Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Greetings all I would like to add one thing. Those of us who are in their 60's or older have another problem. What worked for us for years starts creating problems. I have found that out the hard way in the last two or 3 months. Medicines I could take easily even a year ago cause problems today. As we get older our systems change and what helps someone in their younger years can turn around and bite you in the butt 1 year later. For me it has created a bit of a nightmare as I have a couple of medications that do not go too well with the new Glucophage they are trying on me. Unfortunately Digoxin and Inderal's action is changed by the Glucophage and vice versa. They help keep my heart beating in 4/4 time and my Parkinson's tremors at a minimum. Today had an episode with my heart doing the cha cha, weird feeling. I let my doc know and then rested till it got back into regular beats. Will see him again on Tuesday, sooner if it does it again. It may have been something else I ingested. Connie, I had a similar problem several years back, when I was prescribed a sleeping aid for my irregular sleep patterns. Took two Halcion tablets and woke up in the hospital three days later. I did not know where I was, it was a room in the newest wing of the hospital which I had never been in. Evidently I kinda scared everyone with sleep walking and generally out of it condition. Just this past 6 months or so, the Immovane, a short acting sleeping aid, caused similar problems with a dose more than 7.5 mgm. Even that dose can cause problems some days. So if I cannot fall asleep I will only take half a tablet. Many nights now I get to sleep without any medication aid. Blessings +Dave AS/RS/RA/PA/Parkinson's/diabetic. Older than dirt " Everyday I beat my own previous record for number of consecutive days I've stayed alive. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Hi Leonie, I was on MTX 22.5mg tablet form for nearly 6 years, and I absolutely dreaded my day of taking it. I felt so nautious and I lost a lot of my hair and kept getting mouth abcesses. I think for a lot of people it's not good, but it is cheap!!! I didn't get access to the biologics til 2007, when I was put on Humira but that made me worse. Now I've just started Enbrel. They are bringing out new drugs all the time, but it is very much trial and error. I wish I knew then what I know now. You are not a winger, it's just that MTX is not for you. Someone on here said MTX in injection form was better tolerated, maybe that's something to think about. Best wishes x I From: mumpup2000 <leoniecent@...> Subject: [ ] reactions to meds Date: Monday, 23 March, 2009, 12:02 AM Hi all, What's wrong with me ? I hate MTX and just want to die when i take it, since i feel so lousy. I suppose i just have to go to bed and stay there when I take it ?? I thought it was meant to give you a life back, not take it away ? Other people seem to tolerate meds well and love taking all the meds they can lay their hands on, but not me... I hate the stuff. Maybe it's my constitution or something, but there doesn't seem to be any allowance for people who cant tolerate the drugs very well - even if it's psychologicaly, it's still real. I feel like a whinger and a hypochondriac. I can't go on like this... what can I do ?Does it ever get any better ? best, leonie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2009 Report Share Posted March 22, 2009 Hi L, Me again. Meant to say are you also taking Folic Acid as MXT depletes it from your body. If I remember it's something like 5mg per week the day after your MXT. x From: mumpup2000 <leoniecent@...> Subject: [ ] reactions to meds Date: Monday, 23 March, 2009, 12:02 AM Hi all, What's wrong with me ? I hate MTX and just want to die when i take it, since i feel so lousy. I suppose i just have to go to bed and stay there when I take it ?? I thought it was meant to give you a life back, not take it away ? Other people seem to tolerate meds well and love taking all the meds they can lay their hands on, but not me... I hate the stuff. Maybe it's my constitution or something, but there doesn't seem to be any allowance for people who cant tolerate the drugs very well - even if it's psychologicaly, it's still real. I feel like a whinger and a hypochondriac. I can't go on like this... what can I do ?Does it ever get any better ? best, leonie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 I have heard from other RA patients that mtx wipes them out and makes them feel miserable. Sure there are some people that aren't affected by mtx this way, and for them, mtx is a good management option. I don't think it's a matter of loving taking all the drugs they can lay their hands on per se, but the goal is for each of us to find a treatment plan that matches our physiology and our budgets. It's totally valid for you to call your rheum and say that mtx is taking away all your energy and keeping you in bed. As others have said, you're not a hypochondriac. If you have RA then you deserve a treatment program to manage the symptoms, it's no less real than cancer, diabetes, or any other disease. Some insurance plans require that you fail certain drugs before moving to more expensive options. Having the bad experience with mtx might just make it possible to try another drug like a biologic. Feel better! Kate F ________________________________ From: mumpup2000 <leoniecent@...> Sent: Sunday, March 22, 2009 7:02:31 PM Subject: [ ] reactions to meds Hi all, What's wrong with me ? I hate MTX and just want to die when i take it, since i feel so lousy. I suppose i just have to go to bed and stay there when I take it ?? I thought it was meant to give you a life back, not take it away ? Other people seem to tolerate meds well and love taking all the meds they can lay their hands on, but not me... I hate the stuff. Maybe it's my constitution or something, but there doesn't seem to be any allowance for people who cant tolerate the drugs very well - even if it's psychologicaly, it's still real. I feel like a whinger and a hypochondriac. I can't go on like this... what can I do ?Does it ever get any better ? best, leonie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2009 Report Share Posted March 23, 2009 My doctor gave me an RX for Folic Acid to help with the side effects of MTX plus I use Phenergan for any nausea. Ask the doctors to give you an RX for those and hopefully they will help. Hugs, Judy land > > Hi all, What's wrong with me ? I hate MTX and just want to die when i take it, since i feel so lousy. I suppose i just have to go to bed and stay there when I take it ?? I thought it was meant to give you a life back, not take it away ? Other people seem to tolerate meds well and love taking all the meds they can lay their hands on, but not me... I hate the stuff. Maybe it's my constitution or something, but there doesn't seem to be any allowance for people who cant tolerate the drugs very well - even if it's psychologicaly, it's still real. I feel like a whinger and a hypochondriac. I can't go on like this... what can I do ?Does it ever get any better ? > best, > leonie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Leonie I had the same problems with the MTX when I was taking the pills. I am now taking the injections. I am only down for a day when I take it and the reaction is not nearly as severe.I went off it foe awhile and could tell the difference especially in my knees. I have been back on it for awhile and my knees are getting better. Heidibug On Sun, Mar 22, 2009 at 8:02 PM, mumpup2000 <leoniecent@...> wrote: > Hi all, What's wrong with me ? I hate MTX and just want to die when i > take it, since i feel so lousy. I suppose i just have to go to bed and stay > there when I take it ?? I thought it was meant to give you a life back, not > take it away ? Other people seem to tolerate meds well and love taking all > the meds they can lay their hands on, but not me... I hate the stuff. Maybe > it's my constitution or something, but there doesn't seem to be any > allowance for people who cant tolerate the drugs very well - even if it's > psychologicaly, it's still real. I feel like a whinger and a hypochondriac. > I can't go on like this... what can I do ?Does it ever get any better ? > best, > leonie > > > Quote Link to comment Share on other sites More sharing options...
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