tell me to stay on my meds. My primary care > doctor told me she would prescribe my meds for me from now > on. Good luck! > > Donna S. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 Ann, Thanks for the info. I'm on Neurontin 600 mg twice daily, Mirapex 1mg 3 times a day for restles limb syndrome (which is so bad, I jerk myself out of bed at nite) and Zoloft, but believe me--it doesn't come close to even controlling the pain. After everyones input so far I'm convinced this Dr I'm seeing is a Quack! Thank you Dawn Zalud > > > > Visit your group " Fibromyalgia_Support_Group " on the web. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2006 Report Share Posted February 18, 2006 I have yet to get a doctor to fill out an application for handicapped placard. They either say I'm not handicapped or I'm too young. Between the fibro, my arthritis, and the raynauds (I live in North Dakota LOL), its so hard and people are so rude here that without handicapped plates or placards, you have to park almost 5 blocks away. Re: Fibro and Pain meds Peggyb,Thanks for the info. My Dr. claims it's unethical and illegal to prescribe narcotics for Fibro. and also claims he could lose his medical license over it. Also, when I first got so bad with the pain, I had asked him if he would fill out an application for a handicap placard, he refused, stating I wasn't handicapped!Fortunately my Chiroparactor disagreed and filled one out for me, and it seems lately I'm forced into using it more and more.Dawn> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Dawn, I have bad reactions to many pain meds, can't take many of them because of the reactions. I also can't take OTC pain meds, for varying reasons, which I needn't go into. The important bit is my doctor has given me Feldene (piroxicam) and I've been taking it for about 3 months now. It has worked wonderfully for me since the first dose (supposed to take up to several weeks to give the best pain relief). It is an NSAID, (and an " old " drug) which is funny because none of my medical tests show any inflammation and hardly any arthritis in the joints that are my worst pain centers. I don't know why it helps me so much, but I haven't had this low a pain level in years. Like all NSAIDS, it can cause stomach upset, and I definitely have IBS and have had much stomach problems and pain over the years from other pain relievers, but this one is not bothering me at all. I do take it with my biggest meal of the day, but have forgotten and had to take it with only a glass of milk and it still hasn't hurt my stomach. Just as an aside, the infamous VIOXX didn't give me any pain relief at all. Everyone is so different. It can be really difficult to persist in trying things until we find something that truly helps. And doctors always seem to want to Rx the new whoopdeedoo drug of the moment rather thay trying the older ones. But it was this older one that has meant I haven't had to use my cane(s) since I started taking it. laz > > Can anyone out there tell me if they are taking some kind of pain med, > who has " Fibro " and if so what do you take? I'd just like to know > for my own benefit. > > Thank you for listening. > Dawn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2006 Report Share Posted February 19, 2006 Dawn I would suggest finding a new doctor right away - one who doesn't lie. I was seeing a D.O. General Practitioner and a D.O. Pain Management Specialist AFTER diagnosed as having fibro. For the Rx: one gave me vicodin, the other gave me compounded hydrocodone: narcotics. It's not true that it's illegal to prescribe narcotics for fibro. I have heard people claim, however, that it is illegal to undertreat pain. I don't know how you confront your lying doctor. Kelli " Re: Fibro and Pain meds Peggyb,Thanks for the info. My Dr. claims it's unethical and illegal to prescribe narcotics for Fibro. and also claims he could lose his medical license over it. Also, when I first got so bad with the pain, I had asked him if he would fill out an application for a handicap placard, he refused, stating I wasn't handicapped!Fortunately my Chiroparactor disagreed and filled one out for me, and it seems lately I'm forced into using it more and more.Dawn> > What are the most popular cars? Find out at Yahoo! Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 Same here, I really can't afford it, but would really love it, the few times I have had one, it was heavenly! Peggyb > > > > My Dr. was one to try me on many different things till she found the > > right thing. Vioxx didn't help me much either, I take arthrotec (as > > well as hydrocodone), and I think it is an older one. I do know a lot > > of people can't take hydrocodone, or other pain meds, but it is what > > works for me. I can feel the relief was over me when it starts working. > > I have also heard massage therapy helps, but have not had much > > opportunity to try this. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 No schools near me that I know of, and my insurance won't cover it, I asked, and they' not so politely' told me it wasn't coverd even with a script. I just wish. Peggyb > > Massage effects can be cumulative over time, then when you stop getting them the benefits are gradually lost. When I went to massage school (sick but not yet diagnosed) I had 2 headaches during the whole 6 months...and had strep throat with one of them. I wasn't pain free but could move more easily in my body. > > If there is a massage school near you, they probably have a student clinic that gives massage for 1/2 price, and sometimes you can hook up with a student who wants to practice more, and will do it free. The caveat is that its " potluck " as to the quality of the work, and you will have to train a student as to what works and doesn't work for you. You will have to have a clear, possibly firm discussion about deep massage being bad for you before you get on the table. > > Another possibility for low cost massage is barter...if you grow nice vegetables and have extra, you may find someone willing to trade, or if you do some sort of art. I know this part can be limited during fm...I am a massage tx with fm, but I bartered for most of my holiday gifts this year. Some massage tx will offer a sliding fee scale for people with chronic pain/illness. Just don't write it off as a possibility. In some states insurance will cover it with a doctor's prescription. > Best to you, > River > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 D Ribose is all natural.The folder on it is in the links section. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 I do take Vicodin (actually the generic, Hydrocodone) and I have a regular script for it. It helps more than anything else, I have a Dr. who will prescribe it. I am just allowed 3 a day, but some days, I don't need that many, and some days more, so it seems to balance out for me. Re: Fibro and pain meds I haven't heard of any. I am on Immunoflavinoids which are seeming to help a bit with joint pain, but it has taken a month to see any improvement whatsoever. Anyone else wish Vicodin grew in a bush somewhere? -------- Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 Same here for me. laz > > > No schools near me that I know of, and my insurance won't cover it, I > asked, and they' not so politely' told me it wasn't coverd even with a > script. I just wish. > Peggyb > > Quote Link to comment Share on other sites More sharing options...
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