I'm new

[Guest guest]

Hi Shannie,

I have found eating Italian or Chinese to be the best solutions. They

offer the most fresh veggies. Most Italian restaurants have grilled and broiled

meats and fish, along with nice fresh vegetables. I love a nice big dish of

broccoli rabe with garlic, or spinach and garlic, broccoli and garlic. Add a

nice grilled salmon and your set. If you don't like fish, go with chicken or

steak. I get 2 orders of veggies often, so my plate is full and I don't feel

deprived. You just have to sit and ignore the bread and butter, pasta etc. It

is not so hard. To keep fat on, I eat almond butter or coconut butter. Lots

of pumpkin seeds, hempseeds and good fresh oils like flax and olive.

If I feel really hungry I add more eggs. I do 2 whey protein shakes a day.

If I go Chinese, I get steamed broccoli with jumbo shrimp. You can ask

for any order steamed, Chinese restaurants and Italian restaurants are usually

very accomodating. Stay away from chain restaurants where everything is

fixed, processed and laden with sauces.

It is hard when you start, but gets easier as you get used to it.

Many of us are doing it, you are not alone.

Terry

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

Hi Terry,

 

I really liked your advice!  I was afraid of italian bc exactly what you said

about the bread and pasta!  But if I can talk my bf into not ordering too much

of it in front of me, maybe I can go out to eat again.  I just end up having to

cook at home all the time, but I didn't realize chineese/ital could still work!

 

=) Faren

Re:I'm New

Hi Shannie,

I have found eating Italian or Chinese to be the best solutions. They

offer the most fresh veggies. Most Italian restaurants have grilled and broiled

meats and fish, along with nice fresh vegetables. I love a nice big dish of

broccoli rabe with garlic, or spinach and garlic, broccoli and garlic. Add a

nice grilled salmon and your set. If you don't like fish, go with chicken or

steak. I get 2 orders of veggies often, so my plate is full and I don't feel

deprived. You just have to sit and ignore the bread and butter, pasta etc. It

is not so hard. To keep fat on, I eat almond butter or coconut butter. Lots

of pumpkin seeds, hempseeds and good fresh oils like flax and olive.

If I feel really hungry I add more eggs. I do 2 whey protein shakes a day.

If I go Chinese, I get steamed broccoli with jumbo shrimp. You can ask

for any order steamed, Chinese restaurants and Italian restaurants are usually

very accomodating. Stay away from chain restaurants where everything is

fixed, processed and laden with sauces.

It is hard when you start, but gets easier as you get used to it.

Many of us are doing it, you are not alone.

Terry

************ **It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information. travel.aol. com/deals? ncid=aoltrv00050 000000047)

[Guest guest]

Hi ,

Welcome to the club! Bee's diet does work. Don't ask me how I

know .. I just know! There is something deep within that tells me

that this is right way, I guess.

I'm a student, too, so I know how money can be tight. You know, you

probably don't really need those naturopath visits because really,

you can do all of Bee's plan yourself. If you have any questions, we

are all here to help, especially Bee, who is marvelous!

Have you read all the email links you got when you signed up for this

group? If not, start reading here:

http://www.healingnaturallybybee.com/articles/menu2_8.php

This will tell you how to successfully overcome the candida nasties.

There are also links on Bee's website for the proper supplements to

get (not so much brand names, but what dosages to look for and

ingredients to stay away from).

I was also a vegetarian for 16 years. If you want to get your

candida under control, you're going to have to give that up. Sorry,

but it's true. I know it's hard (trust me!) but you have to. Hey,

at least you won't have to be a pain " in-the-ass vegetarian " at your

husband's family's Thanksgiving celebrations - you can go ahead and

eat the turkey!

That was one that really bothered me when I thought about being on

this diet - that I would never be able to have cake on my birthday or

enjoy a treat now and then - but Bee says we can have 1 cheat a week

and it won't set us back too far. I just find that is a little

easier to handle than never, ever having another piece of junk food

again. But you know what? I've been on the diet a few months now

and when I do have the cheats, I don't really enjoy it as much I

think I will. I imagine that will continue until even the thought of

those foods will be repulsive (hey, a girl can dream..!).

Also, if you're not eating meat and good fats, it could explain a lot

of issues with cravings.

Anyway, if you want to email offlist to find out more about going off

being a vegetarian, I would be glad to help you. It was a huge

struggle for me. I also don't mind doing it onlist, but I'm sure the

rest of the group is sooooo sick of me and my story! You could also

look for me in the message archives. Do a search for vegetarian or

vegan. You will there were lots of us.

Let us know how you are doing!

>

> hi:

>

> i've had candida for what feels like forever (at the very least four

> years, perhaps as long as ten). i finally went to the naturopath a

> couple of months ago; she put me on the candida diet as well as all

> these supplements. long story short, i'm a dirt poor student so i

can

> no longer afford the clinic visits or supplements. i went off the

> diet briefly in an act of rebellion and my symptoms came roaring

back within a few days. basically, i need some major support getting

through this!!!

<snip>

see, it's this that causes me to despair. what do i do

> during thanksgiving at my husband's folks house? i'm already a

> pain-in-the-ass vegetarian; i absolutely cannot imagine telling them

> about the yeast problem.

<snip>

> stephanie

>

[Guest guest]

Hello!!!

Welcome. I'm new here too. Only started the diet few weeks back &

trying to cope with the die-off.

There's loads of information on Bee's website & everything is quite

clearly written & very systematic.

However, a point to note, if u are vegetarian, I'm not sure if can

still continue being vegetarian & following the diet. I'm sure someone

will clarify that. Anyway, I hope u take eggs coz you'll be eating lots

of them!

Smiles & hugs

Shirin

> i'm already a

> pain-in-the-ass vegetarian;

[Guest guest]

You're not alone, I always noticed my daughters mild flat spot and knew that she had Torticollis, but never noticed her asymmetry until one day.. and then it was like, 'wow! how did I not see that?!'.. followed by wondering if I was crazy and just seeing things. Seeing it in photos and measurements at Cranial Tech really helped.

 

Kim

On Sun, Jun 7, 2009 at 9:06 PM, turtlefish1 <turtlefish1@...> wrote:

My 6 1/2 week old son, Kai, has not yet been diagnosed with positional plagiocephaly, but my husband and I just realized this morning that he has a fairly pronounced asymmetry in his ears and forehead when his head is viewed from the top, like an aerial view. His head shape clearly looks like a kind of parallelogram. Also, we noticed right from birth that he favors his right side, constantly sleeping that way and tilting his head that way. Being that it's Sunday, we have not spoken to his pediatrician yet. I'll be doing that in the morning.

I feel kind of surprised that I didn't really notice his head shape until today. Now that I look at him, even head on, I can see it. Thanks for reading.

[Guest guest]

You caught things very early. Now you need to see if repositioning him can help

resolve the problem. Most babies aren't banded until 3 mo or so. It definitely

sounds like your baby has torticollis. With tort the neck muscles are tight and

the range of motion is restricted causing your baby to favor one side. The

favoring one side (always turning or tilting to the right for example) will be a

big contributor to plagio. If tort is involved you will need physical therapy to

resolve the tort. The PT consists of stretches that the therapist teaches you to

do at home - and monitors your progress.

You should visit your ped and get a referral to a physical therapist experienced

in treating infants with tort. Also you can check out the repositioning tips in

the files section to help keep the flat spot from getting worse. the main goal

is to keep the baby off the flat spot to the extent possible. Avoid putting the

baby in a bouncer, swing etc if possible since those things put pressure on the

head. Try a carrier or sling. There are lots of tips here from other moms.

-christine

sydney, 3 yrs, starband grad

Keep us posted.

>

> My 6 1/2 week old son, Kai, has not yet been diagnosed with positional

plagiocephaly, but my husband and I just realized this morning that he has a

fairly pronounced asymmetry in his ears and forehead when his head is viewed

from the top, like an aerial view. His head shape clearly looks like a kind of

parallelogram. Also, we noticed right from birth that he favors his right side,

constantly sleeping that way and tilting his head that way. Being that it's

Sunday, we have not spoken to his pediatrician yet. I'll be doing that in the

morning.

>

> I feel kind of surprised that I didn't really notice his head shape until

today. Now that I look at him, even head on, I can see it.

>

> Thanks for reading.

>

>

>

[Guest guest]

hi - i hope your husband does well - i just went for a biopsy today for lung

cancer and will know the results friday - needless to say i'm on pins and

needles - i went on this sitee for much needed support - helen

Hi,

I am new to this group. My husband has been diagnosed with Non Small Cell Lung

Cancer at the end of August. Since his tumor has remained stable and exhibits no

growth, he is trying to control the cancer without chemo or radiation. He has

been on the Budwig Protocol for about 8 weeks and he also takes some other

supplements. He feels pretty good but his one huge problem is constant

heartburn. He has tried Apple Cider Vinegar and that has not worked. He has

tried l-limonene and it has not worked. I would love to hear any suggestions

from anyone out there who has dealt with this. He is trying to stay away form

conventional medications.

Thank you for any and all suggestions

Nili

[Guest guest]

Hello and here's the same advice given to another last night (tonight). Of

course the biopsy may tell you what you are dealing with but whatever you do,

stop cold.........research............do not be rushed into anything without

really looking hard. Think Pau d' arco and as suggested by an 'expert', drink

Copious amounts of the tea which you brew yourself and think the soup mentioned

below. By the way, the Pau d' arco suggestion should have been made below as

well. Now it's off to bed. I've already taken my LDN, something many are

taking to help defeat their cancer. If you really aim towards conventional,

think RFA (radio Frequency Ablation) provided you are a candidate. It is a

process whereby a probe is inserted in a very small incision and then into the

tumor, provided the tumor fits the scheme, and it is 'cooked' to death. I

suspect it is expensive and probably not covered by Insurance. They may also

require you undergo Surgery and radiation first........but I'm not sure.

Good luck, and Good Night

Joe

'Nili, after checking with the Budwig 'experts', find out whether or not

digestive enzymes, which I take, conflict with the protocol.

Often people's digestive juices are less than needed and some supplementation is

needed. Betain Hydrochloride is helpful too. Again, be sure it does not

conflict with Budwig. You do not want to 'change' the program unless you

already are.

Be sure the Flax Oil is top quality and kept refrigerated after opening and as

Fresh as possible. In the past, Barleans has given discounts to anyone

diagnosed with cancer. They can also be found online.

While at it, and this should not conflict with Budwig, and something an 'expert'

on this list has suggested for Lung Cancer is the consuming of Sun Soup. Odd

name but it is the name of the doctor that discovered its benefit. I believe

the important ingredient is the Mung Bean. The recipe can be found on line.

Since it is all 'natural' food, why wouldn't one give it a try?

Good luck to you and your husband,'

[Guest guest]

check out Johanna Budwig protocol...many successes. best and God bless.

FlaxSeedOil2

nadlerrichard writes:

I'm 59 yrs old male, live in Regina, Saskatchewan, Canada, married to a

wonderful supportive wife for 6 years. Between the two of us we have 7

children, now on their own, but none with each other. I'm an only child, father

died when I was 14 yrs old and my mom, 85 yrs old, has just been told she

likely has Sarcoma Cancer in her vagina. Biopsy has not been confirmed. She

has had a quadruple heart bypass about 4 yrs ago so surgery is risky plus

they may not get all the cancer. We need alternatives that are not costly. We

have spiritual support and we understand laughter and diet are important.

Help with cures that work will be helpful. We understand this kind of

cancer can be very aggressive. Thank You.

[Guest guest]

You might consider 2 in addition to this one ( .)  Check

out LDN_4_Cancer, and oleandersoup

Best of luck!  Jan

I'm 59 yrs old male, live in Regina, Saskatchewan, Canada, married to a

wonderful supportive wife for 6 years. Between the two of us we have 7 children,

now on their own, but none with each other. I'm an only child, father died when

I was 14 yrs old and my mom, 85 yrs old, has just been told she likely has

Sarcoma Cancer in her vagina. Biopsy has not been confirmed. She has had a

quadruple heart bypass about 4 yrs ago so surgery is risky plus they may not get

all the cancer. We need alternatives that are not costly. We have spiritual

support and we understand laughter and diet are important. Help with cures that

work will be helpful. We understand this kind of cancer can be very aggressive.

Thank You.

[Guest guest]

I had a soft tissue sarcoma of the agressive type and I use the Budwig Protocol

to get my cancer numbers down and keep the sarcoma away as I had surgery to have

it removed but had close margins. It's working so far. No reoccurance in 5

months and I have seen a drop in my cancer numbers in four months. I feel

amazing as well. There are a few others with sarcomas on the Budwig group who

have completely shrank their tumours using Budwig exculsively. I would get her

started on it right away. Join the budwig list that others have mentioned.

Check out http://www.healingcancernaturally.com/budwig_protocol.html

Since you can't do blood tests to check cancer levels with a sarcoma I would

monitor her levels with the Navarro test.

http://www.new-cancer-treatments.org/Articles/Determine.html

I would encourage you to try to get her to stick to the Budwig strictly and stay

on it for life.

A few other things I have found that work with sarcomas is Hoxey Herbal

Treatment. It only costs $3500 for a lifetime supply. You have to go to Mexico

to get it though but you can do it on her behalf as long as you bring medical

records ect. http://www.cancure.org/hoxsey_clinic.htm

Also http://www.altcancer.com/index.htm has good herbal treatments that seem to

work for sarcomas.

Hemp Oil is one to look at as well.

I would also get her on Modified Citrus Pectin right away to make sure the

cancer doesn't spread as biopsy's unfortunatly can make the sarcoma spread.

Once you puncture the tumour the cells are able to travel. Happened to me. Had

one tumour for a year with no spread and as soon as I had a biopsy I had 3 pop

up in a month. This combination could help with spread and killing the cells as

well.... 6g (6000mg) of vitamin C, 6g (6000mg) of L-lysine, 3g (3000mg) of

L-proline and 1g (1000mg) of EGCG. Google Dr Rath+cellular for more info on

this.

Hope this all helps.

>

> I'm 59 yrs old male, live in Regina, Saskatchewan, Canada, married to a

wonderful supportive wife for 6 years. Between the two of us we have 7 children,

now on their own, but none with each other. I'm an only child, father died when

I was 14 yrs old and my mom, 85 yrs old, has just been told she likely has

Sarcoma Cancer in her vagina. Biopsy has not been confirmed. She has had a

quadruple heart bypass about 4 yrs ago so surgery is risky plus they may not get

all the cancer. We need alternatives that are not costly. We have spiritual

support and we understand laughter and diet are important. Help with cures that

work will be helpful. We understand this kind of cancer can be very aggressive.

Thank You.

>

>

>

>

>

[Guest guest]

Welcome to the group Kristy, I'm sure you'll find a lot of support and understanding here. Thanks for giving us the opportunity to share your experiences and support you ! Kate

From: kristyray@... <kristyray@...>Subject: ( ) I'm new Date: Tuesday, February 16, 2010, 10:06 AM

Hi, I'm Kristy and new to the group as well as the Aspergers community. My oldest ds, who is 6, was just diagnosed in Dec. I actually self diagnosed him after noticing a couple things that just weren't "right" but it took quite some time to get him in to a specialist for an evaluation.There just aren't any support groups locally, so I thought I'd try getting in touch with others online. The road so far has been an emotional one, with, at times, unexpected twists and turns. Intellectually I know my experiences aren't completely unique, but it's difficult to shake the feelings of loneliness. In fact, my closest friend has "dumped" me because of my child. I knew we were in for some tricky friend situations for ds over his school career, but man, I wasn't prepared for this to affect my friendships. I've resolved myself to grow a thick skin, as I'm sure we'll likely deal with similiar

situations over the years.------------------------------------

[Guest guest]

That close friend must have been pretty shallow and yep a thick skin can be useful. There are lots of great guys on here with some great help and suggestion for you and your child. Welcome to the group.

Lor B

From: kristyray@... <kristyray@...>Subject: ( ) I'm new Date: Tuesday, 16 February, 2010, 16:06

Hi, I'm Kristy and new to the group as well as the Aspergers community.. My oldest ds, who is 6, was just diagnosed in Dec. I actually self diagnosed him after noticing a couple things that just weren't "right" but it took quite some time to get him in to a specialist for an evaluation.There just aren't any support groups locally, so I thought I'd try getting in touch with others online. The road so far has been an emotional one, with, at times, unexpected twists and turns. Intellectually I know my experiences aren't completely unique, but it's difficult to shake the feelings of loneliness. In fact, my closest friend has "dumped" me because of my child. I knew we were in for some tricky friend situations for ds over his school career, but man, I wasn't prepared for this to affect my friendships. I've resolved myself to grow a thick skin, as I'm sure we'll likely deal with similiar situations over the

years.

[Guest guest]

Welcome to the group....sorry, I am chronically late with reading/replying!

Yes, a thick skin will definitely be needed. You came to the right place though

for understanding. My own mother doesn't, or my husband's mother either.

You'll make new friendships now, so don't worry about losing that one!

TJ

>

> Hi, I'm Kristy and new to the group as well as the Aspergers community. My

oldest ds, who is 6, was just diagnosed in Dec. I actually self diagnosed him

after noticing a couple things that just weren't " right " but it took quite some

time to get him in to a specialist for an evaluation.

> There just aren't any support groups locally, so I thought I'd try getting in

touch with others online. The road so far has been an emotional one, with, at

times, unexpected twists and turns. Intellectually I know my experiences aren't

completely unique, but it's difficult to shake the feelings of loneliness. In

fact, my closest friend has " dumped " me because of my child. I knew we were in

for some tricky friend situations for ds over his school career, but man, I

wasn't prepared for this to affect my friendships. I've resolved myself to grow

a thick skin, as I'm sure we'll likely deal with similiar situations over the

years.

>

[Guest guest]

Welcome to the list, a.  Are you taking LDN now, or just looking into it as a possibility?  On 7 March 2010 23:23, ilovestats77 <mhmilligan1977@...> wrote:

 

My name is a and i am a 32 year old newly engaged female with the following medical conditions

Type 2 Diabetes,

rheumatoid arthritis

Osteoarthritis

Retinitis Pigmentosa

Plantar fasciitis

Chronic Pain,

Hearing Loss,

Enlarged Kidneys,

Enlarged Spleen,

Enlarged Liver,

Asthma,

Polycystic Ovarian Syndrome,

Fatty Liver,

GED/Heartburn,

Hypothyroid,

Obstructive Sleep Apnea,

Iirritable bowel syndrome,

Petit Mal Seizures,

High Cholesterol,

Depression,

Mood disorder

Chronic Sinusitis,

I am looking for support and info

thanks

a

[Guest guest]

PS: I am on Minocycline and you have to be careful not to take dairy within 1

hour before or 2 hours after taking it.

PPS: The severe reaction shows that the meds are working.  However, our llmd,

DR. H, points out to us that you have to strike a balance -- can't get hit too

hard or it's counterproductive.  We found our first LLMD was a little too

experimental and free and easy with our kids -- like our daughter spent 6 weeks

vomiting daily on doxy, and when we switched to Dr. H he put her on Doryx, the

timed-release version of Doxy that she can tolerate.  Why would the first one

not do that?  It's so common sense.  But anyway, so just to day that not all

LLMDs are created equal and it's worth looking for one who is responsive and

responsible.

From: pavone1 <pavone1@...>

Subject: [ ] I'm new

Date: Tuesday, March 23, 2010, 1:02 PM

 

Hi, I'm new here, my 12 year old is being treated for Lyme along with 4

other coinfections. It has been the weirdest and longest 4 months of my life.

Initially we started him on bactrim, He was on that for 3 weeks when we went for

a second opinion he was then put on zythromax, minicycline and mepron. After 5

days of this he ended up in the ER and was admitted to the hospital for 3 days

where they did even more tests only to tell us that they don't know what is

wrong with him but it is not Lyme. We stopped all meds for about a week and he

seemed to be improving a bit. Then we were told to restart more slowly working

him up to 2 zythromaxs a day. He is suffering and I am desperate to know how

long till he turns a corner and shows signs of improvement?

[Guest guest]

Hi Tasha,

Welcome to the forum. I've been on the forum for quite a while now and have

found everyone to be very supportive and lovely.

When my TSH was 9, I was pretty well bed ridden and could hardly move. I

couldn't think straight and found it hard to do simple tasks that had never been

a problem before. Over here in Australia, they start treating you for

hypothyroidism when your TSH is 4 !!!

Please see another GP so they can look into your thyroid issues. If you were

here, you would be given thyroid medication with a TSH that high.

All the best.

P

>

> Hello. I'm new. My sister has hypothyroidism. My TSH is I think 8.6 or

something like that. My T4 has been 10. I had test done before and TSH was 6 and

T4 11 (this is from my memory). My GP says I don't need treatment yet. I am

sooooooooooooooooooooooooooooooooooo tired. What can I do?

[Guest guest]

Thanks for your reply. I think I might try another person in the practice. I

don't go to the doctors very often so don't really know them very well. Maybe

one of the others will help more. Will phone them on Monday.

Tasha

>

> Hi Tasha,

>

> Welcome to the forum. I've been on the forum for quite a while now and have

found everyone to be very supportive and lovely.

>

> When my TSH was 9, I was pretty well bed ridden and could hardly move. I

couldn't think straight and found it hard to do simple tasks that had never been

a problem before. Over here in Australia, they start treating you for

hypothyroidism when your TSH is 4 !!!

>

> Please see another GP so they can look into your thyroid issues. If you were

here, you would be given thyroid medication with a TSH that high.

>

[Guest guest]

Tasha,

Welcome to our happy band! There's a wealth of information here and the

easiest way to find it, is to look in the files on the forum or do a search in

the messages for the topic you're interested in. Your doctor sounds awful and

probably better suited to being a lab tecnician than a doctor! Can you change

to your sisters doctor?

Several countries have a policy where they treat you as hypothyroid once your

TSH rises over 2.5. In this country we are left to struggle for a very long

time as we have a high TSH limit.

Probably a good time to write a letter to your GP and send a copy to the Head of

Practice, letters are generally the best way to get some action.

Go to the files section of this forum and look under hypothyroidism. There is

a check list of signs and symptoms, List all of yours and take your basal

temperatures for 4 or 5

mornings before you get out of bed and list these also, along with a list of any

members of your family who have an autoimmune or thyroid disease.

Request tests for thyroid antibodies to see if you have hashimotos disease, and

Free T3 to see if you are converting from t4. You could ask your doctor for a

'trial' of thyroxine and also ask for a referral to an endocrinologist of your

choice - your GP is NOT a specialist and you are entitled to a second opinion.

·Ask for your letter of request to be placed into your medical notes and a

response in writing, If you let the doctor fob you off at this point, you could

have years of feeling worse and worse.

Do some research on endocrinolgists before you confront the doctor.

Many specialise in diabetes which is not what you want. Look at your local

hospitals online and find the names of their endo's, then look them up on the

register of medical practitioners: http://www.gmc-uk.org/doctors/register/ to

check out their specialisms. There really are some who specialise in thryoid,

but you will have to search.

Alternatively have a look on:

http://www.drfosterhealth.co.uk/consultant-guide/.

You don't have to see an endo of your doctor's choice, if there isn't a local

specialist there shouldn't be a problem seeing one outside your area. (apart

from the travelling).

You also need to pay special attention to vitamins and minerals as if any of

these are low, it affects your thyroid uptake and conversion : Zinc, copper,

Magnesium, Vitamin C, D3, Folate and Feritin (stored Iron), also systemic

Candida can cause havoc.

It's all a bit overwhelming, but just take your time and do your homework, you

have nothing to lose and lots to gain.

Good luck!

.

>

> Hello. I'm new. My sister has hypothyroidism. My TSH is I think 8.6 or

something like that. My T4 has been 10. I had test done before and TSH was 6 and

T4 11 (this is from my memory). My GP says I don't need treatment yet. I am

sooooooooooooooooooooooooooooooooooo tired. What can I do?

>

> The board has a lot of information but I find it hard to read. Is there an

easy way to get round it and look for topics?

>

>

[Guest guest]

No worries Tasha,

If you like, you can mention that 'someone you know' (which isn't entirely

incorrect because we now 'know' each other on the forum!) had a TSH around your

level and were quite unwell until they were given thyroid replacement hormone.

I still have issues, but they improved a bit after taking the hormone.

P xo

............

Thanks for your reply. I think I might try another person in the practice. I

don't go to the doctors very often so don't really know them very well. Maybe

one of the others will help more. Will phone them on Monday.

.................

> > When my TSH was 9, I was pretty well bed ridden and could hardly move. I

couldn't think straight and found it hard to do simple tasks that had never been

a problem before. Over here in Australia, they start treating you for

hypothyroidism when your TSH is 4 !!!..... If you were here, you would be given

thyroid medication with a TSH that high.

[Guest guest]

Sounds to me that you should ask to see an endocronologist. You are tired, and your doctor doesn't think you need to do anything about it? There is a lot of medical stuff on the site that I am learning in baby steps , so I just get a little bit at a time and copy and paste it and save it. There is a ton of stuff to learn for me. So ask him for a specialist. And good luck, I can almost feel your exhaustion and desperation.

Banana

[Guest guest]

Hello Tasha - don't try to read too much - concentrate on asking

specific questions on the forum. As you receive answers (or at least, we will

try to find answers if we don't already know them) you will find that little

bit by little bit - you will begin to understand.

First, doctors in the UK are too scared to give you a diagnosis

of hypothyroidism or start you on treatment. This is because the Royal College

of Physicians, together with the British Thyroid Association have, together,

decided that no doctor must do this if their thyroid function tests are within

the normal reference range. ONLY, their reference range for TSH is NOT normal.

It is 0.5 to 10.0 - the widest range in the whole world. Some people can have

terrible symptoms and signs, some bed ridden or wheelchair bound, some having

had to leave paid employment because their TSH is within their 'normal' range -

some people's TSH never rises, no matter how ill they have become. This is

unbelievable cruelty - and even though there is plenty of scientific evidence

around, they refuse to take it into account.

In America, their TSH ref. range is 0.3 to 3.0 - in Germany and

Belgium, their TSH ref. range is 0.3 to 2.5 - with a recommendation the upper

level be dropped still further to 1.5. In Sweden, their endocrinology specialty

has just recommended that their TSH ref. range be dropped also to 0.3 to 2.5 -

so now, can you see how appalling it is that doctors in the UK will not

diagnose you and therefore, give you no treatment until your TSH is ABOVE 10.0.

What you need to do is to write to y our GP (this often works).

List your symptoms and signs.

List the members of your family who have a thyroid or autoimmune

disease.

List your basal temperature taken before you get out of bed for

4 or 5 mornings.

List the thyroid function blood tests you need - these are free

T4, free T3, TSH and a test to see if you have thyroid antibodies.

List other blood tests you need to see if any of them are low in

the reference range: these are ferritin, magnesium, vitamin B12, vitamin D3,

folate, magnesium, copper and zinc. Tell him that you are aware that if any of

these are very low, your thyroid hormone cannot be properly utilised by the

cells.

Tell him that you wish for a second opinion and would like a

referral to a doctor of your choice - - you can choose who you would like to

see, especially if there is not an endocrinologist who specialises in thyroid

disease within your area. Ask for a copy of our list of doctors.

Tell him that you wish your letter of requests to be placed into

your medical notes, and send a copy to the Head of Practice in case your doctor

decides to screw it up and throw it in the bin - yes, this has been known. You

need a record of everything.

Also, last but not least, ask for a copy of all your thyroid and

other blood tests. You need to keep a copy of these with the reference range

for each of the tests.

Good luck.

Luv - Sheila

From: thyroid treatment

[mailto:thyroid treatment ] On Behalf Of nataliajones@...

Sent: 07 May 2010 13:50

thyroid treatment

Subject: I'm new

Hello. I'm new. My sister has hypothyroidism.

My TSH is I think 8.6 or something like that. My T4 has been 10. I had test

done before and TSH was 6 and T4 11 (this is from my memory). My GP says I

don't need treatment yet. I am sooooooooooooooooooooooooooooooooooo tired. What

can I do?

The board has a lot of information but I find it hard to read. Is there an easy

way to get round it and look for topics?

I joined another forum (thyroid-disease.org) but it seems to have gone.

Hope to hear from someone soon,

Tasha

No virus

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18:26:00

[Guest guest]

Hi Natalia, This is far too high you should be on treatment NOW a healthy person has a TSH of around 1.0 . Have a look at the symptoms list in the files and ask you doc to review his decision as you can't cope like that any more, or ask for a referral to an endocrinologist. If he starts to tell you you are depressed then say it's because you are ill and that is enough to depress anybody- antidepressants won't help a failing thyroid. Try reading the files so you undertand a bit more- i know it's hard when you have brain fog, but that's all part of the whole thyroid thing. You can follow threads from the website if that helps. > thyroid treatment > From: nataliajones@...> Date: Fri, 7 May 2010 12:49:38 +0000> Subject: I'm new> > Hello. I'm new. My sister has hypothyroidism. My TSH is I think 8.6 or something like that. My T4 has been 10. I had test done before and TSH was 6 and T4 11 (this is from my memory). My GP says I don't need treatment yet. I am sooooooooooooooooooooooooooooooooooo tired. What can I do?> > The board has a lot of information but I find it hard to read. Is there an easy way to get round it and look for topics?> > I joined another forum (thyroid-disease.org) but it seems to have gone.> > Hope to hear from someone soon,> > Tasha> > > > ------------------------------------> > TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication.> >

[Guest guest]

Thank you .

I am going to book an appointment with a different GP and try this approach. I

will keep you all informed

Tasha

>

>

> Hi Natalia,

> This is far too high you should be on treatment NOW a healthy

person has a TSH of around 1.0 .

[Guest guest]

Hi Tasha,

Just another " welcome " ...I can imagine how tired you must be - I wish Gps were

better at recognising the problem earlier - am sure they cannot really

understand quite what it is like with a tsh that high. Just wish they got their

silly guidelines revised so we could all get access to treatment more quickly!

Good luck when you see the GP - there are lots of people here who have expertise

to offer and many helpful ideas to give support in gaining access to relevant

treatment, as you will not doubt have found with input from Sheila and ,

Vicky

>

> Thank you .

>

> I am going to book an appointment with a different GP and try this approach.

I will keep you all informed

>

> Tasha

>

[Ed]