SOCIAL SECURITY DISABILITY

November 15, 1999

Sue:

Great news. But, I don't understand why they make you wait six months. What do

they expect you to do for that waiting period?

Nothing is ever easy.

Warmly,

November 15, 1999

Sue,

That is wonderful news!!!!!!!!!!! Even though we hate to need it, thank God

it is there for us! I feel like jumping up and down for you!!

Hugs,

November 15, 1999

There is a six month waiting period from the day you are declared disable and

the first check. Just a policy. Not worried. I have the long term

disability coming in now and my husband makes good money.

Sue AIH

Wisconsin

November 15, 1999

Sue, congratulations! I am so pleased for you! What a fight, and a shame

that it is so much so. You must be very relieved. It is so good to hear

good news about one of us.

KayK in Austin, AIH/PBC

> Just found out today that I was approved for Social Security. I will get

my > first check in March. Six month waiting period after you are delcared

> disababled. I also will be getting a check for my daughter until she >

graduates in 2002.

November 15, 1999

Sue,

Stay on your toes though. Disability checks can keep you on the alert. Anyway

good for you. Not having to worry about working helps to relax your mental

stability.

Gayle

November 15, 1999

Congratulations Sue, It must feel good to get something you know is coming

to you and you don't have to fight for it!! Take Care!! Lori C.

AIH Transplanted 3~11~97

[ ] SOCIAL SECURITY DISABILITY

>From: Roselle50@...

>

>Hi Group:

>

>Just found out today that I was approved for Social Security. I will get

my

>first check in March. Six month waiting period after you are delcared

>disababled. I also will be getting a check for my daughter until she

>graduates in 2002. So I am very excited that I don't have to get a lawyer

>and fight them.

>

>Sue AIH

>Wisconsin

>

>>Please support the American Liver Foundation!

>

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>

November 17, 1999

Sue,

Congratulations!! With both checks you might come close to the poverty

level! <g> It's great that you didn't have to hire a lawyer, that's so

frustrating to have to sue for our own social security! It's nice to know

that the system actually does work for some.

Don

AIH Minneapolis

> [ ] SOCIAL SECURITY DISABILITY

>

> From: Roselle50@...

>

> Hi Group:

>

> Just found out today that I was approved for Social Security. I

> will get my

> first check in March. Six month waiting period after you are delcared

> disababled. I also will be getting a check for my daughter until she

> graduates in 2002. So I am very excited that I don't have to get

> a lawyer

> and fight them.

>

> Sue AIH

> Wisconsin

>

> > Please support the American Liver Foundation!

>

> 1.) To subscribe send e-mail to -subscribeonelist

> 2.) To UNsubscribe send to -unsubscribeonelist

> 3.) Digest e-mail format send to -digestonelist

> 4.) Normal e-mail format send to -normalonelist

>

December 8, 1999

Thanks Louis,

I would be very interested in reading that information. Unfortunately I have

never had success opening multi-part mime files.

I applied for SSI for my son recently. On the application I gave several

real life examples of how my sons symptoms interfere with his daily

functioning. The worker who took my application said I did a very good job

filling out the paper work. I am told that in Claifornia almost everyone is

turned down for SSI when they first apply. So I figured the application form

was my only chance to state my case that my kid really does need SSI.

If he does get SSI it would make it so much easier for me as a single Mom to

be there for my son after school and on school holidays because he cannot go

to daycare because of his behavioral issues.

My son Mat has recently been approved for placement in a special Ed day class

for kids with Emotional Disturbance. I visited this class and am very

impressed. I feel that the highly structured environment with a strong

behavior mod program and an on campus therepist is the best environment for

Mat right now.

Patti

<<

This message is a multi-part MIME message and will be saved with the default

filename ocdandpa.mim

--------------------

Dear list members,

I am forwarding this link to a page that contains information on applying

for disability.

Take care.

Louis

harkins@...

http://psycom.net/depression.central.ssd.html

>>

December 8, 1999

Thank you Louis. I am going to be exploring this option for my son.

Jule in Cleveland

January 13, 2000

i'm an achondroplastic dwarf on permanent disability and here's what i

discovered:

-the paperwork being filled out properly and completely. if not, you'll be

turned down.

the achondroplasia in itself doesn't qualify your daughter for SS, but the

accompanying stenosis and lordosis do. if your doctor doesn't include them in

his diagnosis, you'll be turned down.

if you are turned down, don't give up. insist on being told in writing and

specific terms why your daughter's application was refused. then re-do the

paperwork and re-apply. it took me three attempts and a lawyer who specialized

in disability/SS cases to finally get mine approved. the good news is that 1)

benefits accrue from the original date of the claim (so file asap), and 2) the

lawyers usually work for a percentage of those accumulating funds.

after you get the disability, check with your state Health and Human Resources

Dept. many of them pay the co-payment for you, depending on your income. then

contact medicare and ask if they have any HMO's. many of them offer better

benefits for less than m/c's coverage and co-payments. mine, for example,

covers prescriptions and dental, which m/c doesn't.

good luck and if you have any problems, let us know.

{s}

luthien

-

Amy wrote:

> From: " Amy " <snuggle@...>

>

> First of all, let me apologize in advance for rambling, I am not very good at

letter writing.

>

> And, also, please no " I'm sorry's " for our circumstances, it is a good thing.

>

> Recently, I left my husband, and had to go on Welfare. They told me that it

was my responsibility to apply for all other programs that we may qualify for,

including Social Security for because her dwrfism may be considered a

disability.

>

> The only reason I told them about the dwarfism was to explain why I needed to

be able to be exused from the work program to start my home day care back up.

We have, after only a few months, gotten off of cash aid, and probably no longer

qualify for food stamps either because of child support and my income.

>

> I have just finhed the phone interview, and because of low income, she does

qualify for full benefits, but there is paperwork to fill out and I suppose they

need letters from doctors.

>

> My questions are:

>

> 1. Is she really considered disabled because of Achondroplasia?? I hate to

label her at almost three years old as 'disabled'.

>

> 2. Had anyone else out there gone through this, and what was your experience??

Is this a waste of time??

>

> 3. If she does qualify, what does 'full benefits' entail??

>

January 13, 2000

I qualified as a miner for my dwarfism related problems. I was carried

until I was through with college.

Judi

At 11:09 AM 1/13/00 -0800, Amy wrote:

>From: " Amy " <snuggle@...>

>

>First of all, let me apologize in advance for rambling, I am not very good

at letter writing.

>

>And, also, please no " I'm sorry's " for our circumstances, it is a good thing.

>

>Recently, I left my husband, and had to go on Welfare. They told me that

it was my responsibility to apply for all other programs that we may

qualify for, including Social Security for because her dwrfism may

be considered a disability.

>

>The only reason I told them about the dwarfism was to explain why I needed

to be able to be exused from the work program to start my home day care

back up. We have, after only a few months, gotten off of cash aid, and

probably no longer qualify for food stamps either because of child support

and my income.

>

>I have just finhed the phone interview, and because of low income, she

does qualify for full benefits, but there is paperwork to fill out and I

suppose they need letters from doctors.

>

>My questions are:

>

>1. Is she really considered disabled because of Achondroplasia?? I hate

to label her at almost three years old as 'disabled'.

>

>2. Had anyone else out there gone through this, and what was your

experience?? Is this a waste of time??

>

>3. If she does qualify, what does 'full benefits' entail??

>

January 13, 2000

Better said then I did. I too have a Social Security case pending. I will

let you all know what happens there also

Judi

At 03:54 PM 1/13/00 -0600, luthienx wrote:

>From: luthienx <luthienx@...>

>

>i'm an achondroplastic dwarf on permanent disability and here's what i

discovered:

>-the paperwork being filled out properly and completely. if not, you'll

be turned down.

>the achondroplasia in itself doesn't qualify your daughter for SS, but the

accompanying stenosis and lordosis do. if your doctor doesn't include them

in his diagnosis, you'll be turned down.

>if you are turned down, don't give up. insist on being told in writing

and specific terms why your daughter's application was refused. then re-do

the paperwork and re-apply. it took me three attempts and a lawyer who

specialized in disability/SS cases to finally get mine approved. the good

news is that 1)

>benefits accrue from the original date of the claim (so file asap), and 2)

the lawyers usually work for a percentage of those accumulating funds.

>

>after you get the disability, check with your state Health and Human

Resources Dept. many of them pay the co-payment for you, depending on your

income. then contact medicare and ask if they have any HMO's. many of

them offer better benefits for less than m/c's coverage and co-payments.

mine, for example,

>covers prescriptions and dental, which m/c doesn't.

>good luck and if you have any problems, let us know.

>

>{s}

>luthien

>-

>

>Amy wrote:

>

>> From: " Amy " <snuggle@...>

>>

>> First of all, let me apologize in advance for rambling, I am not very

good at letter writing.

>>

>> And, also, please no " I'm sorry's " for our circumstances, it is a good

thing.

>>

>> Recently, I left my husband, and had to go on Welfare. They told me

that it was my responsibility to apply for all other programs that we may

qualify for, including Social Security for because her dwrfism may

be considered a disability.

>>

>> The only reason I told them about the dwarfism was to explain why I

needed to be able to be exused from the work program to start my home day

care back up. We have, after only a few months, gotten off of cash aid,

and probably no longer qualify for food stamps either because of child

support and my income.

>>

>> I have just finhed the phone interview, and because of low income, she

does qualify for full benefits, but there is paperwork to fill out and I

suppose they need letters from doctors.

>>

>> My questions are:

>>

>> 1. Is she really considered disabled because of Achondroplasia?? I hate

to label her at almost three years old as 'disabled'.

>>

>> 2. Had anyone else out there gone through this, and what was your

experience?? Is this a waste of time??

>>

>> 3. If she does qualify, what does 'full benefits' entail??

>>

January 13, 2000

Getting turned down at least twice is pretty much standard procedure.

:)Danette:)

Spokane, Washington

http://www.geocities.com/hotsprings/villa/9405

On Thu, 13 Jan 2000 15:54:47 -0600 luthienx <luthienx@...>

writes:

>From: luthienx <luthienx@...>

>

>i'm an achondroplastic dwarf on permanent disability and here's what i

>discovered:

>-the paperwork being filled out properly and completely. if not,

>you'll be turned down.

>the achondroplasia in itself doesn't qualify your daughter for SS, but

>the accompanying stenosis and lordosis do. if your doctor doesn't

>include them in his diagnosis, you'll be turned down.

>if you are turned down, don't give up. insist on being told in

>writing and specific terms why your daughter's application was

>refused. then re-do the paperwork and re-apply. it took me three

>attempts and a lawyer who specialized in disability/SS cases to

>finally get mine approved. the good news is that 1)

>benefits accrue from the original date of the claim (so file asap),

>and 2) the lawyers usually work for a percentage of those accumulating

>funds.

>

>after you get the disability, check with your state Health and Human

>Resources Dept. many of them pay the co-payment for you, depending on

>your income. then contact medicare and ask if they have any HMO's.

>many of them offer better benefits for less than m/c's coverage and

>co-payments. mine, for example,

>covers prescriptions and dental, which m/c doesn't.

>good luck and if you have any problems, let us know.

>

>{s}

>luthien

>-

>

>Amy wrote:

>

>> From: " Amy " <snuggle@...>

>>

>> First of all, let me apologize in advance for rambling, I am not

>very good at letter writing.

>>

>> And, also, please no " I'm sorry's " for our circumstances, it is a

>good thing.

>>

>> Recently, I left my husband, and had to go on Welfare. They told me

>that it was my responsibility to apply for all other programs that we

>may qualify for, including Social Security for because her

>dwrfism may be considered a disability.

>>

>> The only reason I told them about the dwarfism was to explain why I

>needed to be able to be exused from the work program to start my home

>day care back up. We have, after only a few months, gotten off of

>cash aid, and probably no longer qualify for food stamps either

>because of child support and my income.

>>

>> I have just finhed the phone interview, and because of low income,

>she does qualify for full benefits, but there is paperwork to fill out

>and I suppose they need letters from doctors.

>>

>> My questions are:

>>

>> 1. Is she really considered disabled because of Achondroplasia?? I

>hate to label her at almost three years old as 'disabled'.

>>

>> 2. Had anyone else out there gone through this, and what was your

>experience?? Is this a waste of time??

>>

>> 3. If she does qualify, what does 'full benefits' entail??

>>

March 15, 2000

Hi gang,

I just had to let you guys know what just happened to me. I received a call

from SSD and got the most fantastic lady. She made me feel so good about

this process. She was obviously a Christian, and I got that just from her

caring tone, and said something to her about it. Then we continued to talk

for at least 20 minutes past the time she got the information she needed

from me. She said " just remember that this is a " red sea time in my life "

meaning, when Moses got to the Red Sea with the enemy behind him and asked

God what he was supposed to do now, and God told him just to rely on his

faith and stand still. And then God parted the Red Sea (something to that

affect, I'm sure most of you know that story). She said many other lovely

things too, but you know the old Lyme brain. She gave me goosebumps! Just

wanted to let you all know there really is a reason for everything. I missed

the calls from SSD for days now, and we both discussed the fact, that I got

her (and she said, how she got me) instead of one of her associates, and how

that was for a reason - God indeed works in mysterious ways.

So for those of you that are petrified to apply (like me), just wanted you

to know not all of them at SS bureau are bad. Hopefully when you have to go

through it you'll get a claims rep like mine who walked me through how to

fill out the form and is sending me the form she filled out, so I can just

complete the dates I need to look up on certain things. But basically she

filled out the form for me. I know I'm a long way from being approved, but I

took this as a good sign that the struggle will be worth it. Just wanted to

share.

Vicki, MD

March 15, 2000

i had good people working at ssd for me....i ike the people just hated the

system that they have to work for.......

Reid

March 15, 2000