New to Group

[Guest guest]

J. Schwarzman, MD

Dept of Neurology MCP

Hahnemann Hospital

245 N 15th Street, Room 7102

Philadelphia, PA 19102

Tel.: <215> 762-7090

Fax: <215> 762-3161

I also was dx'd with possible MS and went to see Dr. Schwarzman. He ruled

out MS <thank you GOD> and referred me back to my neurologist who continued

to have me tested for ACM. Hope this helps.

Take care,

bren..............})i({

[Guest guest]

Hi, ...welcome to the group. Tell us something about your diabetes. What

do you do for control? Pills? Insulin? What kind? Do you exercise

regularly? What was your last A1C? Are you pleased with your control? What

kind of diet do you follow?

Vicki

In a message dated 11/09/2002 8:12:26 PM US Mountain Standard Time,

DarkSonnet2@... writes:

>

> Hi All,

> I am new to this group thanks to another member. My name is

> Fansler and I have been a Type II diabetic since 1986

[Guest guest]

DarkSonnet2@... wrote:

> Hi All,

> I am new to this group thanks to another member. My name is

> Fansler and I have been a Type II diabetic since 1986, 17 years next May.

> June 26 of this year I had a kidney transplant and am doing well with that,

> but I'm having some leg circulation problems now, but that's being worked on

> too. Had an angioplasty done this past Thursday, so now I'll be able to get

> out and start exercising again (I used to walk 3 miles a day before I spent 7

> months on dialysis). I also love horseback riding. I hope to be able to

> share some things I have learned over the years and learn some things from

> all of you!

> Fansler

Greetings ,

I am responding to the above post as well as another you posted later

with more information.

I am so sorry to hear that you have already suffered some very

traumatic diabetic complications. I am glad that you are doing so well

at this point. Surely getting off the dialysis lifts a big burden from

you. Getting back to the walking and horseback riding should boost

your spirits some more.

Leg circulation problems are one of the very common complications

brought on by high bg levels (above normal non-diabetic 70-110mg/dl &

HbA1c less than 6.0%). It has been shown that if bg's are maintained

in these " normal ranges " , the progress of this complication can be

halted and even, in some cases, some of the damage reversed. It is

certainly worth a try, halting further damage at the very least.

I am very curious if you are able to maintain your bg's in the " normal

non-diabetic " range using the exchange eating plan and your insulin

regimen. The reason I ask is that I can count on 1 hand the diabetics

that I know of who use the exchange plan and are able to successfully

maintain tight control in the " normal " range. If you are successful, I

would sure like to hear how you do it as the vast majority fail.

It sounds like thay really put a stess on you at the clinics with all

the early hours and then hours of waiting. That doesn't sound very

patient-friendly to me. I hope that after all that they are able to

provide you good medical care (by your definition, not theirs!).

The more I hear from persons like yourself that are intimately

familiar how hospitals work and the level of care we receive in them,

the less I want to ever go there again.

In general I have had no serious complaints about hospital care except

one nurse who stabbed me with a lancet in her hand to check my bg's! I

let her know that wasn't going to happen again and from then on used

my own lancing device and tester for bg testing. They weren't happy,

but I did it anyway!

Yes, it is we, the patients, that must be in control of your diabetes

treatment regimen. No one else knows how our body works. We can

fine-tune our lifestyle and achieve " excellent control " in those

" normal non-diabetic " ranges, and I have yet to hear of a Dr even

suggesting that can be done!

Well, enough for not. Hope to hear more from you. What you have

learned and any questions you may have. There are many here on this

list that are living with excellent control and more than willing to

share what works for them. Of course, we are all different and YMMV.

Oregon

[Guest guest]

Good Going that's alot of weight to lose..... Keep a going

Jane

-- new to group

Hello every one on this group

I have been reading posts and I have learned alot from every one on here

I am a 43 year old type 2 diab.got it when I was 39 my pills have been

doubled because of high readings in the morning of over 300 the dr wants

to put me on insulin ' like my father was on

I decided to try to lose some weight a friend of mine has lost 68 pounds

doing something so simple

she told me if I wanted to lose weight not to eat after 6 pm at night so

I thought id try it so far in 2 weeks I have lost 12 pounds and my suger

readings in the morning have been 71 to 118 the lowest I have had in a

long time

I still have 50 more pounds to go just to think all i have to do is not eat

ater 6 at night I am no longer hungry either

thought maybe some one struggling with weight might want to try this

Frances

[Guest guest]

Hey Welcome..Welcome!!! Sorry to hear of all your past personal trials but thank you for your wonderful honesty. You will enjoy this group. The people here as a group are very caring and knowledgeable. Hey don't go worrying about your spelling, we wont even notice.......remember we all are taking our turns at waddling through our thick layers of fibro fog. LOL!! My name is I am 45 married with one married daughter. My daughter and her hubby just had their third child. I have been diagnosed for 17 yrs. Had it for many yrs prior. It took a good 2 and 1/2 yrs to finally be diagnosed. I work in the school system with special need children and those at risk. Well that's me!! Welcome a Canadian Fibro Friend linda_breault wrote: Hey there,Just wanted to intoduce myself. First before I tell you anything. Please forgive my spelling. I don't spell that well and then most of the time I live in a fog and forget how to spell. My name is Breault. I am 39, going to hit the big 40 in May. Not sure if I am happy about that or not.It was put on paper that I had FMS in 1995, I think I had it a long time

before then. When I was about 11 I was jumping off the top of a 2 story house into a pool and missed the pool. OOPS!! After that I always seemed to be in pain but since both my parents were ill themselves I never spoke up about it. Then I joined a church (ok lets be honest here, it turned out to be a cult) for 15 years. I worked a full time job of about 50 to 60 hours a week and then worked in the cult for another 30 to 40 hours a week. I believe this is when things really flared up for me. But I always try to be a trooper and push thru things. I left, (ok, again being honest) ran like he*l from the cult, moved out of state in 2001 trying to get better. Since the cult was determined to work me to death and take all my money. About 1 1/2 years ago, I had to quit working due to servere ibs. (My job told me they were no longer going to pay me to go to the

bathroom.) So I have been a stay at home wife and was trying to become happy with doing some social work and trying to volenteer when I could. About 6 months ago, my knees start to hurt and 3 months ago it went into my feet. They are stiff and won't bend or do what I tell them to do. I really can't walk anymore. My 82 years old friend walks better than I do. Now the pain has gone up into my hips and lower and upper back and neck. (Give me a Break here) I was without insurance until March 1st (Yipee) and went and saw the dr. yesterday and was told it could be several things, like a flare of fms,lupus,or arthritis. So he took a ton of blood and will get back with me in a couple of weeks. He is also going to send me to a Rheumatologist (Hope thats spelled right). I am sure it will take months to get an appt. I just started Provigil today and yes I do believe it

has given me energy but my damn kness and feet and back won't let me do anything so now I am all alert and ready to go but the body is not willing.Anyways, thats my little story. I left a lot out of course since I didn't want to put all of you to sleep. Hope this post is not to long but I am excited to be in this group. I hope you can all take my humor. Its a strange one and if you want to know why I will tell you but let me warn you it has to do with a funeral home, ha ha. Breault

Enrich your life at Yahoo! Canada Finance

[Guest guest]

Hi , Thanks for the welcome. No need to feel sorry about my past. I have learned so much about people, and life and of course myself. I would not trade it for anyting in the world. It had it's hard times but I believe those are the times that I grew a backbone and my sense of humor for sure. I love your profession. I volunteer for people, children with special needs and love it. Right now I work with 4 women who live together that are in their 80's well 2 are 78 and then 81 and 82. These 4 women lost their homes in Katrina and have relocated to NC. They found each other in the shelter and decided they were going to become friends and stay together and we have not been able to seperate them since. Of course we never will either. wendy lefebvre wrote: Hey Welcome..Welcome!!! Sorry to hear of all your past personal trials but thank you for your wonderful honesty. You will enjoy this group. The people here as a group are very caring and knowledgeable. Hey don't go worrying about your spelling, we wont even notice.......remember we all are taking our turns at waddling through our thick layers of fibro fog. LOL!! My name is I am 45 married with one married daughter. My daughter and her hubby just had their third child. I have been diagnosed for 17 yrs. Had it for many yrs prior. It

took a good 2 and 1/2 yrs to finally be diagnosed. I work in the school system with special need children and those at risk. Well that's me!! Welcome a Canadian Fibro Friend linda_breault wrote: Hey there,Just wanted to intoduce myself. First before I tell you anything. Please forgive my spelling. I don't spell that well and then most of the time I live in a fog and forget how to spell. My name is Breault. I am 39, going to hit the big 40 in May. Not sure if I am happy about that or not.It was

put on paper that I had FMS in 1995, I think I had it a long time before then. When I was about 11 I was jumping off the top of a 2 story house into a pool and missed the pool. OOPS!! After that I always seemed to be in pain but since both my parents were ill themselves I never spoke up about it. Then I joined a church (ok lets be honest here, it turned out to be a cult) for 15 years. I worked a full time job of about 50 to 60 hours a week and then worked in the cult for another 30 to 40 hours a week. I believe this is when things really flared up for me. But I always try to be a trooper and push thru things. I left, (ok, again being honest) ran like he*l from the cult, moved out of state in 2001 trying to get better. Since the cult was determined to work me to death and take all my money. About 1 1/2 years ago, I had to quit working due to servere

ibs. (My job told me they were no longer going to pay me to go to the bathroom.) So I have been a stay at home wife and was trying to become happy with doing some social work and trying to volenteer when I could. About 6 months ago, my knees start to hurt and 3 months ago it went into my feet. They are stiff and won't bend or do what I tell them to do. I really can't walk anymore. My 82 years old friend walks better than I do. Now the pain has gone up into my hips and lower and upper back and neck. (Give me a Break here) I was without insurance until March 1st (Yipee) and went and saw the dr. yesterday and was told it could be several things, like a flare of fms,lupus,or arthritis. So he took a ton of blood and will get back with me in a couple of weeks. He is also going to send me to a Rheumatologist (Hope thats spelled right). I am sure it will take

months to get an appt. I just started Provigil today and yes I do believe it has given me energy but my damn kness and feet and back won't let me do anything so now I am all alert and ready to go but the body is not willing.Anyways, thats my little story. I left a lot out of course since I didn't want to put all of you to sleep. Hope this post is not to long but I am excited to be in this group. I hope you can all take my humor. Its a strange one and if you want to know why I will tell you but let me warn you it has to do with a funeral home, ha ha. Breault Enrich your life at Yahoo! Canada Finance __________________________________________________

[Guest guest]

How wonderful that these ladies are with help able to stay together after such a horrific tragedy. It must make you feel so good inside. By the way I love your sense of humor. Breault wrote: Hi , Thanks for the welcome. No need to feel sorry about my past. I have learned so much about people, and life and of course myself. I would not trade

it for anyting in the world. It had it's hard times but I believe those are the times that I grew a backbone and my sense of humor for sure. I love your profession. I volunteer for people, children with special needs and love it. Right now I work with 4 women who live together that are in their 80's well 2 are 78 and then 81 and 82. These 4 women lost their homes in Katrina and have relocated to NC. They found each other in the shelter and decided they were going to become friends and stay together and we have not been able to seperate them since. Of course we never will either. wendy lefebvre wrote: Hey Welcome..Welcome!!! Sorry to hear of all your past personal trials but thank you for your wonderful honesty. You will enjoy this group. The people here as a group are very caring and knowledgeable. Hey don't go worrying about your spelling, we wont even notice.......remember we all are taking our turns at waddling through our thick layers of fibro fog. LOL!! My name is I am 45 married with one married daughter. My daughter and her hubby just had their third child. I have been diagnosed for 17 yrs. Had it for many yrs prior. It took a good 2 and 1/2 yrs to finally be diagnosed. I work in the school system with special need children and

those at risk. Well that's me!! Welcome a Canadian Fibro Friend linda_breault wrote: Hey there,Just wanted to intoduce myself. First before I tell you anything. Please forgive my spelling. I don't spell that well and then most of the time I live in a fog and forget how to spell. My name is Breault. I am 39, going to hit the big 40 in May. Not sure if I am happy about that or not.It was put on paper that I had FMS in 1995, I think I had it a long time before then. When I was about 11 I was jumping off the top of a 2 story house into a pool and

missed the pool. OOPS!! After that I always seemed to be in pain but since both my parents were ill themselves I never spoke up about it. Then I joined a church (ok lets be honest here, it turned out to be a cult) for 15 years. I worked a full time job of about 50 to 60 hours a week and then worked in the cult for another 30 to 40 hours a week. I believe this is when things really flared up for me. But I always try to be a trooper and push thru things. I left, (ok, again being honest) ran like he*l from the cult, moved out of state in 2001 trying to get better. Since the cult was determined to work me to death and take all my money. About 1 1/2 years ago, I had to quit working due to servere ibs. (My job told me they were no longer going to pay me to go to the bathroom.) So I have been a stay at home wife and was trying to become happy with doing some social

work and trying to volenteer when I could. About 6 months ago, my knees start to hurt and 3 months ago it went into my feet. They are stiff and won't bend or do what I tell them to do. I really can't walk anymore. My 82 years old friend walks better than I do. Now the pain has gone up into my hips and lower and upper back and neck. (Give me a Break here) I was without insurance until March 1st (Yipee) and went and saw the dr. yesterday and was told it could be several things, like a flare of fms,lupus,or arthritis. So he took a ton of blood and will get back with me in a couple of weeks. He is also going to send me to a Rheumatologist (Hope thats spelled right). I am sure it will take months to get an appt. I just started Provigil today and yes I do believe it has given me energy but my damn kness and feet and back won't let me do anything so now I am all

alert and ready to go but the body is not willing.Anyways, thats my little story. I left a lot out of course since I didn't want to put all of you to sleep. Hope this post is not to long but I am excited to be in this group. I hope you can all take my humor. Its a strange one and if you want to know why I will tell you but let me warn you it has to do with a funeral home, ha ha. Breault Enrich your life at Yahoo! Canada Finance __________________________________________________

[Guest guest]

Hi Peggy, Thank you for the warm welcome. I am excited about the group. Since I have not been able to work, it has been pretty lonely. Most of the time I am to sick to go out with old work friends so I have been forgotten. I have done a bit of volunteer work but that is only 2 hours a week if I am lucky. So it can be a bit lonely at times. My wonderful husband works two jobs to support us while I try to take care of the house and play in the Internet when I can. He thinks I slave around the house all day but how dirty can the house get if there is only really one person around to mess it up. I did join a coupon group and have been learning to pinch pennies to make things easier on us. I recently learned I have Celia's so no more eating cheap food. No more of that yummy pasta or bread. Now it's meat and potatoes or rice,

ha ha. I also just learned that I have autoimmune progesterone which mean I am allergic to my own hormones. My mother always told me I was my worst enemy. Well I hope to learn tons here and just make some new cyber friends - take care and hope to chat with you soon. Peggy wrote: Hi ,Welcome. I know you're going to find some great friends here. I've found a lot of help thru this site althought I haven't offered that much assistance myself. I have diabetes, menieres, DDD, fibro, sleep apnea, pernicious anemia etc, etc, etc,. Boring.Anyways, I too worked with kids at risk but had to "retire" in 2001. I can't do it anymore.Keep reading the posts like I do and you'll receive an abundance of

knowledge, compassion, and hope!Keep plugging away! Peggy (Irish) >> Hi ,> > Thanks for the welcome. No need to feel sorry about my past. I have learned so much about people, and life and of course myself. I would not trade it for anyting in the world. It had it's hard times but I believe those are the times that I grew a backbone and my sense of humor for sure. > > I love your profession. I volunteer for people, children with special needs and love it. > > Right now I work with 4 women who live together that are in their 80's well 2 are 78 and then 81 and 82. These 4 women lost their homes in Katrina and have relocated to NC. They found each other in the shelter and decided they were

going to become friends and stay together and we have not been able to seperate them since. Of course we never will either. > > > wendy lefebvre wrote:> Hey > > Welcome..Welcome!!!> Sorry to hear of all your past personal trials but thank you for your wonderful honesty.> > You will enjoy this group. The people here as a group are very caring and knowledgeable.> Hey don't go worrying about your spelling, we wont even notice.......remember we all are taking our turns at waddling through our thick layers of fibro fog. LOL!!> > My name is I am 45 married with one married daughter. My daughter and her hubby just had their third child. > I

have been diagnosed for 17 yrs. Had it for many yrs prior. It took a good 2 and 1/2 yrs to finally be diagnosed.> > I work in the school system with special need children and those at risk.> Well that's me!!> > Welcome> a Canadian Fibro Friend> > > linda_breault wrote:> Hey there,> > Just wanted to intoduce myself. First before I tell you anything. > Please forgive my spelling. I don't spell that well and then most > of the time I live in a fog and forget how to spell. > > My name is Breault. I am 39, going to hit the big 40 in May. > Not sure if I am happy about that or not.> > It was put on paper that I had FMS in 1995, I

think I had it a long > time before then. When I was about 11 I was jumping off the top of > a 2 story house into a pool and missed the pool. OOPS!! After that > I always seemed to be in pain but since both my parents were ill > themselves I never spoke up about it. Then I joined a church (ok > lets be honest here, it turned out to be a cult) for 15 years. I > worked a full time job of about 50 to 60 hours a week and then > worked in the cult for another 30 to 40 hours a week. I believe > this is when things really flared up for me. But I always try to be > a trooper and push thru things. > > I left, (ok, again being honest) ran like he*l from the cult, moved > out of state in 2001 trying to get better. Since the cult was > determined to work me to death and take all my money. About 1 1/2 > years ago, I had to

quit working due to servere ibs. (My job told > me they were no longer going to pay me to go to the bathroom.) So I > have been a stay at home wife and was trying to become happy with > doing some social work and trying to volenteer when I could. About > 6 months ago, my knees start to hurt and 3 months ago it went into > my feet. They are stiff and won't bend or do what I tell them to > do. I really can't walk anymore. My 82 years old friend walks > better than I do. Now the pain has gone up into my hips and lower > and upper back and neck. (Give me a Break here) I was without > insurance until March 1st (Yipee) and went and saw the dr. yesterday > and was told it could be several things, like a flare of > fms,lupus,or arthritis. So he took a ton of blood and will get back > with me in a couple of weeks. He is also going to

send me to a > Rheumatologist (Hope thats spelled right). I am sure it will take > months to get an appt. > > I just started Provigil today and yes I do believe it has given me > energy but my damn kness and feet and back won't let me do anything > so now I am all alert and ready to go but the body is not willing.> > Anyways, thats my little story. I left a lot out of course since I > didn't want to put all of you to sleep. Hope this post is not to > long but I am excited to be in this group. I hope you can all take > my humor. Its a strange one and if you want to know why I will tell > you but let me warn you it has to do with a funeral home, ha ha. > > Breault > > > > > > > > ---------------------------------> Enrich your life at Yahoo! Canada

Finance > > 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.> > 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.> > 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe > > 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense of humor.> > 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support.> > Have a nice day everyone.> > > > >

[Guest guest]

HI Kellie,

Welcome to the group. I've had fibro about 8 years too

but fortunately just recently - like the last three

months it has been really pretty decent allowing me to

work parttime.

You'll find lots of good support, information, laughs

and whatever you need here. I know others will be

interested to hear more about your experiences too.

Welcome,

is

PS - went the psychological referral route too!

--- Kellie Ross wrote:

> Hi all,

> I am new to this group, though not new to fibro. I

> was diagnosed with fibro. over 8 years ago.

> Although I have other health problems (spinal

> arthritis) the fibro. is the bane of my existance.

> I was granted my SSD in Oct. of 2004, before that I

> had almost 20 years as an RN. I have tried about

> every therapy known for fibro., but have never gone

> completely into remission. I do diet, nutrition,

> exercise, physical therapy, trigger point

> injections, and more medications then I care to

> admit. I have also gone to pain clinics and

> biofeedback training. (I like to tell people that

> you are not a member of the fibro. club until you

> have recieved your first psychological referral when

> you go in to see the Dr. for pain!)

>

> I joined this group because we are in the first

> stages of a long distance move and I am feeling a

> little cut off from any support group. We are

> moving from Colorado, to a warmer climate on the

> coast of Texas. (guess why!!!) I am hoping I can

> become a valuable member of this group, not just

> recieving support, but giving it as well. I have

> alot of medical knowledge and understanding to

> share, and I have also been through the SSD process.

> (which took me 3 years!) I understand that is still

> a fairly rare thing. Not impossible, just rare.

>

> Anyway, that is me and I am glad to find some new

> friends. Thanks for listening.

> Kellie

>

> If logic tells us that life is a meaningless

> accident, don't give up on life, give up on logic.

> If logic tells you that in the long run nothing you

> do makes a difference, then don't live in the long

> run. Life is a series of moments--to live each one

> is to succeed.

>

I sometimes pity people who

have never felt just cause

to share the bond between two souls,

one with hands, and one with paws.

Please click on my reward link so I can earn a reward! Thanks!

http://rewardhits.com/index.php?hit=15009

__________________________________________________

[Guest guest]

Kellie,

Wow, you summed it all up, and welcome to you! Yeah

fun stuff isn't it? Look forward to talking with you

and hope all is well!-DEB

--- Kellie Ross wrote:

> Hi all,

> I am new to this group, though not new to fibro. I

> was diagnosed with fibro. over 8 years ago.

> Although I have other health problems (spinal

> arthritis) the fibro. is the bane of my existance.

> I was granted my SSD in Oct. of 2004, before that I

> had almost 20 years as an RN. I have tried about

> every therapy known for fibro., but have never gone

> completely into remission. I do diet, nutrition,

> exercise, physical therapy, trigger point

> injections, and more medications then I care to

> admit. I have also gone to pain clinics and

> biofeedback training. (I like to tell people that

> you are not a member of the fibro. club until you

> have recieved your first psychological referral when

> you go in to see the Dr. for pain!)

>

> I joined this group because we are in the first

> stages of a long distance move and I am feeling a

> little cut off from any support group. We are

> moving from Colorado, to a warmer climate on the

> coast of Texas. (guess why!!!) I am hoping I can

> become a valuable member of this group, not just

> recieving support, but giving it as well. I have

> alot of medical knowledge and understanding to

> share, and I have also been through the SSD process.

> (which took me 3 years!) I understand that is still

> a fairly rare thing. Not impossible, just rare.

>

> Anyway, that is me and I am glad to find some new

> friends. Thanks for listening.

> Kellie

>

> If logic tells us that life is a meaningless

> accident, don't give up on life, give up on logic.

> If logic tells you that in the long run nothing you

> do makes a difference, then don't live in the long

> run. Life is a series of moments--to live each one

> is to succeed.

>

__________________________________________________

[Guest guest]

Welcome to the group Kellie, hope you make a bundle of friends and learn many new things here! Christie -- new to group Hi all, I am new to this group, though not new to fibro. I was diagnosed with fibro. over 8 years ago. Although I have other health problems (spinal arthritis) the fibro. is the bane of my existance. I was granted my SSD in Oct. of 2004, before that I had almost 20 years as an RN. I have tried about every therapy known for fibro., but have never gone completely into remission. I do diet, nutrition, exercise, physical therapy, trigger point injections, and more medications then I care to admit. I have also gone to pain clinics and biofeedback training. (I like to tell people that you are not a member of the fibro. club until you have recieved your first psychological referral when you go in to see the Dr. for pain!) I joined this group because we are in the first stages of a long distance move and I am feeling a little cut off from any support group. We are moving from Colorado, to a warmer climate on the coast of Texas. (guess why!!!) I am hoping I can become a valuable member of this group, not just recieving support, but giving it as well. I have alot of medical knowledge and understanding to share, and I have also been through the SSD process. (which took me 3 years!) I understand that is still a fairly rare thing. Not impossible, just rare. Anyway, that is me and I am glad to find some new friends. Thanks for listening. Kellie If logic tells us that life is a meaningless accident, don't give up on life, give up on logic. If logic tells you that in the long run nothing you do makes a difference, then don't live in the long run. Life is a series of moments--to live each one is to succeed.

CCDesigns

2006

Like My Letters Click Here

[Guest guest]

Hi Kellie, I started therapy with a really nice guy around January. It has helped mainly with good strategies in dealing with others in my family and my friends who don't understand the fibro. The guy that I go to has a great sense of humor so I didn't feel wierd about it at all. I have my last appoitment this Thursday and I have to say that it's been a much better experience then I anticipated. If you do decide to opt for therapy I would suggest making sure you really like the person and that they accept the fibro. Mine did without hesitation and that was a big boost because he was the first person to do so. Now a lot of other people have gotten in line to try and understand what I'm going through. I don't feel nearly as isolated. Good luck I hope that the warmer climate helps you a lot. I am the opposite. I live in Florida and the hot weather here aggravates my fibro. I have my best days during winter. JACKIE Pinkerton

wrote: Hi Kellie, Welcome and thanks for making me have a huge laugh. It was the refferal to Mental Health Professional. My Primary Care Doc who is an Internist kept asking me if I was depressed wanted me to fill out this psy profile. I did fill it out to be complient but I had fun with it drew little pictures and made comments on the side lines after he read it and forwarded it to the Psy Nurse praticoner they had a good laugh and decided that I was not depressed but had a healthy sense of humor . Good luck with the move. Any trips to getting the SSD please do share, I have only been off of work since Jan so I know I have a while to go still. Take care Jackie Reply-To: Fibromyalgia_Support_Group To: Fibromyalgia_Support_Group Subject: new to groupDate: Sun, 16 Apr 2006 15:10:42 -0600 Hi all, I am new to this group, though not new to fibro. I was diagnosed with fibro. over 8 years ago. Although I have other health problems (spinal arthritis) the fibro. is the bane of my existance. I was granted my SSD in Oct. of 2004, before that I had almost 20 years as an RN. I have tried about every therapy known for fibro., but have never gone completely into remission. I do diet, nutrition, exercise, physical therapy, trigger point injections, and

more medications then I care to admit. I have also gone to pain clinics and biofeedback training. (I like to tell people that you are not a member of the fibro. club until you have recieved your first psychological referral when you go in to see the Dr. for pain!) I joined this group because we are in the first stages of a long distance move and I am feeling a little cut off from any support group. We are moving from Colorado, to a warmer climate on the coast of Texas. (guess why!!!) I am hoping I can become a valuable member of this group, not just recieving support, but giving it as well. I have alot of medical knowledge and understanding to share, and I have also been through the SSD process. (which took me 3 years!) I understand that is still a fairly rare thing. Not impossible, just rare. Anyway, that is me and I am glad to find some new friends. Thanks for listening. Kellie If logic tells us that life is a meaningless accident, don't give up on life, give up on logic. If logic tells you that in the long run nothing you do makes a difference, then don't live in the long run. Life is a series of moments--to live each one is to succeed. 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general.2. If you are in a difficult situation (doesn't

matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better.3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor.5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support.Have a nice day everyone. YAHOO! GROUPS

LINKS Visit your group "Fibromyalgia_Support_Group" on the web.

[Guest guest]

HI Heidi,

Welcome to this support group. YOu will find lots of

loving and helpful friends here. We can all sympathize

with you. I never know if I have early onset alzhimers

or it is the FMS when I can't find any words! I am

assuming FMS

You'll love being part of this group.

is

--- Heidi wrote:

> Hello,

> My name is Heidi.

> I have been in pain for about 6 years. But, only dx

> for about a year.

> I've been through a ton of procedures, shots, MRI's,

> x-rays, therapys,

> etc. All with no help with the pain.

> The docs (I have been refered to many) don't want me

> on pain meds, but

> offer no releive for the pain.

> I have four kids. They are 14, 14, 5 and 4. My 5 yr

> old wants to 'find

> Dora's magic tape to fix mommy' so I can play with

> her.

> I never know when I get up if I will be able to walk

> or not. Or if

> when I talk the words come out right, or if they

> come out at all.

>

> Thanks,

> Heidi

>

>

>

>

>

>

>

>

I sometimes pity people who

have never felt just cause

to share the bond between two souls,

one with hands, and one with paws.

Please click on my reward link so I can earn a reward! Thanks!

http://rewardhits.com/index.php?hit=15009

__________________________________________________

[Guest guest]

Hi Heidi Welcome to a great place to share, learn and meet top notch people. A Canadian Fibro Friend Heidi wrote: Hello,My name is Heidi. I have been in pain for about 6 years. But, only dx for about a year.I've been through a ton of procedures, shots, MRI's, x-rays, therapys, etc. All with no help with the pain.The docs (I have been refered to many) don't want me on pain meds, but offer no releive for the pain.I have four kids. They are 14, 14, 5 and 4. My 5 yr old wants to 'find Dora's magic tape to fix mommy' so I can play with her.I never know when I get up if

I will be able to walk or not. Or if when I talk the words come out right, or if they come out at all. Thanks,Heidi

The best gets better. See why everyone is raving about the All-new Yahoo! Mail.

[Guest guest]

Heidi, I am so sorry you have Fibro and know pain more then anyone should. I am however glad that you got a diagnosis. I only use advil for the pain, and it usually barely dulls it. I did start a med a few days ago for my sleep problem, and since getting propper sleep my pain is not even nearly as bad. I also find that streching, and yoga help first thing in the morning, and also if you put some uncooked rice in a sock, and heat it up in the microwave it makes a great heat pad. If you have a Swimming pool near that has a sauna, I have heard alot of people get in the sauna first to loosen and warm their muscles, then they get in a warm pool, and move around in the water in a way that is comfortable for them. Most do this at night before bed. It makes me wish we had a pool near where I live. Welcome, and I know you will get the support you need here!Take care, Heidi wrote: Hello, My name is Heidi. I have been in pain for about 6 years. But, only dx for about a year. I've been through a ton of procedures, shots, MRI's, x-rays, therapys, etc. All with no help with the pain. The docs (I have been refered to many) don't want me on pain meds, but offer no releive for the pain. I have four kids. They are 14, 14, 5 and 4. My 5 yr old wants to 'find Dora's magic tape to fix mommy' so I can play with her. I never know when I get up if I will be able to walk or not. Or if when I talk the words come out right, or if they come out at all. Thanks, Heidi

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[Guest guest]

Heidi,

It is scary, I know!! You have to try and hang in

there. I was recently told that I would have to learn

to go without pain meds, not gonna happen!!! I too

have children all of about the same thing and my 5

year old asked for god to send a doctor that could

help. I would be happy to email back and fourth with

you as we sound in somewhat of the same position!!

supermommy76@..., and welcome to the group!!

Debbie

--- Heidi wrote:

> Hello,

> My name is Heidi.

> I have been in pain for about 6 years. But, only dx

> for about a year.

> I've been through a ton of procedures, shots, MRI's,

> x-rays, therapys,

> etc. All with no help with the pain.

> The docs (I have been refered to many) don't want me

> on pain meds, but

> offer no releive for the pain.

> I have four kids. They are 14, 14, 5 and 4. My 5 yr

> old wants to 'find

> Dora's magic tape to fix mommy' so I can play with

> her.

> I never know when I get up if I will be able to walk

> or not. Or if

> when I talk the words come out right, or if they

> come out at all.

>

> Thanks,

> Heidi

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Hi everyone!

I'm Lynn and have just joined this group, having been diagnosed with

fibro in May (at 52 years of age). I was also diagnosed with

inflammatory osteoarthritis and spinal stenosis. Believe it or not, I

was really happy to get those diagnoses! I've been having the symptoms

for so long without anyone adding them up together that it's a relief

to have some names put to them. At least now I know I'm not crazy!

I've been reading the posts and I'm so happy to find this group! It's

like you all " get it " ! Some of these posts could've been written by

me. I love it!

Thanks for sharing and helping me to understand that I'm not alone in

dealing with the ups and downs of everyday life. I'm looking forward

to getting to know you all and participating!

Lynn in IL