New here

[Guest guest]

hello hello!

I have to say, my youngest son (8) didn't have speech until he was

nearly 3. He just said BA. Didn't really loose any language, like your

typical classic autistic child. Maybe he did say mama, but no real

babble.

At 3 he had severe language delay, etc etc etc.

Now he talks , but with articulations problems. He also has a problem

with some of his back teeth being spread to far??!?! More when I find

out.

Basically he was one with a language delay, and yes, he has Asperger

Syndrome. Some other posts, asked questions that are very good, so if

you reply and fill us all in some more, maybe we can all see patterns,

or things in our kids:)

LMK. I am interested to see what else is up with the little guy:)

B

> Hi I am a sahm of 2 boys living in BC I am not sure weither my

> youngest has Aspergers or not or it may be something else alot of

the

> websites are quite confusing I found I will describe my youngest to

> you and will be looking into it some more he is 3.5 yrs old does not

> talk yet at all going to a speech therapist in July just starting to

> wave bye bye knows one nursery ryme patty cake and that took approx a

> year for him to get the actions no singing yet alot of the websites

> explain when they are talking and in school so abit confused if

> someone could explain the systems better I would be greatly

appreciated

[Guest guest]

corissa87 <corissa87@...> wrote:

Thanks for the help and yes I will go talk to his doctor we referred

to the speech pathologist by the local health unit FYI we are in

Castlegar BC. another thing he is very destrutive I am unablre to put

anything in his room he will destroy it we are planning to do up his

room this summer and everything has to be bolted to the walls

This is such a problematic issue for us at my house. My older ds is now 16 yo

but when he was younger, he was exactly this way. We didn't have lamps until

two years ago. Nothing was on any wall anywhere. Now I venture to hang a thing

or two. My 8 yo is this way also. He not only tears things off the wall in his

room, he puts holes in the wall. He scratched his name in the wall, he sticks

things up using large pointy objects. He draws on the walls. I am really ready

to choke him lately with the wall stuff. I have tried putting up boards for him

to hang stuff and draw stuff but so far, it's not working. Those just come down

as well. All I can say is that my 16 yo doesn't do this anymore. lol. I can't

remember when he stopped because I had long given up hanging things.

Roxanna ô¿ô

Don't take life too seriously; No one gets out alive.

__________________________________________________

[Guest guest]

kids

> with

> HFA tend to experience language regression, meaning that they have it

> and

> then lose it and then regain it again; (OR JUST HAVE A DELAY, YET ONCE

> THEY SPEAK THEY PROGRESS NORMALLY WITH SPEECH)

****This is not really true. A lot of kids with autism do not develop normally

with speech at any time. Even those with HFA can experience problems with

speech development and many learn utilitarian speech to get by. *****

And although the kids in both groups

> develop

> fairly good language skills eventually, there is a delay in the use of

> " pragmatic " or social language.

*** Again, kids with HFA do not really develop fairly good language skills.

Some might and some may never. I say this having one of each at my house. Also

I know kids who have no speech but use ACC to communicate and their

communication is definitely delayed as well. Yet they are really HFA. ****

Roxanna ô¿ô

Don't take life too seriously; No one gets out alive.

---------------------------------

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

[Guest guest]

Well, I guess I should clarify my comments. By fairly good, I don't mean

perfect or " NT. " Many, if not most, children with AS and HFA are expected

now to grow up to speak well enough to function in the world, particularly

if they have speech pragmatics therapy. My son has AS and has what his

teachers, even his general ed teacher, characterizes as strong language

skills -- provided one doesn't include the physical or tonal aspect of

language: gestures, expressions, nuance, sarcasm, irony. Then he isn't

awful or even completely clueless, but he certainly isn't on par with NT

children his age. He is said to be between three and four years old in

terms of pragmatics, and think about it. That ain't bad. Three-year-olds do

pretty well.

My son reads at the fourth grade level and will move on to third grade in

the fall, mainstreamed again in English and two other subjects. He

comprehends about as well as his general ed peers ... overall. He might

miss different things from what most of his peers are missing. I don't

sense any slowing down in his comprehension. He is keeping up so far.

Okay, my son has a diagnosis of AS. But I've met the parents of kids with

HFA who (the kids) have comparable language skills and significantly higher

IQs than he does. Is this typical? I only know that they are similar to my

son in many ways. It wasn't always thus. When they were two or three, they

struggled more with language and required more services than my son did at

the time. But now it isn't so very clear what differentiates these children

from my son.

I'm sure a lot of kids with autism (possibly most) never develop " fairly

good " speech. The question on my mind is why some don't and others do. Not

all of the ones who do have AS.

By the way, my son does not function as well as many kids with AS do,

despite the fact that he had no obvious language regression and/or delay.

(I mean just that; it wasn't obvious.) This might be due to behavior more

than anything else. But I think it is important to note that both AS and

HFA can encompass a wide range of eccentricities and abilities.

T.

mom of Sasha, 7

T.

mom of Sasha, 7

At 10:06 AM 6/17/2005 -0700, you wrote:

> kids

> > with

> > HFA tend to experience language regression, meaning that they have it

> > and

> > then lose it and then regain it again; (OR JUST HAVE A DELAY, YET ONCE

> > THEY SPEAK THEY PROGRESS NORMALLY WITH SPEECH)

>

>****This is not really true. A lot of kids with autism do not develop

>normally with speech at any time. Even those with HFA can experience

>problems with speech development and many learn utilitarian speech to get

>by. *****

>

>

>

> And although the kids in both groups

> > develop

> > fairly good language skills eventually, there is a delay in the use of

> > " pragmatic " or social language.

>

>

>*** Again, kids with HFA do not really develop fairly good language

>skills. Some might and some may never. I say this having one of each at

>my house. Also I know kids who have no speech but use ACC to communicate

>and their communication is definitely delayed as well. Yet they are

>really HFA. ****

>

>

>

>

>Roxanna ô¿ô

>Don't take life too seriously; No one gets out alive.

>

>

>

>

>

>

>

>

>

>

>

>

>---------------------------------

> Sports

> Rekindle the Rivalries. Sign up for Fantasy Football

>

>

[Guest guest]

Hi sarah, welcome to the group, Did you have systemic jra? my son is 14

with systemic jra diagnosed at age 6. He is facing a hip replacement they say

when he is ABout 18 or 19. his growth was delayed due to years of steroids Hes

been off them for 4 years and on enbrel now, Just curious if the hip

replacement helped alot with pain and mobility? his hip is bone on bone.. let

me know

more about your hip replacement.. thanks Jane

[Guest guest]

Hi and welcome. This group is a wonderful group of parents who are

watching their children battle juvenile arthritis and several adults who have

grown up with JA as their shadow. I am the latter of the two. I am 39 and was

diagnosed at age 4 with JA and scleroderma. I am also the mother of two

wonderful

boys ages 14 and 10, step mother to 3 beautiful girls ages 9, 10, 18 and a

step grandma to an adorable 2 month old, and wife to an understanding and

concerned husband who is still learning life with JA. I also have had many

surgeries

including total hip replacements at age 27. I had one child two years before

my hips were replaced and the other two years after the surgery. As for flares,

who the heck knows why they come and go as they please, however I do agree

that there may be a hormonal link at least some of the times. When I was

pregnant and on BC pills I was feeling good and not flaring at all. However I

am

having a horrible time with flares just here in the past few months and although

I am getting older I am not sure these new flares are hormonal or stress, or

just ol arthur looking for someone to punk on. LOL Irregardless of why its that

time, I will fight with all my might and hang tight and hang tough just as we

all must do during the times of trials. I am glad you found this group and

hope you have a positive experience. If you ever want to chat feel free to email

me on or off the list.

Hugs and smiles to all!

Donna

[Guest guest]

Tombrello <suso903tomb@...> wrote:

But I think it is important to note that both AS and

HFA can encompass a wide range of eccentricities and abilities.

Yes, that was my point.

Roxanna ô¿ô

Don't take life too seriously; No one gets out alive.

---------------------------------

Sports

Rekindle the Rivalries. Sign up for Fantasy Football

[Guest guest]

Hi Jane. Thanks for the welcome. Its a bit ignorant I suppose, but I always knew

it as

polyarticular JRA (which seemed like a gentle way of saying every joint you

never knew you

had). It was always particularly bad in my hips & knees. I had been in

remission through

high school with the occasional flare, but the damage in my right hip was very

bad - it had

worn away and reformed multiple times. The replacement (although a frustrating

three

month pause) did help a lot to reduce my pain. I have also learned a hard

lesson though -

the mantra for the hip replacement from my doctor was " Every Cycle is a Wear

Cycle " - ie,

you use it, and you're using it up. Joint replacements aren't designed for

teenagers. On

the other hand? My joints that are currently flaring, for example, *need* to be

moved for

me to keep flexibility, " Use it or lose it " ... haha, exactly the opposite. It

can be a tricky

balance. But he should know (something I'm just figuring out by coming places

like this )

- there aren't a lot of us, but there are at least some people who know how it

is. Good luck

> Hi sarah, welcome to the group, Did you have systemic jra? my son is 14

> with systemic jra diagnosed at age 6. He is facing a hip replacement they say

> when he is ABout 18 or 19. his growth was delayed due to years of steroids Hes

> been off them for 4 years and on enbrel now, Just curious if the hip

> replacement helped alot with pain and mobility? his hip is bone on bone.. let

me know

> more about your hip replacement.. thanks Jane

>

>

>

[Guest guest]

Hi ,

Gosh, you've survived with this nasty disease for a long time.

Welcome to this list. There are at least a handful of other " young

adults " on this list, mostly women I believe. There have been

pregnancy discussions with various drugs and all things you might be

interested in.

You are NOT alone with this disease. We are all here and I'm sure

there are local support groups in NYC. Ask any questions and you'll

get soem responses. Good for you for finding this site.

Stacia and Hunter 9 systemic, iritis

[Guest guest]

Welcome ..

You have found a great group of caring and supportive people... most

are parents of kids with JRA and theres also some great young adults

who are living with JRA. These adults are such a wealth of

infomation and hearfelt support. We would be lost without their

wisdom.

Im sorry to read that you have started to flare again... i hope you

are able to get it under control soon and are feeling better before

you know it.

hugs Helen and (7,systemic)

In , " sarallelagram " <niais@a...> wrote:

> Hi everyone. I'm not sure if this is the right place to be, but

I'll

> give it a shot. I've had JRA

> for 23 years (diagnosed when I was 4 and a half). I go through

> pretty lengthy periods of

> remission and only recently have started to flare up again. I'm

not

> sure why, and I've not

> had a lot of luck finding a new rheumatologist who is on the same

> page as I am. I'm

> reluctant to go back to the heavy drug way of treating things - I

was

> lucky to avoid

> anything too crazy when I was young, and now, at 27, I've got other

> things on my mind. I

> want to be able to have children, I want to not damage other organs

> by using various RA

> drugs for the next 50 years... Anyway, I had various surgeries

> throughout my childhood

> and a total hip replacement at 19. I have suspicions that my flare

> ups as an adult are

> linked to hormonal changes - for example, I stopped taking birth

> control pills, and I flared

> up. When I was little, arthritis was a family thing. Now that I'm

a

> grown up, I'm feeling a

> little more alone (my parents & husband, of course, don't want that

> to be the case. But its

> hard to wrap them up in the frustration of a rise in pain. ) I just

> wanted to say hello, I look

> forward to hearing from folks here.

>

> New York, NY

[Guest guest]

thesupermaids <thesupermaids@...> wrote:

My son was just diagnosed with AS after years of ADD treatments that

have failed. I have been educating myself and find a lot of language

issues realted to this. Has anyones child started talking and walking

at a very young age. Mason even now talks constantly and about adult

subjects. Just trying to figure out how he fits into these symptoms.

A number of AS kids will be precocious talkers. So that fits right in!

Welcome!

Roxanna ô¿ô

Don't take life too seriously; No one gets out alive.

__________________________________________________

[Guest guest]

I just joined and have not read the suggested material yet. I was

prescribed Nystatin a while back, the dosage was two tablets 2 times a day

and I was taking Diflucan once a day too. The first time I attempted this I

had flu symptoms within a few days of taking these meds. Then the doctor

said stop both of the and when feeling better take only the Nystatin and

only take two tablets twice a day. I did that and in a few days felt bad

again (but not as bad as the first time). Then he said go off until I see

him again. When I went back to see him he said take once a day. I am doing

that but feeling a little crummy. I have so many health issues I am not

sure if that is it or not.

Then in the mean time I had a colonoscopy and during the prep could not get

to the toilet fast enough. Since the scope I have developed a UTI and a

yeast infection. The doctor said the yeast was minor and to get Monistat at

the pharmacy. She gave me a med for what she said was a spastic bladder

(that turned the urine orange). Took all six of those and it really did not

help. So now I have to go get a prescription for Macro Bid. I hate to do

this but I have had UTI’s develop into Kidney infections and land me in the

hospital with a high fever and vomiting.

I bought a refridgerated Probiotic but forget to take it because it is in

the refrigerator. I have not been taking my supplements regularly either.

I do take Folbee, Armour, Cortef, Metaformin, L-Phenylalanine, Alph Lapoic

Acid regularly.

Any input?

I unsubscribed from another group for candida support as it was full

of spam and advertisements it seemed. Thanks for being here. It looks like

this will be a good group.

nne

--

No virus found in this outgoing message.

Checked by AVG Anti-Virus.

Version: 7.0.323 / Virus Database: 267.8.9/39 - Release Date: 7/4/05

[Guest guest]

Hi and welcome to the group! I know it is really overwhelming when you look at

all the information in the files but just start reading it and you will get a

lot of good information to help you. I would start with the files on the

candida diet.

Jeanne

[Guest guest]

> I just joined and have not read the suggested material yet.

Welcome, nne!

I think most of your questions can be answered by reading Bee's files.

They really are very helpful and informative. And in my experience,

reading them allows you to ask more specific questions.

Hope that helps!

Cheers,

Gloria

[Guest guest]

Hi and yes, welcome marianne!

please do read bee's article on candida and how to overcome it. its in

the files section to the left and has a lot of very important

information as to the approach we use here.

it will be well worthwhile to take a little time to get aquainted with

the general information, then, as gloria said, you'll be better

prepared to ask more specific questions.

we're here for you!

~ suz

[Guest guest]

Welcome to our group nne. Sorry but I typed up a message for you

this morning but it didn't get posted correctly. I'm off to work right

now so I can't re-type it, but it is important you read my article and

start on the diet, and wait until the right time to start taking

antifungals such as Nystatin. Your " flu " symptoms are actually " die-

off " symptoms - see our files for an article on it.

For you UTI you might need to take pure cranberry juice for 3 days to

get rid of it, even though cranberries can feed the candida in the

meantime. Drink at least 1 full quart spread over 3 days; diluting it

with clean water.

I'll get back to you later.

The best in health,

Bee

[Guest guest]

HI Dawn,

Welcome. We'll probably talk sometime.

take care

Bev

dawn <cowncalves@...> wrote:

Just wanted to introduce myself and hopefully get some good info

from all of you.

I have Hypotyroidism, actually my thyoid has completely shut down.

A little background.. After I had my son, was diagnose with hypo,

put on meds, moved and ended up with a new dr that said that I was

fine. That was 9 years ago. I have had my levels tested and was

always high but not high enough to do anything about it. Just

recently my goiter became extremely enlarge that I could feel it

when I swallowed. Had my levels tested again and this time they

came back OVER 150. 150 is as high as their test goes. Does anyone

know what damage this could do to someone? Dr. wouldn't tell me what

she was calling me ever few days to check up on me.. not a good

sign. I have had an ultrasound done- no nodules. I was put on a low

dose of meds and had a very bad reaction (migraines,loss of sight,

headaches etc), went to the specialist who had to put me on a lower

dose and gradually increase it from there. So that is where I am now

and with all these problems I am still underweight. It has not

caused me to gain any weight.. just confused on that one.. I know, I

should be happy about it.

Any ideas, tips, would be greatly helpful (hair loss, dry skin.. I

looke like a snake shedding, swelling)

Dawn

[Guest guest]

You just need the proper dose of the RIGHT medicine, certainly not a really

low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine.

Gracia

> Just wanted to introduce myself and hopefully get some good info

> from all of you.

> I have Hypotyroidism, actually my thyoid has completely shut down.

> A little background.. After I had my son, was diagnose with hypo,

> put on meds, moved and ended up with a new dr that said that I was

> fine. That was 9 years ago. I have had my levels tested and was

> always high but not high enough to do anything about it. Just

> recently my goiter became extremely enlarge that I could feel it

> when I swallowed. Had my levels tested again and this time they

> came back OVER 150. 150 is as high as their test goes. Does anyone

> know what damage this could do to someone? Dr. wouldn't tell me what

> she was calling me ever few days to check up on me.. not a good

> sign. I have had an ultrasound done- no nodules. I was put on a low

> dose of meds and had a very bad reaction (migraines,loss of sight,

> headaches etc), went to the specialist who had to put me on a lower

> dose and gradually increase it from there. So that is where I am now

> and with all these problems I am still underweight. It has not

> caused me to gain any weight.. just confused on that one.. I know, I

> should be happy about it.

> Any ideas, tips, would be greatly helpful (hair loss, dry skin.. I

> looke like a snake shedding, swelling)

>

>

> Dawn

>

>

>

>

>

>

--

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Checked by AVG Anti-Virus.

Version: 7.0.323 / Virus Database: 267.8.16/50 - Release Date: 7/15/2005

[Guest guest]

Hi ,

Welcome to the group. What is his adjusted age? In the banding world they use adjusted. At his age he is too old for repositioning, but he could be banded if the severity warranted. Are you near a Cranial Tech? THey have the most experience with the scaphy headshape. However, I do believe the STARband was approved for scaphy treatment in the past year.

Here is a link www.cranialtech.com They have some severity assessment forms on their website - look near the bottom of the main page.

mom to na (2yrs) DOC Grad and Kiersten (6 wks) Preventative Repo

www.thefilyaws.com

<hotmama.maria@...> wrote:

Hi all, I am a brand new member - woohoo. My son has scaphocephaly and his doctors (a geneticist and our ped) feel he'll 'grow into' his head. His head is elongated and if you're over him his head is kind of pear shaped - bigger in the back. I am increasingly concerned over his head shape - he'll be 1 on August 16th and was a preemie. I was wondering if anyone has experience with scaphocephaly - he has no 'breaks' in his forehead and it doesn't jut out a lot, but if this is something he needs help with I want him to get it now rather than later. I understand babies heal well. I just don't want his brain growth to be hindered. He had an xray on his head but nothing more than that....For more plagio info

[Guest guest]

What do you mean by a TOPDOC? I did see an endocrinologist and she

was the one that dropped my dosage to keep the side effects down. I

went from 88mcg down to 50mcg and now back up to 88mcg of synthroid.

They are suppose to raise it from here whenever I get back in there

for the blood work. I don't have insurance, so I try to go in when

I can afford it, which won't be soon. Is there a good site out

there that explains hypo, its effects to the rest of the body and

helpful hints?

>

> You just need the proper dose of the RIGHT medicine, certainly not

a really

> low dose. LOOK FOR A TOPDOC ASAP Goiter means you need iodine.

> Gracia

>

> > Just wanted to introduce myself and hopefully get some good info

> > from all of you.

> > I have Hypotyroidism, actually my thyoid has completely shut

down.

> > A little background.. After I had my son, was diagnose with hypo,

> > put on meds, moved and ended up with a new dr that said that I

was

> > fine. That was 9 years ago. I have had my levels tested and was

> > always high but not high enough to do anything about it. Just

> > recently my goiter became extremely enlarge that I could feel it

> > when I swallowed. Had my levels tested again and this time they

> > came back OVER 150. 150 is as high as their test goes. Does

anyone

> > know what damage this could do to someone? Dr. wouldn't tell me

what

> > she was calling me ever few days to check up on me.. not a good

> > sign. I have had an ultrasound done- no nodules. I was put on a

low

> > dose of meds and had a very bad reaction (migraines,loss of

sight,

> > headaches etc), went to the specialist who had to put me on a

lower

> > dose and gradually increase it from there. So that is where I am

now

> > and with all these problems I am still underweight. It has not

> > caused me to gain any weight.. just confused on that one.. I

know, I

> > should be happy about it.

> > Any ideas, tips, would be greatly helpful (hair loss, dry skin..

I

> > looke like a snake shedding, swelling)

> >

> >

> > Dawn

> >

> >

> >

> >

> >

> >

>

>

>

> --

> No virus found in this outgoing message.

> Checked by AVG Anti-Virus.

> Version: 7.0.323 / Virus Database: 267.8.16/50 - Release Date:

7/15/2005

[Guest guest]

,

Sorry I'm behind here, but wanted to say welcome. I see that you have

gotten good advice already and that Dustie has contacted you, so you

are in good hands. Feel free to ask any questions you have,

CAROLG

--- In Plagiocephaly , " " <hotmama.maria@g...>

wrote:

> Hi all, I am a brand new member - woohoo. My son has scaphocephaly

> and his doctors (a geneticist and our ped) feel he'll 'grow into'

his

> head. His head is elongated and if you're over him his head is kind

> of pear shaped - bigger in the back. I am increasingly concerned

over

> his head shape - he'll be 1 on August 16th and was a preemie. I was

> wondering if anyone has experience with scaphocephaly - he has

> no 'breaks' in his forehead and it doesn't jut out a lot, but if

this

> is something he needs help with I want him to get it now rather than

> later. I understand babies heal well. I just don't want his brain

> growth to be hindered. He had an xray on his head but nothing more

> than that....

>

>

[Guest guest]

,

Sorry I'm behind here, but wanted to say welcome. I see that you have

gotten good advice already and that Dustie has contacted you, so you

are in good hands. Feel free to ask any questions you have,

CAROLG

--- In Plagiocephaly , " " <hotmama.maria@g...>

wrote:

> Hi all, I am a brand new member - woohoo. My son has scaphocephaly

> and his doctors (a geneticist and our ped) feel he'll 'grow into'

his

> head. His head is elongated and if you're over him his head is kind

> of pear shaped - bigger in the back. I am increasingly concerned

over

> his head shape - he'll be 1 on August 16th and was a preemie. I was

> wondering if anyone has experience with scaphocephaly - he has

> no 'breaks' in his forehead and it doesn't jut out a lot, but if

this

> is something he needs help with I want him to get it now rather than

> later. I understand babies heal well. I just don't want his brain

> growth to be hindered. He had an xray on his head but nothing more

> than that....

>

>

[Guest guest]

Hi . I see you have gotten a lot of

advice already so I just wanted to say welcome to the group and please post any

questions you have. We are happy to help.

Becky

, repo grad

Pittsburgh, PA

Re: New here

Hi ,

Welcome to the group. What is his adjusted

age? In the banding world they use adjusted. At his age he is too

old for repositioning, but he could be banded if the severity warranted.

Are you near a Cranial Tech? THey have the most experience with the

scaphy headshape. However, I do believe the STARband was approved for

scaphy treatment in the past year.

Here is a link www.cranialtech.com

They have some severity assessment forms on their website - look near the

bottom of the main page.

mom to na (2yrs) DOC Grad and Kiersten (6 wks)

Preventative Repo

www.thefilyaws.com

<hotmama.maria@...>

wrote:

Hi all, I am a brand new member - woohoo. My son

has scaphocephaly

and his doctors (a geneticist and our ped) feel

he'll 'grow into' his

head. His head is elongated and if you're

over him his head is kind

of pear shaped - bigger in the back. I am

increasingly concerned over

his head shape - he'll be 1 on August 16th and was

a preemie. I was

wondering if anyone has experience with

scaphocephaly - he has

no 'breaks' in his forehead and it doesn't jut out

a lot, but if this

is something he needs help with I want him to get

it now rather than

later. I understand babies heal well.

I just don't want his brain

growth to be hindered. He had an xray on his

head but nothing more

than that....

For more

plagio info

[Guest guest]

Hi . I see you have gotten a lot of

advice already so I just wanted to say welcome to the group and please post any

questions you have. We are happy to help.

Becky

, repo grad

Pittsburgh, PA

Re: New here

Hi ,

Welcome to the group. What is his adjusted

age? In the banding world they use adjusted. At his age he is too

old for repositioning, but he could be banded if the severity warranted.

Are you near a Cranial Tech? THey have the most experience with the

scaphy headshape. However, I do believe the STARband was approved for

scaphy treatment in the past year.

Here is a link www.cranialtech.com

They have some severity assessment forms on their website - look near the

bottom of the main page.

mom to na (2yrs) DOC Grad and Kiersten (6 wks)

Preventative Repo

www.thefilyaws.com

<hotmama.maria@...>

wrote:

Hi all, I am a brand new member - woohoo. My son

has scaphocephaly

and his doctors (a geneticist and our ped) feel

he'll 'grow into' his

head. His head is elongated and if you're

over him his head is kind

of pear shaped - bigger in the back. I am

increasingly concerned over

his head shape - he'll be 1 on August 16th and was

a preemie. I was

wondering if anyone has experience with

scaphocephaly - he has

no 'breaks' in his forehead and it doesn't jut out

a lot, but if this

is something he needs help with I want him to get

it now rather than

later. I understand babies heal well.

I just don't want his brain

growth to be hindered. He had an xray on his

head but nothing more

than that....

For more

plagio info

[Guest guest]

Thanks so much ladies! Dominic was a little over 5 weeks early. He

just turned 11 months on Saturday - he's still a little guy for his

age but he's doing well. We're in the middle of a move - moving from

IN to South FL in a week and a half but our ped wants us to find a

ped. neuro as soon as we get there so first will be finding a good

ped, then we'll look for a new neuro.

On 7/18/05, becky@... <becky@...> wrote:

>

>

> Hi . I see you have gotten a lot of advice already so I just wanted to

> say welcome to the group and please post any questions you have. We are

> happy to help.

>

>

>

> Becky

>

> , repo grad

>

> Pittsburgh, PA

>

>

>

>

> Re: New here

>

>

>

>

> Hi ,

>

>

> Welcome to the group. What is his adjusted age? In the banding world they

> use adjusted. At his age he is too old for repositioning, but he could be

> banded if the severity warranted. Are you near a Cranial Tech? THey have

> the most experience with the scaphy headshape. However, I do believe the

> STARband was approved for scaphy treatment in the past year.

>

>

>

>

>

> Here is a link www.cranialtech.com They have some severity assessment forms

> on their website - look near the bottom of the main page.

>

>

>

>

>

>

>

>

> mom to na (2yrs) DOC Grad and Kiersten (6 wks) Preventative Repo

>

>

> www.thefilyaws.com

>

>

>

>

>

>

>

> <hotmama.maria@...> wrote:

>

>

> Hi all, I am a brand new member - woohoo. My son has scaphocephaly

> and his doctors (a geneticist and our ped) feel he'll 'grow into' his

> head. His head is elongated and if you're over him his head is kind

> of pear shaped - bigger in the back. I am increasingly concerned over

> his head shape - he'll be 1 on August 16th and was a preemie. I was

> wondering if anyone has experience with scaphocephaly - he has

> no 'breaks' in his forehead and it doesn't jut out a lot, but if this

> is something he needs help with I want him to get it now rather than

> later. I understand babies heal well. I just don't want his brain

> growth to be hindered. He had an xray on his head but nothing more

> than that....

>

>

>

>

>

>

>

>

> For more plagio info