Re: how long can the initial regression be?

[Guest guest]

:

As difficult as it is to witness and live through, behavioral regression is

usually a good sign that your son will benefit from the diet. My son went

through 3-4 weeks of severe regression, followed by a " plateau " period of

about a month. Then, suddenly one morning his stools were formed instead of

mushy, and the improvements in behavior, language use and cognitive ability

began simultaneously. Remember that gluten can take a long time to leave the

body, even though the child's dietary intake is 100% gluten-free.

My son has been on the diet for 5 months and we are thrilled with the results

we''ve seen. Hang in there a bit longer, and hopefully you'll see

improvement too.

Deborah, Mom to (5yr NT) and Aidan (3yr AS)

[Guest guest]

Hang in! My son's regression lasted 7 weeks. It was worth the wait, since

the school was complaining constantly about him. Once we got through the

withdrawl period, the school began to rave about him.

a - Madison WI

> Does anyone out there know, or have an idea about

> how long the regression period is, on average? I really can't take

> much more of watching my child screaming and rolling all over the

> floor.

> -

[Guest guest]

Beginning the diet during Summer vacation has been a

good thing for us. I have a feeling that we will be

treating for yeast soon but all the talk of regression

and undesirable behaviors worries me about doing it

during the school year...or at least at the beginning

of it. Jake's new teacher needs to get to know the

sweetie he is before he turns into some kind of die

off demon.

As I'm thinking of the upcoming school year....I plan

to write up a letter to Jake's teacher explaining the

diet and requesting that he only eat foods that I send

for him. I also have a recipe for gfcf playdough I'll

make and send to school with him. Have most of you

had good luck on school following the dietary

restrictions?

Rhonda

__________________________________________________

[Guest guest]

Rhonda,

If you have the diet written into your child's IEP, the school MUST follow

it. But they usually are not aware of the scary stuff, like glue, paint,

sunscreen etc. You should also mention that the staff needs to prevent your

child from sneaking food from other kids. I am sending a letter to school

asking that an aide sit between my son and the nearest child, so he can't

snag a cheeto or something.

Re: how long can the initial regression be?

> Beginning the diet during Summer vacation has been a

> good thing for us. I have a feeling that we will be

> treating for yeast soon but all the talk of regression

> and undesirable behaviors worries me about doing it

> during the school year...or at least at the beginning

> of it. Jake's new teacher needs to get to know the

> sweetie he is before he turns into some kind of die

> off demon.

>

> As I'm thinking of the upcoming school year....I plan

> to write up a letter to Jake's teacher explaining the

> diet and requesting that he only eat foods that I send

> for him. I also have a recipe for gfcf playdough I'll

> make and send to school with him. Have most of you

> had good luck on school following the dietary

> restrictions?

>

> Rhonda

>

>

> __________________________________________________

>

[Guest guest]

Rhonda

My son goes to his school ( ABA Program ) 12 monthe a year, of course

with 4 vacation weeks in there. I started this diet 1 week ago and I came up

with a daily list of snacks and foods that are acceptable. I send in all my

sons foods and the school has been great. Noting behaviors and what foods he

did eat that I sent in. I have had no problem starting this diet as far as

school goes. As for baking thats another story LOLOLOL. Hope your sons school

is as adaptive and cooperative as my sons school is.

Hope I made you feel a little better.

Terry, Mass

[Guest guest]

In a message dated 07/31/2000 9:12:15 AM Eastern Daylight Time,

angelamariemason@... writes:

<< Does anyone out there know, or have an idea about

how long the regression period is, on average? I really can't take

much more of watching my child screaming and rolling all over the

floor. >>

Congratulations; the diet is working! All the Poisson is leaving his body and

when it is over you should have a new child. Hang in there; there is no

generic answer as to how long it lasts; they are all different. My child had

almost no withdrawal with casein and did remarkable until about the third

month of the diet then had a two week horrible gluten withdrawal. It will get

better!

Angie in Jax

's Mom (6yrs old ASD)

[Guest guest]

I know EXACTLY what you are going through. We are on day 7 of the

diet, and for the past 3 days, Tommy has refused to eat. I can get

him to eat an occasional frito, a bit of a sandwhich which he usually

spits out onto the floor. He is drinking ALOT of juice, and eating

popcorn. Thats about it for his diet right now. As far as his

tantrums, well, 2 days ago, he started a tantrum at around 4 pm, and

it went constant until about 1am. He gave us about a 45 minute break

at 10pm.. but came back full force. He has been like this for the

past 5 days. Usually he is very excited when he sees the school bus

arrive. This morning, he was so angry, and when I tried to help him

onto the bus, he started another tantrum. Took me 40 minutes to get

him calmed down. I know this is a good sign that he is going through

the withdrawls, but it just breaks my heart to see him struggling so

much. If I could just make it through this period... I will be ok.

I have NEVER had to deal with something so hard in my entire life.

Rhonda

NH

> My son has been on the gfcf diet for 3 weeks now. We're not sure

if

> we've seen any improvement because he normally goes through

echolalic

> phases and then nothing for a couple of months. What we have seen

is

> a sudden onset of SEVERE, frequent tantrums. At times, they are

> uncontrollable. This has only happened once before, and it was

just

> as we were trying to determine what type of developmental delay he

> had--autism had not even been mentioned yet. Luckily, the stint

was

> only about two weeks long. This has been going on since the day we

> began the diet. Does anyone out there know, or have an idea about

> how long the regression period is, on average? I really can't take

> much more of watching my child screaming and rolling all over the

> floor.

> -

[Guest guest]

Rhonda

Could you please tell me what vitamins / minerals and supplements

your child is on. I was sent a list from Great Plains Labs when my sons test

results came back and I am really afraid about this whole die-off thing. He

was a 4+ ( positive ) for Candidia. Thanks

Terry